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5 Top Tips for Living with POTS [CC] 

Chronically Jenni
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#DysautonomiaAwarenessMonth
▶ Check out my POTS Management Toolkit on Kit: kit.com/ChronicallyJenni
Here are my 5 top tips for living with postural orthostatic tachycardia syndrome (POTS). As a sufferer of this invisible chronic illness I have found, over the past year, that these are the best things to do to help manage this condition. I am not a medical professional these are just things that have helped me and hope they help some of you. I talk about eating, drinking, staying cool and showering with POTS.
If you liked this video please subscribe to my channel :)
You can also find me on other social media:
Blog: ChronicallyJenni.wordpress.com
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Email: ChronicallyJenni@gmail.com
Music Credit: Don Perez Freire performed by Edson Lopes creativecommons.org/licenses/...

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12 апр 2017

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Комментарии : 112   
@pocketluna3607
@pocketluna3607 3 года назад
Not me watching this while eating pretzels with my 64 oz water bottle next to me.
@ChronicallyJenni
@ChronicallyJenni 3 года назад
Hahaha a guide to how to spot a POTsie! x
@sg1730
@sg1730 4 года назад
There’s this drink powder called liquid I.V that works. You put it in water. It has helped me with POTS. I was diagnosed back in july.
@ChronicallyJenni
@ChronicallyJenni 4 года назад
I'll look into that one. I use Nuun sometimes. I've heard banana bag is good too.
@prathamrballal1229
@prathamrballal1229 2 года назад
How is ur pots?
@denisea.9033
@denisea.9033 3 месяца назад
I like LMNT even better than Liquid IV, but yes they both make a huge difference.
@johnnycade.switchblade
@johnnycade.switchblade 3 месяца назад
I love liquid iv! It helps so much
@Godsgirl7874
@Godsgirl7874 Год назад
Oh my gosh! Thank you for this video! They think my son has Pots and he has all these symptoms. This is super helpful because he has autism and other special needs and cannot explain what he is feeling. It's like trying to figure out what a baby is feeling because they can't tell you. He keeps telling me he is sick after he eats. I never considered that it could be due to this. Nor did his GI Specialist. I appreciate you making this video. We learn more from people who actually experience things! I'll be watching more videos and subscribing! Thanks again!!!!
@15perih
@15perih 6 лет назад
I was diagnosed with POTS recently and I find this video really helped and another thing I like to do it wear compression socks, it helps the blood from pooling but they can get hot sometimes, so I avoid them in the summer. I also find eating big meals or heavy meals (like carbs) really hard because it make me dizzy, hot and my heart starts pounding and I need to stop eating even if I am still hungry therefore I always have leftovers from restaurants as there portions are too big. I don't find showering too bad for some reason. I like to shower at night that way I know I have food in my system and i don't have my showers too hot so that also helps.
@ChronicallyJenni
@ChronicallyJenni 6 лет назад
Using compression socks is definitely good advice but the heat makes it very difficult which is annoying as that's when POTS is usually at it's worst! Also, having EDS, I find it really difficult to get them on. I find compression tights much easier and they work better for me and also give my hips some support. I know my boyfriend always has to stop me eating too much pizza when we are out :P I'm so glad you found this video helpful xxx Spoons & Love x
@jessicah3450
@jessicah3450 4 года назад
Eating too many starches in my meals or sugar I found too really triggers symptoms. I'm recovering now because I went a bit overboard with my favorite candy. I have a sweet tooth, but have to remind myself to stop, or I'll regret it later. Adding some protein like a protein shake or an egg with a sweet treat helps prevent the episode.
@prathamrballal1229
@prathamrballal1229 2 года назад
How is ur pots?
@Miss_pookie27
@Miss_pookie27 14 дней назад
Hi! I came to this video to learn about POTS for my mom! Thank you! :D
@jessicah3450
@jessicah3450 4 года назад
Thank you so much for these tips. I have Lyme disease and POTS. A shower stool helped me on the bad days, I get nervous of slipping. Salting my food also helped. I drink Pedialyte which has less sugar than Gatorade. Staying cool is so hard in Texas summers, I am dreading summertime coming. My job requires me to stand my entire shift. My ankles and lower legs swell up so bad, elevating them when I can lay down help a bit. Thank you! 💕 Oh! I want to add another tip. In the hot months, I keep a baggie of wet washcloths (not dripping wet) in my refrigerator in the deli drawer which stays the coldest but doesn't freeze. When I'm overheating, laying those around the back of my neck, on my forehead, stomach, inner thighs, behind the knees, wherever your warm spots are help cool you off.
