Since it's formation in 1981, Parkinson Association of the Rockies has been a valuable resource to the Rocky Mountain community, providing direct care services including support groups, in-home case assessment and an information hotline to individuals living with Parkinson's, their families and caregivers, as well as the general community. Over the past 30 years, Parkinson Association of the Rockies has become an active association offering its members and the community tangible and innovative resources that have transformed the way patients and caregivers manage Parkinson's disease.
The Association's future programming includes expansion to regions in the state which are currently underserved. Your contributions will help us realize these opportunities to reach more people with the disease.
Hello doctor hi everybody. My name is Carla I'm in Italy and I would like to know more about about this disease and I would like to know if it's probably normal that I can have it because my family used to have it also
Debilitating disease, and so much to understand about it. My most watched podcast episode is on Parkinson's disease. People really appreciate accurate and reliable information about it!
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms completely💯…My Dad is well again🎉🎉
Please can you you suggest any medicine i had started cyaticica i neglected for three months firstly I had right had I could not lift it was so pain ful
Mam I had too much of alcohol and do smoke more i stopped ten years back and alcohol just after I had been effected by paralysis twice i was using using epilex crono 300 and rozolet 10 since1year
I hadn't thought about the effect of dopamine release as a "reward" for pleasurable experiences. I work very hard at enjoying my life since my diagnosis and the progression of symptoms has been far lower than predicted. However, on the very few occasions where I feel down or depressed my symptoms are markedly worse. Is it possible that my focus on getting maximum enjoyment from what I do is helping sustain natural dopamine levels?
samantha, your talk has been the best, informative talk i've ever heard and the distinctions from 1 category to the other!!! wished we could have had that years ago! i'm attaching my comments which might add to your informative conversation what i've done on my husband's 4 brain AUTOPSIES done to date in 8 yrs!! i'll listen to this again as i was reading/typing during the majority to read your text ;) thanks!! From a wife of parkinson's disease/PD and LEWY body dementia/LBD, whose brain is on its 4th brain autopsy since 2015 with the following diagnosis to date: • Jack Gordon died Nov. 13, 2014 • I donated his body to Des Moines osteopathic college, DMOC, for study purposes. • Due to his dementia behavior occurring, I requested a brain autopsy be done. • “We don’t do that!” • However, they failed to tell me they REMOVE the brains, preserve them correctly, and use for study purposes. • I talked to a lyme disease pathologist 10 months after Jack died; is it too late to have a brain autopsy done? • NOPE, not if they preserved the brain correctly! • • So I contacted DMOC director about this. • They just finished studying Jack’s body day prior and would be cremation would be soon. • That’s when they told me they HAD REMOVED HIS BRAIN. He was a former funeral director and knew how to preserve the brain correctly. • • His brain was sent to Excalibur lab in Norman, Okla. where she cut brain slides sending to 1st pathologist in Florida, Dr. Alan MacDonald. • Alan found that Jack’s brain made worldwide history having 2 diseases, listed 1st below, that no one had ever found together before! • Lewy body dementia causing his visual/violent hallucinations like actor Robin Williams; • Neuroborreliosis/chronic LYME disease; • Plus another tick-borne diseases: borrelia miyamotoi/relapsing fever; • And shocking was 24 nematode parasitic roundworms having LYME disease inside of them! • Jack was never outside USA; just adjoining states. • Alan promised me he would write this up as a case study and get it published in a medical journal with ME as the 1st co-author followed by 3 others involved in the procedure. • Alan didn’t get this done as his brain acted up where he suffered frontal lobe dementia unable to do anything. • So I sought 2nd brain autopsy with Univ. of Minn., Dr. Marna Ericson. She found lyme and bartonella/cat scratch disease 2 species. • She filed to publish as well. • • Then I heard about NDRI, NATIONAL DISEASE RESEARCH INTERCHANGE from a lyme dr. • • I completed the 2-16 page Q/A; his brain was accepted by them where they did some initial work. • • Then his brain tissue went to BAY AREA FOUNDATION'S BIO BANK where researchers contact them for the types of specific research they want to do with the donated tissue/body parts. • • 3rd brain autopsy done in New York City’s Columbia Univ. Tick-borne disease research center, TBDRC, by Dr. Andrew Dwork with them getting done last Nov.