24. 6.21 Treatment Updates and Patient Outreach Program with oneAMYLOIDOSISvoice. 

Great to see you again Dan! I was diagnosed in 2018 and am on kidney dialysis. It's not fun, but I still feel so much better than I did before my kidneys failed. I had chemotherapy for about 18 months in 2019 and 2020 and my numbers are still good. I'm so happy that you are doing so well Dan! Keep us informed!

Hi Dan, I am very glad you are getting better. I was diagnosed in late 2020 with stage 1 AL light chain amyloidosis, had in early 2021 six weeks therapy with CyBorD and mid April the autologous stem cell transplantation after high dose chematherapy. I am "clean" since then and take no medication. As a passionated cyclist I started cycling a month after the transplantation, constanlty gaining my strenght back. Never felt better in my life! Greetings from Switzerland!

Good to see you again! I like that white hair!

Good to see you, Dan!

Bravissimo Dan, I am so glad you are doing awesome.

That’s great. I’m so happy your numbers are in the normal range or at least going down! Are you on Dara?

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I was diagnosed in 2021 with aa amyloidosis. I'm on dialysis I'm having a hard time finding a doctor. I live in Philly do u have any suggestions?