Hey I we spoke in waterstones with my friend Charlie (he has pots and eds) and Cas. I'm pretty sure you toke Charlie's details but if you wanted to hang out sometime drop a message. Would be lovely to get to know you properly. It was nice meeting you
Have you looked into MCAS for your allergic reactions? I wonder if that could be it? & were you put on antihistamines? As that would help both urticaria & MCAS, so would be helpful even if you have MCAS but aren’t diagnosed xx
Hi, I have seen this before and we were looking into it recently so thank you so much. Yeah so I was told to get antihistamines however I am vegan and the ones that she gave me aren't and the Pharmacy cant find me any. As well as it being a specialist who has gave me them, so they need to ask her, however they discharged me early so we are waiting for her to get beck to us. I do think that MCAS would be a good thing to look into as I am highly sensitive to food and products in general, so thank you so much xox
Thank you ever so much!! Its been a while but I am back! Can't wait to sit down and have a Channel marathon, of all your videos ! Your are killing it ! xox
Thank you so much for coming and checking out my channel! It really means alot. Though I don't know why this video has took a trip to the side 😂 How go was the concert last night? Xox
I had to skip bits as I don’t have time to watch such long videos with uni, but I understand how you felt about that appointment being disappointing when you were hoping for answers (which would have led to treatment), but whoever you were with doesn’t understand how tough those feelings are when you’ve been ill for so long. I’m sorry she made a difficult appointment worse, maybe it’s the video, but she came across as really insensitive and unhelpful & I know I would have personally found her lack of understanding & empathy upsetting, so I’m sorry if you felt that way too :( Some of my loved ones are the same way so I have to just take what they say with a pinch of salt and not take it to heart, because it really just comes from a lack of understanding. But I understand, and you’re going to get answers eventually, keep hanging in there for now 💕
Thank you so much for watching the video and leaving a comment it means so much. The other person in the video is my sister and she is very supportive but I think at this moment in time there was a rift where I felt one thing and she felt another. I really wanted to add it in as this happens, its like different world almost though thid doesn't change that's she loves me or is supportive just that's at this moment in time she didn't understand and this happens. Also love your channel so much xox
Thank you so much for messaging I think that's it is so important to feel these emotions to know that it's okay. I find all to often other people determine how we feel because 'others have to worse' which yes to our own idea of what bad is they can but that doesn't take away our pain and hurt. We should allow ourselves to feel these emotions to accept them. I have another video coming soon where I think this is apparent again. Thank you for watching the video and messaging, I appreciate it so much! Rainbow Thoughts, Jade xox
Hello Kieran!!! Wonderful to see you here, thank you so much for taking the time to talk to us and take interest in my conditions, really was a wonderful conversation and day. Thank you so much !!
You’ve made me laugh 😄 I love a good rant me. I found this after looking up ehlers Danlos and periods to see if anyone else gets unbearable periods too. I also have pots but didn’t connect the top in my mind. I have period pains like you said where I’m actually screaming, shaking , nearly throwing up and passing out . It’s insane and I wonder if it is becuase of my pain condition 🤷♀️ mine used to be quick and heavy. 3 days max but they are now a good 5-7 days still heAvy and sore. It does suck. Heat pads are my saviour but I have to stay in bed for a couple of days at the beginning.
Sop Chips thank you so much for sharing your story I think that it’s vital that we all share things like periods as with it being a subject that a lot of people avoid us POTSies and also people with other conditions can find it hard to find it if what we are going through could be related but also then when we see it and hear it, we don’t feels so alone❤️❤️ Thank you so much for your reply Rainbow Thoughts, Jade xox
Unk kirito hello sorry for such a late reply I get symptoms like it feels like I am being strangled almost like pressure on my vocals but also like strain, thank you for commenting xox
Hello, thank you so much for commenting. Yes I have a video I want to do on this as I was born Hypermobile and visited an EDS specialist a couple of month ago and was told I am EDS type 3 Hypermobility. I have asked at all if they believe they could be linked to hypermobility and as it is all muscle they think maybe but don't know. Thank you so much as. Rainbow Thoughts xox
Dude, same. Like i had to miss the third day of school because if it. I was in my first class and started getting naseau and wanted to throw up so I went to the nurse, and it got so bad that they wanted to wheelchair me out of the school and call an ambulance. I'm not sure if this is pots but I get the pain feeling down my legs and get really dizzy so I can't hear or see anything
I really do think that it is a POTS thing. I also think that it should be talked about more so that us POTSies know that we shouldn't just have to get on with it as it must be 'normal'. That must have been so scary for you? Thank you for commenting and sharing your story. RT Jade xox
Hi! I’m Courtenay- I was actually just diagnosed with dysphonia this year too, and it’s been very difficult.. Thank you for posting this! I was wondering if you have social media so we could connect/talk on there! It’s nice to know fellow strugglers haha
Courtenay Gleason hello my socials is jade_rainbow_thoughts to get to my instagram there should be links from there but my socials for Facebook is Jades Rainbow Thoughts sorry for such a late reply I have been trying to add them onto my description but there has been a lot of moving forward with my vocal and I am planning on doing a video based solely on this topic ❤️ hope you are well xox
Hello, thank you so so much for commenting, I am actually going to be putting a couple more videos up about this soon, one of when I sang for the first time to other day again. In summary though, it has been very emotional, and there has definitely been changes but nothing we cant fight through. YOU'RE a POTSIE that is incredible I hope that you are doing well? Rainbow Thougths xox
Oh Jade 😘 This is exactly how I feel, every single word of what you said 😕 They might not get it or understand how hard you try but I do 💗 And your mum and sister do 💗 And I know you’re worried about getting worse but I want you to know that it does get easier to deal with, even if you’re not physically better, it does get easier to cope with 😊 Keep hanging in there lovely xx
Georgina's Journey yes this is exactly what I have notice I have had POTS diagnosed about a year and half but we are thinking really about 5 years and I totally agree you learn to cope but I think it is so vital not just showing everything good, my attitude to life has changed to much, I have so much more positivity and that’s is all thank you POTS it changed me for the better xox
I think doing this is fabulous. My 12-year old daughter will be relieved to know she is not alone. I will have her check out your Monday posts. Thanks so much for sharing this part of your life.
Thank you so so much, Hello to you and your daughter she is a apart of the POTSIE family I see, I hope she is doing well. The first Support Video is up now, if you and your daughter want to look I am so very grateful for you watching, hope you enjoy, Rainbow Thoughts xox
Lisa k That is wonderful to hear I am so happy for you, yes we take each day as it comes and we thought we would have a bit of fun. Always laugh 🦄🌈❤️ xox
