I’m a Ménière’s sufferer since 2013. My disease came on hard and fast, during my radiology residency. I was having attacks like every four days, pasting 8 hours plus. I tried everything. Sodium restriction( I became a vegan for a few months), DIuretics, transtympanic steroid injections(2 treatments of 6 total injections),oral steroids. Finally I have an endolymphatic sac decompression and it significantly helped my vertigo episodes decrease in duration and frequency. I do have a significant hearing deficit though. My right ear has become virtually deaf and I have moderate loss on the left. I appreciate you sublimating the trauma of this horrible disease and attempting to help others. I made a video blog throughout my first year with the disease, similar to yours. I received emails from across the world, both emotionally supporting people and explaining aspects of the disease and potential treatments. It was therapeutic. I’m proud of it. I have since deleted these videos, though, so that potential employers wouldn’t know I was affected. Perhaps you can post a video about that. There are many moral and legal issues to explore. Also, anything concrete on barometric pressure, temperature and dew point and their effects on the inner ear would be welcomed. Brian Manfredi, Saratoga Springs.
My mom's just been told she's got it...do you think it would be best to get a second opinion. Btw all the doc said was to lower sodium & caffeine didn't mention the daily amount either 😕 & she said everytime there's an attack she'll loose some hearing & eventually go deaf...is this true?
Oh thank you for your comments.I have asked my Drs. If the barometric pressure has any relation to my disease and they laughed at me.I live in Florida and I know it does.With the hurricanes and such my episodes have become worse.
I have found pressure can usually bring on an attack- it really doesn't take much. (sound pressure, barometric pressure....) I have recently discovered an issue with the Thyroid. In treating that my symptoms have gone into remission. Have you ever tested to see what your TSH levels are? - They should be .5 - 2.
My goodness, you going through this and trying to get through residency! This is such a terrible disease. There needs to be much more funding to be poured into this hell to find a cure. Here's to a cure for all one day soon.
Thank you for making this video. For me, stress is a huge trigger. So creating a lifestyle to minimize stressors would be helpful as well as getting adequate sleep like you mentioned.
You have been such a help. I'm 22 and was just diagnosed with Menieres. It has completely changed my life. I have been hospitalized 4 times. My longest episode was 9 hours vomiting 20-30 times. I have not been able to drive since last October. I am trying to not get down, but I cannot go on with my normal life. These videos have been so helpful.
Browngirl it does suck. here's things that help that have been pretty well documented: fresh ginger ( add in smoothie), ginkgo, celery, pinebark extract, blueberries, lot of quality water, less stress, vestibular exercises, fish oil. go for organic as often as u can afford. if you have tinnitus too lemon bioflavonoids.
10 hour night shifts in a fairly stressed job, probably explains why nearly all my attacks happen when I'm at work. Cutting out as much salt and caffeine is helping though. Thanks for the video, some good information.
Simply.... ANYTHING THAT DEHYDRATES YOU! Plus stress loud noises and low lighting are triggers too! I noticed taking strong antibiotics once I felt better so theres definitely a connection between foods....eating non dairy diet and healthy taking probiotics helps alot!!!
Sodium on its own, is not always or necessarily a trigger. But, like he said, avoid big loads of too much. All but home made pizza is out. In the U.S., avoiding sodium at high levels is nearly impossible because it is hidden in so much food. 27 years ago, when it began for me, it was hard Now, they pump more sodium into processed foods more then ever. Forget about ALL fast food. Caffeine is a big trigger. Chocolate is a big trigger. Just, drop them both. Forever! Tyramine, found in leftovers and fermented foods, is a trigger. (Yes, most people do not know this yet.) Avoid all cheese except farmers (fresh) cheese! Avoid fermented foods like kimchee, tap beer, red wine (or all wine), and all the many other fermented foods. Meat left over in the fridge also has tyramine. Best to eat it all at once and do not store it long. There is tyramine in some vegetables but, for the most part, it is so low, you can ignore it. There is one thing you cannot ever avoid: pressure changes due to seasonal changes in the weather. Fall tends to be the worst. Spring can also be pretty bad. Mid winter is a toss up. Summer (except for the heat and humidity) is usually the best but STAY HYDRATED. Indeed, be sure to drink water. Not to excess but, have glass in the morning, one at lunch, one at dinner, and maybe 2-4 more during the day, depending on how much water you loose (heat, dryness of winter, exercise). The low sleep temp is also great advice! Also keep your thermostat at 69 or lower (67/66) during winter (put on a sweater! drink decafe tea [warning: it has caffeine in it! if you have any sensitivity to caffeine, you may have to give that up too!]) and then, you can cool it in summer at 72 or higher (versus 78+, which can be a trigger). Also use a humidifier during dry months. Keep your sinuses and middle ear happy. It helps. Wash your face before bed and splash with cold water to remove pollutants. Bath at least ever 2-3 days. Bathing every day might be too much and drys you out. Use moisturizer on your skin. Cetaphyl is non comedogenic (no zits). Worth the extra cost. Use the lotion. Take a vitamin D supplement in winter months. 