2020 Chronic Illness Update: How's My Eczema, Asthma, & Allergies during COVID Lockdowns? | Ep.401

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JEFFREY LIN VLOG: January 20, 2021
Chronic illness health improvements for 2020:
- Dupixent progress for eczema, asthma, and allergies
- Low-Dose Naltrexone (LDN)
- New foods: Rice, Chicken, Quinoa, Soy sauce, Curry powder, Guava, Asian pear, Broccoli, Turmeric, Cumin, Bok Choi, Ketchup
- Exercises: Treadmill, pushups, planking, archery, biking
#dupixent #cyclosporine #cromolyn #chronicillness #raredisease #ldn #flareup #xolair #eczema #antihistamine #prednisone #foodallergy #anaphylaxis #lowdosenaltrexone #hives

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23 сен 2024

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Комментарии : 80

@julianachandler2975 2 года назад

So glad that you are improving. Praying that you continue to do even better.

@Sagepeh 2 года назад

I'm glad to see you recover. Thanks again for the miracle.

@davidsmusic31 3 месяца назад

Your story continues to inspire people! We would love to hear another update from you!

@dheepshemare5833 3 года назад

Excellent news! Im very happy for man, you really deserve the break. As a fellow severe eczema sufferer about to start on dupilimab i started researching and found your channel. Glad i did, keep it up and keep posting, ill definitely be following your progress! Peace from the UK.

@JeffreyLin 3 года назад

Thanks for your support and stopping by to say hi. Good luck with dupilumab...feel free to ask me any questions after you start

@lilydelalune4344 3 года назад

So happy to hear about your healing! Been following your treatments and process since I have eczema too. Congratulations 💛

@JeffreyLin 3 года назад

Thanks! Enjoying the improvements while I can! Hope it lasts

@Untilsheputherfootdown 5 месяцев назад

Thank you all the videos you’ve posted! So incredibly helpful, informative and inspiring.

@radricky9310 3 года назад

Thanks for your videos! Your improvement looks and sounds amazing. I just got my first doses of Dupixent last week, can't believe something like this is finally here after suffering with eczema for my whole life. The final straw was a bacterial infection throughout my whole face because of an eczema break out. I hope for the best for you, thanks again for talking about your journey.

@JeffreyLin 3 года назад

Hey RadRicky! Glad you're on your journey to healing! Yeah, i had horrible infections from 2002-2009ish. My doctors got me on antibiotics for several months until the infections cleared. The problem was previous doctors only followed the antibiotic guidelines for normal use so I never used it long enough to have it be effective. Keep me posted on how you do with Dupixent.

@erikaiserhoff3997 2 года назад

Thank you for your story - it’s helping my dad who is suffering from eczema.

@JeffreyLin 2 года назад

Hi Erika, thanks for letting me know. There's no easy way around eczema but I guess knowing we're not alone is important in the fight.

@stephenpowstinger733 3 года назад

My second vid of yours. Damn, you've got a lot of problems besides eczema. Never heard of naltrexone used like this (but I'm no doctor). Glad you're better..

@JeffreyLin 3 года назад

Thanks for the support! A lot of doctors haven’t heard about it either. Using micro doses of naltrexone is not profitable for drug companies to make, so they don’t promote it much.

@davidwong9801 3 года назад

I am beginning my Dupixent journey very soon. Thank you for sharing your journey - it has been so helpful. I am so glad you are feeling better - so happy for you!

@JeffreyLin 3 года назад

Good luck! Let me know if you have questions

@Number1childefan 3 года назад

So glad to hear you are getting better!! I guess there is hope for all of us with newer meds..

@JeffreyLin 3 года назад

Thanks Elsa! Even though Dupixent has worked well, it hasn't been a smooth journey. Take it one step at a time. But yeah, there's tons of new treatments coming out in the next 3-4 years so just hang in there!

@sharonroesch9097 8 месяцев назад

I have fibromyalgia ,chronic fatigue syndrome, scleroderma, sjogrens, lupus, copd. Restless leg syndrome, rheumatoid arthritis, colitis, IBS, eczema, fungal infection hands and feet, got chemical burns from cream for feet, Dupixent didn’t agree with me made joints and muscles more stiff and sore, plus pink eye now 2 months, 2 torn ligaments not treated, esophageal dispositive, degenerative disc disease, collapsed disc, and now seizures when I drive

@modusbee9092 10 месяцев назад

How did you get your doctor to try Naltrexone? I am really struggling with low mood, low motivation and lack of focus to get things done while on dupixent. My doctor suggested medication for adhd to deal with my symptoms. Your thoughts?

