Тёмный

6-Year-Old With Apert Syndrome Needs Life-Saving Surgery | Body Bizarre 

Really
Подписаться 908 тыс.
Просмотров 280 тыс.
50% 1

Опубликовано:

 

29 окт 2024

Поделиться:

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист
Посмотреть позже
Комментарии : 326   
@alexwray6530
@alexwray6530 11 месяцев назад
I was born with the same condition. Thankfully my skull wasn't completely fused like poor Daire. I had my skull broken and put back together in three places. My skull and face grew to regular proportions as a result. I'm so thankful for my Dr's, nurses and my parents for getting through this while I was to young to remember. I've grown up with a normal life and this never being a problem for me. Daires parents are saints and you can tell how hard it is on them. Here's to Daire's life being happy and healthy! Good luck Daire.
@irenedavo3768
@irenedavo3768 11 месяцев назад
Fantastic!
@julievanderleest
@julievanderleest 11 месяцев назад
That’s wonderful. I wasn’t born with Apert but born with a cousin syndrome of Pfeiffer syndrome. Lots of surgeries growing up but I too had amazing doctors and parents. I grew up with a normal life for the most part. The bullies were rough of course but it got better after each surgery. By the time I was 10, bullying wasn’t a daily issue.
@thetanz8111
@thetanz8111 11 месяцев назад
That's awesome Alex! I'm curious, do you get really bad migraines as a result of the skull having to be broken? I hope not. Either way, so glad you're here with us!
@oksanazadesenets6050
@oksanazadesenets6050 11 месяцев назад
Повезло Вам родится в правильной,заботливой стране ❤
@meltheartist1147
@meltheartist1147 11 месяцев назад
You are a modern day walking Miracle, then! Congratulations 🎈🎊🎉 ❤❤❤❤
@wendybutler1681
@wendybutler1681 11 месяцев назад
Safe, happy and loved. He was given to the right parents. I wish them well.
@snapdragon2441
@snapdragon2441 11 месяцев назад
And also the most amazing medical team. I think he will go far and achieve much xx
@shadrach6299
@shadrach6299 8 месяцев назад
He was given to the right craniofacial team
@jennycampbell5236
@jennycampbell5236 11 месяцев назад
I absolutely adore this beautiful little man. Despite all his struggles he still laughs and smiles. I wish him and his family nothing but the very best of everything that life can bring them. I just want to hug him.
@JunkieOSRS
@JunkieOSRS 9 месяцев назад
eww
@caseyhayes1171
@caseyhayes1171 11 месяцев назад
Such a beautiful story. I am 42 years old and I have Aperts Syndrome. ❤
@jacobsockness571
@jacobsockness571 11 месяцев назад
I looked it up, life really has tested you. I'm autistic, so the whole disability is invisible until someone interacts with me. How the fuck do you deal with being different on the outside? It's hard enough being different on the inside and it's hell.
@kookootrix1978
@kookootrix1978 5 месяцев назад
Before today, all the people I saw with Aperts were non verbal and/or developmentally delayed. I'm glad to know that's not all cases and further that you are well into your adult years! I saw too many children with it who were lives were at risk, not to mention the ones who passed.
@BVIAS
@BVIAS 4 месяца назад
Bless your heart
@zackstreet827
@zackstreet827 Месяц назад
Me to I have asburgers I’m always looking for new friends where are you from Casey
@karenneill9109
@karenneill9109 11 месяцев назад
As a former SLP (speech language pathologist), how great to have the trach out! It will make such a big difference for his speech! What a lovely disposition he has!
@tongueandlunglady
@tongueandlunglady 8 месяцев назад
What are your thoughts on his open bite and full time mouth breathing? I am certain that he has many symptoms of sleep disturbed breathing.
@karenneill9109
@karenneill9109 8 месяцев назад
@@tongueandlunglady Good question. I would assume that they did oxygen studies on him before and after the trach removal to make sure his oxygen levels were good. But I suppose if he’s showing signs of disturbed sleep they could do a sleep study.
@tongueandlunglady
@tongueandlunglady 8 месяцев назад
@karenneill9109 sleep studies in children are often inconclusive. They are working hard to make his skull bigger but his mouth breathing impacts his cognitive development in a huge way. Who could I contact there?!?!?!!
@rhondahunnel7112
@rhondahunnel7112 3 месяца назад