@ChronicallyJenni
@ChronicallyJenni 4 года назад
Hey Jessica! So glad these helped! I can't imagine how difficult it must be in Texas with the heat! Is there nothing you can ask your work to do to accommodate you better ? Thats a fab tip I have a cooling towel too and a Koldtec headache halo which it great for keeping cool!
@soniaperez3137
@soniaperez3137 3 года назад
All these comments made me feel so much less alone! I’ve had tachycardia since having my son, I’m still not sure what else I have but I feel like it must be something along these lines.. praying for answers!
@ChronicallyJenni
@ChronicallyJenni 3 года назад
I'm so glad you found this, you are definitely not alone! I hope you find the answers and help you need soon. Spoons & Love x
@prathamrballal1229
@prathamrballal1229 2 года назад
How is ur pots?
@citlalie9791
@citlalie9791 Год назад
well is starting to warm up now and starting to have symptoms My anxiety also goes up too because of pots Thank you for the tips 💖
@mac_6705
@mac_6705 6 лет назад
I was diagnosed with a mild case of pots I drink three to four Gatorades a day but a pedialite at night. I don't crash at least I don't think. But yeah showers are hard even if my case isn't that bad it has changed my life
@ChronicallyJenni
@ChronicallyJenni 6 лет назад
Sending lots of Spoons & Love your way x
@mac_6705
@mac_6705 6 лет назад
+Chronically Jenni thank you so much sending love your way too
@Jewlz4ever
@Jewlz4ever 4 года назад
Kitty Maqaroni, Gatorade and even Pedialite have a lot of sugar and other bad ingredients. You are better off getting a bottle of concentrated electrolyte solution that you can add to your water. Trace Minerals has one called 40,000 volts that I like to use.
@prathamrballal1229
@prathamrballal1229 2 года назад
How is ur pots?
@mac_6705
@mac_6705 2 года назад
@@prathamrballal1229thank you for asking :) it’s a bit of a funny story but around august last year i went in for a yearly physical at the doctors and they found out i had type one diabetes and had been misdiagnosed with POTS. i feel much better now and all my “pots” symptoms have gone away since i started taking insulin !
@celested6181
@celested6181 6 лет назад
Mobility aids such as a foldable cane help tons too.
@ChronicallyJenni
@ChronicallyJenni 6 лет назад
Definitely agree, I absolutely love my walker to help with my POTS but I didn't have it when I first made this video x
@karayates5809
@karayates5809 6 лет назад
Celeste D my problem is completely with standing. I would get nothing done, so I use a wheelchair - not all the time though, only at work and shopping. Sometimes I have to use it at church if I’m having a bad day
@jaelancaster5506
@jaelancaster5506 11 месяцев назад
Great video❤
@martinallenuk
@martinallenuk 7 месяцев назад
I was diagnosed with Multiple Sclerosis in 2017 and every symptoms has been blamed on MS. Ive had to educate myself so much just to cope.
@KennM12
@KennM12 3 года назад
they make low sugar / 0 sugar gatorades now! it's great because it contains salt and other electrolytes. it's a must-have for me.
@ChronicallyJenni
@ChronicallyJenni 3 года назад
I'll definitely look into those gatorade isn't as common over in the UK but so glad youve found something that works for you! I have to be a little careful with sweeteners too x
@igabyus
@igabyus 4 года назад
Thank you so much
@ChronicallyJenni
@ChronicallyJenni 3 года назад
Thank you for watching
@LeTrashPanda
@LeTrashPanda 2 года назад
NO Coconut water for kidney patients, can be problematic due to high potassium that kidney patients can't excrete in urine. Whey protein can help with unintended weight loss too, great video....I will share with my friends & patients since you make this condition so easy to understand.
@YasuTaniina
@YasuTaniina Год назад
I live in a cold climate and I can't imagine being too warm. My toes and fingers always feel either pain or numb I'm always so very cold. I have to wear a triple layer of socks to go out in the snow for more then 15 minutes. Even just touching the car steering wheel can make pain shoot up my entire arm, especially before I got steering wheel cover. I feel like cold is more of an enemy then heat
@teresalovesbooks
@teresalovesbooks 6 лет назад
Hi, I have POTS too, great tips! I work on each of these too!
@ChronicallyJenni
@ChronicallyJenni 6 лет назад
Thanks Teresa x Sending Spoons & Love your way x
@teresalovesbooks
@teresalovesbooks 6 лет назад
Chronically Jenni thank you!! I need them!
