🏥 LUNG FUNCTION NERVES & UNEXPECTED BLOOD NUMBERS 🏥 (8.13.18)

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I can't remember being this nervous about PFTs & my bloodwork had some unexpected results!
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Комментарии : 207

@thefreylife 6 лет назад

Could I possibly be going home?!?! Eeee! What does the end of summer hold for you guys?

@FroggyGirl90210 6 лет назад

The Frey Life I'm really praying you will get to go home. I know fir me, I would finish healing better at home. My honest opinion is because you never really get to rest (sleep) which is what helps heal you. 🤔 I have chronic asthma and have to do PFT quarterly. I was wondering Mary, do you ever get light headed after each time you have to "blow blow blow"? It makes me cough and get lightheaded, needless to say I hate them. I'll take a smidge better then nothing, so yeah Mary!!!!

@FroggyGirl90210 6 лет назад

Deborah L Ours started last week

@GamingNinja1998 6 лет назад

what infection did you get, i got Pseudomonas back in February and im still on nebulized ab's :/

@XravensunsetX 6 лет назад

End of summer always means it's my birthday!

@carriebowlen1574 6 лет назад

Hopefully a new job. I am praying that will be in GOD time not mine!

@WoundedViking 6 лет назад

hang in there kid. I survived cancer twice and lost half my face to amputation.. a tumor destroyed my jaw and changed everything I once knew.. I was labeled a freak. I decided to start over, move to Barcelona and start a youtube channel to inspire others who feel ugly and not good enough for this world.. I want to show others that it's all about positivity and energy.. and that with the right mindset, you can overcome any mental or physical hurdle if you just learn to love yourself! positive energy from within overpowers any physical shell! go check me out and subscribe if you want to help me reach my goal of helping others who lack self-love.. together we can change the world!

@pinkyblessed2218 6 лет назад

I’m so thankful that your PFT’s were a smidge up in the right direction! Victory! Especially 1 week post-surgery!👍

@robynramsey6553 6 лет назад

You both handle things with such grace and courage hope you can go home God bless

@2listening1 6 лет назад

Who besides me really love Ollie's cute nose? (..)

@salces9301 6 лет назад

Thank you Lord for being with Mary and Peter and I'm so happy Peter can stay with Mary though out this hospital stay he is such a sweet strong loving patient hubby! I know Mary sure appreciates all of Peters Love! Keep strong! I'm so glad your getting good levels yay

@moxiecrawford2520 6 лет назад

I just found Peter’s sermons ❤️❤️😭 I’m so happy ! Peter, you do such a wonderful job conveying the message. Thank you. ❤️🙏

@LiamBiddleLB3 6 лет назад

I would love to be able to hear him preach! Could you post the info please!

@moxiecrawford2520 6 лет назад

Laura Bernard He’s on RU-vid as Peter Frey (that’s all I searched.) I’ve only had the opportunity to watch one sermon, but can only assume they are all wonderful. 😊❤️

@iceman22st 6 лет назад

I'm not very religious but I do enjoy Peter's sermons.

@superkitten7560 6 лет назад

It made me ridiculously nervous seeing her sit there with her phone in her hand and a tub full of water at her feet xD

@sheilas1283 6 лет назад

Super Kitten And me!

@kimpossible7505 6 лет назад

Lol! Me too

@PurdueAlum01 6 лет назад

Most phones can take a quick dip and survive these days. And certainly no danger to her! Just power it off and leave it off until it's very dry. Speaking as an electrical engineer! We actually wash circuit boards in water it's only the battery and power that becomes an issue. Am wondering, have you killed a phone lately and how?

@angelas1975 6 лет назад

Me too

@greenpeacesign420 6 лет назад

Patti Volkman my son has killed 3 phones by putting them in the dogs water bowl.

@grayndrob 6 лет назад

Praise The good Lord!! All this news is certainly something to Rejoice over! God Bless ya'll and everyone!!

