🏥 MOVING HOSPITAL ROOMS AT MIDNIGHT | HOSPITAL DAY 3 🏥 (11.15.17) 

Things got kind of crazy at midnight...want to come along on this crazy journey? If so, click below! Today, I challenge you to spread a smile to someone in the comments. Ready, Set, GO!

U r looking better Mary ur color is looking better

I'm the same way in hospital with visitors... it's exhausting to me. Xxx

oh boy i had and am still not 100% i forgot to take my omega 3 cod liver oil an i am having so many of my absence seizures.

My husband is the same way.

I LOVE YOU

You guys have to do a prank while you’re there!

Question for Peter: is it cold in that windowsill bed during the snowy winter time? Or are the windows somehow insulated?

I LOL'd at Ollie licking Mary's feet. So cute and yet so funny lol.

I like that they allow Mary to wear her regular clothes and not have to wear a hospital gown when she's there.

You both are such very good people. Hope your stay is short so you can enjoy the holidays!

Hey! I always love being off of work/ school so I can watch it right away!! I hate seeing the notification and not being able to watch it. Hope you are having an amazing day!! ❤️

Thumbs up for the donuts. That place is amazing.

I am the exact same way when it comes to hospital visitors! For me, it makes me feel weird that the only reason they wanna visit is for the mere fact that you're in a hospital. Like, I don't sit at home and get all my friends to come visit or see me. idk- its just a really strange concept to me.

I’m totally the same way with FaceTiming my friends and how that is my main way of visiting with friends since a lot of my friends live in different parts of the country and I’m mostly bedbound it’s really my only form of social interaction lol but I’m glad you guys had a quieter day today than yesterday. My pain management appointment didn’t go well so I’ll be seeing a different doctor in 2 weeks and hopefully he’s more open to my ideas and have some new ideas of his own. I’m anxious but I’m choosing to just keeping breathing, do what I think I can’t do, and just pray about it and give it to God. So any extra thoughts or prayers are always greatly appreciated 💖 I love you guys and I love my Frey life family 💖✨😘💕✨

I initially thought that monitor thing was an iPad holder so you could watch movies lying down. 😆

Hugs and Prayers Mary and Rest of the Family ! I Love You all !!! God Bless You !

I’m glad to see you don’t have the fever and usually your second day funk! I’m glad you are always so joyful and yet show the good bad and ugly of this disease true inspiration

Probably means a progressive room. Hopefully all goes well. They do things like the bingo at Levine's children's hospital in Charlotte also.

11:33 They put you and Peter in the Observation Room so they can watch your vlog, Mary! :D They save that room for the entertaining guests! And the desk is so Peter can author his Coffee With Peter and sermons. :)< The desk is also for Ollie to jump up on when he feels like being a cat. =^,,^=

Wow! I'm a speech-language pathologist and I notice that your vocal quality has improved so much. Hoping that's a definite sign that things are getting better. You both are such an inspiration. Thank you for sharing your journey!

Funny what I thought of with ICP,don't know if you heard of Insane Clown Posse,it was a very alternative music group,lol 😂😂. Because my kids are in their 30's it's what popped in my head

I have my Christmas tree up I love the lights and the the glitter balls We r all cheering

Hey there gorgeous people and little Ollie onion! (Hope that made you smile 😉) I guess the fact you are ok without visitors is made easier by you having your two boys with you for the most part. That doesn't happen here in England unfortunately. You 3 make me smile, smile in my heart. I don't normally comment, but wanted to send love, luck and prayers from The Wirral, England. Big hugs. Xxx

Loving your updates. You two make hospital life fun! :) We definitely know the exhaustion that comes with hospital living. Thanks for sharing! You two make me smile every single day!

Hope you feel better soon! Beautiful lady

Mary do you feel safer in the hospital? I think would!! 💐🌹🌸🌷🌻🌼🌺 Sending you some flowers.😁

I hope it went well for you today Mary.

12:20 Mary! You got the NASA room 'cause they know you like to watch all that educational science stuff on RU-vid! They painted planets on the wall.

I just ordered some wall decals and some prints from your online store, and I am so excited to be able to support your small business!! It was hard to decided what prints to get because they are all so beautiful :) hope all is going as well as possible with you guys!!