-Dec. 2022. • They work directly also with NEW ORLEANS TBDRC Dr. Monica Embers, who have had his brain since NYC finished. • Last week, Oct. 3, 2023, the BIO BANK ORGANIZER informed me that 8-10 researchers are studying Jack’s brain with each one having a specific part of the brain they are researching! • She was hoping to get 2-3 more who are experts in areas not being looked at! • She stated, “It’s like looking for a needle in the haystack”. • I supplied them with 300 medical records from McFarland clinic and MGMC out of a disk with 900 records. • I gave them copies of the 2 previous autopsy test slide results also. • This has been an 8 year project to date. • • New Orleans studies everything 3 times with microscope before moving on. • If they find something NEW, that brain tissue will be returned to NYC to see if they find it also. Then the 2 TBDRC’s will write up a combined case study to get published in a medical journal. • NOTE: Jack was NEVER diagnosed with any of the above diagnosis while being examined by clinic drs. in 35 years. • He was NOT diagnosed with Lewy body dementia by Mike Kitchell despite my telling him over & over about Jack’s habitual violent/visual hallucinations. • • Do NOT give them amantadine; that gave my husband, Jack, extreme visual/violent hallucinations. • Jack had delirium while in MGMC and slapped a RN. She called me to come up to be with him. • • I spent the night with him in old hospital on that horrible rollup bed with worse mattress. • I called Mike at home to come and see Jack due to his extreme behavior occurring; he didn’t. • We later talked about this at a regular appt. He said I should have contacted him due to his delirium; I did! • • Also, Jack got hooked on the amantadine; Mike said to take Jack off it but the side effects were worse than the hallucinations he was having. • His heart was racing really bad and so much more happening. • Jack decided he would rather stay on amantadine vs. everything else he was experiencing. Why have I pursued having these many brain autopsies done to be written up as a case study and published in medical journal: • Helping the PATIENT/family for the case study to help their family of what might be happening to them/their loved ones. • Educating drs. To LOOK for and TREAT Lewy body dementia and ALL tick-borne diseases early on. • I asked 1 clinic neurologist on treating their parkinson’s patients IF they are looking for and TREATING parasites…NO he doesn’t. • • The clinic failed me for 35 years of giving me the runaround vs. saying, “it’s all in her HEAD” vs. testing and treating me with tick-borne disease specialty labs. • I had 2 knee biopsies taken and sent to Mayo Clinic; came back “unknown bug bite”! Betty Gordon, Ames, Iowa widow 53 yrs. With chronic lyme disease/bartonella Misdiagnosed 35 yrs. By 40-50+ McFarland clinic drs. This is our story; I’m sticking to everything I typed above. facebook.com/dialog/share?app_id=87741124305&href=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DKECEXQ6rm74%26si%3DuFQ8qcHzG7NEzWk_&display=popup mike kitchell was jack's essential tremors/parkinson's md and spoke at ames hospital's ground rounds june 2023.
John Argue is fantastic. He's so empathetic it's hard to believe he doesn't have PD himself. His book is wonderful and in an age when people don't like books and feel there is a lot of value in seeing movement when engaging in movement I will say this -- all movement starts with thought, often unconscious thought. One of Mr. Argue's strengths is in teaching us we need to retrain ourselves in movement and bring unconscious movement to the conscious level of our minds. Therefore *reading* and *following* the instructions is a beneficial part of this program. It gets unconscious movement brought forward to the conscious part of the mind and more forward to the very intentional and specific brain centers and this is part of the work. And let's not forget that it wasn't but a couple of years before this video was made that all PD doctors were so proud to announce they knew for sure that no type of exercise could possibly have any effect on PD. *I never bought this because how could PD be the only condition in humans that did not benefit from exercise?*. We aren't reinventing the wheel. We are just repackaging the wheel to make it look new and shiny because we love novelty. Trust yourself. Just like Dr. Braak, Mr. Argue has been marginalized by the PD establishment because he is not part of the industrial medical complex. Mr. Argue is a wonderful, caring and empathetic human being. And he's got instincts and sensitivity that are not part of the training of the main stream medical system where everything needs "studies" (99% of which are flawed and lousy, but they have authors with Phd and Md after their names.
Fantastic Research Data, I am curious, if one only recalls 5 or 6 memories and or dreams, over the space of a life. Has RBD. are they prone to Delusions and Hallucinations.??