@SuperSpeedyToo 6 лет назад

Maybe blood #'s are being affected by a change in her hydration levels. For example if she was more dehydrated today than yesterday then her blood counts made her look better. I have had that experience.

@sukijohnson5398 6 лет назад

Mary, how did your liver and spleen ultrasound turn out?

@dawnwilson4286 6 лет назад

Prayers!! You’re doing great 💜💜

@daniellemiller1122 6 лет назад

Good luck !! Hope you guys get to go home tom. 😀you are way over due for a boat ride and Ollie swimming 😀🐕

@FkD814 6 лет назад

I do a deep exhale in solidarity during mary's pft. :)

@alannahchanelle6057 6 лет назад

Anybody else saw their livestream?? ❤️

@2listening1 6 лет назад

Wasn't that great??! :D "Peace out, girl Scout!"

@pumpkinlady889 6 лет назад

Hiya Frey Life, I am from England and I am deaf... I have a lung problems had it since I was 7 year of ages had a massive surgery took half of my lung remove I have one and half lung but ... was told by the doctor when I turn to 21 year of ages I will not able to walk because my lung wouldn't cope and would be in wheelchair. Well im now 40 and still walking not even in wheelchair I have prove the doctor wrong, keeping your lung healthy by plenty of excise... Mary I am sure you will turn out to be strong healthy person just like me be positive and we all are here with you all the way... by the way your dog is so cute and peter is such a wonderful husband to you... you have everyone around you who love ya so be positive we all love ya xxxx

@radiareghis7877 6 лет назад

WHAT a beautiful comment.💚💜💛

@PilarMGuapa 6 лет назад

Can't wait to see tomorrow's vlog 🤗 hopefully you can go home today 🙏

@thirtyflirtythriving 6 лет назад

i think mary and peter might be some of the strongest people in the world.

@533134 6 лет назад

Do you guys have issues having insurance cover these long stays?

@tatianamorales730 6 лет назад

Mary oh Peter please help I was told today that I need Sinus Surgery I never being more scared 😱 In my life and having anxiety issues does not help I seen sinus surgery videos in you tube and looks 👀 scary and painful 😣 i notice that you didn’t have anything inside your nose 👃 after surgery reason why me personally I can’t deal with having something inside my nose 👃 for a week oh 😮 longer no no I can’t please Mary oh Peter any advice please I’m so so freaking scared 😱 than you

@tatianamorales730 6 лет назад

Susan Darby Thank you so much 😊 for your comment and nice words I’m going to do what you recommend again thank you 😊

@Kb1901kb_kris 6 лет назад

Power of prayer ❤️

@tyedie723 6 лет назад

One time I got a blood draw in my hand and I think the nurse hit a nerve or something. I started practically seizing while she kept moving the needle around inside my hand to find blood! It was wild! Ah. Hopefully that didnt happen to you today.

@haleyrose_elm 6 лет назад

Taryn Lynn I've gone numb after a blood draw, hence why I got a port because it has torture to have them digging inside of my arms and such for a vein

@moxiecrawford2520 6 лет назад

I just placed an order for a sweatshirt (and I live in Houston, LOL) and a beautiful cardinal print. I found you through the “recommended” videos and I’m so incredibly grateful that I did. I don’t have CF, nor does anyone I know but I am a caretaker of my husband who has Parkinson’s. You’re uplifting messages, every single day, bring me a bit of peace and hope - and reminds me of God’s love and grace. Thank you, both, from the bottom of my soul for your light, love, and messages of faith and gratitude.

@sheilas1283 6 лет назад

I’m in the same position, Shannon. I’m my husband’s carer. He’s had Parkinson’s for 12 years now and it’s incredibly hard to deal with. He also has associated dementia.

@francesd2913 6 лет назад

Shannon, God bless you and your family. Beautiful pup by the way.