400-1000 IU. However, have your GP do a vitamin D test. They might want to hit you with a big dose (x2) to get it back up if really low. Which, for most of us in winter, trapped in our homes sick, it is! OK, that is not all of it but, that is a quick 27 years of living with it has taught me. Be sure to go to a research and teaching university medical center ENT or otolaygology clinic for a definitive diagnosis. Also see a neurologist there too. Almost for sure, MD is also vestibular migraine or tightly interacting. There are a number of drug options for that. Verapamil is most common but also some other serotonin inhibitors and other options your neurologist can help you with. The absolute best time to try out a new drug is when you are not in a period of attacks. A new drug can cause things to be worse. But, going on a low low dose of something when not feeling so bad, often will result in much better results. BTW: you absolutely do not need to have a scan of your head. This is a bad ENT or other doctor covering all the bases. But it is costly and most of the time, shows nothing. Using proper skill and diagnostic methods, a skilled ENT and neurologist, can tell what you have. A GP and younger doctors with less experience, cannot. So go to that research and teaching hospital!
Thank you for sharing this. I was given a dx two years ago and am now realizing all of what you shared to be so true. Stress is a huge trigger for me. Eliminating coffee and processed foods had a big improvement on my body.
@@bobdarker519 Even non processed foods have naturally occurring sodium. Get a book that gives a breakdown of electrolytes in food. For example, 1 rib of celery has 90+ milligrams of sodium. If you soften your water, especially by using salt pellets, you need to drink filtered water or have the softener bypassed on 1 faucet and use that for your water intake. We did the calculations and found if I was drinking 64 oz of softened water daily, I was receiving over 750 mg of sodium! That was half of my recommended allowance per day in water only. My biggest trigger seems to be storms. Short of moving from OH, I don't know what to do about that.
Excellent information. Thank you so much. I was recently diagnosed and am on a roller coaster of emotions and “trigger” symptoms. I’m going to be vigilant on my new life style for the sake of my health. I only wish there really was a support group.
@@fayemarshall2254 Mine hit in February, before the pandemic hit here. I think it is related to neck issues. My ENT gave up on me so I’m seeing a upper cervical/spine neck specialist next week.
I have had it bad for 5 years but worst yet the last year -5 months of vertigo every few days. My solution has been everything described in this video and adding anti/inflammation supplements.
I've suffered from dizziness and head pressure since January 2018 with no diagnosis from a doctor, but realistically its most likely this condition. I'm currently on betahistine, doctor prescribed it to me, im on day 4 of it but I think it wont work, I think im going to try cut down on sodium based foods as at this point I have done so many things to try and rid this horrible illness that I am starting to lose hope, I find it hard to stay positive throughout this period as I am 21 and many of my friends my age don't understand how it affects me. Generally ive seen on all these videos that people's vertigo seem to be a lot worse than mine, mine generally more feels like plane turbulence, and its never seem to make me fall over or anything, but whenever im sitting or lying down or walking I experience the symptoms. I generally just feel so depressed about it all and don't know if it'll ever end. If anybody could respond to me just to talk about this with me as I am yet to talk to anybody experiencing similar symptoms I would massively appreciate it as this whole thing has caused depersonalization, anxiety and panic attacks and much more stuff. I feel like it'd just help me cope better if I can talk to people that are going through the same thing
How are you feeling now? I have been dealing with it for 5 months as well. Its terrible but it seems there are treatments out there. Im going to try the John of Ohio Supplement Regimen for Menieres.
Thank you for making this video. I am totally relate to this video, and I cannot agree more with every single advise that you share with, but I never think about sum these up into a manual or tool. This is extremely helpful for ppl suffering this Meniere.
Great info, my daughter is suspected to have Meniere's diseases, we are waiting for the appointment to confirm. However, she also has POTS (among many other things), which requires a high sodium diet - because it is a heart disease, she had to make the decision to basically take care of her heart or her hearing, which obviously meant her heart first. Now, I am going to see, if she can get a lot of the other trickers out of her life. I am hoping she will feel overall better - once all of her meds and lifestyle changes are balanced to its best level. Blessings!
