Welcome, it is an honor you dropped by. I am Victoria. A twenty-something-year-old battling multiple chronic illnesses while learning how to thrive. Chronically Hopeful was designed to educate others and to provide support to those who are chronically ill. Proving encouragement to others is essential to me. I share about my health on here. My major illnesses are Lupus, Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation Syndrome, HHT, Ehlers-Danlos syndrome and Ulcerative Colitis. I want to share my story with you hoping you will experience support; that someone else understands your pain, struggles, and frustrations. I am looking forward to hearing your precious story. Sending hugs, prayers, and spoons. Have an amazing day!
I have a childhood friend Courtney she has autism and gastroparesis and also only 18% of her stomach works and she also has an autoimmune disease as well
I have learned a lot more about autism and gastroparesis for watching her RU-vid videos and also my childhood friend has both of these conditions after watching her videos after the whole lot more about both of them before I started watching her videos I only knew a little bit more about both of these conditions but after watching these videos I have learned a whole lot more about both of these conditions
I am sending out my thoughts and prayers and love to her family and friends and her dog Harlow I am really! So very sorry for your loss 😢💔 even though it was a long time ago forever young she is gone way to soon she is gone but she will never be forgotten
It’s such a sickening feeling. You lose who you were and who you could’ve been, and it hurts so bad. Stay strong girl, we can do this. You aren’t alone.
You may find reading the articles on Mad in America (a webzine) cathartic. They also allow readers to interact with the website, even submit their own stories. They are not a Christian group. God bless you, Victoria. One day you will be with Jesus and he will give you a new body along with everlasting life. Keep the faith! :)
OH HelloW PELLOW!! I are the Czech Republic, and I'm. MY are AGE? is eighdeen!, I are carry a smith and wesson smile and I'm. I are kno every day will bee an opportunity to, to. I are here to share imforgettable momants with you. But mowst exciting is, I are in I'm, won day going to anihiem. Thurst for fun and advendure: ill now put that in a blenter lololllol!
Thanks for the info, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!
Well done, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!
I still miss her today. Her loss and most recently, Cheyanne, Seemed to hit me the hardest and I really interacted with them, especially Jaquie on her Patreon. Do you still find yourself missing her extra or thinking of her a lot on some days, More than others? Even so long ago frm when she passed?💔🩷🥺
Hello Victoria, I am totally new to your channel, after also having a Pheo, and watching your intitial video. How are you doing now? I am so sorry you have SO MUCH to contend with. I am thinking of you. ❤❤❤
Hello from Chicago. Chronic urticaria non stop for over 3 months. First injection went well. Next one is scheduled. Felt sone relief in eyes and breathing. Hoping for more Relief after the next injection. Thanks for this informative video.
Thank you for sharing, I have a lot of the same symptoms. I’m getting a CT scan in a couple days to see if I have pheochromocytoma. Your video has really helped
Can you explain your leg pain? I’m still in a journey of diagnosis, but so much of what you describe with anxiety and sweating has taken over my life the past year. But what stood out to me was the leg pain you mentioned - I’ve had leg pain that has drastically impacted my ability to keep up with the physical activity I love so much and no one can get to the source of it. I just wonder if yours is a similar feeling to mine?
Hey, I hope you are as well as possible. Please make sure to get tested if you have any suspicion. I would best describe it as cramping at times, sometimes it can be sharp, and very heavy. I’ve had an extreme amount of weakness. For symptom like that I feel like multiple illnesses probably play into it. I hope that helps a little. Please let me know if you have any other questions. Always feel free to reach out to me privately on Instagram if you need anything as well. I hope you have a lovely day
@@chronicallyhopeful5407 thank you so much for your response, I know it takes a lot when you’re going through so much. I had a 24hr urine test with some higher levels but nothing wildly out of range. As grateful as I am for a good test, I sure wish I could get to the bottom of all of this!
@@aly5117 you need to do urine and blood. I hope with all my heart you get compassionate care. It can be Difficult to get a diagnosis for rare in general.
Unfortunately we have to keep paying for these quacks with our taxpayers money! They only see us as a money sign, half of the doctors couldn’t give a rip about the patients! I thought I could trust my Neurologist but I don’t know if I can have full trust in them now, I feel like I’m a burden to them! I would rather trust my dog’s veterinarian more than I do my human doctors! They’re useless!
Prayers going up for you! Hope you feel better soon, even though we are going to have these illnesses for the rest of our lives! But we can look for the pot of gold on the other side of the rainbow 🌈
People are just plain ignorant and rude, you can’t fix stupid not even with a baseball bat! Ignore them. Tell them to leave their drama with their llama 🦙! I pray that you get to feeling better soon! Even though we are dealing with a chronic illness, we can hope for a little ray of sunshine ☀️!!!
You are awesome victoria your cat wants to be a RU-vid superstar you are such a strong person glad you are able to achieve so much love you victoria proud of everytthing you have accomplished
Thank you Victoria for sharing your story with me. You’ve been put through the ringer but you are still keeping on trucking! We have to, I have Epilepsy and EDS& other illnesses but I don’t want to let them keep me down!
Thank you from the bottom of my heart for taking the time to watch! Rare disease is an important element of health care. I am an extremely unique presentation medically. I've been told by most that they haven't encountered anybody quite like me. In addition to my rare diseases, we're looking into if I am a chimera. So it's all quite interesting at least in my opinion. It means so much that you took the time to learn about this. I really think education empowers all of us. Thank you from the bottom of my heart for your compassionate comment. Thank you for your diligence, hard work, and all you do. May I ask what you are studying/planning on doing?
