This channel is intended to share the inspirational and informative stories of women living with Lipedema. Lympha Press is proud to support these women and to highlight their testimonies of resilience, which have led to breakthroughs that can help many others.
I have gotten so far behind on watching these monthly videos. I am so sorry I missed this one, this is right up my alley! I got rid of toxic ingredients in my home years ago - food, cleaning products, beauty products, etc. I highly recommend that everyone get them out of your house. Thank you for making others aware!
I think most/many people say IgE response is "allergy" and lgG is "intolerance or sensitivity. I have long had food allergy/sensitivity/intolerance problems. Much allergy testing of all kinds over the years. I have very few IgE responses, a few IgA, but lgG is off the charts. I avoid as much as possible but also take allergy shots for airborne inhalants which cannot be avoided.
Why do you keep using the term "ladies"....my brother has a terrible time with this disease and l think he is put off by the thought that this is something specific to women's problems.
I'm a Lymphatic Detoxification Therapist, Nutritional Therapist and Optimal Blood Chemistry Analyst in the Mpls MN area. I've been working with lipidema & lymphadema since 2002. There ARE blood tests to determine food sensitivities that are quite reliable to easily tell you what foods NOT to eat! There ARE Professional Nutritional supplements that assist the body to breakdown the stagnant lymph and debris in these pockets, so the lymphatic system can remove them from the body. I have also used a medical device to assist lymphatic drainage that is 5-8 times faster than manual, lymphatic massage. The medical device is something that I couldn't live with out! It's been a miracle for me, personally as well as for my clients. Once you get the entire lymphatic system cleared with our protocol, the results are AMAZING with no surgery!! It is, however, a deep commitment and everyone responds personally to their own path from circumstances and abilities. I'm so happy to find these groups on RU-vid and this medical issue being brought to light!👍❤ THERE IS HOPE!
I’m not supposed to eat food. I tried almost everything fasting for days cutting calories, working out until I would get nausea. Three years ago I was so frustrated I took food out of my diet and just drank golden milk. Thats turmeric, ginger, pepper and canned coconut milk. within three months I lost fifty pounds. I didn’t know anything about lipedema until a few weeks ago. I gained all the weight back of course, but I started back and the legs are going down already.
I am researching the link between allergies and my lipodema. I always have been very slim, but still have lipodema tissue. Since about 15 days I know I am allergic to sls (found in toothpaste, dermatological products and cleaning products). I then switched to a natural toothpaste and I watched the following things occur: my acne is gone, my lip eczema is gone, I no longer snore, my astma is gone, I am suddenly loosing weight, I no longer wake up tired, and my lipodema seems to decrease, no longer have pain and swelling in my arms and legs, my appetite is gone (I was stress eating because I felt uncomfortable throughout the day). Now I am starting to wonder if this allergy has anything to do with my lipodema…. I feel like there is no research about these two topics relating to each other. So what if….. 🥹
Says this is not recognized as a disease so not covered by health insurances. Seems to be primarily common among women which could hormonal involvement. For this reason I stay away from All animal products except free range and organic. Many times animals are fed foods that encourage fast growth of animals to get them to the market faster meaning $$$$$, I’d also stay away from factory raised meat/chicken, we just don’t know enough yet.
I have always been thin, I have had these issues and pain with it since my second pregnancy. It has progressed so bad over the years I can barely walk. After standing for longer than 15 minutes my legs will swell to atleast double in size. I can gain 15 pounds in my legs over night. I’m getting in my arms now. My drs do nothing to help me and it’s extremely frustrating. The pain can be unbearable
I have had painful lumps on the outside of both thighs for years. Now I experience terrible pain from blood pressure cuffs and have located painful nodules in my upper arms. I saw an article about pain from BP cuffs and they mentioned Lipedema. I think I may have it and will talk to my doctor.
Thank you so much for this presentation 🌺. I have fibromyalgia and arthritis and now my legs‼️😡. I am not overweight and do well on the keto diet. And fasting. No deadly nightshades. I will now look into food tolerances of which I have many.
