This project is inspired by patient advocates as a tribute to our loved ones. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, researchers and technology innovations. Our amazing team is committed to Care to Cure for ALS. We take our convictions and turn them into action. EverythingALS is functioning under Peter Cohen Foundation (PCF), a non-profit 501(3)c organization. EIN 84-3055901
Dr Bedlack have you considered toluene as cause factor of als??.....go check toluene and how to remove it from human body.we need to find the cause in order to find the therapy
i have been using Thc and Hemp gummies every 4 to 6 hours around the clock. SLeep with a Bi pap at night. i am in my 8th year now and started this the day i was diagnosed. I watched Kathy Jordon from florida. She is alive yet 35 years later in a wheel chair. I am still walking eating most things and takeing care of myself.
Hi there DR. Bedlack is a hope for all the patients that are living with ELS. I like the last approach about positivity - I would like to get more information about some new theories that include physiologists and several research on psychoneuroimmunology- , biodecoding- Do you have any scientific research about that? Thanks!
Here’s my thought. Looking for one cure for what is most likely many different causes doesn’t make sense. I mean even the on set is different. Progression is different Many do have cervical or thoracic spine or TBI A brain barrier breach would allow toxic substances that poison( tangle) and stop the normal nerve conduction Is enough testing done to really rule out heavy metals, mold, Lyme, pesticides, etc ?? Gluten, dairy, sugar free diet… addressing the gut, enhancing detoxification And eliminating environmental toxins in each individual seems more beneficial
Mark, sorry , I don’t have an answer . I’m 84 and within the last month I began to experience severe lower leg pain ( I had total knee replacements 14 years ago , and used to exercise very vigorously - until one month ago when the weakness and pain set in ). I will be looking for a first visit to a neurologist as soon as I can get one . While I don’t have any other ALS symptoms ( that I am aware of , anyway ) I am very distressed - close to panic - at the prospect of having this disease . Keep in touch ; I hope you stay well . George
This is intresting these two dieses caused so far they found out from alcholism. but is a deffiency from Thiame Wemicke Encephalopathy and Wemicke Korsakof syndrom
As I find the major 4 reasons of ALS are neuroinflammation, oxidative state, disruptive autophagy and mitochondrial dysfunction. One stop solution could be fasting. Because fasting helps in all the above 4 conditions in the best possible way, better than any drugs.
@@juliamiller5120 Sure. Please Explore about benfits of fasting. You will get to know in all the 4 cases fasting is helpful, but do research of your own more before you do any fasting. Because probably doctor will not suggest fasting for sure.
@@juliamiller5120 I am not any expert .. hehe.. My father has ALS, so I just explore these things. Oxidative state is like pollution and damage in your body, autophagy is cellular cleansing, and mitochondrial disfunction simply means when mitochondria doesnt work as expected. It would be best if you research of your own.
I think it would be interesting to get with the author of the book cured the science of spontaneous remission. He’s a Harvard professor and has been studying spontaneous remission’s incredible diseases for over 20 years. I recently read this book it’s completely mind-boggling and fascinating and very well done.
Dr. B, my wife, survived 8 years with not only ALS but also metastasizing cancers. She walked-talked and breathed on her own thanks in part to you and functional MDs ! THANK YOU!!!
I have all symptoms gradually slowly progressing suffering and lost my job ! in 2 years slowly signaling first in left leg , left hip, lift hand ,left neck , throat, muscles losing strength, falls , imbalances, knee jerk, heavy body difficulty walking , using walking aid! How can I contact this amazing Dr to heal me please 🙏 from Melbourne Australia please help me to contact this awesome Dr
The work on ageing by Dr David Sinclair on Nads and Reservatol claims to halt Als? Has vitamin b3 or b12 been studied? I have seen a guy called macdfinn claim he has totally cured it. Is their a mean age this starts would Indicate ageing as a factor in it. It is you did mention autophagy and misfolding of proteins. Senolytics and the likes apegin fisetin mushrooms 🍄 are but a few used in this route of àutophagy. Anyway great 👍 video. All the best Sir.
Have you ever considered trials with anti-helminthics/anti-parasitics? (The -azole family of medicines: Albendazole, Fenbendazole, Mibendazole, Oxibendazole, etc)
@@kokoyumz7820 you can get them prescribed or you can go to your local feed and seed store and get the paste used for horses. I personally trust that more than anything intended for human consumption by big pharma. It's dosed by weight and you can set the dial in the plunger yourself. I always recommend researching it before consuming.
Hi Cali, my name is Sonovia Horace. I was diagnosed with ALS in 2011. Thanks for being an ALS Mascot. We need more Mascots like you to brighten up our spirits!
Are the bats just extremely delicious or can it make you high? This is another reason to not eat bats besides God telling us not to. (Corona viruses, ebola, and now neurotoxins.) Interesting how red tides are a sign of the cyanobacteria. (Think Moses.) I mean He told His people to wash their hands if they were unclean to prevent disease thousands of years before doctors started doing it. And isnt it curious that the creation of Eve in Genesis sounds like anesthesia, surgery, suturing, and genetic manipulation? An interesting study might be to go through the animal list in Deuteronomy 14 to see why we shouldnt eat them whether it be bacterial, viral, or chemical. As another study, why could honey, olive oil, and the ingredients in ancient bread be medicinal. It is my thought that herbal medicines lead to the tree of life. God gives hints to this test to find Him called life. My son said his teacher said she had what sounded like ALS just a few months ago. I already gave him a note to give to her to watch Dr. Cox's Ted Talk if that is what she has. Awesome work Dr. Cox and those around him! Thanks to those who posted this video!
