I benefitted incredibly from NAC+bromelain+quercetin plus binders an biofilm disrupters, but I’m still suffering with flair-ups - one of my main symptoms is severe constipation and pelvic floor tightness, so I can’t go for antihistamines or cromlyn, since they are both associated with constipation - I recently heard about DMSO - do you think this might be an option? Thank you in advance for all your extremely valuable and precious research and work! I’m also a researcher and I can really appreciate that ❤
I wish I could find a doctor who will help with diagnosis. PCPs don’t know enough and the specialists won’t see you without a diagnosis. We are in the Boston area so you would think it would be easier to get help.
Naturopath. But they need to have experience with this... or you can see a disautonomia specialists. We have good ones in Seattle if you want to come visit 😊
I have retinal vasculitis, vitreous hammeorhage and chronic rhinitis. I carried out all test but I didnt found any cause of issue. One day my doctor prescribe my cetrizine my rhinitis temporary cure. I came to know about Mast cell and histamine intolerance. Can it be issue for my retinal vasculitis and vitreous hammeorhage? My opthalmologist isnt known about any reason about by retinopathy.Please let me know
Good info for someone just learning about MCAS, but I watched this video because it was posted two weeks ago. I used the upload date filter, because I’m always looking for the newest info. When I heard Dr Aaron say “here in 2019” I stopped watching.
Very interesting, feeling how the bloating and pain receded within approximately two months made all the difference, I simply go’ogled the latest by Tilly Strankten and her Ovarian Cyst Guide and although it really took about 10 weeks for it to totally shrink and vanish I’ve never felt so light and relaxed.
There is a connection with a genetic syndrome Ehlers danlos syndromes. h EDS, hsd, and probably more types too. Been writing to researcers about it and in many fb. Groups to focus attention and more research about this and better treatment.
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I have had this since birth, spent my first 2 years unable to eat anything but chicken, rice, applesauce, and peas. Hives, and crazy rashes my whole life, have been diagnosed with EDS, and multiple autoimmune conditions. Migraines, anaphylaxis...can't find a doctor who will help me...and I look at the consult prices for doctors who know about this and its like...$3000 for an initial visit. I am so discouraged. My life has been absolutely ruined by this disease.
There is a community for people with Mast cell disease on Telegram and Discord in the works right now with all info and access to many treatments. You should check it out.
please explain if you can, as I have my own hypothesis, as to why ivermectin helps with MCAS. It is MUCH less drowsy-causing than antihistamines. Thank you! I want to be a patient, but I can't wait over a year for a spot, and I'm broke..
I have noticed a few years ago that being exposed to various allergens defiently makes me potsy. If I can avoid the allergens than pots is not a problem. Of course I keep my legs strong too. Oddly enough I never had that C19.
I wonder what your views are now? Data doesn’t now back up your advice here. You might want to revise these recommendations. I’m unvax’d, most of my friends and family are vax’d, they are all still having Covid once every 6 months, I’m not. Plus this 100 day cough everyone’s talking about. I haven’t had it and no one I know who’s unvax’d is having it, just the vax’d. Have you looked at the igg4 research yet?
I was 100% healthy.. until after receiving my 2 jab... horrific, painful hives, migranes, diarrhea, extreme fatigue...its been life changing...so sad... was just diagnosed with mastocytosis...
After getting the third shot is when my health started to deteriorate and i started feeling tired all the time. Became more allergic to things that i could normally eat with little to no issues. I was totally fine before the booster shot.
truth is, we weren't 1005 healthy before (I didn't get the clot shot...I'm a nurse, refused fu shot under obamacer, etc..I didn't choose the poison. I got it it naturally, and was neglected by healthcare, didn't get ANY medical help, had stroke, seizures, etc....alone in my home...total ptsd now). Covid was easy to treat...I did it with many people. I'm sorry you got the shot. You need to contact Dr Bruce Patterson, also FLCCCnet protocols. Mold toxicity at my workplace is where this all started for me in 2017...it made the severe covid light the match. My life was joyful and active, until now. It's miserable and depressing but I don't stop in trying to get better. Prayers for you. Who diagnosed your mastocytosis by the way?
I really wish every Provider knew about this. I just turned 60 after a lifetime of strange medical issues. It was by chance my Allergist ran some tests after my allergy tests were negative. After COVID vaccination within hours I developed symptoms that kept increasing. I have Primary MCAS, positive CKIT D816V and HaT, DM type 2. Neg BMB. Unfortunately, I am having to figure out my own treatment. After severe reactions to initial treatments given all at once at highest dose...both my MDs are just done. I am functioning with my own plan but missing some stuff that needs a script. So many folks could be helped if MDs would just not give up and also just believe this is a real thing.
I was already diagnosed with Mcas before Covid but refused the shot because I thought it would cause more problems. I had to cut ties with my PCP because of it. I'm glad I didn't now
I live near the sea I do have a mould problem as one of my problems, I’m on a very specialist diet because of that . I can’t eat wheat yeast sugar and I’m lactose intolerant and chemicals . Clothes , sun , cold , and have every single hayfever allergy lol 😂 I’ve got to laugh it’s crazy I live a very very simple life now because I’m even intolerant to medication because everything I’m intolerant to is in medication .
@@daniellerandall6486do you happen to have hypomobility heds asperger's ADHD the genes for this I have had si many symptoms but fybromyalgia us now my main symptom
This was an amazing video. Thank you so much! I wish your office was closer to LI! Purchase is not close. Great info. Im hoping for help with my challanges. The ENT, Allergy doc, and 3 docs at my GP all point the finger to go to each other so I have no help. I am becoming my own pro while I wait for a doc to help me....I go to ID doc tomorrow.
+ mold...that set me up for severe covid ..heathcare neglect came next. I'm a nurse and worked the plandemic. I got no help when I was a patient. I am disabled and miserable head to toe but not stopping!
@@Jennifer-gr7hnwell I was born with autism as my mother grandfather great grandmother great great grandmother grandfather had no pain apart from slipped disc from.the hypomobility mother had severe ms my son as autism ADHD no pain yet so must be before hard to no check out Dr lenz thankyou very confusing
How many people sit with a stop watch watching a tick? Testing is poor. You might get no rash at all. Get something to get rid of ticks from your dog/cat especially if they come in the house.
Toxicity in combination with deficiencies reflected in deteriorating health status of the second and third generations ingesting processed, refined foods, with harmful additives; while poisoned with antibiotics, herbicides, pesticides, vaccinations, and medicated with chemical concoctions...
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Omgosh, how this syndrome has been so stealthy for so long! So grateful to this brilliant Dr for her interest, passion, research & dedication to this horrid condition 👏🏻
If Dr Tania Dempsey had mold illness herself, why did she never respond to the famous and controversial "Chronic Fatigue Syndrome"? Clusters of sick teachers in sick buildings. That wasn't obvious?
New aggressive treatment options and a possible cure? Why hasn’t this been widely publicized? Why don’t most doctors know about any of this? So much more needs to be done.
Dr. D. What about dark field microscopy. My naturopath l3t me prock my fingers look. There were a few spirochettes visible on the monitor screen as well as some lumping of red blood cells
The crazy thing is that I watched the short video and it was lacking so much information it was beyond me. The only thing I heard was if mast cells in your nose explode and you get a runny nose please avoid avocados and talk to your doctor 😂 This is an absolutely serious issue. And I really feel The video was lacking supportive as well as educational information. By the end of the video. I’m pretty sure everybody thinks that they have MCAS 🙃