Very good video with lots of useful thing's to try to minimize the effects of Mernieres, I've just been diagnosed but have been having symptoms last two years, sleep is an issue for me will have to address that one well done and thnk you.
Going through possible diagnosis with my husband now and while I'm no trying to speculate (it's really hard not to) I will become informed! Google is a scary place and while I knew what meniere's was (husband has a family member with it) I had not delved into the topic. I have noticed that there is a lack of information for helping family members with this diagnosis. I'd love to hear your wife's perspective and advice for someone who loves an individual with this diagnosis. How did she help you, when did she know when to just back off and let you have your bad days etc. I have garnered much respect for this community as I learn. Thank you!
Hi Ashely, my wife Megan actually has written a post: www.mindovermenieres.com/message-wife-megan/ And if your husband ends up having Meniere's disease, I encourage you to read this post before any others: mindovermenieres.com/newly-diagnosed
Stop caffeine, chocolate and tobbaco, and for me alcohol isn't a trigger, so enjoy that at least and stay away from loud noise, have at least 8 hours of sleep a day and have fun, don't get stressed out, get ease from the dis-ease
1. Temporarily eliminating Meniere’s triggers. 2. Track and journal as you make changes. 3. Reduce sodium intake and spread it out over each day. 4. Reduce or eliminate intake of processed foods. Tell chefs in restaurants to eliminate sodium in food. 5. Reduce sugar intake. 6. Caffeine, alcohol,nicotine and other drugs are big triggers,along with stress. 7. Exercises are very important to reduce affects. 8. Healthy sleep habits. 8. Address allergies.
Ann yes me too early assessment which they are sure is 99%,waiting on hearing test but so grateful to watch this video and hear people comments who are going through heh. Thanks guys x
I have to disagree with using the treadmill. I learn in Vestibular rehab. That the treadmill can cause an attack. Walking is the best exercise. Please ask your doctor about what exercises is safe for you condition.
I don't know if I have Menieres,but I I have been suffering from vertigo for 18 months now.It is so devastatingly stressful.My worst attack was 9 hours of vomiting lying on my bed.Another time I was 10 hours on the kitchen floor with no vomiting.I always get a sense of tightness in my head like my brain is being squished.Also I have never in my life suffered from headaches,but during and after the vertigo episodes I have pain behind one eye and vague shooting pains across my skull.Also at the height of the attack I have difficulty focussing my eyes ,with a sensation they are spinning around in their sockets.I was just walking home 2 hours ago when I suddenly went dizzy and it was hard to walk straight.But I have lay down for an hour and now I feel OK.But it's the uncertainty that gets to you.It may happen again in 5 minutes or it might be a week.
I’m like a hopeless case. I’ve got fibromyalgia and symptoms of menieres. Also weakness in my legs and arms. I have a neurologist but he’s clueless. My rhumatologist doesn’t seem to care about the pressure in my head. My point is I could use your help. Please!! Thank you
My boyfriend has menieres and has found that just rolling over and sitting up to get out of bed makes him super dizzy. Has anyone else experienced this? If so, have you found a specific way to get up from lying down that doesn’t make you dizzy?
Look up BPPV on RU-vid...he probably has Vertigo...there are a few maneuvers he can do at home to help..there are plenty of videos by doctors showing you what to do..it happens to me the whole room spins when getting up or even rolling over then stops.. definitely check the videos..good luck.
Me encantan tus vídeos, ya que abordas la enfermedad desde lo común desde lo cotidiano y eso es lo que necesitamos saber para sobrellevar los periodos de crisis. Saludos
I am in the middle of the process of the diagnoses for meniere’s .Social security doctors are taking forever here in Spain but I am pretty sure I have it due to my symptoms . I already started to change the diet and no salt at all in my food and low sodium check in every food I buy. My crisis have stopped and I only feel a bit dizzy twice a week but no vomit or incapacitating vertigo . I am able to work . I realize stress is a big triggering factor. One thing I don’t get yet. My affected ear is constantly with tinnitus and most of the time I wear an ear bud because ambient sounds are annoying especially high note ones . Is this something normal in meniere’s .
Please search upper cervical chiropractor. This disease is due to neck misalignment. Only upper cervical can help fix this. I also have this disease and all my symtoms such as dizziness , ringing in the ear, blurry vision, head pressure, facial numbness all reduced significant after one adjustment ftom upper cervical. There r only 100 chiropractor in the U.S, so good luck searching
Did you try a cervical chiropractor? Did all your menieres symptoms went away after the treatment? Please answer cause i "have" menieres since almost 3 years ago and im so sad that i can't keep on with this sh*t...
i have had success with chiropractor and cervical neck and back treatments as well for a period, its helped me with vertigo, i sleep on my back with head elevated and do vestibular exercises daily. diet changes noted in video are a must to find some food triggers etc, but i must admit, chiro and acupuncture have helped me a great deal , even with anxiety (acupuncture).
