Lara, Thank you for sharing your story! I was diagnosed with mg in February of this year. I am 76! However, I believe that I have had it for a while (years)! So sorry you are having to deal with this at your age! God bless. My prayers are with you.
Lara, you are not only brave, but also incredible. You are amazing and wonderful for sharing this. I'm praying for you to get well, and so proud of you! Keep your head up, dear. May God bless and heal you as soon as possible 🙏
Hi Lara, I'm a speech therapist who creates resources for other therapists to learn about speech, swallowing and improve their clinical practice. This video is an excellent example of speech symptoms in MG. Thank you for posting it. I wanted to request your permission to use it as part of my teaching resources. Would that be possible? No worries if not. Thank you and well done on making changes to your life that I noticed below - I hope you're still doing well!
Hi, thanks for your message. Yes I'm very happy for you to use the video to help teach therapists about MG and raise awareness. I am well, thank you. I continue to manage my symptoms and fingers crossed it will stay ok! Best wishes, Lara
@@LaraPepper1thanks so much - I really appreciate that and am glad you’re doing well too! Your video will help a lot of therapists learn about speech in MG, which will help them diagnose and treat many other people with this condition. Take care and thank you once again! ❤
I was diagnosed with Herpes virus recently and going through my first outbreaks was like a hell to me. All thanks to Dr Igudia on RU-vid who got my back all through and helped me out of it with his wonderful HSV2 product. Kudos to you sir.
I was diagnosed with mg when i was 21 years of age im singlemom with two kids i cant work life is so hard sometimes i cant take mestinon because no money.😞its not easy you cant eat work talk without mestnon
OMG I feel to the floor crying 😭 when I saw your video. Thank you. For over 9 months now I haven't been able to talk. Tomorrow they start treating me with medicine and I just want to talk again. Thank you so much.
I have been where you were in this video. I got to the point where I honestly didn't know how much longer I was going to be on this earth. My turning point was when I went to an eye specialist concerning my Diplopia (later determined it was caused by ocular MG) and he asked if I had any other symptoms. I said yes, listed them all and he immediately suggested I get checked for MG. While waiting for an appointment with a Neurologist, I did research into MG and found that a BP med I was taking was contraindicated for people with MG. I convinced my GP to switch me to something else and the change was immediate! Within a couple of days, I could swallow again. I didn't sound like I had a hair lip when I talked and my neck was strong enough that I didn't bury my head in my chest when I bent over! Little victories, but huge to me!
@@truthgambit911 - Changing the BP med was the key for me. The one I was on (Amlodipine) was contraindicated and could very well have been the trigger that started MG. There's no way to really know for sure, but it's very likely. My suggestion: check everything you take (meds, vitamins, et al) to see if they might be causing it to get worse...
So question did u have any issues with him and to the left and not keeping balance. I had the same issue with my speech right now, but I can’t leave I can’t lean left or I just tip right over on my left side and seeing the neurologist next week thank God how trying to figure out what’s going on We thought it was a stroke. The emergency department and also to MRI and CT both came back negative so no one seems to know lol thanks
From childhood i have this disease..my eyelid drops people think i m always sleepy and lazy..no one can understand the pain i go through not even my family and friends they have lack of knowledge of this disease..i dont get support from anyone..people make fun of me because my facial expression is lost..i have problem in eating they think i m the most lazy person and lowiest in every work no one can understand the pain everyday i go through..mentally i was depressed..still suffering..support u be stong ❤
This broke my heart. Exactly what I was going through plus not being able to walk or stand or use my arms. I was young and healthy and had 2 children one being a new born. I had to tie fabric around my head to hold my eyes shut so I could sleep. Not being able to swallow correctly and cloaking was so frightening. I'm currently in remission and I pray it's for the rest of my life. Praying for you 🙏🏼
Hi Lara, this video was great, hearing from somebody with your symptoms. I have recently been feeling terrible, quick onset of soreness after eating which leads to strenuous breathing. I am currently undiagnosed, but I have been doing a ton of research online and everything about MG makes sense to what I've been feeling. I keep reading more and more as i lay in bed, and cant help but feel a flutter in my chest like: "wow, what does this mean for me now, what do i have to live with for life now?" Going to see my doctor in 2 days. But my mind is already set on what i might have to do to change my life. Please make more videos!
Hi I hope your appointment with your Doctor went ok, and I hope you get a diagnosis soon. If it is MG then keep positive, there are a lot of things which do help. Thanks for your message, Lara
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Hi Tracy, I am sorry to hear that you have just been diagnosed. I hope you are doing OK and keeping positive. My MG is well managed, although I do still get fluctuations. I have learnt what my triggers are, and when I need to rest. I also try to keep fit and eat well to help support my body. I wish you all the best! Lara
Sending you love Laura, I am so grateful for you sharing. I am in the beginning of my journey and this is so helpful. Hugs, I hope you feel much better.♥️
Can someone with MG, have only symptoms like difficulty swallowing and speech issues? :( Will they still recover if they are under maintenance medication? :(
Hi, Lara, I'm recently diagnosed having similar kind of speech problems. May I know how are doing now? Is your speech problems got resolved? Which medicine are you currently taking? Thank you.
Hi, Sorry to hear that you have recently been diagnosed with MG, I hope that you are doing OK. My speech fluctuates, most days it is well controlled but I do have bad days. I am currently on Steroids and Azathioprine immune suppressants. I also try to be active and eat healthily to give my body the best chance to recover and be stronger. I hope that you get some support soon. Best wishes, Lara
@@Surya-on1ci hello, i'm taking meds now, still in the process of recovery, i hv symptoms like weak jaw, chewing problems, facial pain. I think ocular mg is manageable with proper medication. Take your meds regularly. Wish you a speedy recovery. 🙏
Hi, I am doing well thank you. I still have MG symptoms which vary day to day. They are fairly well controlled but I am always trying to eat healthy and keep fit to further strengthen my body. Thank you for asking.
Hi Lara Just watched the video, I know it's old now but really does show what impact MG had on you - I hope the treatments you're getting now help, especially the plasma exchanges - Look forward to seeing your dad soon and getting an update - Take care, all the best with your life and business endeavours!!!
Hi was diagnose at age 9 got my thymus removed now I am 28 with 2 kids . Living my best life still have symptoms but not as before. My first years I lived in hospitals with tubes down my throat. And I became so depressed to the point I wanted to die this illness is no joke and alot of people dont understand the difficult things we go threw mentally emotionally and physically. But have faith you will get better
