The Association of Migraine Disorders is devoted to expanding the understanding of migraine disease and its true scope. Because migraine is a full-body condition with a broad spectrum of symptoms, AMD is focused on including many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts. AMD also believes that migraine has yet to capture the support of the general public and therefore it hosts Shades for Migraine, a playful, collaborative public awareness campaign. Finally, AMD strives to connect and grow an integrated migraine research community.
My migraines started at 18, and every year when it gets cold or too hot I am almost sure to get migraines. For a month or two, everyday around 10 AM and recently it started at night also, wakes me up automatically and torture starts. It took me 20 years to find a right doctor who correctly diagnosed my runny nose brutal headache as migraine actually. I was prescribed preventive medicine which would fail mostly, then Headset tablet as SOS. I am 38 now and I couldn't enjoy my youth much because of my migraine as I would have to stay home for most part of the year. Too much running also gives me migraine. I inherited it from my mother who got it from her mother, who got it from her father. Even after taking Headset tablet, it takes me 45 minutes and those minutes are terrifying. When I had no such medicine, it took 4-5 hours for body to automatically vomit and get normal again.My head would be ringing for rest of the day. Other people can't understand its effect, specially folks at job.
Hi I also suffer with migraine headaches and yes chocolate does trigger your migraine I love chocolate I would eat very small amounts and after take my medication I enjoy listening to all the topics on migraine.
My grandmother, my older sister, me and my younger brother is suffering from it. It's an absolute torture and the worst thing that other people think that I'm just being over-dramatic about a simple headache. WHICH I'M NOT!
Sorry you feel this way. For those of us who are drastically impacted by migraine disease, a day of awareness can go a long way in making us feel less isolated and alone. Migraine is not just a bad headache. If you don't care or are not interested, feel free to not participate and keep swiping.
So much completely useless information. I have chronic migraines, averaging 27 migraines per month. Rebound headaches are constantly a problem, though i always stay well under the recommended dosages. I detoxed for two hellish months and it did nothing. Corticosteroids work much better and faster. The doctor mentioned triptans causing rebound headaches but ergots do as well. My best strategy to reduce rebound headaches is to take half doses of ergotamine and take the other half if the migraine isn't relieved. Also taking low doses (4mg, 4mg, 2mg, 2mg) of Dexamethasone when relief medications completely fail makes them act sparkly new again. Switching relief meds, such as from ergotamine to Sumatriptan (after 24 hours) never works. Rebounding on one is the same as rebounding on all. CGRP inhibitors suck, especially when rebounding. Obviously this is my story and everybody responds very differently. Testing what works and doesn't is best.
I have hyperacusis and have been dealing with this for 15 years. The symptoms you describe about pain in the ear and going down through the teeth and side/back of neck are exactly what I experience when I have a loud noise event. I’ve been researching hyperacusis for many years and the only thing that’s been suggested is sound therapy. I’m wondering if there is a correlation with my ear pain, which you describe as an ear migraine, and my symptoms. I also appreciate your advice on foods that could trigger migraines. It couldn’t hurt for me to try a nutrition approach to my hyperacusis. Any thoughts would be appreciated. Thank you.
I have csf leak by my nose and mouth some oil type liquid comes from past 2 years when I get up I get faint I feel my ears sound quality decreased even my brain x ray shows some liquid passing all over and cause maxillary sinustis but here in India doctors are so rude they not listen your talk and suggest medicine and what my life is hell now I lose intrest in everything day by day and going to s*ci*e soon....
luckily, I have never had migraines, but it was heart-wrenching to hear about these experiences. what a wonderful couple; I wish them all the best. it’s fantastic to hear that psychedelics were helpful. i hope for the best for them and all sufferers.
I also suffer with cluster migraines. I will get 2 to 3 a day for about 8 weeks straight and then nothing for a while. It is so frustrating. I am so drained at this point. Having them again now. It is hereditary in my family. =(
Thanks for explaining this. I just had a horrible aura for 90 minutes, what turned into headache. Started with the visual weird “ flashing lights” and couldnt’s see properly , then couldn’t found the words and couldn’t talk. It was actually super scary, I haven’t experienced this since I stopped birth control 8 years ago. It must be something hormonal as I m supposed to get my period tomorrow. I hope it will never happen again.
That sounds rough. I have a similar story. I'm a teen and I don't remember when it started, but my sinus and vestibular headache is getting worse. Mega jealous of painless peeps. Wish there was a diagnosis for "old" persistent headache cuz it aint new.
is it diet? It has to be. I have been eating poorly trying to save money and my head hurts every day. Good groceries are too expensive and now I have migraines daily.
Thank you for voicing these concerns. Exactly as youve said I've been blown off about the anxiety brought on by qulipta. This was the first migraine medication they tried to give me, as well as giving it to me even though I already have GI issues. I'm a young man and have decided that the risk is not worth the reward for me personally. There are a lot of unanswered questions about these blockers.
Funny how the medicine carries risk of stroke. And honestly hates how clinics always suggest medication for migraines. Why not ADDRESS the root cause. Its already 2024, please wake up guys.
I have the severest and rarest type of migraines (diagnosed 3 years ago after an MRI after first being misdiagnosed for a brain thrombosis). And I’ve been told to tough it out and not whine so musc, and I lost it.
I have had headaches every day for almost 3 years and I’m on my 3rd neurologist. Things are pointing out to vestibular migraines. The rocking and feeling like I’m floating is strange I thought I was going crazy. Lucky me I live in Delaware and I know who to see next if I have to.😊
Please listen and search: supplements can help you. And low glutamate diet. Supplements: Riboflavin vit B 400 mg, omega 3, Q CO10, Vita D 10,000 and Magnesium 400-800 Glycinate. We migraineurs are glutamate dominate. Excitoxicity
My triggers are smells or I should say certain chemicals I guess, as I do not have to smell the fragrances or scents for them to trigger a migraine. Also things like bleach can trigger one. Just being in close proximity to chemicals/smells can trigger a migraine. Before I figured out my triggers, my migraines could last up to a month. I even had a mini stroke from a migraine. Going grocery shopping I almost always come home with a migraine or get one soon after because of other people wearing perfume/aftershave ect. Why are smells or chemicals not listed as triggers on this video?
This is my primary as well. Bleach, ammonia, lots of fragrances, certain foods cooking, all become nauseating. What's worse is if the trigger is still around after your migraine is fully involved. It amplifies the smells.
I’ve had Chronic Migraine since I was a child and get 4-6 per day everyday (I’m 32 now). Vertigo, nausea, insane aura, fatigue, sensory issues, cognitive impairment, the postdrome phase ugh just all terrible! I see a Neurologist and an ENT specialist. I’m on the Emgality injection, Naratriptian and Ubrelvy - still on the hunt for a solution as many of you also are. Praying for healing for everyone struggling on this channel. May we all have migraine pain free days sooner than later! Oh and keep fighting because clearly we’re all badass lol 🫶🏼
I see & hear you. I’ve had migraines since 1994 & had to leave my job & have missed out on so much of life. Thank god I have a great & supportive husband that is always there to help me…..even though you still feel alone. I do get the Botox shots that have helped but not as much as I hoped. It used to anger me to see all the new meds coming out & none of them have helped but if they help some people…..I’m glad for them. I have 4 sisters & none of them have migraines. It wasn’t til years later, after speaking with one of my aunts that some of my cousins & as far back as my grandmother had migraines. It did make me feel a little less lost. I have developed anxiety & & times depression but I take it day by day. Wishing I would wake up one morning & be that person b4 my migraines but also being catholic, I do realize that things could be much worse. I take it day by day & am thankful for my support system. ❤️
