5 Year Update After Diagnosed with EoE-Completely HEALED 

Best of luck! It gets easier when you get a handle on it.

Food impactions definitely suck so it's probably a good idea to figure out what's triggering your EoE. It also may be causing more stomach acid which is typically why people get food stuck (in the lower part). If you're really struggling, I would probably stay away from alcohol, spicy foods and whatever the trigger food is too.

Please keep us posted

According to who? Not saying you’re wrong but there seems to be professionals stating both sides

It's cause by allergic reactions so yes you can outgrow it. Bodies werid you can never been allergic to anything wake up at 40 and be allergic to the food you always ate or vice versa

​@LKGJO according to every single doctor. Lol

@@PageandPlant4Life in can go in remission and never have promblem again. Everyone different have heard testimony of ppl going away .. wish mine would lol

@faithfultheology mine went away for like 7 years and recently flared up.. while eating the same foods I have this whole time. Could be environmental. I might try parasite cleansing as a next step

I didn’t go on PPIs right away. Not sure how long before I did. Probably a while, like over 6 months I’d imagine. I didn’t get back to normal for a long time. I went through the whole elimination and I think it was a bit but mainly after I eliminated dairy and let my body heal for a while before I started eating more solid foods. Gastroenterologist was the person who told me.

Oh that’s crazy, I never experienced that at all! Hopefully you find a solution that works for you.

I did and had to get dilated

I had 39 in my lower part which doesn’t always indicate EoE which is what I was told. My eosinophil counts were high in the upper part which indicates more EoE because people can have eosinophil counts from GERD or a “leaky” valve to the stomach which then is not EoE. But hey this is just what I’ve been told. My EoE was very gradual, never an overnight thing, so the only way I feel symptoms is if I were to eat tons of dairy for months and months.

Hi how did you battle your eoe and find your diet for it

Never really felt bloating from EoE but now that I’m introducing more fiber in my diet it’s taking time to adjust. Wanting to heal my gut more

It’s definitely a journey!

Never got dilated thankfully! Once I went off dairy and went on PPIs then things went to pretty much normal

Honestly, just knowing if you have EoE is a way better start than I had. It was many months before I was able to get a scope and confirm anything. I will leave a link to the exact plan I did to get me back to normal. It sucks a bit at the start eliminating everything basically but it gets better once you figure trigger foods out. I did this diet but also took 20mg of PPI at the same time. PPI's really helped me but the diet is #1 out of anything. I'd take PPIs till you have it figured out and no more symptoms. Then you could maybe look at reducing the amount over time but I've been on them for years and still take a really low dose. www.chelcceleste.com/product-page/be-free-from-eoe-ebook-bundle

I think I can kind of relate to that feeling if my memory is correct…maybe not exact but my throat never felt really good. A lump could be an indication of inflammation but not exactly sure obviously

@@LKGJO would it feel like something is slightly pressing on the front of your neck somewhere?

@@LKGJO late term “symptom” is that it’s noisier when swallowing as well like a quiet crackle sound

@@LKGJO the lump feels like it’s only on the left side sometimes I wake up in the morning with the feeling of needing to swallow a ball of mucus that isn’t actually there, and some days when I swallow in the position of lying in bed, there’s a muscle that I could tense that would feel a click back into place no pain on the left

@@LKGJO my symptoms gradually go away as I get hungry. Some things start it up depending what I’m around like dust a little but

I think it was a couple months before things started to cool down and I didn’t worry about eating solid food. It was a long time before I got “healed” I was on an elimination diet and scoped for over a year easily. Once I found my trigger food and went on PPIs then it was smoother sailing from there. It takes time but for me at least there was a light at the end. Best of luck and be strict on the elimination. Really read the food labels!

When I took Whey protein it definitely kept making everything worse. But all these things you mentioned are not great for the gut and stomach acid so they don’t really help your case with EoE. I avoid most of it and don’t drink coffee barely ever, same with alcohol. If I have a protein shake late at night before I go to bed I can get really bad heartburn too.(regardless of the type of protein, even vegan)

Well I’ve been told by specialists that it can and you can grow out of it. I had a lot of eosinophil counts, then did the diet and PPIs, and had none sign of EoE. I haven’t had symptoms really in years now. Some say it just goes dormant but I’m thinking if you can really heal your gut then it can go away. There’s many other people who have healed auto immune diseases before

Dang that’s crazy! Hopefully you can heal your immune system again so it goes away