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👍 My sincere, thank you to Dr. Tenant and PainWeek. I am in your service and will ove to share my experience and what i've done to treat and to survive what I have. If anything that I can share would help relieve anyone of this degree of pain, i'm more than happy to do it! ❤ 🙏 The opportunity to present and represent what is so difficult to put into words is an amazing feat, and thank you all so much. It is amazing to see this come to come into fruition to help others.
i never had single headache before 42 years old, now i am 43, the whole year suffer from chronic migraines, i have counted the most severe time 8 months without remission of chronic migraines, i felt the pain from base nose, front cheeks, forehead till my back of head got it both sides, not unilateral, pain relieve medication did not work at all, it was making me become very frustrated and depressed, i can not work so i stopped my work, but finally i found doctor who prescribes me flunarizine 5mg before sleep, and venlafaxine 37.5mg, its work after 6 weeks of continues treatment, please keep note; everyone condition is difference so please don't give up to search for help from specialist, i hope you guys all alright!
My mother had severe chronic pain(trigeminal neuralgia, as well as the lingering effects of a bad lower back/tail bone injury she sustained as a child), and despite their best attempts(including several surgeries, gamma knife treatments, other non-opiate medications, diet changes, etc.), her doctors couldn't do anything other than prescribe her higher and higher doses of opiates. In fact it got to the point that she was taking _16mg_ of dilaudid 4 times a day, in addition to a 100ug/hr duragesic/fentanyl patch, 10mg of valium 2 or 3 times a day, neurontin, tegretal, baclofen, imitrex(for migraines), elavil, these little greyish brown buccal or sublingual ketamine troches(i think they're called?) as well as ketamine lollipops, 1mg of klonopin at night, 20mg of ritalin hust to counteract the sedative/hypnotic effects of the rest of medications, etc. Actually, at her "peak", she was on all of that other stuff, but the oral dilaudid and ketamine were switched out for a round the clock IV pump of the two medications(and mind you, this was all for a 5'6" or 5'7" 90 pound woman, who eventually had to have a feeding tube installed because A, her mouth, tongue, teeth, throat, face, jaw, etc. hurt so badly that she could barely eat, and ended up going on a liquid diet, and B, out of nowhere she developed one of the worst cases of acid reflux the GI specialist at the hospital in our local city had ever seen. It was so nad that she was still having reflux problems even _after_ a fundoplication.) Sorry, I'm rambling. Anyways, since she primarily suffered from nerve pain, her doctors tried both methadone and levorphanol(in fact my father, who owned a pharmacy, compounded these 12mg capsules of levorphanol for her, I think because there was a shortage at the time. This would have been early 2000s. In fact, i think the strongest tablets they made at the time were only 2mg.)) It was when i was still in middle school, but my recollection was that both methadone and levorphanol helped a little bit. At first. Then after a few weeks/months, she was back to her baseline pain levels(or perhaps she just got used to her new pain level, and could no longer appreciate any difference, as I'm sure you're aware, pain, especially chronic pain, can be an extremely complex issue.) I don't recall why, but after trying every opiate under the sun(OxyContin, MSContin(and MSIR & Kadian), Demerol, Opana, of course the methadone and levorphanol, etc.) eventually they settled on dilaudid, adding progressively more powerful fentanyl patches, starting at 12.5, and getting to 100ug/hr. Good god, i dont know why i end up writing these extremely long, pointless comments before bed when I'm half asleep. Lol. I'm going to stop now.
I’m so tired of it and being a burden as well as looked at as a drug seeker or addict when opioid the only thing that can get me out of bed and able to barely wash myself. It’s so degrading and no life to live just to suffer daily
Difference between syndrome and symptom….back pain post surgery is a symptom reflecting different possible causes, indeed wrong diagnosis or wrong decision of surgery (as surgery is a good business and creates good incomes), another cause which is totally missed or denied: allergies or extreme sensitivity to metal implanted. German surgeons have published more realistic statistics: 20 % of joint post surgery (with implanted material) are allergic reactions…but because Melisa test is not famous (not really appreciated by surgeons for any reason…)tests are not done before surgeries…. Allergies are causing tremendous pain….all over the body…and are only considered real if redness or heat are appearing around the wound…. Allergic reaction is inflammation in the joints, thereafter circulating in the entire body, becoming a metabolic cause…
I have just experienced this syndrome. I take the medication for a recent femur/hip nailing surgery and for chronic neck pain. For a few days I just felt a general feeling of being unwell. Last night my pain, even with my opiate medication, it kept me awake. I am presently waiting for the medication to wear off hoping the pain lessens. My sister cannot take opiates for the same reason, opiates make her pain more intense. I have tried to explain to my doctor that I only need to take the mediation when my pain is at its height. She insists that I take it as prescribed. So, you are correct, Primary doctors do not always know how to treat pain. I have to be tested periodically for the drug or the doctor will not give me the mediation at all. I will be looking for alternatives.
I'm female and I do not get the hot pocker feeling, it is in my eye, but it feels more like someone's foot it in my head kicking it from the inside, especially with vibrating movement like a car ride. I literally feel violated after. Laying down makes it more severe. Sometimes pounding, but not always. I even get tremors, shaking.
Hey, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!
This is very informative. Can this also be caused by herniated disc’s and a cyst on the spinal canal? I know my son has the severe pain, and the heat episodes at night as well as other times. Thank you for the research and sharing of your knowledge.