Thank you for this: My RU-vid channel focuses on the Microbiome...but also the Lymph system. Lymph moves neurotransmitters and precursors from the gut to the brain and lymph nodes. The Lymph only moves by muscle movement (there is no pump like the heart). Sedentary older individuals appear to need to walk more. After all, we were designed as hunter/gatherers.(c)
you can stimulate the microbiome with infrared (cold) laser on the gut. There is a device called the PDCare laser made by SYMBYX in Sydney, Australia which has peer reviewed research published in BMC Neurology Journal in July 2021. It shows PD patients improving on all measures after 12 weeks of laser done at home….
If different forms of a-synuclein are assessed for metals content within the molecules, can zinc and copper that may be common in molecules of a-synuclein that are not yet mis-folded, be compared quantitatively for metals content in mis-folded? Pb can replace Zn in many molecules, especially if there is a Zn deficiency while also a contamination present of Pb. Is there research quantifying this in PD, AD, and other a-synucleinopathies?
When stress from illness, pregnancy, old age etc. causes added need for more calcium, the body gets it from the bone. The body does not recognize the lead differently from the calcium, so it comes out with the calcium to once again circulate in the soft tissues where it can have toxic effect just as the body is at its most vulnerable. Contrary to common opinion, lead DOES pass through skin, but for some reason it loses its affinity for the red blood cells when it enters through skin, so it does not show up as elevating the blood lead level that is the most common diagnostic test for lead poisoning, yet more has entered the body. Lead is an ACCUMULATIVE toxic substance, it builds up a body burden that increases many ailments. Reading all of the available research is difficult, but sobering, and I can see how accumulation is a very important part of driving declining health, faster than would be if more precautions were taken with sources of exposure. Lead often substitutes for metal atoms that form the focal points of metalloproteins, making those essential proteins and enzymes dysfunctional because they no longer fold properly to get their physiologic job done. Now, glyphosate has become a co-contaminant adversely affecting many of the same physiologic pathways at mechanistic levels. Both lead and glyphosate can interfere with protein folding, having vast implications for disease causation both additive and synergistic. It is important to read the literature on both IMHO.
Great medication for Parkinson’s OFF-Periods. Since it’s an inhaled device it starts working and gets you going almost immediately. Thank you so much for bringing INBRIJA to market for Parkinson’s patients❤️
Great presentation!!! Zonulin levels can indicate how "leaky" your gut is. I found out my zonulin was too high and was given a glutamine powder supplement which made a surprising difference. I still have work to do, but this knowledge made a big difference for me, so I wanted to share.
For those with constipation problems, one way of alleviating it I found was sleeping on my left side, which helped the bowel movement down and thru the final section of the large intestinal tract. I had a couple of periods each lasting more than a week. No more. There was a stimulation factor I believe causally related to my water consumption. I practice regular periods of intermittent fasting with alternate periods of ketogenic fasting. I avoid going into full fasting mode but can without feelings of hunger if I want to lose weight. The problem w that, losing 30% of muscle mass as well. Regarding the gut biome, there are tens of thousands of viruses and bacteria making a home in our gut. I don't know which ones among them are toxic but I do know my routine gives my body's biome an opportunity to do a reset.
The best pre and probiotics is Microbiome Labs, Megaspore-biotic and Mega-prebiotoc. They have some excellent presentations on their website and you tube channel & the founder is interviewed many times on different you tube hosts channels. Be encouraged! 🌞
A GREAT presentation. I am in Canada. I am in final stages of approval for DBS. Hopefully I will have a surgery date for this September. The clinic I will be using does not have a robot. They can directionally drill and directionally focus stimulation. Again...a GREAT presentation.
I've had symptoms of Parkinson's for a decade now mainly intense pain in my legs to where it is all consuming and difficult to walk. My neurologist only started me down the path of Parkinsonism last year. My regular Dr suggested for me to get on hospice simply because I only have Medicaid and it will not cover the comfort equipment needed or the personal care aide to help in my home. My rheumatologist thought I was giving up and said oh your too young(I'm 57) he is very compassionate just not educated in what palliative or hospice can provide. I hope this decade will be a full understanding of what palliative care or hospice can bring to those who have Parkinsonism or who have exhausted all other measures
I am not only happy am alive but also glad that "Dr Madida" was able treat and cure me with his herbal medication of parosmia and Parkinson disease(PD).
I'm not sure what you're saying is accurate. Usually these probiotics that include lactobacillus are encouraged. And most of the sources say that. What is your source for saying that lactobacillus is not indicated with sinemet med?
I've found the "GI Map" stool test informative but needed to have someone who could really decipher the data and give me recommendations. Maybe there are other options out there...I'd be interested in knowing more!
