I am a Masters Student at Johns Hopkins University, I live in South Africa, I am interested in wholesome spiritual living and remembering my connection to the Divine. I have Multiple Sclerosis and as a result like to live a healing and soulful life. I also teach Yoga and offer Reiki Healings
- Chronic brain fog - Chronic fatigue - Walking through deep water - Spinal lock, extreme lower back ache/pain (went away by itself) - numbness in right side (leg) - - - -tingling, pins & needles right leg - deafness in right ear, complete deafness in right ear - complete loss of balance, couldn't walk straight, loss of walking gait (ataxia?) - ENT ear specialist also says nothing looks wrong in her ear - started injection DMT didn't work - extreme brain fog, memory, numbness, struggling walking due to - deafness in right ear & numbness went away in right leg Brain jitters Ocrevus - symptoms changed but still has chronic fatigue - neuropathy for Chronic fatigue - brain fog - water helps - back pain (exercise) - forgetful - Heat tingles/pins & needles
Once when l was in Graaff Reinet my little dog “Sandy” went on a walkabout, she was very old and although l looked for her for hours l never found her, l’ve missed her ever since - your little cream coloured dog reminds me so much of her!
@@john1559 depends how hot! I love sauna and can tolerate heat well, maybe because I’m from a really warm climate (South Africa). BUT not all saunas are created equal! There are so many different style saunas (finish, Swedish, infrared etc) 🔥
@rebeccashain ok maybe that works for you ,for me (I live in greece)when I am exposed to extreme heat some minor tinglings and headache hits me. Anyway keep it up and stay strong and healthy
Thank you for the wonderful information and your positive attitude 👍. Even after 24 years with MS, I'm still learning and adapting and willing to try anything! I also really appreciate the beautiful things you said at the end. I have four children and have never taken time for myself. I manage to exercise in some way each day but all the other areas I've let go. Thank you for the reminders🧡Love from CT, USA
@@MamaV6531 thank you so much for your comment. Please take time for yourself! I know it’s probably tough with 4 kids, but you deserve a break too 🥹❤️❤️❤️. I think it’s super admirable that you’re parenting while having a disease. You deserve an award!
Thank you Rebecca! Some days aren't pretty 😆. I have actually been able to hide my diagnosis from my kiddos because my symptoms have been invisible but I notice things have gotten a bit worse this past year. We'll see how long I can put up this charade😮💨. It's exhausting so I am proud that you are so forthcoming. And writing a novel and finishing your masters!! 😍. Amazing! You get an award too👍🧡
@@MamaV6531 hopefully one day you can explain it to them in a way they understand and can support you too (cause mama’s also need support hehe)! Thank you so much ❤️❤️❤️
I've been supplementing with vitamin d since I got diagnosed. I've heard some good things about magnesium supplement too and also turmeric. Think I'm gonna have to take a trip to GNC and try some of these other supplements you mentioned. These are some great tips thanks 👍
really???!!! have you noticed that almost all people with MS eat plants??? have you ever heard of a carnivore with MS??? so...for a condition that was caused by plants you prescribe.. more plants???? what a BS!!!
There are studies on the effectiveness of lions mane etc for remylenation ❤️ I don’t think you can tell me that what I’m sharing is bs when I’ve read through the studies. I understand that there’s a huge movement for carnivore diet which I respect. But if I respect people doing the carnivore diet and don’t call it bs then please respect MY choice to not do it. I will never give up herbs because I love them. It’s MY choice. You can make your own YT channel and share YOUR views ❤️🌹🙏✨🌸🧘🏻♀️
I think carnivore diet is great and I’m super excited for all the people doing it and I love that people are sharing about it. All views are welcome but only in a respectful way. Please be mindful of how you speak 🌸💕✨
Great tips and advice I definitely want to try some of these supplements particularly the lions mane and turmeric. I remember in the first year my doctor was trying to figure out what was wrong I had numbness on my left side and of course in my legs.Because of the brain fog,fatigue and numbness I thought I might have had a mini stroke or something, then I brought up neuropathy but the doctor kinda scoffed at that. I knew something was wrong so I kept researching my symptoms.Finally I got some MRIs done and I got a neurologist to determine that I have M.S. My Grandpa died of ALS so I was worried I might have that because the symptoms are eerily similar. Luckily my Neurologist doesnt think I have that.
Oh gosh that is so intense and what a journey you have gone on. I’m so sorry to hear that and how long it took, as well as how your grandpa died😢. But I’m glad you got your diagnosis too so that the guessing game is at least over… some doctors do scoff at herbal remedies and I think that’s very sad because there should be holistic approaches to ms alongside the treatment! That’s why I think there’s no harm in trying these things and seeing if that can at least help the symptoms; even if they might not “fix” the actual disease progression
@@rebeccashain Thanks for the reply and your kind words. It sounds like you have been through quite a journey yourself getting diagnosed.It was sad the way Grandpa passed but he lived a good and interesting life. He was an American WWII veteran, he met my Grandma in Germany during the war and brought her back to America where they started a family in California. I heard my grandma actually gave up her dream of being an actress so she could put my grandpa through college and he became a fairly brilliant scientist that worked at Stanford University till he died of ALS in his late 60s.