Michael Keith Chiropractors are fully licensed doctors who attend accredited colleges. There are many misconceptions about chiropractors thanks to the AMA. No, I’m not a chiropractor. Also consider seeing a Naturopathic doctor. No, I’m not a Naturopathic doctor either.
My sister’s Meniere disease was complicated with so many 🤢🤢symptoms like vertigo or dizziness😵💫, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus and I had to gave her Dr Madida herbs from RU-vid recommendation and after she using the medicine, she was with me last month telling me that she is cured completely and don’t longer experience any of the symptoms anymore😊😊.
For me cutting coffee, chocolate, sleep a lot, watch diet, worked really well for me. my only problem is that because i cant change my work (cook), the stress, anxiety, standing up work, with a lot of noise continuing for 4 years changed my menieres, and currently i´m diagnosed with menieres and PPPD... currently starting a long term sick leave, and i dont know what to do.
Thank you so much for this video and your Channel. Since Thanksgiving 2014, I have had three vertigo attacks, spread out over the three years. My hearing has not been affected but diet definitely plays a factor on how I am feeling day to day which is often hard to explain but the closest I can explain it is like being on a boat that is anchored, with mild seas. Can one have Meniere's without hearing loss? I haven't been officially diagnosed with Meniere's but based on what I have read in the comments and doing a little research, what I have experienced seems like more than just crystals dislodging in my ear and labyrinthitis.
Hi David! I explain my desequilibrium just as you do, like that boat that is slightly moving. Would you like to get in touch? We could talk a bit more about our symptomes and what helps.
are your symptoms relieved with Epleys maneuver? ive been trying this when i have an attack or feeling like an attack and it seems to work for me. i unfortunately have hearing aids in both ears due to Meniers. its been 15 years or more dealing with this disease. wishing you the best of luck. you can look up epleys maneuver on you tube etc. some people have BBPV and some have something different than crystals, just depends on whats causing the vertigo,whether it from the inner or outer ear.
@@ruthensuecia Wow. Hi Ruth. I just got your reply. Crazy. I hope you’ve been well. Nothing has changed in terms of symptoms and diet still plays a key role. No hearing loss either.
@@rblightchild I did the Eply maneuver at the beginning of this in 2014 but haven’t had to do it since then. It’s nice to have access to information but sometimes I just feel like I’m going down a rabbit hole.
i had dizziness and imbalance started 3 years ago and my vertigo attacks started 2 years ago now had my last attack 11 months ago now i don't feel vertigo but when will my dizziness and imbalance go away ? i cant do anything cant even go to office or do any reproductive work
have you tried vestibular therapy? ask about it. you can learn things to do at home to help you be less off balanced on your day to day. im sorry you cannot do any work. i understand how that feels.
I had world renowned ENT specializing in diseases of ear say no one is disabled because of Menieres. BS. My disability came thru the first time I applied. Could be because I had labyrinthectomy in 1991 after losing hearing in rt ear followed by non stop vertigo. Was great for 19 years until Menieres started in left ear during very high stress job and increased pain from fibromyalgia and hyperthyroidism. This ear has been the worst. This past year has been horrible with anywhere from 3 - 7 attacks per week. Gentamicin injection immediately decreased hearing and I refused more ( this was right after dx and I was trying to keep as much hearing as possible). In a quandary because lt ear has 55% hearing now but this being in bed 5 days out of 7 is awful. I had been told that if I had nerve severed, I could end up in wheelchair because I don't have balance center on rt side and central balance may not be strong enough to compensate. Vicious cycle.
Any tips on decreasing stress in high school, especially when you have too much homework to do in one night, or teachers that stress you out. Because I'm finding that to be a really big trigger for me.
@@vicksrivera205 stress does NOT give you the disease. it is from too much fluid in your inner ear. the medical field has no idea how people get it. stress can be a trigger for attacks. but stress doesn't cause fluid in your ear.
Sleep? What if your sleeping pills don't work anymore? I've had my dosage increased twice, and still keep waking up throughout the night. This is resulting in a loss of energy for everything, and of course recurring symptoms. And no, it's not stress and worry keeping me awake... I can't stay asleep... and by the time morning arrives, I am more exhausted than when I went to bed.
i take zyflamend PM formula at night , i used to wake after 4 hours of sleep every night. As he said in video stay off devices before bedtime, that helps me also going to bed earlier instead of late. Yes lack of sleep affects everything ! hope you get some soon.