Hello Everyone! Just found your channel and I have an appointment. So, I have to run but Thank you for all the ideas/help. Will catch everyone next month. Have had Lymphedema since birth but didn't realize until I delivered my daughter. Unfortunately, I wasn't diagnosed until I was 50. I'm 62 now. Please bear with me I've had a few mini strokes. I'm stage 3.🕊️Kim from California 🫶
Agree not shame , embarrassing. I have huge thighs and now I have it in my arms as well. So i usually camouflage this area as well. I love swimming so it’s such an effort to get into the water if others are around.
I am researching the link between allergies and my lipodema. I always have been very slim, but still have lipodema tissue. Since about 15 days I know I am allergic to sls (found in toothpaste, dermatological products and cleaning products). I then switched to a natural toothpaste and I watched the following things occur: my acne is gone, my lip eczema is gone, I no longer snore, my astma is gone, I am suddenly loosing weight, I no longer wake up tired, and my lipodema seems to decrease, no longer have pain and swelling in my arms and legs, my appetite is gone (I was stress eating because I felt uncomfortable throughout the day). Now I am starting to wonder if this allergy has anything to do with my lipodema…. I feel like there is no research about these two topics relating to each other. So what if….. 🥹
I’m new here, and I have had really good luck eating the carnivore diet, and had wonderful loss of inflammation, was a dress size 18, and after 7 weeks was able to fit into a size 12 dress! To dwell on where I don’t hurt, hmmm, I am in the process of elimination of foods and trying to figure out what causes inflammation for me, I’m inflamed today, however there is always one place that is happy and doesn’t hurt it’s my smile 😊 smiling is always a good thing!
Last year, I trained for (in Houston, TX) and walked the NYC marathon. I noticed my body, particularly my legs, getting bigger(!) than they already were and I couldn't understand what was going on. Earlier this year, I learned about lipedema and I've been on the journey to diagnosis ever since (yes, I have food-and-hand-sparing lipedema) and I'm going to start lymphatic therapy next month to hopefully help arrest progression. I am grateful my body actually survived an entire marathon and that it continues to serve me. I'm grateful for this group and so many other resources from citizen-warriors that are out there to provide hope. This seems like a devastating, hopeless condition (and there are many clueless doctors) and seeing so many women thriving is priceless.
@@leonormartinez9108 i went in the lab and did blood test for food tolerance. Apparently, I've been eating mostly things i wasnt supposed to. It's a narrow choice -non dairy, no egg yolk, only white fish, turkey white, greenery. No fruits, no roots, not even oregano and i ate it every day. No tomatoes, no grains....etc...but now i know i started getting weight when i started using dairy 😱🙈 in first 5 days i lost 3 kilos. Since i am stucked in the office, i cant really do much of the fitness but i feel ok, no dizziness etc Glucose levels are normal, slightly elevated, still in range, i guess it's normal because liver is releasing glucose stash. They told me that it's very important to be absolutely clean for a 3.months and then i should still avoid allergens as much as i can but include "lesser allergens" 🤷 i guess if Jordan Peterson Survived 3 months eating only broccoli and chicken, we can do that too 😂
This really drives home the Mayra, 'do what works for you' What a great aha moment, I've had diets that did work for me in the past. I've been carnivore for a few years and have sensitivities still.
I agree with Cheryl in everything. I diagnosed myself with lipedema since no doctor knows about it. For me starches like potatoes (yes, same as her I used to gain 6 pounds during the night when I had a boiled potato for diner, nobody believed me) but also wheat, less intense with rice, yuca, plantain, basically carbs are not friendly to me.. I'm 64 now and I was starving myself for decades... I found keto and I did it for four years and it did nothing for me on the contrary during that period I gained weight and cellulite like crazy I got to the conclusion that some no starchy vegetables are for me like poison like broccoli, cauliflower, peppers, tomatoes, etc. you know the ones you eat when "eating healthy" and I had been eating healthy for the last 40 years of my life.. who knew.. so now I have been in the carnivore diet animal based only for 18 months, I have lost 25 pounds but I have had a lot of progress and my body has been reshaping very nicely... I used to use different devices vibrational plates, massagers, etc. but I got tired of them because you use them for an hour a day or so and nature is working against you for those 23 hours left it's like weeding the garden you will never win, never. Please women around the world if you find this video go carnivore you will not regret it.. The fact that this is an issue for women only makes me sure that hormonal issues are a big part of this illness too.
