Videos from Renal Support Network (RSN) events, member interviews, and Programs. All in the effort to bring awareness about kidney disease to the public and hope to those living with the illness.
So are you loading the bags and tubes on the machine earlier in the day and leaving it all to sit a few hours until bedtime? Is that allowed? Or are all these steps performed each night at bedtime?
Also, is the catheter a nuisance? I’m trending toward all of this and I am really anxious. Where does the loose end go when not hooked up? Tuck into your pants? Tape to your side? How do you keep from snagging and pulling it out?
Thankyou for the great video, I am just starting this journey. I appreciate all the people that do these videos of their own experiences! Thanks again. Much appreciated.
My wife just started PD after our training 8 days and she’s already overwhelmed with it all to the point she’s talking of quitting and returning to the NEEDLE!
Hi Steven, You might try to trouble shoot with your wife's nurse and maybe ask for additional training. If she chooses to change to hemo, maybe consider doing it at home.
I never had it but maybe once. I suppose if you were still asleep in the machine it could be bad enough to wake you up. It wouldn’t happen with manuals because, it happens when you’re draining the fluid out.
Thanks for the video. I am expecting to have a port installed very soon. My Mother was on PD for a few years, but I never drilled down into the processes. This video was one of the best I have seen regarding everything that has to be done to successfully exist on PD.
Thank you so much for making this video and sharing your experience so openly. This is incredibly helpful in answering so many of my questions and fears.
Thank you so much, Lori, for posting this. I remember this day my mom was beaming with joy. Speaking about her experiences and her books with you. May her memory live on forever.❤️🕊🦋
The birth of dialysis warranted "cherry picking" the most medically fit individuals in order to mitigate loss of life or further medical issues. A rigorous screening process allowed for preventing weak candidates access to a procedure that was a strenous therapy. As the decade progressed, kidney transplant was improving and thus, dialysis was thought of as a "bridge" to this transplant. Once medicare agreed to cover this expensive cost, the cherry picking ended, opening the gates to accept all individuals without question to this life extending measure. Thus, the number of dialysis patients grew from several thousand to more than 600,000 people today! The cost is over $70,000 per year for the treatment alone, not including medications, access ( fistula or graft ), hospitalizations, transportation, rehab, cardiac interventions, cancer treatments, etc. The longer we keep people alive, the more costly is living. Recent changes in the payment by Medicare has led to dialysis companies closing clinics and creating fewer nearby clinics and encouragement to perform this therapy at home. Sadly, home treatments can be cumbersome and difficult for the person unless they have a capable support system. More resources and training will be required to support the home model. Compared to the 1960s where many of the previously mentioned therapies did not exist, we are faced with the capability to keep a person alive using multiple machines, medications and devices. The rate limiting factors of the 1960s ( money ) will be the rate limiting factor of the 2020s and beyond. Stay tuned, as the "death committees" will be masked in this era; the case will not be brought to a committee, as the decision will be predetermined and embedded in the system due to cost. Large dialysis organizations are now lobbying Medicare and other insurance companies asking to manage and control the patient who is progressing toward dialysis. This lobbying technique sidelines the kidney specialist and aims to fracture the physician patient relationship. The revenue once enjoyed by the dialysis companies has dwindled. So, they seek to recuperate lost revenues by stating they can "treat" and "prevent" dialysis. The physican led model is being replaced by corporate led business leaders! Should Medicare and insurance buy into this predetermined lie, the patient in need will suffer as we watch money shift from the physician pocket to the business pocket. Remember, in order to become a physician, years of sacrifice and attention to detail with straight A's is a prerequisite. To be a businessman, you need no education whatsoever. Whom do you want to make these decisions?
I didn't even know my buddy did this! ABSOLUTELY STUPENDING! Lori, you know how to make magic happen. thank you for a moment to stop working and be thankful. I love you always Aaron!
This was SO VERY beautiful. Thank you so much for sharing it and God's blessings to the kidney donor's and recipients for saving lives and giving others hope!
Thankyou so much! I’m from pakistan and this video really helped me understand my mother’s CKD and now i can also consult these different options with doctors to get my mother best treatment. Can’t thank you enough ❤️🙏