I know this is 2 years ago, but if you are still watching and still having problems, you might want to get tested for sleep apnea which causes you to wake up through the night and be exhausted all day. Hope you're doing better.
Great question. They say that processed sugars are way more concentrated than natural sugars and cause a lot more inflammation. I've noticed that my symptoms are less severe and less frequent when I'm not overweight and eating processed sugars. And I've had lots of practice going back and forth!
@@ravijoshi6327 I was prescribed serc in Pakistan and bitahistien in uk (check spells plz ) but they didn't help at all so I left using both in 2014 ..but during my recent episode I used diuretics and gingko..it helps..but I drink newly opened coco cola/7up when I feel dizzy..they give me much relief but dr doesn't agree
@@rothlessneed @ravi joshi Please keep trying. Try an ear, nose and throat doctor, a neurologist, or an otoneurologist. Meclizine (non drowsy form of motion sickness medicine) helps during dizzy episodes. A diuretic (mine is Dyazide) will help keep the fluid level in your body more regulated. If you notice allergies make it worse, take an allergy medicine with a decongestant during allergy season. If you can, find a vestibular therapist. They can give you exercises to do at home that help (or look for RU-vid videos)
@@sallyweiner4180 Even if what Buddha is saying well true, it would be a waste for him to be the initial source to "try", because Buddhism teaches *a philosophy* or a spiritual way of life. This implies that Buddhism is only trying to teach *"A* truth", which is to say, things that are *generally true* regarding the supernatural, and these are universal things that can apply to any religion, and that's precisely why such a religion should not be the first place to look. However, Christianity is a claim toward ultimate truth, more than just a philosophy of or way of life, and it also does not require reaching enlightenment in order to find God. Thus, a Christian can know what is true from the beginning without having to reach the end first, whereas Buddhists or Hindus who have not reached enlightenment are basically trying to guide you to a place they have never reached, and they are therefore trying to guide you In a direction that they themselves don't know for certain it's true. This also applies to witchcraft, which attempts to use the supernatural in order to gain power to do ones initial will or bidding on the earth, but it is not a source of ultimate truth. Other religions use gods to symbolize the elements of nature, like a sun god, a moon god, a god of lightning, and science explains these issues on a natural plane, which is why these religions should not be followed. This is why they are not good initial starting points for learning the supernatural or for The sake of discovering ultimate truth, So try Jesus.
thats meniers for you, a bunch of symptoms and a bunch of possible triggers, keeping a good journal has helped me testing out various treatments. from what ive seen there is no one treatment for all. My meniers has changed over the years. now i deal with less vertigo and more hearing loss. Take one step at a time and have patience in this journey. one ive been on 15 years and counting. hope you find answers soon. minimizing symptoms is important and the only way to do that is taking charge of health in a big way and getting using info from the right sources.
Hey do you have the feeling sometimes when your not moving like just stationary in a car driver or passenger, then afterwards feel so tired 😩 ringing in your ears, get fluid in middle ears
Thankyou please I have just been told i have this 99% ..waiting on a hearing test. My ENT consultant has just told me,i have lost 2 sisters over a few years so stress related maybe,I've always had doggy bowels and busy with 3 boys and hubby. Can anyone advice Me,hate tablets etc. Only got told yesterday but got water tablets sent to me today via courier but side effect is dizziness! Thanks guys I have had a lot of stress and trying to tell myself not too.Haven't taken water tablets yet as they say can cause dizziness,,i know every tablet has side effects...gonna call doc tomorrow to check. We got this heh xxx👊
A friend of mine at work complained about ear ringing, vertigo and Meniere disease for a very long time, I told him about #DrMadida on RU-vid that gave him a treatment he used. We were recently discussing at work when he told me that the treatment worked that he don’t longer experience the ringing, eye spinning and others anymore. I am so happy for him.
My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on RU-vid and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus🎉🎉.
The healing rate of my Tinnitus the very first time I apply and use Dr Madida medicine gave me a good impression that it is gonna work and it did work because right now I don't longer experience Tinnitus Effects anymore that I use to experience because the conditions is completely gone.
These videos have been a true lifeline for me. I have been diagnosed with "possible " Menieres disease and it has been so overwhelming. I am lucky enough to have found an awesome ENT doctor but the low sodium, water pill approach has not helped. I was referred by my doctor to another specialist for a second opinion and I am looking forward to either an official diagnosis or it could possibly be something else but doc highly doubts it. The fear of having another attack rules my life lately but hearing this might be "normal" is a great relief. Good luck to everyone who is dealing with this and try to think positive no matter how hard that might be