@Celass35 3 года назад

It's good to hear that for you 2020 has been helpful and positive! I had a severe atopic dermatitis for 7 up until 2020, I lived a year in Antarctica during 2020 and I fully cleared up. It was a huge relief, since I hot back to the real world, my body is fully covered. Doctors want me to give a try to ciclosporine (here in France, we cannot have ciclo more than 6 to 12 months for eczema), it also mandatory to try ciclo of you want to try dupixent, else you can't get dupixent. I'm a bit scared to start ciclo but my life is getting worse, psychologically, I'm getting extremely sad and negative because of my condition. You vids helps me taking my decision to give a try to ciclo, I'm just afraid of a rebound effect when I will have to stop (in about 6 to 12 months), do you know if a huge rebound effect exist? What did you experience? Also, is sport possible under ciclosporine?

@JeffreyLin 3 года назад

Hi Celas, sorry to hear your condition is getting worse again. It is psychologically hard to go backwards after having a clear year in Antarctica. I am still on cyclosporine and Dupixent. Dupixent has healed my skin but I still need cyclosporine for asthma and allergies. Since cyclosporine is a dangerous medication, I suggest using the minimal dose that you can. Yes, your skin might get worse after stopping cyclosporine. Hopefully you’ll have gotten approval for Dupixent by that time. Yes, you can do sports with cyclosporine. The main side effects I feel are slight fatigue and sometimes my mood is not great (but still better than having full body dermatitis!). Hope this helps

@Celass35 3 года назад

@@JeffreyLin thanks a lot for your answer! I have btw a super great news, I have started dupicent since few days, doctors have changed their mind and helped me to by pass the obligation to try first ciclosporine. When did you start feeling dupixent was working?

@gonefishingstudios 3 года назад

Good to hear you're getting better Jeffrey. Hope you are enjoying those new foods!!

@JeffreyLin 3 года назад

I totally am! Thanks for the support! Feeling more like a human these days

@haiyanwang2651 3 года назад

I am glad that you are getting better! Could you tell us a little bit about the food you can eat before? Can you eat wheat? What is your IGe level? Thank you!

@JeffreyLin 3 года назад

Hey, good question! My IgE level used to be about 23,000 (but since IgE measurements aren’t very accurate above 2000...my 23,000 IgE could be even higher). I’m literally allergic to everything on the planet, so there’s no safe foods. I was on the Elecare (infant) diet for over a year and still had flareups so I needed cyclosporine Immunosuppresants. My lowest IgE foods are beef, potato, and blueberries (but still need medication to tolerate these)

@haiyanwang2651 3 года назад

@@JeffreyLin Thank you so much for sharing your journey. My daughter has similar, though slightly less severe, allergies. I am quite frustrated. My daughter's IGE is quite high too (~5000). However, when she eats most foods (except the very high IGE foods) she has no immediate reaction. I am unsure whether the food allergies could be related to eczema, however. When you say that you have issues eating the foods, do you mean that you have an immediate/digestive system reaction, or are there issues with your skin correlating to the food allergies. Also, do you avoid foods that are high IGE but can be eaten with no immediate reaction?

@marthacastle6834 3 года назад

Omg!!! You look so good. Thank you for all your videos.

@JeffreyLin 3 года назад

Thanks Martha! Glad you like them! Yes I'm happy I've been stable this long without more flareups. Hope it continues

@Data_-xw7yw Год назад

You never explained how you were able to touch water again. Please give us a recap of how you manage

@suewatkins5282 3 года назад

I've suffered from Eczema Asthma since I was 6 weeks old a lot of the time it's been servere at times needing hospitilizasion always being treated with steroid creams and tabs,I decided to take a break from steroid drugs,within weeks I had a very bad flare when I had to be admitted into hospital.The doctors decided to try Azerthoprine within a few weeks my skin was almost clear,I stayed on it for 5 years,came off it 3 months ago my skin already is starting to flare,sorry for the long drawn out comment.

