Welcome to the channel for the Florida Center for Urogynecology where we improve the quality of life for women.
If you are interested in women's health issues or are suffering from conditions like urinary incontinence, abnormal bleeding, pelvic pain, pelvic organ prolapse, fibroids and endometriosis, please consider subscribing to this channel.
If you want to know more about how to alleviate your suffering and get back to a more vibrant, productive and fulfilling life, then we are here to help!
Hello all, I was diagnosed with interstitial cystitis for many years. Nothing helped, not the traditional treatment, not the antibiotics. I´ve been on vaginal HRT (hormone replacement therapy, estrogen) for 6 months now and the pain stopped within the first few days. Please note that postmenopause can be the reason for those symptoms.
Girlfriend has suffered for last 6 months with this. Run all the tests. Anti biotics work only for two weeks. Will read all the comments & try some helpful tips from others. If anyone has any other useful comments please do post.
I had a cystoscopy and it showed irritation and a diverticulum. I've tried the d mannose supplement, dietary changes, anti histamines, elavil which I had to stop due to staggering, and bladder installations. My pain has continued to progress and am now on norco. I can't take NSAIDs as i am on coumadin. So, i am at the point of mostly being on the couch with a heating pad, drinking water and able to some activity for about 45 minutes 1x2 times a day. I can't stand all the excitement of my current life.
It's crazy, Anywhere i go, i always try to locate a washroom area. No Uti nor bacteria found in my culture. I will be seeing a urologist in early February i can't wait. I also have +1 blood in my urine. Im very worried, I pray that it's not what we all fear..Love to all you wondetful people. Lets take care of our health🙏💕
Nothing really works ~ elm iron can cause permanent damage to your eyes. Water distension can cause fissures and scar tissue over the long run makes it worse. Awful disease.
If you’re watching this video looking for answers don’t bother, they clearly don’t understand. I.C is caused by neurological inflammation and probably indicates histamine intolerance which is why citrus, chocolate, basically anything high in histamine is going to be an issue. The 10th cranial nerve pair (the vagus nerve) terminated at the cervix, this is not a coincidence. I have I.C, which is rare for a male, and CFS/M.E/CIRS. The root cause for all of this plus heart palpitations and insomnia is……mould spores or more specifically mycotoxins. For others it could be Lymes or some other biotoxcin. Remove the toxin, calm the immune response and no more I.C or CFS/M.E/CIRS.
I've had ic with Hunners Ulcers for years and no treatments have helped me. I've eliminated milk, wheat, soy, oxylates, inflammatory foods and have lost 25 pounds. My weight is dangerously low, Elmiron can cause blindness years after it's stopped, Pelvic floor therapy is useless . I'm allergic to steroids so no instillations for me!. No pain management will treat this. This is NOT something that's ever gotten under control for me. Just diagnosed with Sjogrens.What misery.
I hurt sooo bad. Diagnosed in 2008. Living gets more painful every day. Need angels to take me HOME 🥵😭💦😱🥵💔I’m pain exhausted. No life at all. Why am I still here?
I recommend going to a PT for anyone who has this. Mine went from daily, keeling over level of pain to just a tinge once or twice a week for the past month. Have seen a dozen doctors the past two years and so far my pt is the only one that has shown any kind of understanding and care for my pain. She’s helping me regulate my nervous system so I can get out of the fight or flight mode that this chronic pain has put me in and has somehow unblocked some nerves in my spine so that I have normal feeling in my legs, pelvis, and abdomen again. I tried so hard to heal it on my own but it was putting so much stress, guilt, and feeling of failure on me that I see now why none of it was working.
I have IC and my main symptoms are from certain foods as well as sex. What has helped me the most is eliminating sugar/alcohol from my diet and taking amitriptyline. I also go to a physical therapist who specializes in the spine, and she has been having me stretch my (tight and stuck on the left side only) upper back because she believes the nerves are getting blocked from properly sending signal to my bladder (which can be caused by pelvic trauma as well, which mine would be chronic UTIs). She has been able to help relieve my IC symptoms just by working on my upper back. The research is out there and I'm hopeful this will become more common knowledge and help others. Sending up prayers of comfort, peace and understanding to all who suffer from IC and those impacted in their lives. 💖
I have been drinking celery juice for cystitis, per Medical Medium and I can tell the difference within a week. What a relief! I also take curcumin, cranberry extract, quercetin, propolus, and vitamin C. Hope this helps. Feel free to reply if you have any questions or recommendations. thanks.
I take hydrocodone, amitriptyline and gabapentin. To get to sleep I take ambien or I wouldn't get to sleep because I would just be up peeing for hrs. Also lorazapam to get back to sleep in middle of the night. I just drank some water with baking soda because of a lot of pain today. It seems to cut the acid in bladder. I just had some watermelon and it caused the bladder to react. Sometimes I can eat it and sometimes I can't eat it.
I was diagnosed with this, and have had the cystoscopy done and now I'm still suffering with this painful bladder issue. Almost feels like period cramps sometimes. Ugh I am gonna try to do the food 🍲 thing and see how that works. I've been to the Urologist, and the medication that they give me usually doesn't help. Even Gabapentin does nothing for me.
