thank you this gives me hope. i think my diet is mostly fine, but i'm definitely a hypochondriac. my VSS started when i was unemployed and had a dwindling social life, so it's probably connected to my mental state. i managed to see a neuro-opthamologist, but he wasn't much help. i'll try the tumeric + black pepper on my food, thanks!
Can vs cause blindness or can it progress from mild to sever vs Because i have very mild but i am stressing very much about it and about palnopsia also so can you please tell me about this please
Take vitamin b12 and folate supplements, for me they don't stop it completely but at least reduce those black holes that pop occasionally in my vision. Also, make sure to not take the cyanocobalamin version of b12. Take either methylcobalamin or hydroxocobalamin.
Very good video Jack. I agree in all those points. I have VSS for about 17 years now and i am 34 years old. I had many episodes where i thought that i will never be able to drive car again, go to work, watch tv, and so on. I missed more than a half year at work and couldn´t leave my home because of bad panic attacks. Once i realized that it can´t get more worse i started to accept it and i wanted to live and started playing games on my laptop. the first session was less than one minute, i couldnt do it but i forced myself every day to play this games & tried as hard as i can to focus on this stupid game. Every day it was better an better and about 2 months later i was able to play 3 hours without a break. I had so much panic to sit in dark rooms or was not able to go out in the evening. But i forced myself and went out, first 100m, months later 10km in one night. To make it short now, the best is to accept it and move on. Dont let yourself down. I still have episodes where its worse and the anxiety comes back, but i try to remember that i went throuh hell and am now functioning.
You’re welcome to watch my videos. The course is for people who want more information and constantly message me. I also have to pay for the course to be on the internet mate I’m not a charity.
Excellent final video Jack, I'm a fellow young aussie who was most likely born with VSS, and I've also gone through stints in my life where I've reacted badly to my symptoms even though I spent all of my childhood and early teenage years never even knowing what I saw wasn't normal. So I deeply resonate with your story and your views on VSS, I too only started dealing negatively with my VSS after I learnt about it from online research and was told "this is really rare, and not normal". I myself have also tried on many occasions to help others in the community with their own VSS but it's incredibly difficult when so much of the online forum groups, subreddits, Facebook groups are SO negative and quite dark. People just don't want to be told that there's no cure, there's no real treatment and that you have to learn to live with it, some just won't accept that. You end up with a few people agreeing with you, and then the majority just point their fingers and spill their anger and frustrations at you because "you obviously don't have it bad" or "you've had it for life so you don't compare to me". I wanted to create my own video sharing my own story out of inspiration from yours about a year ago, mainly because your views and opinions align so similar with mine, and I stand firmly in belief that VSS isn't a rare condition at all, I believe a good portion of the worlds population have it but don't even know about it because they've never learnt about VSS. There needs to be MORE people spreading positivity and hope and letting others know that you don't have to SUFFER with VSS, and that it does get better if you allow yourself time to rechange your mindset and how you react to your symptoms. Thank you for still doing your part to help spread a good message about VSS, you're an absolute legend buddy! P.S - just remember people, VSS isn't going to kill you, there's no definitive proof that it's degenerative and that it'll get worse over time, and just stay humble in knowing our situations could be a lot worse and there's plenty of people out there dealing with really SERIOUS conditions that'd trade all of that just to have VSS in return.
I have heard from a lot of research that VS is a symptom of a dysregulated autonomic nervous system. Which explains why it’s particular in people who have anxiety and therefore, a dysregulated nervous system. What do you think of this?
@@AUZwingmann yes 100%. If you have anxiety and chronic stress, it will screw up your nervous system and that affects your central nervous system/gaba glutamate functioning. I speak of this in the course I developed.
