Hi Jay. 2013 was not a good year for the family. For me more so on my mother's side. I had lost my uncle, God-Mother, Cousin on mothers side, my step daughters father and a very close friend. Getting the call from my Dad (your uncle Gerry) near Christmas saying you were terminal and decisions were being made about "pulling the plug" came as quite a shock. I was so happy to hear that just before that happened you awoke from your coma and were doing better. That news helped make a bad year a little better. I still hope for a full recovery for you but I am so proud of the progress you have made to date and wishing for so much more. Your books and vlogs are a testament to what you have gone through and what you can look forward to. Keep the faith.
I would say that most people will experience some sort of disability in their life, at least temporarily. Breaking limbs, getting sick, or just getting old. I also don't understand why people don't support making the constructed environment more universally accessible, because it usually makes things better for everyone. I frequently wonder how many ER visits have been prevented by curb cuts for sidewalks because people not currently experiencing disability ate it not stepping high enough over the curb.
You can become disabled and homeless, because the system that most Americans believe will assist you if you become disabled will actually deny you financial assistance, even if you have multiple conditions on the list. Then you will suddenly not be able to pay all your bills and you’ll be screwed when you thought there was a system in place to help people for that. You got hurt and now you can only work 10 hours a week and not 40? Well too bad you can still work, go ‘live’ on your 10 hour a week check.
The understanding that disabled individuals constitute a group that anyone can join at any time helped me work on my own ableism, both internally directed and externally directed. It also helped me to expand my understanding of disability beyond clearly visible physical disabilities. Disability probably isn't really even a "minority" state of being. Lots of us are walking around with invisible (or very common disabilities like nearsightedness) that we don't think of as "real" disabilities because of stigma associated with the term. The irony is that we often refuse accommodations thatwould improve our lives because of the fear of that stigma and we don't even acknowledge the effects of all the high-effort coping we do to pass for "able."
YES!!!!! I love your insights. I think this isthe first time ive heard the actual dafinition of abelism, somthing i find weird scince i have been intrested in howto make less of it in the world for a while now. Im neurodivergent, only diagnosed with dyslexia but probably somting more that has gone undiagnosed. And i remember my taechers always to be acomadating bat rarely actualy doing it (and not keeping it upp for long when they did). I dont think they quite understood that disability doesent go away; that its stil there even when its not obviusly in their face. (i was late to learn to how read but still didnt get a diagnosis til several years after i learnd how)
I have several disabilities that mean I end up spending a lot of time in bed, or at least housebound, and "You just need to try harder" or "Just stop being lazy" is something I hear A LOT. Doesn't help that most of my disabilities are invisible, and I only use my chair part of the time. I've been told to "stop faking it" too.
This is really really good, and I agree with everything you’ve said. My partner is physically disabled. (I have dyspraxia, but it’s not relevant when it comes to a discussion of how people react to physical disability.) The way people react to realizing I’m dating someone who is disabled is incredibly frustrating. My parents think he’s not good enough for me because he “can’t put in the same amount of effort as you can” which is just, so wrong.Because were 20 and considered “too young” we have to fight doctors for testing despite his mother being diagnosed with the condition he probably has. I wish more people realized this, disabled people are the biggest ‘minority’ in the world! And most people will become disabled as they age! Also!! I think if you wanted to improve anything it would be cutting out the spaces where you paused. But the presentation is awesome and you’re very articulate. I really enjoyed watching this video and I can’t wait to see more.
I NOTICED THREE DAYS LATER HORRIBLE UPDATES!!! I noticed that I am not actually able to see or change allowances on links left in the comments. I did not know that this sort of interruption would occur when I asked for things to be placed here, and I am so sorry that things went sideways! If you really want to leave contact information, leave a comment on my site at wheelchairhero dot com. I know that I can post there no problem! I am so so SO sorry for the inconvenience!
Have you ever watched the video by Ian Danskin of Innudendo Studios about genre and how it works? Here's the link ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-tMVl5U3SlS0.html
Very cool...we owe a debt of gratitude to our forefathers for Labour Day and all things work-y. Reasonable hours and reasonable pay...how cool is that?!!!
Did you ever get more information about this band or album? I got it on an mp3 CD from Fuck The Facts with basically no tags so I've been trying to track it down as well.
the banging and laughter at the end is because there was extreme weightlifter dropping weights during the session we recorded andrew's trumpet. the whole ceiling would move, the lights would bounce around and dust would escape from the cracks lol aaa
