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This is an excellent discussion. I wish economist, administrators and policy makers would listen carefully to professor Leary. Frontline healthcare providers are increasingly forced to check boxes to support billing (isn't that what the EHR is designed for?) rather than being supported and recognized for the humanistic care we are ethically compelled to provide, the best we can under the limitations of case load and that 15 minute office visit (care episode). Professor Leary articulates what's important clearly and succinctly in ways that the legions of health administration experts do not. Excellent.
My diagnosis came after failed spinal fusion and the shock that came with increased chronic pain and disability leading top drop foot twitcing sensory pain and overload. My treatment was a website and cbt I try everything medication for pain and depression got me out of bed with some ability to face being like this but nothing to really help me and its cost me everything I have a 7 year old son so i continue to fight for him. i cant imagine this going on much longer its been 5 years now and im giving up.
Alot of woman have been sexually abused and DONT HAVE FND, most people have gone through trauma at one point in their life AND DONT HAVE FND. Of course if you gather fnd patients and RESEARCH them that they have had trauma and or sexual abuse, why? because you will find this with ANY group of people! Yes trauma can trigger it but it has nothing to do with fnd. I wish they would go beyond talking about this as mental health problems, its so repetitive and going around in circles. So many research papers with 'fluff' and the same information. It's like a dog vomiting and eating his own vomit again and again. Yes, I have FND.
You mention relative risk reduction, but not absolute risk reduction. Why?. Also, this all asumes that all Ldl is bad. If it is that bad, then why do we have it in the first place?
This video was quite helpful and informative however functional symptoms don't always require attention. Especially considering the fact functional symptoms can impact a person 24/7. A functional symptom has no known physical cause and refers to abnormal functioning of the body. Functional symptoms also aren't caused by physical and/or psychological risk factors, those risk factors simply increase the chances of you developing a functional disorder. If those physical and psychological risk factors were truly the "cause" everyone would have functional symptoms. "Psychological trauma is to FND what smoking is to stroke, a risk factor but not the cause." - Professor Jon Stone, Consultant Neurologist and Honorary Senior Lecturer at the dept. of Clinical Neurosciences, University of Edinburgh
I'm 69, became disabled from FND at age 62 but it took years to figure out this diagnosis. My symptoms are textbook FND. The more I've learned, the more I've been able to improve my quality of life. I'm a veteran so I've had access to lots of programs and services, mostly focused on PTSD. I wish we had FND informed providers near me like you do in UK. Throughout my ordeal I refused opiates and benzo medications, thankfully. My best results have been from Biofeedback and gentle yoga. Especially the yoga. It was a big leap forward when I realized my body can operate well when controlled by habit thinking, just not with conscious focus of thoughts. Frankly, i thought I was nuts untill I saw some wonderful videos like this one to enlighten my point of view. The more I've learned and thus acquired more of a sense of control, my anxiety levels decreased which lessen the conscious focus. When I can stay calm, my habit thinking controls my movements, at times surprising me. :) It may be controversial but I think cannabis helps because it calms me and distracts my conscious focus. Thank you for this video and reading my comments.
hello, have you already come across with ''the body keeps the score'' bestselling ptsd-book of Bessel Van Der Kolk. A shrink who started of working with veterans. I thought I must mention it to you, he says some people are massively helped with yoga, acting/singing and some with certain drugs. cannabis is controversial. I believe it can really help some people. but other people might get serious issues when trying cannabis even once, myself included./ I wish you best of luck.