Same experience for me too. Most veggies are poison for me, but fruits are fine - even fruits that masquerade as veggies like squashes and avocados are fine. I just do better on a meat-based diet.
Same for me - gained on keto. I decided to try carnivore January 2024 and lost over 20 pounds in about 2 months. I did not know I had lipedema, diagnosed with fibro over 20 years ago plus arthritis, and I am going to be 72 soon. I wish I had learned of this sooner to have been able to live with less pain. Important to locate grass fed beef, but for me, I try to drain most fat since I suffer with GERD. Pilates has really helped so much.
Sounds like me for 15 years now, all the pain, fatigue, weight gain, still trying. I just bought a lymph machine which pressure is too intense and it bruises my body . Also complex with all cables, tummy does not wrap around. Explain all this to the lady I purchased it from. She is not interested in taking it back , replacing or refunding me. So disappointed as it cost so much 16k supposed to be an investment in my health !!! Looking for something else that will help, will be great to get this .
Chronic Pain Anonymous (CPA) is a twelve step support group for those who have chronic pain and illnesses. They have great zoom meetings every day. We are never alone :)
My youngest daughter and I took the Everlywell home tests (drops of blood onto a card that you send in for testing). My doctor said the home food sensitivity tests are surprisingly accurate, especially the ones that use blood rather than saliva.
Carnivore has helped me so much. Lost weight, pain is significantly less. Eating this way for 2 years helped me realize my food sensitivities. Gluten and nightshades
Lymphedema and lipedema are two different health issues but in my experience occurs at same time, massage therapy helps reduce the swelling, bouncing on a rebounder helps activate the lymphatic drainage. There are also herbal supplements that help move the lymphatic system. Stay away from sugar, artificial sweeteners, chemicals in food and environment, etc. carnivorediet eat only free range/organic to reduce chemicals animals may be fed.
It looks like an over abundance of fat in the body, I stay away from foods esp animal foods that are fed hormones to speed up their weight gain to get them to the market faster. Which eating these foods could produce a reaction from our bodies. I eat organic, free range animal proteins to reduce chemicals that may cause a build up of chemicals in our bodies. Also speaker seems to feel you can not get protein on a vegetarian diet which is not true, legumes, beans, etc are great sources of protein. You have to do research to find vegetarian protein sources.
@@vintagebodymindsoulradley9151 animal proteins are more readily bioavailable. More important to muscle retention as we age, when growth hormones wane. I found that I had to eat so many beans and nuts to get my needed protein, the weight gain was problematic. Not to mention satiety issues. But high intensity exercise does help invoke muscle gain, even in older age, even with insufficient protein. It's just more effective to eat the more bioavailable animal proteins.
I just got mine two days ago a total of 4hoursim totally noticing the fluid is moving only have it in my right leg and to look @ my ankles I noticed fluid is leaving...
I have had painful lumps on the outside of both thighs for many years but no one could tell me what it was. About 4 years ago I was being prepped for an epidural and when they were taking my blood pressure the cuff caused terrible pain. My BP was so high they would not proceed with the procedure until it went down. After a period of time it went down enough for them to proceed. I had a series of epidurals (3) and it happened every time. The same thing happened at a spine clinic and now happens with the BP monitor I have at home. It was decided that this happened because I have a short fat arm. A few days ago I saw something about pain caused by BP cuff and they were talking about Lipedema. Now I can locate painful lumps in my upper arm. I will talk to my primary doctor about this soon. By the way, I'm 81.
I just signed up for this group and they have MANDATORY reading prior to posting.. These authoritarians are everywhere. But along with lipedema I've developed psoriasis so I do find the autoimmune/dietary angle interesting.
