The Optic Neuritis Foundation has been approved by the IRS as a tax exempt charitable organization under section 501(c)(3) of the IRS Code.
Our Mission The Optic Neuritis Foundation, Inc. is determined to increase symptom recognition, augment public awareness, raise funds to support research and provide financial and/or resource assistance to individuals receiving the diagnosis.
I was diagnosed with NAAION in August 2022. Overnight i lost not only my vision, but my life as I'd known it up until that day i simply woke up, no pain, no symptoms beforehand, nothing to indicate i had a problem with my eyes. Devastating doesn't begin to describe this little-known disease
Hi, this is Brian from Uganda East Africa . I need your help please I suffered from meningitis and my eyes got damaged badly what should I do to regain my sight
Ive heard the biggest risk factor is a small cup to disk ratio, a crowded optic disk, and drusen. Those are structural issues that cannot be controlled by the patient. Some are even just born with it.
The medical system failed me. I told several Ophthalmologist and optometrist that it was dry eyes or nothing was wrong with me. I had a lot of these symptoms including blindness in both eyes and once I had Amerosis Fugax. I was failed by the system. Luckily your video gave me some peace and transparency. I know it can’t get worse and can improve. What’s worse is I told an ophthalmologist I saw before that eye drop steroids improved my vision. When I asked for another script he said no 🤦🏿♂️. I’m 3 months into this madness with 3 episodes. And damn near a 4th. My vision is 20/25 in one eye and 20/20 in the other one. But I’m nearsighted and my vision at night sucks. As matter of fact I thought my vision just sucked at night but it’s dimmer in the day time too. Can the brightness be improved on over time with eye drop steroids, healthy diet, reducing risk factors and time?
“Over the next several months, you may see some improvement.” Is that really true, or what’s really happening is that the patient learns to compensate, leaning on the field of vision that was unaffected or least affected?
I'm in the process of recovery ( took 60mg of steroids daily for 3 months but now on 200mg of Azatioprine)from optic neuritis, both eyes affected ( couldn't see with the left while the right was 90% blurry). Different investigations (MRI of the spine and brain with about 6 Different CSF test) were done to determine the underlying cause but nothing was discovered. It as lasted for over 4 months but my vision has improved greatly on both eyes and I'm grateful to God for that.
Thank you for this video. I developed optic neuritis in 1998. My neurologist treated me with IV-steroids which took me from zero vision to 10% visual acuity. I did have an MRI and MS was excluded. I’ve had no treatment of any kind since then. Is there ANY treatment available that would restore my vision even slightly? You did mention acupuncture. (I have no pain). Thank you.
Doctors don’t believe their patients. That’s the problem when it comes to autoimmune disease. If you’re a female, there’s a 99% chance of being diagnosed with anxiety or depression instead of the actual diagnosis, and not the SYMPTOMS.
Women typically have more body fat than men and obesity is associated with low vitamin D levels. Vitamin D deficiency has recently been implicated in autoimmune disorders, so it goes without saying that more women will have more autoimmune disease.
Not a great start that begins with the inter-title gaff, "why DOES my eyes always seem to hurt?"! The information is not bad, and is succinct, but a bit lacking in detail. (And then, again, inter-title grammatical and punctuation sloppiness tends to make one question how professional----or, better, how well thought-out----this ultimately is in detail.) But at least this kind of informational video exists! Better than to not be available at all.
I have optic neuritis but I don't have MS doctor said it was from sarcoidosis disease they were treating me with IV steroids and every time my eyesight returned until that last time the steroids stopped working it's been 2 years My vision just never came back 😭
I was diagnosed with optic neuritis in 2019 , at the month of November when I woke up one day with mild pain in my left eye and blurred vision ( spot like dot blurring my vision while focusing with my left eye) , besides I was suffering from myopia in my right eye but my left eye which was working perfectly fine was compensating my vision. After some day I consulted an ophthalmologist he then prescribed me some test , which I had undergone . I was diagnosed with optic neuritis in my left eye and myopia in my right eye , difficulty in identifying some colours like red for my MRI reports tested negative for MS. Doctors told me have swollen optic nerve due to unknown reasons in my left eye therefore he prescribed me through 5 days course of steroid infusion through iv, for faster recovery and assured me recovery of my vision in 15 to 30 days. Now it’s been more than a year now , I haven’t regained my full vision in my left eye ( colours appear dull when try to see solely through my left eye, blurred spots on things while focusing on them ,degraded night vision)I have glass which compensated for myopia in my right eye . I thing my degraded vision in left eye is permanent!!!!