Oh my gosh never heard of switching room like that. Crazy y'all are troopers! Atleast you all don't have to listen to that air lock door thing

from one cyster to another, stay strong!! i hate when the hospital makes you move rooms i've had it happen to me before & i pack a LOT of stuff with me! its a pain for sure, i'm in the hospital right now & hoping that doesn't happen to me!

The Frey Life - I totally agree with the visitors at the hospital. When I’m in the hospital I’m already tired due to physically dealing with my health then having visitors makes me feel mentally exhausted because I have to “entertain” my visitors. Last time I was in I told everyone to not bother and amazingly they stayed away. My husband knows how I feel about all this. He has to work 8-5 every day, so he comes after work and has dinner with me then heads home. I’m absolutely happy with that.

I'm allergic to Vancomycin. 😬 I'm not much of a visitor person, either. Usually just my immediate family and my best friend. My CF hospital is 6 hours away, so I rarely get visitors. 💁🏻

Currently in the hospital on day 4 recovering from my second lung surgery. Got some not so good news today. My lung drained more than the y would like overnight so I have to keep my chest tube in still. I just wanna go home. I don't know how you deal with being in their all that time. I would've gone mad. Hope you get better soon!

I love the ICP room! The wall behind Mary is so cute!

You both are such an inspiration! I am trying to hang in there til I get back from vacation. Praying I make it. Loosing weight and not able to eat without pain. GI doc gave up on me! Can't get in to another until January😷

I am thinking of you all the time. I can't imagine how stressful it is for you both.

I cheated on RU-vid with Instagram, Mary!!!! I'm SSSOOOOOOO glad you passed the challenge! WayToGo!! :D (i spoke a little too soon, too. I really hope you are allowed and able to stick it out, and the side effects please, please, please God, get milder! Love to you guys! )

The graded challenge sounds like a very you tuber thing to do hehe my dog loves licking my feet too crazy doggies

The reason you might not like having visitors in the hospital is bc you don’t want to mix hospital memories with family and friends memories. Just a thought, and I can totally get that. Love you all!

Hi Mary and peter my name is Kasey and I love your videos. I hope you get well soon. I’ve had vancomycin before and it made me sick so I hope that doesn’t happen to you. Stay strong mary

I love how happy you both are. I also have cystic fibrosis. I wish I always had such a great attitude about my cystic fibrosis.

I'm with you I hate visitors in hospital . It's so hard , your not well doctors nurses tests ,it's so tiring . Yes I would rather a friend say can I make you a meal when you get home xoxo

Thumbs up for Xmas sweater leggings, cuz I'm wearing some too!! 😁

Why is the chest PT at the hospital, ie: beating on your chest rhythmically, better then the vibrations of the vests you do at home? I would imagine that the vests would shake things loose easier then the chest pt.

Hoping and praying that the challenge hasn’t been too much of a strain on your system, Mary xxxxxxx

Mary’s voice sounds so much clearer already. Before you could hear the congestion of it all, now she sound a lot better. Praying she continues to get better and better

I love your Christmas lights and pretty pillow it's very homey:)

Yay first one here

Like musical chairs but with rooms. Where you going to be when the music stops?

I was on a neuro wing like that where I was monitored closely

P- protocol

Mary and Peter, you two are such beautiful souls (and obviously Ollie boy too)! Hoping the hospital isn’t too exhausting and the challenge went well!

First

Lol I'm also at the hospital, since monday

I totally get what you mean with the visitors. You're right that it's your job in the hospital to concentrate that work, and it is. You work as hard or harder than the nurses and doctors on your body and you're body is going through stress. When you have visitors, you hope to chat and have time with them but that's often interrupted in hospital.

That arm over the bed is intimidating! I feel like I would wake up in the night forgetting it’s there and freak out wondering what’s above me 😂

do you ever feel like a no one is listen to you lately I've two great lung doctors but my general doctor is not listen to the other doctor's he not getting it he try to change the medicine that they put on . what. should I do I'm new at this having lung doctor allgery doctor Gm doctor

Good luck with The Challenge!

I miss having a dog lick my feet!