What a precious, precious baby.... Lord please please put your awesome mighty hands on this young boy, please help him holy.,. Lord you can do what no one else can do....
@susanreeve3840
@susanreeve3840 11 месяцев назад
What a beautiful strong mother, the responsibility on your shoulders must be tough. Wishing you and your lovely wee boy all the best with the tracheotomy procedure when it comes.
@joannekuzborski491
@joannekuzborski491 11 месяцев назад
The mother and child are SAINTS. God bless.
@crabslabbabs
@crabslabbabs 11 месяцев назад
@@joannekuzborski491 cheese please
@watchensee
@watchensee 11 месяцев назад
Poor little guy I can just imagine the pain that he endures, I hope all of the best for him and his family.
@offlinegamer6756
@offlinegamer6756 2 месяца назад
imagine him if he was born in a poor country in Afrika , south Asia or South America ...
@MsArtistwannabe
@MsArtistwannabe 11 месяцев назад
Such a sweet little boy. Best wishes for a complete recovery of his airway.
@CJRSBK
@CJRSBK 7 месяцев назад
@alisahammons9949
@alisahammons9949 11 месяцев назад
this sweet boy doesn't deserve this horrible symptom, l feel so bad for this sweet heart 💔😢
@oldonetwoable
@oldonetwoable 11 месяцев назад
Sweet child, amazing Mother. I wish them both all the best.
@MarloLaw
@MarloLaw 11 месяцев назад
Dam, i nearly cried. I could never take my health or life for granted seeing others struggle.
@laurenm.6320
@laurenm.6320 11 месяцев назад
I just think of how miserable it is when one my kids just has a cough or is nauseated, you just ache to fix it for them and save them the discomfort. I always feel so much for moms who have to watch their kids go through so much, knowing they must go crazy wishing they could take it on themselves instead.
@stephaniebray3983
@stephaniebray3983 11 месяцев назад
It’s really incredible what a resilient child he is!
@kortneykennedy7303
@kortneykennedy7303 9 месяцев назад
I'm a girl I'm 38 old I'm in a wheel chair my body hurts me every day so I cry because my body hurts
@marybethsinn6792
@marybethsinn6792 11 месяцев назад
What a sweet little soul, I pray everything works out for him in the future and he keeps that beautiful laugh 🩷
@kortneykennedy7303
@kortneykennedy7303 9 месяцев назад
I'm a girl I'm 38 old I'm in a wheel chair my body hurts me every day
@kortneykennedy7303
@kortneykennedy7303 9 месяцев назад
Can I tell you what to touch on your body on tex
@lorianncostello531
@lorianncostello531 11 месяцев назад
Such good news! That will allow him so much freedom. It must be worrisome for his parents to be on alert in case his tube gets clogged. His doctors are incredible. I. Glad this family lives in a country with socialized medicine.
@sophiawish9772
@sophiawish9772 11 месяцев назад
Lovely story. Here's hoping for all good things for this family and young Daire ❤
@debrabolton9372
@debrabolton9372 11 месяцев назад
Such a sweet boy! His mother is wonderful. I wish only good things for this family. ❤️
@EddVCR
@EddVCR 11 месяцев назад
Daire has such a bright bubbly laughter! I hope his future is bright and happy, just like his laughter.
@tracyfinch918
@tracyfinch918 11 месяцев назад
I have a friend in St. Louis, MO who has Apert Syndrome. His fingers on both hands are also fused together and he has a speech impairment. When he was little, he also had the skull surgery to relieve the brain swelling.
@grudge0132
@grudge0132 11 месяцев назад
Omg, the mother is soooo strong... iv a beautiful healthy daughter who is on the spectrum, and life is hard but im truly blessed... i cant imagine the pain that lil boy goes through and how hard it is for his mammy every day... such a beautiful wonderful lil boy .. good luck lil man ❤❤❤
@jeffreygoggin2849
@jeffreygoggin2849 11 месяцев назад
What a fantastic strong beautiful mum and dad and such a strong lad love to you all
@Oddworld2024
@Oddworld2024 11 месяцев назад
Amazing little guy. All the best to him and his parents. They all deserve a happy and rich life. Thank you for sharing your world with us.
@gracehill6395
@gracehill6395 11 месяцев назад
So many prayers for Daire’s continued journey and for his family💜
@alexeome
@alexeome 11 месяцев назад
what a dear little boy and an amazing mum 😊
@CarollFord2019
@CarollFord2019 11 месяцев назад
Bless you little man. May your future be bright and full of love.❤
@hollyodii5969
@hollyodii5969 11 месяцев назад
I wish this family all the very best!
@MERLINnecrofan