Did you know I also have a course you can do to overcome your VSS? jack-s-school169.teachable.com/p/let-s-overcome-visual-snow-syndrome-and-find-happiness-again#
Did you know I also have a course you can do to overcome your VSS? jack-s-school169.teachable.com/p/let-s-overcome-visual-snow-syndrome-and-find-happiness-again#
Did you know I also have a course you can do to overcome your VSS? jack-s-school169.teachable.com/p/let-s-overcome-visual-snow-syndrome-and-find-happiness-again#
Did you know I also have a course you can do to overcome your VSS? jack-s-school169.teachable.com/p/let-s-overcome-visual-snow-syndrome-and-find-happiness-again#
Did you guys know I have a course to help you overcome VSS? jack-s-school169.teachable.com/p/let-s-overcome-visual-snow-syndrome-and-find-happiness-again#
I have eye floaters (that’s been its own spiral) and something that’s been getting to me for the past few months. When i first spiralled, i heard of visual snow and panicked and put myself into a hole and went to Reddit (everyone advised me to get off Reddit because it’s worse for you- someone actually send me the link for this video and advised I watch it to calm me down). My eyes are healthy I’ve had them checked. Around 2 days ago I saw a tik tok identifying visual snow and convinced myself I have it again. I have headaches and also have tinnitus (ears have rung for as long as I can remember so it isnt related) and have now convinced myself I have visual snow. I live in a house with all white walls and when I look at the walls convinced myself the white looks grainy. When I look at a blue sky my eyes are a mess due to my floaters but all I see is glitter esque particle (think Edward In Twilight) anyway. All I’m saying is I’m fine until I have time to hyper fixate then convince myself i have these problems. I don’t know if I do or if I’m just paranoid and questioning what I’m seeing. All of this has come from my floaters. You can’t help but question what you see.
I have suffered for 40 years from visual snow, and for 30 years from illusory palinopsia. Nowhere have I found symptoms like these, and for decades I have lived with the belief that I had some terrible neurological degeneration that would lead to my death, precluding any kind of future. now I know that these are more common symptoms than I thought, and that it is not some nameless curse. thanks for the video, we will defeat these shitty symptoms! 💪💪
I do have OCD and anxiety and have all these symptoms so it's hard to disagree with you. The idea of these symptoms being physical manifestations of poor mental health is not something I would rule out at all.
Can we drink turmeric and black pepper in morning in warm water and how much? I am an Indian and all our dishes have turmeric already. But my symptoms flare up.
It’s exactly how you describe it, i was so scared to take medication because i was scared to make my vs worse. And that wasn’t the case it hasn’t gotten worse I’ve taken medicine for various reasons. And it’s never gotten worse and I haven’t lost my vision.
Good stuff! Specific information about lifestyle changes for VSS can be difficult to find. I felt great while I was drinking golden milk daily! Great anti inflammatory recipe.
This is fine and dandy as advice as for the majority of people the effects are minor and it's nothing to worry about indeed, but I do wish to say that the OCD and anxiety link is made with a bit too much force. I mean there are also people whose symptoms are so bad they are unable to read and it's debilitating. Just telling them to ignore it doesn't help, we still need to have this thing taken seriously and properly researched etc.
What choice do they have? The outcome remains the same for them whether they choose to ignore the symptoms and live with it, or hyper-fixate on something that has no cure or effective treatment. Ignoring the symptoms and choosing to accept it, is a much better way to live. There is no cure, there is NO CHOICE but to move on from it.
@@thatshillarious There will be a cure in the future most likely if enough energy is spent on developing one, so being vocal about how problematic this is for some will help spur research, will keep it on the agenda. So while your argument works for many, it does not fit every case and you left little to no space for that. I don't think it's worth discussing this as it is completely reasonable feedback I give. I do not disagree with your general point that it is not very helpful to those with minor complaints to make a big deal out of visual snow.
along w VSS and flickering, I get Alive in Wonderland badly with stress or lack of sleep. yes, those problems are also neurological. the tips in the video help, especially getting healthy sleep and exercise
I genuinely don’t think these are compulsions for me. I’ve only dealt with three maybe four flareups and I am extremely confident that improving my diet with low inflammatory foods and -anti inflammatory foods it helped.
Thank you so much, I'm going thru a flare up I have been dealing with the snow for two months now, the biggest symptom is the light sensitivity I constantly have to wear sun glasses, the ringing in the ears is minimal but I get spikes I believe the has been coming to a head for years I had after emages for at least three years and never knew what they was
Great video. The first one I ever got to watch about this condition after the symptions begun to appear and Doctor Google pointed it out. I have an appointment tomorrow with a real Doctor to try and have this diagnosed, or whatever else I might have.
Thank you jack, i had most symptoms but not that bad till i awakened one morning a little bit more than a month ago, i had static and tinnus it really freaked me out , i am learning to live with it the light sensitivity is the worst and the ear ringing i am trying hard to continue working i drive a medical 15 passenger bus i have 20/20 vision i had a full eye exam all is well there, thank you for your videos please make more thank you
Your story has helped me to get a push towards moving on , I'm only a little bit over a month in but I have worked every day driving for a bus transit organization I wear my sunglasses and block out the symptoms as much as possible, thank you sir you rock