@TassieM12 6 лет назад

You would love watching Peter’s sermons. He has a separate channel with them! God bless! Praying for you and your husband ☺️

@moxiecrawford2520 6 лет назад

Sheila S I am so sorry, Sheila. For every day that passes, my anxiety is heightened simply anticipating what is to come in the Parkinson’s journey. Prayers to you and you family.

@moxiecrawford2520 6 лет назад

frances D Thank you so much. And Moxie, a Maltese, is my best friend and confidant.

@tamberjune 6 лет назад

I love the start of this! I wish my hospital bathroom Had a tub!

@PurdueAlum01 6 лет назад

Tamber Grable I think it's interesting that Mary thinks hospital floors are so nasty but is okay with using the hospital tub. Idk what gets cleaned and how clean it gets but wouldn't washing your dirty feet in the tub be a turn off for taking a bath? And if those before you walked on the same floors and used same tub? I really don't know, just find it intriguing what germs and what dirt we want to avoid and where they might come from and if they can be cleaned with a mop or a brush. I am better off not focusing on it but sometimes you just can't help it!

@tamberjune 6 лет назад

Patti Volkman Mary loves her foot baths so I think she would use a bucket if she had to! But yeah I can see what's yours coming from but they keep the isolation rooms super duper duper clean and they use amazing cleaners in hospitals because of that. And if shed rather have a foot bath and not have to wear socks I totally agree! I have socks but only wear them when I NEED to and I hate hospital socks so I GET it personally. But if I have a cut or I feel better about it the I will wear socks but usually I am barefoot unless I have sandals or slippers on! They are easier than socks at the hospital for me.

@tamberjune 6 лет назад

And whatever makes her cofortable while she is in there and I am sure her room gets cleaned because they clean these rooms so much specially when you have a patient with a compromised immune system coming in! That way the patients and their families and docs don't have to worry so much about that aspect. (= she wouldn't walk on the floor if it was too dirty I am sure. But I don't like having dirty feet. My grandma always said, "Cold hands, warm heart. Dirty feet, no sweetheart!" Haha an old saying I always wash my feet before bed and I will wear socks if they get dry but I don't like wearing them very much and they slide off when I am in bed anyway. Especially the hospital socks.

@kittymervine6115 6 лет назад

also WHO ELSE WAS NERVOUS DURING HER PFTs??? SHE IS SO FOCUSED LIKE A CHAMPION!

@LadyTracyAnne 6 лет назад

I suffer from Sinus infections my self due to allergic Rhinitus,the headaches can be very painfull,I find a dark room and soft music can help It's been raing pretty heavy here too Peter Fingers crossed you can go home in a few days Mary 💖💖💖 xxxx

@leannegray8649 6 лет назад

Craftylady Tracy Anne have you tried essential oils?

@mcrchickenluvr 6 лет назад

Leanne Gray I've found that ginger and oregano help a lot.

@vickierhard1441 6 лет назад

Still cause for celebration. No terrible decline. Those tacos looked awesome. Sending love.

@lauraschirado8350 6 лет назад

Your guys vlogs make my day! The amount of joy and gratitude towards everything is very inspiring🙂

@ZekeLanzer 6 лет назад

I'm just now finishing up on week 3 of IV antibiotics, which I was told we will be stopping. Now we just wait for my blood results on my potassium levels to normalize which have been up and down since my admission started. Curse this renal diet! I miss potatoes..

@jimmyjohnstone7258 6 лет назад

Sea kayaking on the NW coast of Scotland next week. We have had a great summer here but it is a bit more normal now in temperature and in having some rain. As long as the wind is not too strong we can get kayaking/camping. I hope your headaches are less severe following your clear out surgery. Keep doing your work out routine. I am sure it will benefit you to have some muscle tone recovered after so much bed time in hospital.

