Not point seeing gp fob it off as something else happened to my mum a year ago probably too late for drugs now

All true but nowhere near strong enough a message to cut through. No mention of the total lack of any support for early-onset diagnoses; hardly a mention of the devastion to the lives of the partner of the diagnosed who quickly become 24/7 carer, breadwinner, admininstrator, house-keeper - and, at best, exhausted, frustrated and often lonely as conversation at home dries up, social life curdles and even just going out is difficult or impossible, with or without their loved one. How many times have we found out afterwards something that would have been extremely helpful to know earlier? Or asked how to do or handle something but there's no evidenced adivce despite the millions of people diagnosed, so we fall back on forums with too many thoughts and so much pain? Where is the advice (before & as it's needed), a true holistic 'whole person' care plan (not just treating individual non-Alz pain), an indvidualised long-term strategy (other than 'when all the savings are exhausted, the council will move him to another location')? The diagnosis is frightening and heart-breaking; what comes next is currently worse but please Prime Minister, and Health Minister and MP: don't just say 'ah', make this someone's task to bring some brain power and process to these families. (I might need more than 1 minute).

So true. With cancer you get on a bus for a journey through treatment. For alzheimers there is no bus. If you are lucky you get a diagnosis before it's too late to gain any benefit through meds. Other than that you get a follow up with a gp who asks are you OK, are you eating etc. Someone with dementia related illness always answers that they are fine, because they don't realise they are not. It's so frustrating.

👍 true

My experience with my mum was completely different to all yours because all the medical professionals believed my mum was of full mental capacity years into her having dementia when she clearly wasnt of mental capacity and they would not listen to me. It was terribly frustrating. When i called my mums GP initially concerned theh would not do anything at all until she approached them herself. I was in tears and it was years before she would attend the doctors. She was diagnosed with dementia and altzimers. By the time she attended ghe doctors it was too late to put her on the medication that slows down the process. I think that is also wrong and a trusted family member should be listened to by doctors and medical professionals. How can they comunicate with a person that lacks mental capacity?? My mum may have lived a while longer had they listened 😢😢😢😢

Nobody does anything. They should also go see what's going on in the care homes as well. Despicable. Families trying their best to cope and the people diagnosed themselves. There's absolutely NOTHING in the form of help NOTHING. They get raped and murdered and abused and neglected in the care homes. Shocking 😢😢😢😢😢

Oh my word…! Gail is one of the bravest humans I know. We have helped on a couple of studies and whenever Gail talks people listen. But we don’t just hear her beautiful northern accent, oh no, we hear a heart pouring out and we hear a shared voice echoing the frustrations of thousands of others like us who have this diagnosis. Keep going Gail, my hero. Blessings, John

I’m a Brain Injury Specialist…TBI survivors and those with occult brain injury can look like a person with dementia and TBI increases your risk of dementia…the types of early onset dementia are associated with 🧬 genetic factors and usually an immediate family member had it, regardless of whether it was early or late onset. The dementia described here with emotional and personality changes is more often behavioral variant Frontotemporal Dementia…and it IS a “pre senile” dementia. 40s to 50s and marked in early stages by loss of empathy, compassion, impulsiveness, irritability, and anger. The thing that stands out is that it’s a sudden change. If you notice this change…get a loved one to a neurologist immediately. Dementia can be found in people in their teens…self awareness is also sometimes affected so people may become angry if you suggest getting checked…the patient is often unaware…

Thank you so much for this video. My wife also has early onset Alzheimer's and I am concerned about how my four wonderfful children are coping, as all they say is "we're quite okay, Dad, how about you..." type comments. Seeing your through genuine grief to the pride you have in being the son of such a marvellous talented Dad is truly uplifting.

My husband was 54 when developed extreme anger , apathy , lost all empathy and stopped caring about his appearance Two years later he has no executive function , doesn’t talk to anyone including his family and has paranoid delusions This video is so important as my husband never got a diagnosis . Even now he has no diagnosis as he refuses all contact with medical services

Dementia can happen even in the 30s or the 40s.😊

I’m so glad to share this good news here #Doctorojie helped me cure my herpes and depression by giving me some natural herbal medicine juice that helps me get rid of this damm herpes .😊

Isn't that called FTD?

Great to see Dementia UK taking a lead in promoting Sporting & Reminiscing Activities for people living with Dementia 👏⛳⚽🏓👏

Your wrong, Alzheimer's causes dementia; dementia does not cause Alzheimer's

🎉

What is GP?

Am 38 and i tend to forget so much, i cant concentrate and its very difficult for me to learn anything..i cant even right a text to my wife,i feel like i dont have words and i dont remember them. And my tongue slips frequently when i speak. It took me ages to write this simple comment

That's Biden in the debate!