@user-ue3xb8tz1u
@user-ue3xb8tz1u 8 месяцев назад
I miss working out in the gym.
@savannahwhitacre1531
@savannahwhitacre1531 5 лет назад
you’re so pretty 😍
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
That's lovely thank you :)
@ArmchairExpert76
@ArmchairExpert76 6 лет назад
I think if you give into your pots and do everything to alleviate it, I have found it doesn't improve the condition over time. But all of your tips are great.
@ChronicallyJenni
@ChronicallyJenni 6 лет назад
Sorry Deano, I don't quite get what you mean? x Thank you x
@ArmchairExpert76
@ArmchairExpert76 6 лет назад
Chronically Jenni Sorry, I'm from Australia so we talk a bit different but what I mean is, for me and my son with it, we have an EdS type of pots and if we do less and not try build muscle and exercise enough, despite it being hard to do, we get worse over time.
@Aamina101
@Aamina101 5 лет назад
Deano i agree! my exercise and keeping active has made my condition so much better. i use to be bed bound and stool in shower but i started walking every single day and keeping active. i am now basically in remission! barely any symptoms. my only symptom lately is slightly elevated heart rate in the morning and stairs/exercise but by night time my heart rate standing is 79!!! also just a little shortness of breath from time to time but that’s it! i can eat whatever however much and all that!!!
@morningwithgracie7870
@morningwithgracie7870 5 лет назад
@@Aamina101what are ur symtomps before? Dd u take anything? Hw many mnths dd you recover?
@jessicah3450
@jessicah3450 4 года назад
Aamina101 How did you start walking? Sorry I am just wondering, I get so dizzy from being upright, and live in a hot climate? I'd take gentle walks at night when it was cooler, but my neighborhood has some sketchy people now who moved in. I haven't found an exercise that I can tolerate very well. Some floor yoga is okay. I used to love swimming, but don't have access to a pool now. Thank you.
@jaelancaster5506
@jaelancaster5506 11 месяцев назад
Bathing in the bathtub has helped men….I can lay back….get out slowly and sit on the bath chair for a few minutes and dress while sitting down
@chihuahuapixieprincess2482
@chihuahuapixieprincess2482 11 месяцев назад
Cooler shower helps and I'm better showering a couple of hours after I'm up. I drink pure orange juice at breakfast as it's high in nutrients and potassium.
@family-peace-love
@family-peace-love 6 лет назад
Hi, good advice thanks. I cant take extra salt as my bp is on the higher side and I have type 2 diabetes so I need to leave 3 hours at least between eating but I also 2nd the shower stool thing and keeping cool and I know I need more water!:) also any tips for getting out and about with this issue I used a mobility scooter for a while but have ended the contract for it now and I cant walk far
@ChronicallyJenni
@ChronicallyJenni 6 лет назад
I use a rollator walker and I absolutely love it. I'm going to do a video all about it soon. It means I have support on the distances I need to walk but can sit down straight away as and when I need to :) x spoons and love x
@family-peace-love
@family-peace-love 6 лет назад
Chronically Jenni thanks for getting back to me 😄 I think that's a good idea and I've just now started watching some of your vlogs you are a good support to people so thank you. makes us feel less alone eh. I've has cfs for 7 years now and I've always suspected pots but Dr's won't hear of it so I done the poor man's tilt table and from my symptoms I just know. from research it's called orthostatic diastolic hypertension as my bottom number goes up quite a bit by standing straight away and my heart rate stays in the 100s even if I just stand there but my BP is normal a lot of the times resting
@ChronicallyJenni
@ChronicallyJenni 6 лет назад
familypeacelove no worries at all. You're more than welcome to message me about anything on any of my social media in the description. thank you so much it means a lot x It is a big fight to try and find the right doctor, I was told I was having anxiety attacks for far too long but it is worth it to keep fighting for a diagnosis however hard it gets, show them the research and be clear in exactly what tests you want done, you deserve some help and some answers especially when you already have diabetes to be dealing with x
@sereminar4
@sereminar4 3 года назад
Another couple of tips for showering are to: keep the water a bit cooler, and crack the door open so the steam doesn't build up.
@ChronicallyJenni
@ChronicallyJenni 3 года назад
Definitely some great tips! I just hate getting cold! x
@MaryJoMatey
@MaryJoMatey 2 месяца назад
@@ChronicallyJenni i cannot tolerate the cold at alll
@stuffnthings231
@stuffnthings231 5 месяцев назад
I've always showered sitting and am more of a grazer, It takes me 3 or 4hours to finish a meal
@julznixon4282
@julznixon4282 4 года назад
I take baths most of the time.