@teenckie1 6 лет назад

I'm a new subscriber.. I've been watching your site for a few weeks now.. I have to say I am so inspired by you guys.. I love how you are so gentle with each other.. xoxo Mary even when you are down you can manage a smile.. I see God's love in your eyes.. John you are just a joy to watch as you interact with her , your caring and your love just soar..... May your strong faith keep you strong.,. Much love to you... God Bless.... Oh..Ollie... You are loved too.. :) Our Father Is GREAT!!!!

@gabbyseikel7002 6 лет назад

Hopefully you can go home tomorrow!! And I noticed during the video, it must be nice to have your iv line in your port, because it can free up your hands! Love you guys, and keep on going Mary!!❤️❤️

@nakaiyahtucker1423 6 лет назад

Yes, you could finally leave the hospital.

@francesd2913 6 лет назад

Holy cow Mary. I tried doing the breath test with you and could just barely make it. Wow, I think you are amazing. I hope all is well and you go home soon. Take care.

@yasminthomas6102 6 лет назад

I love your pjs!😍😍😍 I have a question being another cfer, do you prefer looking at lung function in a percentage or the actual fv1 number :) x

@rivkahmiri513 6 лет назад

You are both amazing! Mary, hope you can have your Bday out of hospital.

@iceman22st 6 лет назад

Needles in the hands hurt a ton. For my last CT scan for my cancer, they had to draw blood from right above the nuckle by my index finger. Only ones I hate more, BLOOD GAS! The under side of the wrist. Hope you get home soon.

@kittymervine6115 6 лет назад

blood draws. I had one where my first blew out and the second she couldn't get, and then she tried a third time and I was CRYING. Later, I was, almost shaking whenever I saw this poor sweet nurse. It was, of EVERYTHING, the worst part, all the surgery all the other things....and that blood draw was the worst thing!! (I think because I was off pain meds by then.). Yes, NOT FUN!

@haleyrose_elm 6 лет назад

One time I was in the hospital and it had been almost 2 months and I was set to go home towards the end of the week, and then something happened with paperwork so they couldn't let me go, I cried all day long I was so disappointed and missed my cats.. lol the nurses that shift were not kind. -_- I was sad okay I wanted to go home

@cyrvanessa 6 лет назад

Comment #101!

@lovintexas2730 6 лет назад

You need a local radar app for your phone. I use mine anytime there is a question about when/where the rain might be. It can zero in on your location.

@DanaCook60 6 лет назад

I am encouraged by you,r test results. Wouldn’t it be a blast if you got to go home today? ❤️❤️❤️❤️❤️❤️

@2listening1 6 лет назад

13:48 I vote for "....amazing job...." Mary! ;)

@robingillespie4513 6 лет назад

Mary When you talk about daily headaches- I totally understand. I have had daily headaches for the last 18 years. I hope this works to make them go away for you.

@naseerahvj 6 лет назад

Robin Gillespie my mum has chronic migraine she has headaches daily, and multiple migraines weekly for about the past 30 some years. I've stared getting them about 10 years ago but not nearly as bad or often

@robingillespie4513 6 лет назад

I get 2-5 migraines a week plus the daily headaches- I am so sorry you and your mom get them- I would not wish them on my worst enemy.

@hannahmariellewellynllewel7128 6 лет назад

Am cleaning while watching y'all hope for best for y'all both

@sarahunt9331 6 лет назад

YOU, you scrolling scholar: Frey ARE HOME (instsgram) 😁😁😁😁😁

@lynnrose7562 6 лет назад

Love that Mary is throwing Hershey's Kisses at people. LOL For me, PFT's are a challenge but they are necessary. I'm glad you are done with IV's. Medicine is a wonderful thing. Oh Mary, I'm so glad you are doing better! You are so adorable Mary! Peter, your amazing for all that you do! Ollie xoxoxoxoxoxo

@chelseyannepiper9789 6 лет назад

Hi guys I'm so excited for you, you need more summer boat time with your trustee seaworthy companion 🐕❤

@kimpossible7505 6 лет назад

Praying you are nice and cozy at home right now. I just have to say, Mary, I love your facial expressions. You are so animated and full of life, it’s inspiring.