I just came home after three weeks in hospital - I had a stroke after my surgery and I feel grateful to be home xx

Hope you feel better🙏❤

I'm so glad that you can vlog all of this and show others how not scary it can be. It helped me to not worry about all the tests I have to go through with my EDS.

Wow

❤

Thanks for doing daily videos. I'm sure some days you wish you could take the day off. But you are providing a valuable service. They are appreciated. Thank you.

Just a question on the visiting, don’t people have to go through extra care on possibly bringing germs etc.just asking😆🧚🏻‍♂️😷 of course I don’t know you personally but the Vlog is a nice way of keeping people informed

how were the donuts? I bought some donuts from Boston public market place and paid $3.50 FOR 1 doughnut. (I was desperate) It wasn't worth it. It was good but not THAT GOOD.

I love that you play the bingo 😊...I think you won during your last admission, maybe it will happen again🤷‍♀️🤞🏼

Hy Peter and Mary, I'm watching your Videos since Scotland. I'm from Germany, it is possible to explain the routine in the hospital, how to you get meals, how often the nurses come, what bracelets are you wearing etc.? Do you have free W-Lan in the hospital? If we have Internet in the hospital the costs are around 5-10§ a Day. Im very courios about the difference to Germany. Keep going, you are both such a fighter!!! Greatings from Northern Germany with my Service Dog Padfoot. You are so blessed to have ollie with you. In Germany Service dog aren't allowed at most docters office, maybe, with great luck in the ER waiting room. But never in a patient room

So happy to see Mary eating salmon. It's the little things......continued prayers to you both = )

Hello Mary! My little sister just turned 2 and has had chronic bronchitis since a week or 2 after she was born and she’s really been struggling to breathe, especially with winter (makes her chest all rattled) and when we use her nebulizer (twice a day) and inhaler (every six hours) she screams, and screams....and screams. 1/20 times she will be fine. I literally have to pin her some nights to make sure she’s getting all the mist in. I have tried giving her candy after, putting on her favorite movie..idk, I thought after two years she would be used to it but she’s not and I’m running out of ideas on how to make it fun /: Any ideas?

Working in a hospital as a student, I don't like moving patient's to different rooms/wards during the night. Particularly when some elderly patients are moved between the hours of 12am-4am, and the staff wonder why they become confused! I'd be confused too, if I went to sleep in one room and woke up in another!

I just love you guys you guys are just the perfect couple you keep each other going. And I pray for you all the time I'm sending you love and healing your way you got it girl ☮️🙏❣️

Glad you slept better last night Hope you feel better soon x

I usually greatly dislike "room hopping"...but if I were you, this time, I'd totally be SO happy to get out of that *noisy* room!! I hope all is going well!!

My mom always said if someone is in the hospital they are usually too sick for visitors. I always inquire if I think someone might want visitors. When I was in the hospital and then very briefly in rehab, I was really happy to have visitors. If I had stayed longer in rehab there was someone who was going to coordinate my visitors so they wouldn’t all come at once. The best visitor I had was my godson home from college for his birthday. He brought me a piece of birthday cake and a personalized word search puzzle. When he was just learning how to be in “big church” I’d make word search puzzles about the Bible readings for the day.

I'm exactly the same way about hospital visitors. Last time I was in the hospital, I told my husband, "do not tell anyone in your family". He has a huge family. It's really sweet, but so exhausting.

My little sister lauren has cystic fibrosis so I understand your troubles but I love you and Peter and Oliver💜 keep fighting 💜

Finally, someone who explains not wanting visitors the way my brain thinks. I agree 100% with everything you said. It's amazing to have family and friends that want to visit and are super supportive, but the business mode is exactly how I feel when I go into the hospital. I prefer to see friends and family after the hard work is done and we can truly enjoy time together.

Laughed so hard when Mary was "tickling" Peter's nose, it made me start coughing. Thanks for the laugh in a rough week Mary! 😂❤

I am very similar. I am not a big visiter person when I am in hospital, unless it is my mum or someone who has lived with me. I just think my friends tend to worry more about me when they see me in hospital, because I may be ok, but being in the gown, or having an oxygen mask, or i.v. can be freaky to those who don't luckily have to see it annually. Even though they are just tools to help a person get better, or more stable. They can look intimidating to some. And I totally 100% get that. :)

I so know how you feel about visitors. I like them but with everything going on with nurses in and out of the room I certainly understand the feelings. May have an upcoming appointment too.

