Carmen o Carmelita, como la conocemos en el club de lectura, es una luchadora en todos los sentidos. Me da gusto verla en esta entrevista y saber que es una voz para las personas con ECV y todos aquellos a quienes les interesa.

Thank you Carmen for your story. I'd like to say that I also have the throat constriction issue, the tightness/spasticity runs from my larynx, up into my throat, up the right side of my throat, through my gums, cheek and mouth, up to my ear and under my eye (pulls the eye so that it distorts my vision). Very uncomfortable and disconcerting. It is apparently a rare manifestation post-stroke. I found exercising could exacerbate it. I came across the diagnosis of laryngeal dystonia, an abnormal involuntary movement consisting of sustained muscle contraction, was the cause of the lower throat constriction. Talking aggravates it too, and I would sometimes get a raspy voice or lose my voice. The mouth tightness also made speaking difficult. What's really helped me is throat massaging, especially along the side of the larynx, twice a days for a few minutes, up to under my chin. Also breathing to strengthen the diaphragm muscles, as it was explained to me a weak diaphragm makes you talk from the upper chest/clavicle area and makes you strain your throat/larynx. Blowing slowly through a straw into a glass of water helps to strengthen those laryngeal muscles. Humming at one pitch; also humming starting at a low pitch and slowly going higher. Singing, as bad as it sounds lol, is also helpful. It took me a long time to find someone to diagnose the throat issue, so thought I'd share. It has also helped my ability to swallow.

Thank you Mr Eguakun I see the skroke by arm, Leg

I’m Carmen’s friend and I’m proud of her for doing this interview

Carmen is amazing! I know her personally and she's a delightful woman.

Thanks for this Mr Gasiamis. Appreciate U always. Thank you 🙏

Great Lady I appreciate you 🙏 and relate to you on our daily routine with stroke. Appreciate you 👍

It's hard to undergo this kind of stroke, especially the medical insurance is not 100%.

Amen 🙏

etanercept makes me nervous because it contains nano tech rna or dna recombinant stuff - i dont want anything that changes my dna i wonder if it does........i had basal ganglia stroke too

Thank you so much for this video

I hear "You came from the stroke with no after effects" which is certainly not true. When I told my doctor to listen carefully when a patient says "something's wrong" because if he had I probably would have avoided a large stroke, he says: "Well! We're here not, aren't we! Let's move on from today!" My conclusion is it's perfectly fint for somebody to have a stroke as long as it's not the doctor himself. He would have had trouble using his keyboard, signing his name, riding his bike to work, eating his lunch etc.

Dr. Darren Schmidt use RNA (Ribonucleic Acid) to cure his patients of SA. He claims a 90 percent success rate. He states that it works better on CSA, but also works on OSA. He has a RU-vid video on this. I recently started using it RNA. I bought the Standard Process brand. SP is a company that has been around almost 100 years. They grow they own herbs and plants they use in some of their supplements, and they compost all their land. I've heard they have one of the most nutrient dense soils in the USA. Best to you.

Has anyone tried these techniques? If so, what were your results? Thanks

Thank you so much for creating this, Bill!

Sve si pogodio čovjek...zanima me Bille iz tvog dugogodišnjeg iskustva,da li si upoznat da modafinil tablete pomažu pri iscrpljenosti.i moždanoj magli...veeliki pozdrav

I was told my brain was too damaged to recover and I would need to be in support living for lifei I'm back home recovering steadily and building the new me

neurologist 4 mo after stroke how good do u think ur going to get save ur money there is nothing u can do re my arm then pt at pool u know u could b doing all this work for nothing and my other stroke guy he's already better, did bring me down but i ignore and work anyway

thanks for sharing i'm also a stroke survivor as medical staff told to my wife that i was blind and deaf but instead of losing hope i pray just keep on praying and take that negative comments in a positive way. i keep my self motivated now i can see and hear sometimes i do my hobby is music remix. i focus more on my daily routine stretching and exercise. everyday i go to a park do my walking exercise and driving.

I was told, “ welcome to the new you” I almost was ready to give up. But my wife is a very great encouragement to me!