@jacquicoder7160 6 лет назад

Hoping for the best, Mary! It would be so exciting to see you going home tomorrow.

@christytubbs3266 6 лет назад

Do you ever do the Nettie pot?

@LiamBiddleLB3 6 лет назад

Mary do you actually blow out for that whole time that it appears your blowing out? And quick question?? I did PFT's and i could barely blow anything out after the big breath in but every time i would stop the tech would say okay that was a bad test we need to do it again. Well you of all people know you can only do PFT's for so long, they are very difficult and exhausting. So..... here's what I did. I took a deep breath in blew out and then left my mouth on the mouthpiece even though I was not blowing anything out! And surprise the tech would say that was a great one and we would move on. So my question is, is the machine able to tell when you stop blowing out etc.... OR is that per the tech? I was way to scared to ask for fear of exposing myself and having to repeat the tests. I was just plain exhausted. I am hoping your expertise knows the answer to this question so I will know for next time. Thanks, and you looked AMAZING today! I know that doesn't mean you feel that way but you had more pep in your voice and color in your cheeks and I am so happy things are positive for the moment and I pray you get to go home tomorrow!! God Bless :-)

@fevertree1957 6 лет назад

Must be such a comfort for your extended family to get all this daily information by vlog when your in hospital...save a lot of repetitive phone calls & relaying of details.

@bypasstoaleanerlynn8920 6 лет назад

Your PFTs may not be a bunch higher but you don't sound nearly as short of breath as you did when you were 1st admitted and before that. Hope the hospital is history!

@tchrgurl03 6 лет назад

Peter's comment about having to plug up the IV to owning a Tesla cracked me up. 😂😂😂

@alexbravo5666 6 лет назад

Great job Mary! Hey do you guys plan on visiting Chicago in the future? Please announce if you do I’d love to meet you! ☺️

@laurafalbey6500 6 лет назад

Okay Frey Life family, I need some help. I have a terminal diagnosis and live in the reality that I will probably not be alive in a few years. In this moment I just want to be treated as much like a normal person as possible, and most of my friends understand and respect this. A few of them always want to talk about my health stuff. They always talk about how scared they are that I am going to die, and how much they don’t want that to happen. While I appreciate that they care, it just weighs me down and wears me out to always have that pressure to help them feel better. I have tried to explain to them why I don’t talk about it often and that I just don’t have the capacity to explain everything. I really care about them, I just can’t deal with feeling like I have to take care of them when I am struggling to care for myself. Have any of you dealt with this? I would love some suggestions and ideas on what to do. Thanks Frey Life family!

@StefanieRoyMusic 6 лет назад

I just love the twinkly lights everywhere

@trishab2147 6 лет назад

I hope you were able to go home today!!!! I hear you about the possibility of going home! I was told I was going home and then I got back to my hospital room and someone knocked on the door 30 seconds later asking for my menu requests for the next day. It's like... I thought I was going home? It was SO sad. I did end up getting to go home, but that was quite the disappointment right after I was told I was going home.

@kathleenfannin1375 6 лет назад

I get nervous about PFT's now, too. You'd think I'd know how to breathe and do it after over 40 years of doing them, but I psych myself out. I also think that your numbers will improve more as time goes on after surgery. The other thing I want to know is why do you have blood drawn out of the back of your hand? It is more painful for me to get it done there. I also hope that they use a butterfly needle when drawing your blood. It makes a difference!!!! Hope you are able to go home soon!

@michellewilloby8448 6 лет назад

There is no place like home, and with Gods blessings I hope you are there soon.

@madisenbarre-hemingway8582 6 лет назад

A hospital room with a bathtub?? Goalllssss

@blairmarie9872 6 лет назад

I'm in as well having the same issues with my pfts right now. I'm hoping your going home!!