Thanks for the tips and info.I was recently diagnosed a couple years ago though I was having symptoms for years but I never went to the doctor then about a year before I got diagnosed my balance and ability to walk got really bad not to mention the chronic fatigue and spasms. It took about a year before they finally had me do some MRIs and they found some lesions on my brain and spine. Now my Neurologist has me on infusion therapy for about a year now,so things aren't too bad just trying to adjust and stay positive. Thanks again for the tips!
You’re so cheerful even with having MS. You give me so much hope. There’s a possibility that I have MS. I’ll be seeing a neurologist soon and have a spinal tap done. I had a MRI done and spots in my brain showed that there a possibility that I have MS.
For a infusion I soak my herbs in hot water (boiled from the kettle) then I leave it overnight before putting it in the fridge to drink for the next few days
This video really helps with this new life, i was just diagnosed the 14th with MS and its still pretty heavy and i havent fully processed this “new-me” but i greatly appreciate all of your tips, thoughts, and insights on cooping with the episodes
Oh gosh, it’s really tough in the beginning❤️ just make sure you’re taking time to process but also knowing that it’s okay if you still feel emotional about it as the years go on. Good luck xx
Excellent re: stress. And boundaries. I was horrible with it, as I felt as a sensitive empath (with ptsd from childhood issues, where most autoimmune diseases originate actually), so bad. Boundaries was a "bad word' to my family...toxic traits are just as bad as mold or other physical triggers. So important to go there. All excellent items. I pray you much success here as you help others, which when we do so, it affirms ourselves, too, right? WIN WIN, Not woo woo :) Ciao for Now, thanks again!
I'm so sorry, dear. I'm riddled with "stuff" stuff, just wondering though...did you ever get a test for EBV, Mold or were you recently vaccinated with shots, or were you ever on birth control? I will pray for you, please pray for me. Have you used HBOT or IV ozone? I'm so glad you are improved with quality of life. The fatigue/neurological are the hardest for sure!
I’ve never had the EBV and haven’t been tested for mold - but would probably come up positive for mold because I’ve spent lots of my life in moldy homes🥲 I think the mold also contributes to the fatigue and brain fog (but like I said I haven’t been formally tested it’s just a hunch). Will definitely keep you in my thoughts. Sending all my love ❤️❤️🌸
The chill vibe of this is just what I needed before I have my rituximab infusion for RRMS. Thanks for sharing your infusion day! I'm going to try to get out in nature tomorrow after I have my infusion. ❤
I sympathize with you about forgetting that we have MS until the bad days hits. I forgot how tired I was from MS until I stopped the medical drug copaxone due to a dangerous side effect of that drug. So now I am without the medical drug until they approve my new medical drug tekfider. Good luck to me.I wish you to feel good with MS and happy.😊
This was also very very good to listen to. I have learnt so much tonight from your Chanel. I don’t feel so alone anymore. My fatigue is horrible, I can’t think straight, my memory is shot, my depression is so sever, the pain in my lower back is so crippling, my numb limbs + pins & needles are a pain & feels horrible… to many things to list here. I’m getting a MRI soon 🙌🏼 You are so inspiring 🩷🧚🏼♀️🩷
Good luck with the MRI! I’ve found that taking 5HTP has really been helping me with depression and energy levels because it puts you in a deeper sleep at night which is super helpful for the fatigue in the day
@@rebeccashain also watch Dr bergs video on MS, i think people doing lots of comments and telling is about their experience is also good and valuable to learn something.
@@rebeccashain thank you for making such informative videos! You have so much knowledge & have a great approach to it all, so well done. I’ll be watching a lot more of yours 😊 You’re gorgeous by the way 🧚🏼♀️🩷
Thanks so much for sharing. I can totally relate to your story. I have MS and chronic fatigue is definitely the most persistent symptom! Some days are better than others. But a super busy day, if I overdo it, there will be a price to pay. I’m also on Ocrevus and took Tecfidera before that. And I took an injectable for about three weeks before Tecfidera and yes, only three weeks because it exacerbated some symptoms that forced me to beg my doctor to explain and he said stop!! I look forward to hearing more about your wholistic approach.
I find those injections so scary, I’m really glad I didn’t have to do that. So good that you’re off them and had the help of your doctor to make that decision! Chronic fatigue is super intense, I’m going to continue looking for things that help so that we can all hopefully feel a little better. Totally relate to you on the busy day too, we have to really pace ourselves or it can have such negative affects 😢
Loved listening to your talk, see you soon I hope. My brain fog is the worst symptom for me , love to know what you do to help ease it. Thank ❤❤❤ you and good luck.
Love your videos! I too am a M.S.warrior! ❤May I ask where did you find the little bitty grater? It’s the perfect size! Much love and light to you beautiful lady!
Such a perfect size! I love that grater hehe. This isn’t very helpful but it actually came in a Christmas cracker 😂 which is very funny! But I have seen a couple online? Have you tried Amazon maybe? ❤️
Hi 👋🏽 I just wanted say that you are really great and amazing for having a strong sense of self care and that your videos really are a breath of fresh air. I'm glade your treatment went better and I hope that you enjoy the rest of your day❤. Oh, I did want to ask, are your treatments monthly or do you receive them every 6 months?