My home health providers, ER doctors, etc.. different ones several times per week... all keep reminding me my life span has been significantly shortened... I had two "small" strokes. Supposedly, one was older.. I am 62 years old. They keep telling me I look fine and doing ok... I still have all my original symptoms. I could have treated myself. Very little has been done. BP med and 325mg aspirin.... a few physical therapy exercises, that's it! They just want to charge as much as possible to insurance... I saw things billed that were false... things on my chart are inaccurate because they don't listen to what I say and write what they hear... it's frustrating. I got rid of all of them and much more hopeful now... My dog died 2 months before my stroke, and I was told by a nurse I should have only grieved 1 week tops. Wow! Anyway, I am usually a very positive person, and letting them all go has helped tremendously. My BP has even stabilized no meds. I am so thankful, and my Faith is what gets me through. God bless you all.

87% of people are negative, recovery is a process. I was told that I had a mind of a two year old from my Michigan rehab counselor stated that I had a mind of a two year old. I thank him everyday for motivating me. Today, I'm 29 years post stroke and I love motivating other stroke survivors with hope. Always remember there is life after stroke! 🙏💪

Do your book come in an audibleformat

Very true! Negative comments puts the patient and the care giver down!! My husband had hemorrhagic stroke 3 years back and during the surgery doctor said that he might get into vegetative state! I have consulted the best doctors - Asia’s No-1, India’s best doctor and many more but none of them gave any hope. My husband has lost hope and wouldn’t want to try anything but I never want to give up.. I have tried all possible alternate medicines, treatments and therapies… there has been improvement but still he is not on his own and can’t talk… I am still exploring new possibilities and would never want to give up… Bill after seeing all of your podcasts I feel positive, thanks for doing such a great job!!

I am a Conductor, I teach Conductive Education. It is like neuro physio, so we work on the brain & body movements. First thing we do is get people up & walking & doing things. The medical module only ever quotes the deficit, never the positive, I feel your pain. Go find a Conductive Education Centre they are worldwide

Medical professionals should just shut the f**k up......period. They or, anyone else for that matter who hasn't had a stroke are in no position to say anything TBH. If there was as much emphasis/time put into finding 'some kind of real help' for us then perhaps we wouldn't have to struggle like we do. 🙂

Thanks 👍

Thanks for your work Bill. I’m encouraged and uplifted by my body! All the time. And damn the medical establishment. They’ve shown that our brain doesn’t know the difference between a visualization and reality. So I’m choosing all the best outcomes in my mind. And I’m still improving 1-4 years later. I met another stroke survivor in my neighborhood. I had fallen off my walking program and not been as diligent. And I just assumed she had a fall because she was older. I could tell after her first few words, unfortunately she had experienced a stroke. After talking her stroke was in the same area as mine. I did my best to tell her I was out here walking because I can see from my recliner how much improvement she is making. To keep going, take opportunities when you are up in the house to try new things. Stretch your capacity beyond what you are doing, just ever so slightly. I’ve been to rehab twice. And people have disabilities to the spectrum of degrees. And unfortunately we all hear negative and damaging scenarios from medical professionals. But they underestimate the power of the heart and visualization. It’s easy to believe our own negative and damaging self talk. But……. it’s also easy to dream big!!!! Call it denial. Call it fantasy. Call it visualization. I don’t care. It’s in your head. You don’t have to share it with anyone. But let these aspirational visions of a better, stronger, healed you, pull you forward. They can be stronger than your actual physical strength. But you must practice your vision. Strengthen and fortify them. Work is always required. I wish our community well. And I hope I meet you someday soon out of your comfort zones.

I had a massive stroke on 2022january, To which my left side is weak. I also got drop foot. Which makes. Me. Trip mostly my left leg feels very heavy when trying to walk has totally changed my. Life drastically so frustrating and depressing mostly.

I'm truly laying here suicide is pressing my side more and more I'm looking fo a way out of taking my life which is how I found you bu5 knowing what's real

Thank you 👍

Hi guys I had a hemmorhagic stroke on 20/08/2020 age 53, all of Monicas experiences and some of my own I can relate to. However bearing in mind 'every stroke is as individual as the person who has one'. I, like Monica was pretty messed up/at deaths door whatever in the beginning. Unforetunately, mine was confounded by contracting Covid whilst in a secure unit in hospital???????????????. Anyway 4 years down the line/into my 'journey' and I've made significant recoveries. Too many similarities here to mention between myself and Monica. So, if any of you guys wanna contact me to share experiences etc, please feel free to do so here initially and we can make relevant/appropriate contact arrangements. I'm in the UK BTW. 😃

I had a hemmorhagic stroke 4 years ago, live in constant pain, fear, spasticity, etc, the list is endless survive on UK benefits. So if Mr Tobnik could see his way to providing me with his 'miricle cure' for free. Including air fare, accomodation expenses etc I'll give y'all my prognosis afterwards. Other than that I think y'all should shut the f**k up. We have enough to deal with as it is (stroke survivours) without this bulls**t.