I experienced NAION 2 and a half years ago. It is obvious that there are controversial (no clear knowledge) what is the main cause of NAION. So I want to express some of my personal observations here. I suffered imputation of 2 biggest toes and frontal parts of the foot on the left leg when I was 5. This was the reason my spine become deformed with time and I suffer constant pains in the whole region of the spine. Also, I suffered tingling in my left hand and left part of my face. At night as I slept on my left side this tingling was stronger and sometimes I felt pain in the entire left part of my head. This was I believe the reason for NAION in my case - and is probably hidden somewhere in my spine in relation to fact that I slept on the left side - this may cause increase nerve pressure in my spine and was the cause of deficient blood circulation in the left side of my head. So it becomes pretty clear to me that in my case NAION had neurological ground and I believe it is possible that most cases of NAION are rooted in health troubles related to the spine. Finally, it was found that the optical nerve in my left eye is decayed and I am entirely blind in that eye consequently. Also, my sight in the right eye is partially effected. I read a statistic that every third person with NAION eventually loses sight of another eye, too, which makes me seriously think about what can I actually do to prevent this bleak outcome. As I said it was pretty clear to me that the way I sleep may be an important factor (besides the leg injury) for my development of NAION. First I have to say that I don't use a soft mattress for years now. Now I decided to try to sleep solely on the back, which was firs unpleasant for me until I rearranged the upper part of my bed so my entire upper body is lifted for about 20 degrees. This way I sleep even better now, and without tinglings or other negative effects. The entire health situation of my back is improved significantly so this gives me at least hope I will not become entirely blind eventually. I realized that sleeping on the back has two significant advantages. First, as we sleep our spine is not curved in any direction out of its natural position, and second, by lying on the back the entire spine is not only sheltered from any coldness we may expose it during the sleeping period but is actively warmed-up and protected from below, by the warm surface of the mattress. I wanted to speak out about this in case somebody may find this information useful.
Video made for people with vision problems, yet significant portions are text slides, with no accompanying read-out audio, on a confusing, low contrast background. Didn't anyone in the production process flag up that might not be the smartest technique?
My son fell ill with meningitis and lost his eyes. He detects some lights though he can't see. He has been under depression and anxiety disorder. Can he get his sight back. He is 23 yrs old. We are from kenya. Please help me.
For yrs i told any eye doc i saw that one eye was as if the lights are down in the room and the other the lights are normal and bright....not one had an answer for me. Seems pretty basic knowledge for an eye doc especially since i was told i have optic neuritis in the eye i complained about. Only thing i was told about the ON is the nerve is inflammed wasnt told any possible symptoms from it. I swear the medical world is ridiculous over paid and under deliver. Constant let downs. Some good docs out there but the system needs an over haul. Glad at 45yrs old i finally have an answer...that i found on my own. Best is i have post concussion syndrome and its affected my vision ...imagine the lack of help there its like i see all these options for tx online through research but none are given to me im told see a neurologist....nobody wants to use their brain to find solutions for a patient i see all kinds of therapies and glasses to wear to help its like docs dont know anything that exists to help.
Sir, I am extremely relaxed after listening to your presentation. I am suffering with Epilepsy from past 9 years and i am under medication from the day one. Recently, one year back i felt aura and i consulted my doctor (Neurologist). During this period i am effected with optic neuritis in one eye. My right eye vision (blurred) has come down gradually. Now i couldn't able to see the sun light directly for 10 sec to 20 sec but later it is getting adjusted. Initially none of the doctors recognised but after 6 months it was diagnosed through tests and they suggested me to use medicines along with spectacles (-0.5 & -0.25 : right and left eye sight). Presently, I am having clear vision with spectacles and on rare occasions there is some disturbances. I hope it will be sorted out with proper medication. Sir, there is no exaggeration in saying that along with your technical points following few points which you stated at the end made me firm. 1. Not to panic 2. Life goes on 3. You need to control this rather than it controls you Thank you sir
Kindly inquire of any treatment of optic nerve & pituitary gland compression of tumor developed outside of the brain. After surgery of the tumor there was loss vision of both eyes. Thanks hope for your reply.
Hello Dr., I am wondering as you didn't mention in your video other causes such as 1/ Alcoholism 2/ Smoking (mainly heavy smoking) as either a causing factors or precipitating others…….!? Let's communicate to interchange ideas & thoughts….. Thanks for your kind cooperation DrSport Moon (F. B. page) Dr. Khalid (Cardiovascular Doctor)
Howdie, My NA_AION eye sees about 10% so my eye is pretty much useless. I have attacked all of the risk factors and on avg patients with unilateral NA-AION have about a 30% chance of having just affected the second eye. There needs to be more education about the condition since many of the risk factors also cause other health issues.