@jenleigh6521 3 года назад

Thanks 🙏 again Jeffrey. I am glad 😀 you are better and able to tolerate more foods.

@JeffreyLin 3 года назад

Thanks Jen! I’m stoked!

@pryttyc 3 года назад

I'm happy your feeling better... 😊 Keep staying safe...

@JeffreyLin 3 года назад

Thanks for the encouragement!

@Linkerssss 3 года назад

Thank God, you're looking very good on the surface.

@JeffreyLin 3 года назад

Thanks! I feel great too! I'd rather not have to take so many meds, but It's good to feel healthy and get some rest for now :)

@Data_-xw7yw Год назад

@Jeffrey Lin looking so handsome. May you keep improving 🎉

@eminentrhmyme8156 3 года назад

Mate your looking good!!!! Keep up the good work, literally doesn’t look like you have a skin condition

@JeffreyLin 3 года назад

Thanks! I feel much better. Obviously "looking good" doesn't mean i'm not taking meds...I'd rather not take meds but one step at a time!

@behindeachfilmgrain 3 года назад

Your skin looks amazing Jeffery! So now you can fly into Utah and we can do some arial photography! Hahaha! Good to see you health as you can be!

@JeffreyLin 3 года назад

Thanks Buddy! I feel great :)

@asianmovement 3 года назад

Good to know youre doing well. Ive been dealing with eczema for the past 8 years. I would love to use dupixent but its too pricey my insurance wont cover it

@JeffreyLin 3 года назад

Are you in the US? Dupixent offers financial support if your insurance won’t cover it. www.dupixent.com/support-savings/dupixent-my-way

@asianmovement 3 года назад

@@JeffreyLin thank you. Ill look into it

@yoncano 3 года назад

Hello Jeffrey. I'm from Argentina and I'm glad for your progress and the recovery of your health. I'm trying to find a solution for my dermatitis and searching for a I found your channel. Here, in my country Dupilumab is just only an experimental inyection. So I'm trying with Corticoides at the moment :/ But I'm interested in that inyection. I don't know how to say you for sharing part of your daily life. Muchísimas Gracias y un abrazo enorme amigo. Fuerza ídolo 💪 You rules

@JeffreyLin 3 года назад

¡Eres bienvenido! ¡Espero que puedas conseguir Dupixent pronto!

@stradivariuz9124 3 года назад

Glad to hear you're doing well! Being on dupixent, how have you dealt with the side effects to your eyes? I'm currently using Alaway OTC day to day and when it really gets bad, I start using Tobradex. I'm hesitant to use tobradex as you shouldn't use it long term, but it's the only thing that seems to work when it gets worse.

@minhaj9802 3 года назад

flurometholone works for me. 2-3 drops a day until clearance but it reoccurs shortly after.

@JeffreyLin 3 года назад

Thanks! for eyes, I just had to reduce my dupixent dose so I have injections once every 6-8 weeks. When I get occasional eye irritations, the ointment Neomycin works for me. But since it's a steroid, don't use it more than a few days. Other immunosuppressive eyedrops like Restasis works for some people.

@alexnutcasio936 3 года назад

Jeff, great stuff and thanks for the update. Are you seeing any long term side effect(s) from Dupixent or are you aware of any? Not much written on it as its a relatively new drug. (other than the eye issues some have had??)

@JeffreyLin 3 года назад

Long term, I just get better and better as mentioned in this video. For most people, the eye issue is a phase that people get over. It's mostly your body still reacting to eczema even after dupixent clears up your eczema, but your body hasn't caught up to that fact. Some people get over the eye issue in a few weeks or a few months. It's taken longer for me, which is why I take a lower dose by doing injections 6-weeks apart. For the first 2 years, I would also get 1-2 days of fatigue after each injection, but it's a healing type of fatigue like after exercising a lot.

@serafinoconto6154 3 года назад

Awesome to hear, congratulations :)

@JeffreyLin 3 года назад

Thank! 🙌

@minhaj9802 3 года назад

Hows you're eyes? I had to start dupilumab cause everything else I have tried failed with the exception of cyclosporine, methotrexate and dupilumab. Aza failed for me, doctor recommended dupilumab due to efficacy and safety and also no blood work. But now I am having eye side effects 2 months in. Alaway once a day and flurometholone twice -three times a day seems to work very well but conjunctivitis comes back after 3-4 days not putting on it. Flurometholone is weaker then tobradex but still can't stay on it for long. Any idea of new treatments? Abrocitnib?

