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1 year since my autism diagnosis | Here is 10 things I have learnt!

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On the 30th of March 2023, I was formally diagnosed with autism. Now 1 year later I wanted to reflect and share 10 lessons I have learnt in the past year! I do not think all these lessons 'require' a formal diagnosis to learn, you might have learnt them years before your diagnosis, or years after but I hope you learn something new here!
Please share lessons you have learnt in the comments and let me know any other autistic content creators you love to follow!
Watch my "I am autistic. All the things I wish I had the chance to say before." video here
• I am autistic. All the...
✨ Some people/books I recommend in the video ✨
The Autistic girls Network: autisticgirlsn...
Meg's channel, I'm autistic now what: / @imautisticnowwhat
Paige Layle: / @realpaigelayle
Chloe Hayden: www.chloehayde...
Ellie Midds: www.weareunmas...
Neurodivergent Lou: / neurodivergent_lou
The Autistic Chef: vanessadsouza....
✨ Follow me! ✨
Instagram: / sew.lilah
Business website: lillianhopedes...
TIME STAMPS:
0:00 - 1 year since my autism diagnosis!
3:35 - Your diagnosis IS valid, even if you don't 'feel autistic' all the time.
5:31 - Your journey is different from EVERYONE else's
7:29 - Find your community!
9:43 - There WILL be people who try and invalidate your diagnosis.
12:15 - There will ALSO be people who WANT to understand.
14:08 - Put TIME into understanding your autistic self!
16:16 - People saying you are 'more autistic' after diagnosis.
18:22 - You are NOT to blame!
20:41 - Don't burn yourself out! BUT if you do, don't hide it.
22:31 - There is FREEDOM in accepting yourself!
24:02 - Let me know what other lessons you have learnt in the comments.

Опубликовано:

17 авг 2024

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Комментарии : 35

@sewlilah 4 месяца назад

What is your top lesson you have learnt since realising you were autistic? I definitely still struggle with not burning myself out by doing too much 🙈 does not help the ADHD side of my brain just needs to be constantly doing stuff and can't relax! Let me know if you would be interested in a video about my diagnostic journey and I hope you have a great day 🥰

@gordoncooper2481 4 месяца назад

The most important lessons I learned is that I am allowed to forgive myself for not being perfect, and that I am allowed do what I can to avoid being overwhelmed by sensory stimuli or social situations. That I needn’t feel guilt for taking care of myself.

@1981jasonkwan 3 месяца назад

One lesson I learned is that the reaction, “but everyone does that/feels that way”, although invalidating, is often said by an undiagnosed autistic person. Btw really appreciated your spoken word video!

@AutisticNotAlien 2 месяца назад

This is so eloquent and recognisable, especially the part about being seen to be more autistic after diagnosis. Masking is an effort, and I do everything I can to avoid having to do it these days.

@shelbymunro8941 4 месяца назад

To be myself, no matter what. If I don't allow myself to be myself, I can burn out very quickly.

@fo4urm640 4 месяца назад

Thanks for sharing. The self-love message is hugely important! That's going to be an ongoing struggle. Advocating for myself & trying to automatically fawn less, comes to mind as things i struggle with on the daily

@KamillaMirabelle 4 месяца назад

As an autistic parent to 4 kids in the age span of 5 to 17 year of age.. you can definitely be a good parent as a person with autism.. ❤ the hardest part for me is seeing 3 of my kids struggle because they also are autist and the society are not a place for autistic people.. but they are all thriving ik their own way, they got friends (both neuro divergent and typical) and they will as me be able to keep a job. My country are getting way better to handle autistic people in an inclusive way, but we are not done..

@mightlightt 4 месяца назад

İt must take all ur energy to look after ur kids. İm working 40 ours weekly, i dont got the energy and motivation to look after my self. Being autistic with hdhd my self having also ocd anxiety so evryting is connected at the end they help each other sometimes🤣

@KamillaMirabelle 4 месяца назад

@@mightlightt actually no, will not say they does not take a lot of energy, but i also got ADHD and my kind more or less means a bunch of energy. 😅 At the moment i study full time (37 hours) and work around 20 hours beside that.. my kids are very different when it comes to how their autism expression itself, but all aspergers.. it is mostly sensory issues and social understanding.. and they need time off when they get home.. i have a high degree of structure because i need it myself, and that helps them too.. also i have worked at a psykeward so have learned a bit.. and also their are 4th generation with autism in the family both my granddad and grandmother probably had it, they acted like it, my father has it, both me an my brother has it and now my kids

@mightlightt 4 месяца назад

@@KamillaMirabelle they are lucky to have u, i got abused by my parents and siblings so for me was home not fun to be at. İ cant imagine being a parant so its scares me never had a relationship also. İ see u have evrything in order its working😊😇

@KamillaMirabelle 4 месяца назад

@@mightlightt my family was good, but i have had experience with abuse in anyway imaginable.. 🥺 but yes i think they are lucky.. The best part is that I can relate to them, so they do not feel different in the same way as many do..

@mightlightt 4 месяца назад

@@KamillaMirabelle sad to hear that.. it made u very strong. god gives the strongest most deficult experiences. İts hard for me to connect with poeple and build a relationship. But having a family is gonna make me live for them i think. Now i live but for what i dont know luckiky im not sucidal because i trust and love god tomuch

@kellyschroeder7437 2 месяца назад

Hard hard hard times comes to terms with as late dx at age almost 60F

@AutisticNotAlien 2 месяца назад

I know a late diagnosis is a case of 'better late than never', but there's the post-diagnosis grief to deal with - not grief because we're autistic, but grief for all the years we've lost not knowing who we are.

@myAudhdbrain-hn7fe 4 месяца назад

thank you sew

@jennifersmykala1108 4 месяца назад

❤

@ThepPixel Месяц назад

Im guessing you go to a pretty strongly evangelical church? Im Roman Catholic and people have always been pretty chill about my autism. I know some evangelicals can be abit "pray and be healed" so I was just wondering haha :)

@sewlilah Месяц назад

Yep! Thankfully people in my church are great, it is usually when I go to events with other churches I can get comments of needing to be delivered form the 'demon of autism'

@mightlightt 4 месяца назад

Do u consider getting a fidget toy 😊

@sewlilah 4 месяца назад

Yes! I have a few that I use

@mightlightt 4 месяца назад

My top lesson i learned is im not the problem…🥲

@KamillaMirabelle 4 месяца назад

You where never the problem 😘 it is the human condition to being afraid of change and differences that is the problem.

@mightlightt 4 месяца назад

@@KamillaMirabelle thats true, being one with the condition now feels very good. Like finding ur self ❤️