I believe my mother has FTD, and because I know my mother very well I know she does not want to! I know my risk is high I also do not want to know if I have the chance I guess I will follow in mother footsteps however I have no wife or children I stand to be alone with this thank you for sharing what you do know! RIP to his dad if it happen 7 years is a long time!
Picks disease killed my father in law and his mother. I suspect my husband is developing it due to personality changes. He refuses to get the genetic testing done.
Is M.A.I.D. available as an option if I were to ever get FTD ? I am single and have no family. I would not want to live with something that would only get much much worse and has no possible cure . 💔😢
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms. My Dad is well again🔁🔁...
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms. My Dad is well again🔁🔁...
i believe with all of my heart my mother has this terrifying and humiliating disease. She literally lost her mind, and I didn't know what the fuck was going on and i refused to allow her around my kids anymore. So she tried kidnapping my eldest daughter and sued me in court. I can't believe this happened to me and my kids. My Mother doesn't see anything unusual about her behavior. It's wild.
I think my Mom had at 90 had 10 yrs ago. she turned on me as I was her caregiver. accused me of stealing her $. I was investigated. she left everyrhing to my brother. pretty sure he has gambled away by now. still love and miss her.
Where are you? Where are all the doctors and advisors that helped you? I don't have any thing lilke what you have. Thanks for the tips tho. Beverly is the patient, We set up the account in her name bc it's a Google acct.
My dad flew fighters and served as a JAG attorney in the Air Force, then went into private practice after retiring and taught school for 20 years. a brilliant man. he was diagnosed with svPPA 2 days ago. we've noticed his inability to form complete sentences for a while, now. we just thought he'd become a befuddled old man. when the neurologist said dementia, i almost lost it. i am terrified.
Back in the 70's my grandmother could talk for hours on the phone but not saying who the caller was. Dementia was not yet diagnosed. We watched a slower regression until she her daughter's funeral. It was like a blind came over her memory. 10 more years we had her, but she was a shadow of herself. Dangerous things, my grandmother loved to hide scissors in weird places - we would find under cushions & between sheets in the linen cupboard.
My very bright mom got this and went into all the stages of dementia. Unfortunately it was a 10 year journey It is very hard to see someone you love go through this disease. It is awful to watch your loving mother fade and not even know you
You are so lucky to have received so much support. I did not. I came home to a loaded hand gun on the kitchen table. My husband spent my entire pay check for 2 wks except $500.00 & couldn't tell me what he spent it on. He started divorce proceeding but hadn't paid the filing fee. I had to petition the court for an involuntary mental evaluation. I placed him in a facility for 2 years then was able to change my work schedule from afternoons to every weekend on midnights as a CT tech in a trauma center. I did this until I retired 2 years ago & he lived at home till he past away in Oct.
I believe that my husband now has this. His entire personality changed so completely that I do not recognize him any longer. He does things that are not right and then denies it. He has been very argumentative and violent. This is a horrible disease to have to deal with - between the Aphasia, motor issues, and behavioral issues etc. it's a total nightmare. I don't know if there is a history in my husband's family.
My 74 yr old brother was recently diagnosed with FTD. Since it also makes you into sex he's gotten involved with r romance scammers. He's given them at leastt $5,000. And there's no way to stop him except to get POA over his finances.
My mother passed the dementia tests in the doctor office with flying colors in April. She is stage 6 dementia. Don't let doctors tell you nothing's wrong. YOU are the best at knowing what's wrong.
My sister died from FTD. after seeing several doctors who were trying to figure out what was going on with her, she was referred to a specialist in dementia. He said there was nothing wrong with her and that getting a job to keep her mind active was all she really needed. My niece and nephew tried hard to explain what it was like day to day for her but they wasted their breath. It was only after she drove straight into the side of a bus that something was done.
My wife has been diagnosed with FTD along with PPA. At this stage nearly everything has to be done for her, I.e. bathing, dressing, etc. I don’t know at what point, if at all, that I will need to admit her to a facility to care for her. One concern is whether I can afford such a facility. If you could speak to this issue, please do. I read that it is expensive, beyond my financial ability, and is not covered by most insurance companies or Medicare. Thank you for your story.
I am Lyn Trojanowski, Dr Trojanowski's older sister. Thank you for your lovely comments. He was an extraordinary person. As you may know there is a symposium/memorial for him September 16 ,2022 at UPenn,
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I feel so bad for this man. I have many medical challenges but noticed I was having a problem verbalizing my thoughts. Words are my thing! Im a reader, voracious even. My dad said my tongue was my strongest muscle. I now have aphasia. Its progressing but slowly. My daughter and I are now experts at charades. You have a family that loves you. Embrace them while you can. 💖
I work in a health care facility in housekeeping, but I interact with these types of residents daily. It's devastating. I feel for anyone who has to deal with this and caregiving is a huge job with a resident with Dementia of any kind. Thank you Jamie for sharing your story with us. Hopefully it will give others a sense of peace. Dementia like this is devastating because the one who has it doesn't have any recollection when it comes to short term memory. So they don't remember what they did, how they did it or even the fact that they actually did it. It's a very sad, disease.
My husband has been diagnosed with vascular dementia. I first noticed things about 7 yrs ago. He has more bad days than good ones. He expects me to take care of him. I'm to the point of just giving up. I'm 78 and he is 77, he is angry most of the time and he threatens me. I'm afraid to place him in a home. I don't think they would keep him because he can be very violent then I would have to bring him back home and that terrifies me.
There are places that will take him. Memory facilities are specifically designed for this. They are equipped to deal with patience with severe agitation. And it will pass. It is a phase that many patients pass through.