First clue "It either works or is doesn't" There is a God or their isn't. God won't keep your money if you don't believe in him/her/it/shim.🤔

Do you mind to give details about your lifestyle, diet, exercise regime, use of medications, vaccines, etc? Any recommendations in hind sight on what you would do differently or avoid, thanks, I hope you make a full recovery.

PTSD is not to be neglected as also grief of the loss.

How long did it take for him to walk after being locked in

And did it work? I think not......Enbrel the drug used was developed to ease the symptoms of arthritis. So, as a stroke survivour I can evisage that this procedure 'may' give some of us 'temporary' relief from some of the symptoms of, let's say 'CPSPS' Chronic Post Stroke Pain Syndrome it's not by any stretch of the imagination a cure. Take into account the 'Placebo Effect' in conjunction with the desparation that most stroke survivours face 'the only thing we have is hope' scenario. Plus the fact that anyone who's not wealthy and, will be probably injecting their life savings into this it really is a big con I'm afraid. 'There is no cure for stroke'! That doesn't mean you can't get over a stroke and, in some cases get back to the 'way you were'. Dead or damaged neurons CANNOT be replaced. Sure we can grow new ones which then have to be programmed/educated whatever. Dr Tobnicks procedure may reduce the affects of say 'spasticity' giving the patient a 'temporary' window in which to enhance neuroplasticity. But it won't cure your stroke, sorry! Save your money and employ a 'neuro-physiotherapist' if you can find one?

Great public service for stroke victims and their support team

Thank you so much for your inspirational, encouraging words, Bill! Love from Japan❤

What if your former self was a young innocent energetic athlete 6 year old. 6 year old daughter had a brainstem stroke and a spinal cord stroke. Was paralyzed from neck down. 4 months of therapy and she can move upper part of body but still can't walk. Can only move legs a little bit. Every day i be wondering when will she walk and how long will it take her to walk

Please keep posting these stories theyre invaluable. 🙏

Every stroke is as individual as the person who has it, there is NO one cure serves all. Hope is all we have I'm afraid! Unless it happens to you, you'll never understand. Non of these lot have got the slightest idea, just ignore em.

I have, some symptoms, as in laughig at random things happening, like laughing uncontrolabby sometimes, when i cry a lot i start to Laugh like a maniac too, when i cry i cry too much, until my eyes burns and my face gets all fucked up, people tend to call me The Joker because of those bursts of laughter.

Does all this information apply to people who had a brainstem stroke and spinal cord stroke at the same time

Had the same type of stroke in the right basal ganglia, size of a baseball in January this year, thank you for this video

I had several TIAs over several days, arm and half of my face tingling, went to the ER, was not taken seriously, doctor said it was migraine, which I know it was not, drove myself home 1h sway and had a large stroke 3mos later.

I am a 74yr old female who had Ischemic stroke a year and a half ago. I was completely paralyzed on the left side, after the attending doctor administered TIA he told my brother that I would never recover. Since day 1 I have been doing PT and some OT almost every day.(for some reason though, I don't understand why but they don't seem to put as much emphasis on OT as they do on PT). I am still at it there has been some improvement, took me 6 mos to gradually stop using the wheelchair, I can walk fairly well with a cane and just recently without it, but still struggling with my affected arm and hand/fingers I'm still experiencing a lot of spasticity in the left arm. I have an appointment for a procedure at INS with Dr. Tobinick in Nov. 2024. During my phone consultation with Dr. Tobinick, he mentioned that there is a possibility that these injections may not alleviate any of my spasticity, but should see some improvements in other areas, such as fatigue, pain and even OAB control. So it didnt take me long to sign up. It is very hard to stay positive during this recovery phase, because progress is very slow even though you put so much effort into your work outs, but Dr Tobinick's treatment has given me the motivation to keep going.

Have a look at Dave Mac on his youtube channel No Carb Life. He had a stroke when he was seventeen. He could not walk properly since then, until he went on the all meat carnivore diet. He been on it I think about 18 months. He shows footage of before and after he was on the diet. He now walks normally and he can jump up and down stairs. Before, it was very hard to just walk and to walk up and down stairs. He is now about 45 years old I think. My husband 78, had a fall last year off a ladder and has brain damage. I thank god we were already on the diet. He is getting better everyday.

The reason everyone says it is snake oil is because Tobinick patented the injection thus he is the only one who can perform it…