Have you noticed any effect with antihistamines? I noticed I had a mostly pain free summer last year and had a theory that it was because I was taking allergy medication, so I started taking them again and sure enough it was working better than ibuprofen and muscles relaxers for pain relief. I think I was allergic to something I was eating and it primarily showed up as inflammation in my bladder for whatever reason.
I hope food elimination has helped you. I found eliminating tea (any kind) helped a lot. I also can't drink alcohol. If I have so much as a small juice glass of beer, the symptoms will drive me crazy for 2-3 days. I've even cut back on the spaghetti sauce I use and I think this also helps prevent symptoms.
I have this… it’s so hard. I was diagnosed last year and it feels like I was just told I have it then given no tools. Not to mention doctors treated me like I was gross and full of STDS when I had already been tested MULTIPLE times for them all and tested negitive… I still struggle with it all the time. I also have Crohn’s disease. I think they’re related
Try to find a good urologist, keep trying until you find someone compassionate and that will listen. It is a dreadful condition and the pain is nothing that can be understood by most people.
I had what seemed to be interstitial cystitis. It turned out I had a problem with oxalates, a type of plant toxin. A long course of antibiotics had gotten rid of the oxalate-degrading bacteria in my gut. So what happens in that case is the oxalates start to form sharp microscopic crystals that get deposited in tissues and cause pain. It took four months for my gut to fix itself. Four months of pain! Even some people who weren’t on antibiotics can have oxalate issues. It can be a good idea to avoid high-oxalate foods.
@@sleeponbednotclc9023 no testing. The doctors were clueless. What happened to me just matched the symptoms of oxalate crystals. It took me months to get better. Then unfortunately, a doctor prescribed antibiotics for my infected tooth and the symptoms came BACK. That just goes to prove that it was the antibiotic issue. Now, after another two months, I’m recovering again. I think if I can manage to stay off antibiotics, I will build up to the normal level of oxalobacter formigenes (the oxalate-degrading bacteria).
Aydudame Saaadni Madad it's not 2 February yet. Oh, politics. How to be good thoughts for Bahman? Safe words and sensory. Red pants. What flowers? Don't get sleezy. Self care during COVID-19 pandemic
I no longer see a urologist because the ones ive seen really do suck. They just give you medicine but dont get to the root of the problem. The last one I saw prescribed me some weird medication and two weeks after he prescribed it for me, I got a letter saying that its still being tested on people and that i shouldn’t be using it because its dangerous. Now I see a functional medicine doctor and ive been doing rectal and vaginal ozone and its worked for me big time. Been seeing so much Biofilms coming out of me. One time I literally farted while peeing and a bunch of biofilms came out,just with a fart… I also take serrapeptase, a long with a charcoal binder to help flush out the biofilms. My nutritionist put me on something called FemGuard for hormonal balance and that really got rid of pain in my urethra. Specially before and after my periods. Im also doing lots of therapies. Im doing cryotherapy, red light therapy and magnesphere. Oh and earthing,except now that its winter,I really cant seem to get much of sunlight. Ive been seeing a really good progress. Oooh and I changed my diet, which has been so helpful with ic!! I now eat a lot of meat!! I used to habe more of a plant based diet. I rarely ever aye meat and ever since ive been eating meat, I just feel so happy and I just feel so much better health wise. My doctor still wants me to do a microgen test, hormone test, and ozone sauna. But so far im doing good because ive no longer been crying in pain because of pain in my pelvis,and urethra🙌🏼🙌🏼🙌🏼 strongly recommend anyone with ic to look into all of that because it sure is helpful! I also been peeing less!!
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All thanks 🙏 to Dr Alaho Olu on RU-vid who finally cured me from Herpes Simplex Virus type 1&2 and HPV. He cures Lungs Disease, Cancer, ALS and many more..💕
I suffered pelvic pain and infertility for years but not until Dr Iyhere cured me with his Herbal medicine. I am weeks pregnant now and all thanks to Dr Iyhere on RU-vid
I am so sorry you are suffering with this. Although we do not yet have a cure, there are many treatment options that can help manage symptoms. Please discuss your options with a urogynecologist or pelvic pain specialist.
Try cutting out any foods you think might be a problem snd very slowly reintroduce. Make sure you take adequate vitamins. High histamine, nightshades, citrus high sugar etc and high carb can cause the body to attack itself.
Try taking D-Mannose powder as a supplement. I have IC and it works really well for me!! I tried controlling with diet and had no luck but D-Mannose yes. It’s worth a try!
Glory be to God almighty after many years, finally i have found joy with the help of DR JADU OINDIN on RU-vid, the great herbal doctor help me cure my HSV 2, with the herbal medicine product I ordered. I will forever be greatful to DR JADU OINDIN on RU-vid thanks 🙏 herpes gone finally ….❤️ ,.
Multiple fibroid can be permanently cure using an herbal mixture, my wife got cured of multiple fibroid since Feb. 10, 2020 using an herbal mixture from Dr. Gbenga, herbal drugs has a permanent cure to all of this.
