If you want to learn about hearing loss from a person who actually LIVES with it, you're in the right place.
Hi Everyone,
Emily here! I was diagnosed with my moderate to severe bilateral (in both ears), congenital (genetic), and sensorineural hearing loss at birth to parents that did not have hearing loss. My hearing loss has educated me in ways hearing people would not understand - what it is like to feel different and more. I feel I can lend a unique voice of support for parents from a child's perspective so I started my channel as a resource for ears and all things hearing from a girl who has hearing loss herself. Whether you're a parent of a child with hearing loss, a child with a parent with hearing loss or you have hearing loss yourself, I am here to support you!
Thanks for the great video Emily! I recently switched to closed power domes. I experienced a lot of occlusion when I first got them. I was noticeably speaking quieter to my husband because my voice sounded strange to me, like under water. I stuck with it and I am not pretty much used to them. I can hear a lot better. I decided to get the closed domes when I realized that when I pushed my open domes into my ear canal , I noticed I could hear a lot better. I am borderline Moderate/Severe .
Great video! I have mild--->profound hearing loss. My AUD fitted me with double vent domes, which work great except I get a bit too much occlusion when the domes start slipping a tiny bit. I use open bass domes, which gives me the open feel, but with added low tones. Sometimes I switch back to the double vents when I want to stream to the hearing aids for the added sound quality. I loved the customs I've had in the past, but I like being able to "modify" my molds depending on the situation.
I found out my wife lately have hearing issues. She would tilt her head sideways struggling to hear. Also she cant hear a thing while eating something crunchy or around loud environment. She is also having issues pronouncing 'R' s..
I’m not a medical professional but highly recommend taking her to an Ear Nose and Throat (ENT) doctor to ensure she’s hearing properly. The issues pronouncing r’s is concerning. After that, she should go to an audiologist to have an audiogram done. Her hearing loss needs to be treated to give her the best chance of keeping her brain sharp as she ages.
It's better to just say deaf or partially deaf. Saying "hard of hearing" makes you sound terrible because people associate "hard of hearing" with being a terrible person who can't be bothered to pay attention to what you're hearing. 🤷♂️
@DefiniteHearing I'm not telling you what to do. It was just a suggestion. But nooooo, you're a liberal karen, "You dont tell me what to do" head ahhhhhh.😂😂😂 🫡
Thank you so much for the tip, unfortunately it didn't work for me even with newer/not that old Disney films (e.g. encanto) but i appreciate your video anyhow
You did a great job explaining and being enthusiastic at the same time! I also think the tip about the length of glasses arms was super helpful. Thanks!
Thank you for a helpful video. I have been tested today and given the 'do you want hearing aids' question. You comparing it to glasses. Makes me think my, maybe when I actually 'need' hearing aids wasn't the right response. I wear glasses and am tested annually. Silly of me not to consider it the same.
Hearing care and recommendations are very sub-par. Advocate for yourself and try them out. You don’t know what you don’t hear and hearing aids can help your brain stay sharp.
Im 53 years old and have bilateral sensorineural hearing loss. Im a new hearing aide user and have been wearing oticon intent open dome hearing aides for 2 months now. I find the domes to be very itchy and uncomfortable even after gel is applied. My audiologist is going to try custom ear molds on me but im concerned of losing low frequency sounds. What are your thoughts?
Hey Emily! Many thanks from Germany! Well, aged 34 I am also diagnosed a cookie bite hearling loss with a loss of 40 DB at 1000 Hertz. I am trying HA right now and there are some things I am struggling with: I feel that my ability to discriminate speech has not increased. Do I have to get used to the new experience? Most sounds are way louder. They are sometimes so loud I can't hear speech when - for example - a spoon is dropped. Is this also a thing of getting used to?
Did your audiologist do a REM, real ear measurement test to ensure you’re getting the proper sound from the aids? Yes, it takes a lot of time to get used to the new sound so your brain can understand what you’re hearing. Wear the aids to give them your best shot.
@DefiniteHearing thank you so much for your reply! Oh I don't know that. Gotta ask my audiologist next week. May I ask you some more questions? How long did you need to accept the circumstance you've got a hearing loss? Do you have ear pressure too? I got it and it's almost the most annoying thing tbh. Do you know any studies whether a CBHL remains constant or progresses? Did you also sometimes have the feeling "is this how it should relly hear?" when taking off HA? I sometimes think: how should it sould right now in reality?Greetings from Germany ☺️
I had a hearing test a few years back it said I hear in quiet places but I still have my gadgets pretty loud and anything under is very difficult to hear.
So am I, one reason It took me so long to dive in. Now I love my aids. The adjustability is crazy on these new ones, especially the noise canceling fo rme.