@ChronicallyJenni
@ChronicallyJenni 4 года назад
That's good I really struggle with baths too because off the heat and get way too dizzy when I get out but everyone is different and glad you've found something that works :) Spoons & Love x
@bubbelientje
@bubbelientje 3 года назад
You said something about can't keep your arms above your head while wasing your hair. I can't do that without getting sick and extreme muscle pain. Is that also related to POTS? Even when i use a hair blower it's giving me a sick feeling and pain in my arms.
@ChronicallyJenni
@ChronicallyJenni 3 года назад
It's because your heart has to work even harder to get the blood up to your hands if they're above your head so can drop your blood pressure and increase your heart rate more causing more symptoms. Really recommend a hair dryer stand for you! If you check out my blog the one I used is listed on the POTS survival kit section.
@nathanielomg
@nathanielomg 3 года назад
I have not be diagnosed but it started a couple days ago it was at night i was staring at my dresser and my eyes started to go black. Then the next day i got up and i was fine and when i was by my bedroom door everything went black and my legs almost gave out and i was super dizzy. Ever since that day (2 days ago) in bed im really cold or im ry hot and now when i get hot im more uncomfortable then i used to be in hot areas i felt like i was gonna faint it felt like i was in a oven and then i got up to cool down and then my eyes went black again. I got back in bed after that went away and woke up the next day we're i am currently writing this who is super dizzy dling online school. Any Suggestions of what i have for right now? I think i have POTS but im going to the doctor soon. But any guesses do you think i have POTS (i also have this feeling im falling and the floor is rubber)
@ChronicallyJenni
@ChronicallyJenni 3 года назад
Really hope you contacted your doctor and your symptoms have calmed down. Lots of love x
@nathanielomg
@nathanielomg 3 года назад
@@ChronicallyJenni yes they have i got into my family docter and i got in with a heart Doctor and they said i had vasavagal syncope my dad wasnt satisfied so we got in with a neurologist and im doing a ekg in a couple days ill let you know what happens thanks for responding!
@Aamina101
@Aamina101 5 лет назад
have you seen/tried the dnrs program here on youtube?
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Yes I've heard of it but haven't looked into it a great deal. A friend of mine has been doing it from a book but haven't heard how she's got on with it just yet.
@prathamrballal1229
@prathamrballal1229 2 года назад
How is ur pots?
@itsmebethd2653
@itsmebethd2653 4 года назад
Also has anxiety a part of this a s well
@jessicah3450
@jessicah3450 4 года назад
Me too! My doctors dismiss my symtoms as anxiety, and gave me propranolol for my heart palpitations (which made me not able to stand up, called my pharmacist, a big bowl of very salty chicken broth helped while the drug wore off). But yes, sometimes it's hard to tell whether it's an anxiety attack or the POTS. But everyday at the beginning of my shift at work, where I stand a lot, I know that's the POTS. And if I get what feels like panic attacks at home, I know that's the POTS, since my anxiety is normally triggered by social situations. Anxiety is more sporadic. I make sure to drink extra water an hour or so before I know I'll have to be on my feet, and try to stay as cool as possible. Even keeping moist washcloths in a baggie in my fridge to wrap behind my neck to cool off. Know you're not alone.
@atthecrosshealing
@atthecrosshealing 3 года назад
I’ve had pots since I was a child. Diagnosed 2013. Attacks my digestion and lungs the worst it’s awful
@ChronicallyJenni
@ChronicallyJenni 3 года назад
Sorry you had it so young. So many people are unaware on the impact it can have on digestion its so important.
@atthecrosshealing
@atthecrosshealing 3 года назад
@@ChronicallyJenni yes caused gastroparesis
@mikemoil8239
@mikemoil8239 3 года назад
I’ve broken several iPads and screens because I crashed with it in my hand. I’ve tried drinking only water several times for months at a time ,but it has mild benefits, but I have still cracked plenty of screens on those cycles. I tend to snack rather than have meals anyways ,yet still little effect. What can I do I can’t keep replacing screens if they are just gonna shattered 1-2 weeks later.