Im 10 and i have it😭😭😭

Select drinks that suit thier palate or known preferences, or make it fun with mocktails in the summer

I’m so sorry for your loss of your father. Jody was a blessing to you. God bless❤

I am teen and i am so scared because i think i have alzhaimer but i am full healthy. I make blood analizes and nothing scary have.😢

my grandmother had young onset due to family history (we didn’t know about this until she was diagnosed) and my advice is to cherish every moment you have. They need to know they’re loved, even if their brain isn’t working right. Dementia is a monster and doesn’t discriminate

Do young onset dementia live a full normal life?

My sister RIP was a nurse, she felt my mom was going thru something yrs ago. Thinking someone was coming into her apt and cooking smashinhing her tissue , tossing her bedcovers back while she was gone, and that wad in her 60s maybe. Then she was thinking someobe was coning into her current residence and cutting her pants up the seam and her underwear. She mives items around the house and forgets and accuses others, like she moved a colannder and got mad saying when people dont have things of their own theyll take yours, and she misplaced her tithes and was MAD...I found it in her housegown pocket. She drives fine and comes off normal on the average can hold conversations, but i think it is a variation of paranoia

So sorry for what you’ve been though this is a very moving tribute to your dad and to Jody x

I think I have dementia

My brother is having many of these symptoms right now. He already had epilepsy, but now he's showing signs of aggitation, unable to concentrate, unable to express himself, and no interest in doing what once were his normal activities. He even said "I don't know what the problem is." Getting him to his neurologist ASAP. Just trying to get as much info as I can.

Aww 😊

❤ thank you for telling your story, and thank you to all the Admiral Nurses for such a great service in supporting people through the unknown

She ain't yiung though...

Thanks. UK really draws attention to young onset. US doesn’t have much info. Very appreciated. 😊

Dear Christine and Andy, sending love. My husband had Lewy Body dementia and he never stopped recognising me. Thank goodness for the Admiral Nurses and for your honesty about how it is for us, living with dementia. And, for the power of love. We are fortunate in that.

Giving an individual living with dementia water in a clear glass is a no go, as they can not see there is liquid in the glass

Thank you for sharing your story❤

My Mum said to me "Susan there will come a time when I won't know you but l want you to know l really love you". Mum is now bed bound on a wonderful Care Home. She sleeps most of the time but she smiles when she sees me and l know she recognises me. It's a cruel disease .

Very moving! I can relate to Andy and Christine's story. Thank you for sharing you are not alone♥

Hi Margaret and Andy i work with Dementia patients and your right its heartbreaking bit i do think that when it gets worse deep down there will be something about you that he remembers you might only see a glimpse of it but you will see it, music is a great way to connect when it gets tougher i have patients that cant speak but a song will come on from there younger days and i can see the shine come knto there eyes that they remember, dont give up hope either of you, stay strong, ❤️ Susan

I have recently been diagnosed with Dementia as a very energetic person that I have been in the past I am struggling to cope with this. I am lucky to have a very caring husband that is supportive and caring for me, there's good days where you feel yes I can do this or that you then realised I can't do it on my own. I used to be very independent and now I feel lost and frustrated not being able to feel the freedom I had or to deal with everyday living. Thank you for sharing your thoughts and video on the difficulty of Dementia. Today has been a mixture of feeling and behaviour tomorrow is another day. God bless.

Wow this could be me and my husband who ive been trying to get diagnosed for the past 3 years. He is at a stage now where he is forgetting where he lives or that i am his wife. Hes only 62 and fit as a fiddle as he has trained and competed in competitions all of his life. They call it the long goodbye for a good reason. This has resonated so much with me. I wish then both well on their journey.

Im deeply touched by this video, the love you have for each other gives me so much hope. Thank you so much for sharing ❤

Dear Margaret, I feel for you, it's so difficult. Please continue to try with Admiral Nurses. I found them later and have spoken with them. They are there to help. You are strong even if you don’t feel it. I had no one to help me looking after my parents. I was on auto pilot for 6 years.

I didn't know about Admiral nurses when I was looking after my mum and dad both with dementia and physical disabilities, alone. I wish I had. Still struggling with our story

😢 so touching 😢 thank you for sharing

You are doing great.

Thankyou for this. I am logged in via my husband's google account....he has Alzheimer's. He never did bother to use the Android device I set up for him years ago now and got him tuition. So I use it all instead. He was 80 last Saturday. Diagnosed May 2023, but I hv been concerned since before 2017. I connect with all you say. My feelings, concerns, fears, worries are the same. Scared, how will I cope in times ahead, I am 80 myself 'ere long. No family. No support. I get exhausted constantly repeating stuff. I don't handle it well. Lose it often in tired frustration. I tried calling Admiral nurses a few times. Always engaged. Will try again. I do need to talk to someone so thanx for that information encourages me to try again. I wish all the best possible for you both in your situation..and for us too. Margaret

My partner is an Admiral Nurse, and I know how she is when she gets home after a day out working in Care Homes. I take my hat off to each and every AN out there - you are THE very best.

is there a treatment for this ? My wifes sister 47 is in the same situation..Veey hard for us and her 27 yo son..I want to believe there is a way to treat her , she is very young