I think dressing up hearing aids and giving them accessories is a really good way of destigmatising the use of them. I tend to use hearing aid sleeves and tube coils to dress them up and I have had a few strangers ask me where I got my hearing aids. I especially like the conversations with people who ask why I do this especially if it’s from other hearing aid wearers as I can then open up the conversation and Explain it’s not something you should be ashamed of. Not everyone is cool with the idea of dressing up hearing aids and feel that they should be as discreet and hidden as possible but I also get a few compliments from people who I feel might want to dress them up but didn’t know that was even a thing. Currently, I have neon green sleaves whith black beads and transparent neon green tube coils. But last week I put on metallic gold covers with metallic hot pink coils.
Hi, I've been to a ENT some days ago and he did a hearing test. The result of it: I have a mild hearing loss on one ear (30db) and I'm close to a mild hearing loss on my other ear (20db), both in the mid frequencies. The ENT told me that so far there's nothing I could do about it. Would you recommend me to get a second oppinion by an audioligist? In your video it sound's like a hearing aid might already help me and that an audioligist is the real professional for any kind of hearing loss. I do have issues understanding other people, I feel like it's just getting worse and worse and I hoped the ENT would suggest a hearing aid.
That ENT is off base. Yes, you may not be able to fix the hearing loss but you can possibly get hearing devices that will help. Yes. Follow your gut and get a second opinion from an audiologist. Like vision loss, any degree of hearing loss deserves to have the option to be treated.
Thank you, Emily, for bringing up this important topic. Not just advocating for ourselves, but for the entire hearing loss community. My loss is bilateral, sensorineural, and is on the borderline of moderate/severe. Some of it is hereditary, some age related, but most of the loss is directly due to what I like to call, "being stupid." Mostly from not wearing hearing protection when I should have, and needlessly exposing myself to damaging levels of sound. I've worn RIC hearing aids for almost 7 years now. Two things come to mind in answer to your question on what we would like you to talk about. One topic would be getting Medicare insurance to cover hearing tests and hearing aids. Thanks to companies like Costco and for laws like the Over-the-Counter Hearing Aid Act of 2017, the stronghold of the industry is beginning to break, and prices have plummeted, while technology has advanced. However, hearing loss is more than just an inconvenience. It has been linked to medical conditions such as dementia and Alzheimer's. Medicare should cover a hearing test and at least a portion of hearing aids, at a minimum of every five years. Prices have come down, but are still in the ~$1500-$2000 range for top end programmable devices. Many elderly withdraw from society due to hearing loss and not being able to afford hearing devices. The other topic that comes to mind is the programming software used by retailers and fitters of hearing aids. This software should be available to the user at a reasonable price. Even a scaled-down version would be helpful. I know all the arguments against the user having access to this software, but even if the programming was messed up, a simple button click would restore all parameters to the original settings of the fitter. As it is today, if a user has a problem that needs adjustments, they have to make an appointment, sometimes weeks away, drive to the store/clinic, they make adjustments, then you have to go and see how the adjustments work in various venues, and if still not right, go through that whole process again. Being able to make adjustments or add programs ourselves, (within limits) would save much time, as well as allow for better fine-tuning and a more useable device. Thank you.
I'm all that. Bilateral, genetic, sensory neural severe hearing loss, with the most severe loss, bordering on profound, in the speech range. And I have a central auditory processing disorder that makes speech in noisy situations nearly impossible to process. Sometimes, I just stay home, hearing fatigue is real.
This is one of the hardest parts for me- people rarely expect younger people to be HOH. I wear pins on my cross body purse that say “Hello I’m hard of hearing” which a speech bubble “please speak up!” It helps me not always have to say this to clerks or waitresses
I love my custom molds! I couldn't handle the itchiness of the rubber domes, I also couldn't ever get the clarity that I now have with custom molds. It was totally worth the extra cost for my BTE bilateral hearing aides.
@@DefiniteHearing yesterday morning I has to stop by coffee shop only way I can used WiFi to call over phone video for deaf only way to communicate somehow I got a phone call it was my brother and I has the speaker on everyone in the coffee shop can hear my brother was yelling at me what the hell you doing there I explain to him keep saying you not listening me and except me to call the guy over the phone I was afraid I’ll misunderstand and lose 40 dollar an hour as pipe fitting welding and thing didn’t goes well I get frustrating sometimes because lack of communication and my brother acting like I’m hearing is because of hearing aid doesn’t do shit and I try my best stop telling me you not listening me but keep saying that over and over so I blew up tired of being abuse by using you not listening me what I have thought in Iowa is deaf friendly free it all bullshit will be always this way
They said I need hearing aids, so I got them. Everyone I told about it ask why. They said I hear just fine. I do hear just fine but I got them and can't tell any differance. They say I can't hear the low sounds. Maybe the brain has to adjust.
I am working with DARS ( Department of Aging and Rehabitive services) right now, and I'm getting frustrated love watching this. It's a great reminder, to just keep working fighting for what I want even if they disagree or think I might not be able to do it.
I’ve noticed when I take naps during the day that after waking up that it feels like my ears opened up like they had a sense of relief during sleep. Everything sounds much clearer. So your explanation helps!