@ChronicallyJenni
@ChronicallyJenni 3 года назад
Highly reccomend some screen protectors and cases for your devices but definitely talk to your doctors about medication they are the best way I manage my symptoms x lots of love x
@lesliehyde
@lesliehyde 2 года назад
I have a strict rule for my devices. My tablet- it is in a case and it stays on my bed. I don't use it or carry it any place else. My phone- I have it in a case, I have a phone tether in the case behind the phone (the loop sticks out of the charger hole) and when it's with me out of bed I keep it on a lanyard around my neck (kind of like an ID badge).
@lftori6103
@lftori6103 4 года назад
I remember one time I blacked out in the shower right before school and i dont know how long i was there but I ened up having to stay home.
@ChronicallyJenni
@ChronicallyJenni 4 года назад
Yikes I'm not surprised! Showers are the worst! x
@lftori6103
@lftori6103 4 года назад
@@ChronicallyJenni they truly are, I havent blacked out since luckily but I definitely dont feel awesome when I take them
@jessicah3450
@jessicah3450 4 года назад
That's so dangerous, bless your heart!
@lftori6103
@lftori6103 4 года назад
@@jessicah3450 ❤❤❤❤
@silverlining1973
@silverlining1973 3 года назад
I use Gatorade as an SOS. Then drink water. It works faster than water. And the water after maintains the Gatorade, so to speak.
@ChronicallyJenni
@ChronicallyJenni 3 года назад
I get funny with the sugar and colouring in those kind of things but so glad it works well for you x
@silverlining1973
@silverlining1973 3 года назад
Chronically Jenni I’m sure the dyes & sweeteners don’t help me either but I’m new to this. 🤷🏼‍♀️
@ChronicallyJenni
@ChronicallyJenni 3 года назад
If it ain't broke don't fix it! I do treat myself to some coconut water occasionally.
@karimah3462
@karimah3462 3 года назад
There are different types of PoTs. Maybe you should give the type you have, because I think salt intake make be bad for other types of PoTs. But thank you for this video
@ChronicallyJenni
@ChronicallyJenni 3 года назад
Thank you. Yes there are I just have the standard type. Yes you must always consult a doctor before increasing your salt intake x
@karimah3462
@karimah3462 3 года назад
@@ChronicallyJenni Thanks. Yes, I'd maybe put a warning on that video
@annettewilford9726
@annettewilford9726 3 года назад
Can u advize it feels like I'm. Hungry during episodes
@ChronicallyJenni
@ChronicallyJenni 3 года назад
Definitely consult with your doctor but sometimes when I feel really POTsie I crave salty food which helps with my symptoms so could be something similar x
@stummeboibeatz
@stummeboibeatz 6 лет назад
Gatarode and powerade is always good
@ChronicallyJenni
@ChronicallyJenni 6 лет назад
I know a lot of people swear by them but personally I always think water is the best form of hydration. Powerade and gatorade have a lot of artificial sugars and colours in them which won't help. Nunn or Banana bag are also meant to be good and not as artifical and coconut water is also more natural if you don't like plain water.
@jessicah3450
@jessicah3450 4 года назад
Gatorade and Powerade help me. Pedialyte if it's a bad day. I try to eat more soups if it's already a cold day. I like a simple egg drop soup, a little added protein helps me. Plain water, I just pee it right out 😂
@itsmebethd2653
@itsmebethd2653 4 года назад
Sweetie does this make you feel like your vibrating inside your body? If that makes sense
@ChronicallyJenni
@ChronicallyJenni 4 года назад
I've never experienced vibrations personally I'm afraid x Is there any other way you'd describe it? x
@itsmebethd2653
@itsmebethd2653 4 года назад
It’s like a inside tremor is how I can best describe it hun lol
@jessicah3450
@jessicah3450 4 года назад
I get that feeling too, being difficult to put words to a symptom makes it harder to describe to doctors.
@1273mel
@1273mel 3 года назад
I get that, it’s like tingling and shaking inside but as usual doctors just say it’s anxiety
@shelly7269
@shelly7269 3 года назад
@@itsmebethd2653 I get that, but I think that’s because I have MS... not from the pots.
@nikki10114
@nikki10114 6 лет назад
Aye i follow u on i.g
@itsmebethd2653
@itsmebethd2653 4 года назад
I drink so much water lol
@ChronicallyJenni
@ChronicallyJenni 4 года назад
Buckets and Buckets :P
@user-vm7ql8ce2v
@user-vm7ql8ce2v 6 месяцев назад
How do you do sexual activity? Can it hurt u
@freedomofspeech6905
@freedomofspeech6905 2 года назад
You have no research to back up being too hot is worse than too cold
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