@juliesaul4002 2 года назад

I love that Mary’s cup is half full with the 2 weeks done in the hospital, you are both amazing sweet people

@joannepauley9622 6 лет назад

Well that was a happy ☺vlog. Am hoping it all works out for you to get back home. ((Oliver)))

@wishupondreams 6 лет назад

Do you ever wondet what your life would be like when and if you ever have a lung transplant and your lives aren't centered around cf? I guessed I missed it, but why havent you got ona transplant list and get new lungs like your sister?

@eej1983able 6 лет назад

2 weeks wow that flew. I remember when u were getting ready to go in

@deborahhartman7548 6 лет назад

Thank you for being such an encourager. Now I know why I had all those tests when I was on Vancomyocin.

@cagedtigersteve 6 лет назад

Praying for you Mary! Keep thinking positively!

@traceyg3754 6 лет назад

Yeah Mary! Heat helps my sore iv sites... ice hurts more... maybe try if it happens again,

@keric3673 6 лет назад

I had to get blood drawn last week and had a vein burst and two fails. Fun times

@ElphabaWeaslely 6 лет назад

Mary, why did they draw the blood from your hands and not in the typical spot opposite the elbow? I didn't see any IVs in there

@karynahern970 6 лет назад

God is good and he is in control. Hoping you can go home. Love and prayers to you both🙏🙏

@LupusPositiveLife 3 года назад

The first video I saw of the Frey’s I think is of the service dog one that was what year?

@FunsizedStyle 6 лет назад

I'm so glad all the numbers are stable!

@MC-kz9fx 6 лет назад

Peter's comment about the Tesla made me burst out laughing.

@bethbupp8023 6 лет назад

Thank you both for the updates and such a positive attitude

@denakerr8198 6 лет назад

Man, this is all they do, all they talk about, and almost nothing else. Sorry for the pain.

@jenniferluke6587 6 лет назад

I know how you feel about getting your Hope's up I have a son who is 3 and he has health issues and we try to always to not get all excited when things go good cause every time we do he takes a turn for the worse

@mariahfrancis7809 6 лет назад

Why do you guys have to change the port needle every week? It seems like since needles are metal it would be able to last longer?

@rdidri 6 лет назад

You are looking really healthy, for whatever that's worth! Best wishes!

@hannahmariellewellynllewel7128 6 лет назад

Yay hope u get go home Mary and Peter soon

@wendylawton8274 6 лет назад

In our industry (publishing) we say "even is the new up."

@brycefinkeldei7976 6 лет назад

New subscriber, I LOVE your videos!

@greenpeacesign420 6 лет назад

Who would take Oliver out if Peter wasn't there?

@sonias9722 6 лет назад

Mary’s voice sounds so much better

@LupusPositiveLife 3 года назад

Wow 3 years ago it seems like 1 wk ago so weird how time flies by so fast lately

@carolschultz5502 6 лет назад

Mary I was worried that you would drop your phone in the water during this whole video.

@TheDebbiekitty 6 лет назад

Mary, I was wondering how you feel overall. Just wondering because before you went into the hospital, you couldn't take very many steps without having a coughing fit and I've noticed that doesn't seem to be happening as much. I know you don't show us everything but I do, for instance, notice you walking around the room quite often without coughing. I just think it really seems like the Iv's and everything else seems to really be helping and that maybe you CAN go home early like your hoping. God Bless you! Love you both!

@andie361 6 лет назад

Fully understand about the going home thing.. I will actually tell the docs not to mention a going home date until , basically, that day for exactly that reason. I tend to turn into not the most cheerful patient to deal with if I’ve told a home day and it doesn’t happen, lol

@tracyellencarsonwebb19 6 лет назад

We're having lots of smokey air here because if the surrounding fires. It made me wonder about how you keep the air quality good in your house? And do you ever stay home just because the air index is bad?

@laurenallison9391 6 лет назад

TracyEllen Carson Webb our air index doesn’t really get bad here in MA! Only in very humid weather if the conditions are right. BUT- we do have pollution lol.