It’s lactic acid poisoning building up throughout the day as the body has derailed from aerobic function into anaerobic function. By product- lactic acid flooding the body with Ammonia as a secondary byproduct of anaerobic function. Hence the rheumatic myalgia increases with the lactic acid buildup and causes the brain fog, inflammation and fatigue. Caused by a virulent infection damaging the cellular and autoimmune system. The body takes a long time to repair the damage and even that can be limited or limiting. You can’t rush the disease as it is an ‘exertion intolerance disorder’ in effect. It is debilitating and can only be managed.
I believe it's damage from vkseens. The Lord came to me when I was 5 or 6 at the last Polio booster and told me not to take it as something bad was going to happen to me down the track. I took it. 10 yrs later I got ME/CFS (yes sure it seemed to be started from a virus Cytomengalic, but..), which used to be called the New Polio in the 1950s. The symptoms are like Gulf War Syndrome (they received many vkseens). And effect from the covid vkseen are ME/CFS and MS. I believe the vkseen inflames the nervous system and somehow the Lymbic system gets inflamed by a virus down the track like a timebomb effect as an autoimmue reaction? And maybe GMO foods play a part in increasing this autoimmunity over time? So then I got the 3 big viruses which cause ME/CFS: Cytomengalic, Glandular Fever and Ross River Fever. What a hard road that was?! Thank the Lord he kept me alive, from doing something stupid.
I don't even used words like "tired", "fatigued" with people anymore. I say I feel "sick", which is more accurate for me because, in addition to being crushingly tired, I also have chills, muscle aches, muscle weakness, brain fog at the same time.
Sad how nothing changes. No funding and work. They don’t care yet it’s the lowest quality of life over other diseases. Doctors act like that isn’t so bad. That sounds livable.
the number one most important medicine for CFS ME is Epsom salt. not some crazy, advanced, expensive and patented molecule from a lab at some big pharma corporation or a university.
I developed ME/CFS last year due to COVID. It makes me sad that people have known this for so many years and still refused to listen. I genuinely thought I was listening to a video made very recently.
Haer my sarcasm, "This makes it easier for me doctor".....screw the patient, let's make the DOCTORS job easier. Puke.🤮 Also this man CHUCKLING after describing some awful symptoms, 🤮
2024 ME/CFS patients still suffering. What is funny about this illness is that health professionals are so ignorant, that they confuse the (depressive, anxiety) symptoms as the disease themselves, rather they are a by-product of living with ME/CFS, and having to frustratingly explain to people how unwell you actually are.
Mold can lead to ME/CFS. I believe that is what happened to me. Then I got covid that exacerbated every awful symptom. Covid, in and of itself, can lead to ME/CFS. 😒
How familiar are you of the outbreak at Lake Tahoe in the 1980's? If you aren't...please check out Exposing Mold & Erik Johnson who was the prototype for CFS in Lake Tahoe. I have this illness. What he teaches is the only thing that actually truly helped me. I would never wish this illness on anyone it's awful. I have no one. Your daughter is lucky she has you two.
Thank you for providing this video. Its information is very important, particularly regarding the wide range of times possible between exertion and PEM, and the wide range of times possible that PEM will last. It's this feature which makes patients look crazy to uninformed medical professionals and even to ourselves. I describe it as ME/CFS gaslighting us.
I got it 30 years ago after bad flu and although it was beyond awful was fortunate enough to get to the point where I could manage it and always had to be mindful of my limitations but gradually with good nutrition lived an active life. Unfortunately after getting several Covid infections I'm now very limited and can't believe I'm back there again.
Have been watching this woman this doctor with hope for something to help me and my fellow sufferers for 33 years now. She has done so many studies but nothing fruitful has really come of her work that has led to real help, a cure of any kind, or a drug. Most of us all still in bed most of the time. Anything that has helped most of us has been done by our own research. Was myself diagnosed inn1985/8 when there was a large outbreak at Incline Village look it up, but nothing has come to really help. She knows a lot but why are most of us still after 30 years of her research still in bed? There should be something by now to help us and those suffering with long covid. Just saying.
I caught Glandular Fever 27 years ago at 35: fit, happy fabulous career. I fought it every step of the way but sadly still have ME - I can manage a 40 minute walk with my Chihuahus but no house work. However I went to the gym with ME as soon as I was able but then I'd be bedridden for days afterwards. Most people make a good recovery but I never managed despite being the most positive driven person I know. It's amazing to see a happy person talking about it because usually it's people lying around talking about it.
The number 1 thing doctors are missing for M.E/CFS recovery! on youtube think of emdr, fishoil, magnesium, melatonine, vetgetables and fruits on a daily base, take care
I've had issues in the past with vitamin d & iron and had to have strong levels of supplements. I take daily vitamin d forever. I'm guessing I should probably be taking others too 😅 (I have me/cfs & apas)
Chronic/Reactivated EBV appears to be a common factor of everything you mentioned and even some cancers. Discovered this recently. And then learnt that this has been known for decades but none of the medical specialists ever pointed me in this direction. And of course even armed with the 4 EBV test results now, they remain clueless. Luckily the more Holistic docs online have tips I am now exploring. Perhaps you could explore this too...
Check out this book: the Great Pain Deception by Steve Ozanich. Dear friends of mine have healed from CFS after reading this literature and uderstanding the mindbody process. It helped me heal from severe chronic pain and has helped thousands of others!
It is very upsetting, people don't understand the effects of this syndrom. My daughter has it and thank God it didn't take long for us to figure out what she has. People around here thought don't get it.
I wonder whether in some people it’s an infection. I had something like this for 3 years and was continually declining in ability to the point where I became bedridden. My doctor put me on antidepressants and just continually increased them until I had serotonin syndrome. He didn’t believe me, nor listen to what was happening. I felt like a mental case, but also knew there was something really wrong. The symptoms were non-specific, every part of me was affected. Fortunately I developed early stage cervical cancer and had an infection in the uterus, that was life changing, because a gyno put me on 3 different forms of antibiotic for 7 weeks prior to surgeries. I had also told the gyno what I had been experiencing and he said he had a theory on this himself, and called it fibromyalgia, so I wonder whether the extensive and long course of antibiotics were maybe him experimenting with his theory. At week 4 on antibiotics I noticed I was able to get up and around again and do more day to day tasks, more energy and less pain. At week 5 a black, and puss blood stained discharge began to be released from the top of my sinuses and the dizziness went away. By week 6 my constant migraine had ceased. By week 7 on those antibiotics I had normal energy levels, which felt like super human energy because it had been so long since I had been able to even function. Once I had the hysterectomy to remove the cancer I then weaned myself off those terrible antidepressants under the supervision of a better gp, and then I got fit and started growing all of my own food organically to get the maximum nutrient content possible, I’ve never looked back.
Kratom can help a lot. Doesn't cause anxiety but gives an energy boost. Also helps to nullify pain quite well,, and can help with sleep---depending on which type of leaf you take, red, green or white. It is legal in most states and not terribly expensive, and one need not take a lot of it to receive its benefits. I know a number of people who take it to deal with ME/CFS, and it has served them well. Very low tendency for addiction, but you need to be informed about this area: Addicts have also used Kratom to help them get off of hard drugs. Kratom is a leaf/can be considered a herb. (For more info look up the American Kratom Association.) It has helped me: I've suffered with ME/CFS aka SEID, since 1986.