THIS MAY HELP SOME PEOPLE I'm 54. April 2, 2023 I had my first aura (without headache). Since then I've had 4-5 episodes per month (41 in total); sometimes twice in one day. I had an MRI and a visit to an Ophthalmologist; everything was fine. On April 11, 2024 I had a very unusual episode- a scary one. The entire field of vision was moving left to right and back again- bouncing side to side. It lasted a few hours and then it resolved. It never reoccurred but it scared me. I wanted to see if there was anything I could do to stop the aura so I made some changes: I was taking a blood thinner (Xarelto 10mg) and multivitamins/supplements (one-a-day vitamin, fish oil, saw palmeto, vitamin D tablet- nothing strange)- taken on the same day. I decided to both space them out and separate them. I now take the blood thinner on Monday, Wednesday, Friday afternoon and Sunday morning. I take the vitamins Tuesday, Thursday and Saturday. I initiated this spacing on April 20. My last aura was on May 23. I haven't had an aura in 78 days and counting! I'm not sure if I was taking too many blood thinners, too many multivitamins, or it was the interaction between the two. I did read later that multivitamins, while being useless can also interact with medication. I no longer take that multivitamin tablet at all now. No one told me that auras could be caused by the interaction of medications/vitamins. I hope this helps some people!
Had probably 4 hours sleep, my skin is burning like I've been in the Caribbean for weeks without any sun cream. Touching the best bedding still hurts, had enough of it now, also people looking down at me. Wish they had fibromyalgia and feel like I feel
Does this make your dorsal nerve stick out ? I’ve been having penile pain and my dorsal nerve recently starting sticking out while flaccid and also erect
Amen! So happy to know its not just me cause im suffering so bad i wish i never tried beating my 2 back to back cause almost 2 years of chemo and radiation and 6 surgeries im abandoned and im suffering its just not fair😢😢😢
Anaesthesiologists also use it alongside other medications for pain control during general anaesthesia (yes, your body can still perceive pain while you are under general anaesthesia). It's use is controversial, but only because it lasts for so long and can stop you from breathing. This isn't a problem when you have an anaesthesiologist there, but what if your breathing become depressed post-discharge when you're at home, alone?
The loss and grief mentioned in the video has been compounded exponentially by the US government's War on Chronic Pain Patients. There was no reason to discontinue my pain meds, I had taken them for 25 years without issue. I have been in constant pain for 30 years. I absolutely HATE the federal government.
I want to go but don’t know if I can afford to go. I’ve been in pain since I was 14 years old. Name it I have it. It’s a joke but I always read and educate myself. I’m praying God will make a way for me to go. 🙏🙏🙏. Plus wasn’t sure if u knew anything about arachnioditis? Thk u! For all u people do!♥️♥️♥️
I was taught in school growing up that it was wrong to stereotype. This is so ugly and wrong. Have fun with your worthability score. The endless possiblities of the real time national monitering data base. These program analytics can't see the whole human being and you are stealing away someones freedom and consitutional rights. Not to mention Human rights, no longrr treating people with dignity but as numbers you consider to be factual statistics. I won't worry because all these things must come to pass. I hold my faith in God. The only guidance I need comes from him ,who created me.
Day to day. I can’t take the pain, and for what? Just to deal with it tomorrow. I’m so close to breaking now. Got worn down and the dr’s have cut my meds again. Hope someone fixes things before to many others end up like me
Well I don’t know about acupuncture. But acupressure certainly works. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-jY1s4LP33io.htmlsi=lbB3fA-_tQ_EseN1
That's I never close my eyes to stay with my pain alone. People like me run, lift heavy weights, scream, hit themselves to distract from the cluster headache.
8-24 hours 😂 I did 7 days at a facility took a 2mg subutex and instantly went into precip along with my roommate who came in at the same time as me I spent 11 hours smashing my head on the brick wall because the pain caused from the trauma to my head distracted me from the symptoms caused by precipated withdrawl
Man I have OIH it make pain so much worse I swear you’ll wanna stop doing opioids and deal with the regular pain! The drug induced pain is WAY MUCH WORSE! My mom says all the time “if your gone to do a drug that makes you hurt why take it” lol she’s right! Everytime I used fentanyl my torn rotator cuff would feel as if my whole shoulder was giving birth to a bowling ball! Without the fentanyl it just kinda hurt unless I over use it! Don’t get me wrong, it hurts everyday but on drugs the pain is UNBEARABLE
I had a op on my back twice and the last time he said he can't know more but he took out 5bolts from my back and the next time there is nothing I can do so I am in agony with this bulge in my spine I can't sleep at night night although I sleep on my side but sometimes touch the bed and wow What can I do 😢😢
was told Intravenous IV-IG can reduce Small Fiber Neuropathy via regular Intravenous administration. Recently I was introduced to a oral capsules by METACURE. The Revive Alpha Lipoic Complex with Curcumin is much faster than Intravenous IV-IG and ALA. The SEVERE NERVE PAIN, TINGLING AND BURNING are reduced about 90% to 100% in one to two weeks. The NUMBNESS is slowly going down though takes much longer.
Legacy opiates are much safer now that narcan is widespread. Chance of overdose resulting in death has diminshed greatly with prescribed opiates and has risen greatly with street drugs. Physcians can keep patients alive by prescribing opiates.
Good afternoon! Just wondering if u know anything about arachnioditis? If u do,please I’d appreciate it if you could let me know. I’m hoping I could go to one of your seminar in Vegas.