Woot for christmas lights,they always bring a glow to any room :) .Oliver cuteness is enough to cheer up anyone :) ,,Peter staying with you always is a great blessing so that brings a smile :) . Mary you getting the best care is always wonderful :)

You guys are always "go with the flow" and always with a smile. so much inspiration to so many. I love you much! My love and hugs always to the 3 of you,.

Your family is so sweet. They’d jump on a plane or drive here in a heartbeat. It shows how amazing your family is.

I was out shopping with my 14 year old granddaughter, Heidi a few days ago and we had to cross a busy road. I am slow due to crippling arthritis so Heidi calls back to me, hurry up grandma you’re gonna get run over, which I quipped back, no I won’t there’s no reindeer around. Of course I then had to endure her singing the song repeatedly and it has been stuck in my head ever since. We had a good laugh and I hope you do too.

Ive taken care of quite a few CF's when I was a registered nurse, and I have to say, you're one of the few thats very brave and inspirational. Keep fighting girl.

Cheering you guys on! I love the cheerful decorations in your new room. Gotta say that children's rooms are a lot more cheerful than adult's,. I remember all the moving hospital rooms we did. We used to play a game where we'd guess which room we'd be in.

I started to tear up a bit when you were talking about your parents and friends and everyone being so supportive and wanting to come visit. When I was in the hospital the before last, and the days/appointments leading up to it, I was on my own. I friend came with me to my initial consultation with the oncologist and insisted on driving me to the hospital the morning of my surgery, but she fell out of touch and I was left trying to find a ride at the last minute. My brother would come and visit for a couple of hours in the evening but the rest of the time I was on my own. My parents lived 90 miles away and left after my surgery and they never called or visited after that until I was back home. They wanted me to come stay with them for a couple of weeks while I recovered, but it wasn't possible. All of my follow-up appointments I had to go to on my own, too, and nobody asked how I was doing or if there was anything they could do for me. This last hospital stay, my mom and brother came to stay with me for a couple of hours each evening, but again, the rest of the time I was on my own. I am glad you have so many people who support you and love you, but it makes me sad that I didn't have that same support.

I love children's hospitals well one because I am 16 and I still go to a children's hospital but when I was three years old I was diagnosed with leukemia and my oncologist is at the Children's Hospital here any sooner see which is East Tennessee Children's Hospital and it is like one of the best hospitals ever well children's hospitals are in there are some great aunt adult hospitals but all thanks to God and my team of doctors there of been in remission for 12 years and I've been cancer free for 12 or 13 years so I've been in remission for 12 or 13 years and I've been cancer free for 12 or 13 years it's all thanks to God and my team of doctors and my family and friends.

Peter, when it's just you and Ollie, do you bring him into pubic spaces like the donut shop today?

I'm the same with family visiting me in hospital. It isn't the most social place and I never want to inconvenience them, as most of my family don't drive. Also, when I'm not feeling great I am sure I am not the best company. I usually just plug in my earphones and listen to music or watch documentaries.

I agree with less is more for hospital visitors. Being there is a job and a half and you are tired and challenged in so many ways. It's not the time to have a social gathering. Love that you had to move at midnight. Lol. Talk about sleep disruption. Hang in and good luck on your Med challenges.

Mary... Question.... have you been in every room on that floor at BCH?

i been on that unit lots of time Mary its for patients who are to critical for normal nursing staff but not so critical that they need to be in the ICU they do for people who have allergies, diabetes that need a IV med that can raise or lower there blood sugar, etc. there's LOTS of reasons but don't worry marry you're safe :)

I'm the same way when I'm an inpatient in the hospital. I do it mainly because I'm sick and need rest but too since I have no spleen I have no immune system. If I'm already sick and get re exposed to some other new bacteria or germ, it would make me even sicker! So FaceTime it is for me!!!

my family think I'm lactose intolerant but I've never been tested, I want to know if I'm lactose intolerant xxxx

We have heard that the place between ICU and regular rooms "step down". I was there after my transplant before going down to the regular floor.