Chronic fatigue syndrome/ME is not a psychiatric illness, it is a complex neuro-immune disorder! Chronic fatigue might be a symptom of a psychiatric illness. Please make this difference in your next lecture? Thanks
How do I find out if I am Lp(a) null? I have done a DNA test through 23 and me. Is the data already in there to be found? In my case I have good reason to doubt my non-detect Lp(a) level is genetic as the literature states. I am wondering if my non-detectable level Lp(a) might be an epi-genetic effect of my rare combination of diet (low carb/carnivore and OMAD) and exercise metabolic regime (long distance thru-hiker who spends months on-trail hiking 10 to 12 hours per day). None of my 3 siblings have Lp(a) levels that are non-detect. With respect to Lp(a), the literature does not speak to the effects of a zero carb/carnivore diet or daily high intensity long duration exercise. From what I have been able to discern, my combination of diet and exercise constitute a metabolic regime for which there is no published data or research. My Lp(a) is non-detect (<8.4 nmol/L). The lab flagged the non-detect result with an * asterisk footnote stating "Results verified by repeat testing". Small LDL-P is also non-detect (<90 nmol/L). Large HDL-P = 14.5 umol/L HDL-P = 36.9 nmol/L LDL-C = 126 mg/dL HDL-C = 90 mg/dL Triglycerides = 37 mg/dL Cholesterol (Total) = 222 mg/dL Fasting Insulin = 2.6 uIU/mL C-Peptide = 1.5 ng/mL In my case, I am 59 with a history of insulin resistance and a host of associated metabolic problems. I now live on a zero carb/carnivore diet and eat on a One Meal A Day (OMAD) intermittent fasting schedule. I am now insulin sensitive and all metabolic problems have been reversed. No medical problems. No medications. Blood work and vitals are all very good. I had my blood work done after 3 months on-trail hiking the Appalachian Trail (2,200 miles) from Georgia to Maine. I maintained my zero carb/carnivore diet and OMAD eating schedule (with no snacks) on-trail. I hike 10-12 hours per day covering 12 to 15 miles carrying a 35 lb pack over hilly steep mountainous terrain. Heart rate is near maximum for several hours a day during ascents. My resting heart rate is in the 40s.
This is very helpful, I’ve been diagnosed with fibromyalgia and I have spinal cord injury, thats more than 20yrs old. I often wondered if some of my fibro symptoms were FND related. I get sudden headaches that trigger bad shaking of my body, I loose control of body function of my legs to the point of falling down, and sometimes bladder. MS and epilepsy have been ruled out. And talking at times I trip over my words, my fibro fog gets extremely bad. My whole body gets shuts down. Full total system overload. And stress is a huge trigger for the tremors I experience. I’d like to make comments on the Australian FND Hope, but they’ve disabled their comments. Can a GP diagnose FND, or does a Neurologist need to. Our hospitals are back logged with a 18mth to 2yr wait to see a specialist. You’ve provided a plethora of crucial information on this vlog. Thank you.
Thank you for this video and to Dr Glenn Nielsen particularly. I have diagnosed FND for 14 years and as with most with FND my symptoms have progressed and evolved. I started with paralysis (waist down), and gait issues. This has evolved to less of these symptoms but, more to speech, tremor and facial paralysis. Both before and current problems also affect excretory systems too. Given that I know is that flickering lights and bright white car headlights (or bright white lights in general), trigger my facial paralysis, cognitive reasoning and the closing of my left eye; I have often wondered if a clinically introducing a flickering or white light whilst undergoing a fMRI may help to distinguish what is going on neurologically in greater detail. I also know that heat, inability to take breaks when needed and high stress affects my gait and speech and cognition. I am sure these have already been extensively studied explored but, I am very interested in helping others with FND and helping the advancement of treatment and education. Best wishes and once again, thank you. Dan
There is no mention of severe and enduring mental illness and the risks of CVD. This is shocking considering those with SMI have a reduced lifesoan of 10 to 20 years.
No question exercises are the gold standard of promoting health- and life span that nothing else can replace as effectively as well as safely as far as known so far.
What are all the exact tests that need to be performed to diagnose FMD and by who? I had a diagnosis of MS when I was 17 and now I’m 47. I’m still walking around the house with with walker but use electric wheelchair to go out. I Have the same issue with my hip abductors, and a few other things that were mentioned. Over the years I was also diagnosed with Raynauds disease.
My FND symptoms started a few weeks after my first and only Astrazeneca jab which was mandated for over 60s in Australia. I was walking 7000 steps a day until then that was 2 years ago. Still looking for answers which I may never get. Thank you for this very interesting and informative video.
I’m a CHF patient. This drug class is miraculous!!! I couldn’t complete a stress test. I could nearly walk due to shortness of breath. I had many thousands of PVC’s a day. My BNP was abnormal. 3 months into this treatment, my BNP is normal. My Holter is normal. I can walk over 10,000 steps. I could barely across my suite. These drugs reverse heart failure!
Ocrevus didn't help my PPMS so I'm in Mexico for HSCT in 5 days (a treatment which is effective in rebooting the faulty immune system of many with MS with cyclophosphide. Rituxan is used after the chemo.)
Very interesting. Since Ocrevus is the only dmt currently available for PPMS, I'll have to continue taking my chances with it. Hopefully the BTK inhibitors get FDA approval soon.