@JeffreyLin 3 года назад

Hey Minhaj, the eye issue with Dupilumab is usually a phase. The body's immune is still overreacting to your eczema even though Dupilumab has probably cleared up a lot of the eczema. If the eyedrops or eye ointments aren't helping, I suggest reducing your Dupilumab dose by doing injections every 3 or 4 weeks. If that doesn't help, do injections ever 5-6 weeks. I do injections ever 6 weeks. I still get eye irritation if I do injections every 4 or 3 weeks, but the eye irritation is not as bad as it was when I first started Dupilumab. There are some newer versions of Dupilumab in testing. Those may be available in 2-3 years.

@modusbee9092 10 месяцев назад

@JeffreyLin Do you have any more suggestions for eyes? I have three eye doctors trying to get my eyes under control with various eye drops. I am really struggling with the financial cost of so many eye different eye drops. I've been on dupixent for 5 years and my eyes keep getting worse. Reducing my dupixent to every 5 week causes body flare-ups and only helps my eyes a little bit.

@ryanb2781 3 года назад

thank u for ur vid i take dupixent actually im the reason guniepig for it getting relesed in michigan cuz my A-topic dermatitus it changed my life i almost died from my skin illness cuz i could eat even a table spoon of rice or shot glass of water or id puke it up im glad its working for u aswelll i live a vegan diet and it helped me even more

@JeffreyLin 3 года назад

Hey! Glad to hear from another early user. I was one of the first to try Dupixent after FDA approval. I’ve also almost died many times. Are you still on dupixent now?

@ryanb2781 3 года назад

@@JeffreyLin ya but tryin to get off of it by eating right and using cbd/cbg flower in a dry herb vaporiser fully vegan changed my life

@petrocruz7695 3 года назад

have you heard or tried of a new ointment called eucrisa?

@lokomotive28 3 года назад

did you ever try the fasting ?

@JeffreyLin 3 года назад

Yes I have. But my condition is a complex immune issue, so avoiding food is only avoiding 1 trigger but I have many other triggers that continues to cause problems.

@bettyreyes-martinez1195 3 года назад

You look great.

@JeffreyLin 3 года назад

Thanks for the support Betty!

@bettyreyes-martinez1195 3 года назад

@@JeffreyLin anytime, because of you I did more research and I will be starting my shots next week. So thank you❣️

@JeffreyLin 3 года назад

Wow! Hope it works for you. Keep me posted on how you do!

@miloradpapic3298 3 года назад

Tray 30 days water fast.

@JosephPBibbo 3 года назад

Hi Jeffrey! It is great to see your new video and that you are doing so well!

@JeffreyLin 3 года назад

Thanks buddy! I'm glad my progress continues as well! I've never had sustained improvements for most of my life so still feels unreal

@tenabexman1073 3 года назад

Keep on keeping on!!!

@JeffreyLin 3 года назад

Thanks man!

@21972012145525 2 года назад

👏👏👏happy for you

@40thCenturyTrolls 3 года назад

I found a Chinese herbal cream that has had really great effects and have no side effects. Also work from home and removing my commute has done wonders for my skin. Used to have patches on my feet that were so itchy but it's completely cleared up because I don't wear tight shoes anymore

@minhaj9802 3 года назад

What is name?

@saabastiana4111 3 года назад

Were ur allergies childhood or adult onset??

@JeffreyLin 3 года назад

I was born with it. Allergies and asthma started a day or two after birth, eczema showed up soon after.

@becksbitofblue 2 года назад

Wow everything you can eat is high histamine and full of sugar. Interesting. I have horrible histamine issues. I'm carnivore now. All grass fed. Chicken is high histamine sadly. No meds I reaction to meds. Costco benadryl works but regular give me issues kinda funny. I just had to break my fast because my low blood glucose levels set me off. So bummed. Heat also sets me off. New sub. Listening to you makes me feel better. Sorry your so bad off. Not fun.