@MERLINnecrofan 11 месяцев назад
tought little dude! the strength his familyt and him show along with other people and families in similar situations are just magnitudes stronger then the worlds strongest man in my eyes.
@brandenmoss6982
@brandenmoss6982 11 месяцев назад
This beautiful boy is a true gift from God!!may he and his family be blessed!!!you are beautiful!!
@freebird8993
@freebird8993 9 месяцев назад
Best wishes to this boy, what a brave soul
@cillamoke
@cillamoke 11 месяцев назад
Bless his darling little heart ❤
@Lory0120
@Lory0120 11 месяцев назад
May God bless you and the parents who's not giving up..long live Daire
@Feed_the_Kitty_a_Hotdog
@Feed_the_Kitty_a_Hotdog 11 месяцев назад
I love his name. It’s beautiful. Such a sweet boy and a loving family.
@brandip77
@brandip77 11 месяцев назад
He is an adorable and happy little boy. I hate that at his birth, medical professionals discounted him. I hope he lives a long, healthy, happy and fulfilled life.
@tylociraptor8131
@tylociraptor8131 11 месяцев назад
I think it's less 'discounting him' and more trying to be realistic + not give false hope. His situation was quite dire at birth. It's better for them to tell her he may not make it, and have him survive, than to be told he'll live and have him pass, I think.
@Meerkat628
@Meerkat628 11 месяцев назад
@@tylociraptor8131 That's exactly what it is. The number one rule in medicine is that the only promise you can make is that you'll do your best, promising certain outcomes never ends well. You lay out what will likely happen, and explain a person's options. It's the most medically responsible way of handling situations.
@pixazelz
@pixazelz 10 месяцев назад
They never discounted him . They couldnt Tell them he would survive if it was most likely he would pass away.
@mulmareun
@mulmareun 9 месяцев назад
I want to hug him and tell him he is loved and he is perfect ❤️
@mickellbrown3
@mickellbrown3 Месяц назад
What a sweet precious little boy. I pray for his health and vitality and that he lives a life full of love and happiness❤
@a.marvellehoneyman4560
@a.marvellehoneyman4560 11 месяцев назад
Awe! I’m praying for this little guy, I will offer up my small suffering for him, and his parents. God bless them!
@MoiDixMiss
@MoiDixMiss 11 месяцев назад
Daire seems to be such a sweet little boy! Can not even imagine what pain he has to go through all these surgeries,,
@SusanSez1
@SusanSez1 9 месяцев назад
What an adorable little fellow. I love his little face. God bless the whole family. LIfe is not fair and some get so much to face and handle.
@Xanrax
@Xanrax 11 месяцев назад
It's sad that life is the most unfair to the innocent. He's lucky that he is still adorable and alive.
@kermitthefrog4830
@kermitthefrog4830 Месяц назад
Well, every newborn is innocent, sometimes it happens
@brenmanock
@brenmanock 11 месяцев назад
What a sweet child. Prayers and 💕 love from USA
@bethanycook8430
@bethanycook8430 11 месяцев назад
Bless this little boy!
@fatalberti
@fatalberti 8 месяцев назад
what a great lad. great family. endured a lot. bless them
@annammlily5720
@annammlily5720 11 месяцев назад
What a lovely family ❤. So happy the lad is doing well.
@judithkimmerling770
@judithkimmerling770 11 месяцев назад
God bless this mother and child 🙏🏻
@ellemay2755
@ellemay2755 11 месяцев назад
An amazing mum to such a beautiful boy 💞🙏
@Sea-cucumber1151
@Sea-cucumber1151 8 месяцев назад
What a sweet baby boy, no child should be in pain, but I am glad he is getting the help this sweet baby boy deserves.
@Jacoe413
@Jacoe413 9 месяцев назад
Bless his little heart. The pain he's endured is just awful. He is so strong and brave! I hope he finds so good friends who love and support him. He's going to face some hard times in school.
@pandorasbox4238
@pandorasbox4238 3 месяца назад
Seems like a sweet kid. His parents are clearly loving and caring. I do hope he improves more and more as he grows.
@quadruplelatte
@quadruplelatte 11 месяцев назад
Sweet boy ❤ Wishing him all the best and greatest gifts in life!
@ismewhat1234
@ismewhat1234 11 месяцев назад
Miss beautiful baby boy should not have to go through all this😢he handsome smart boy. God bless him & his family 💞🙏
@teeniequeenie8369
@teeniequeenie8369 11 месяцев назад
We have no idea what some go through…for a child to have to go through this tho is just heartbreaking
@Blueswedishbeauties
@Blueswedishbeauties 11 месяцев назад
amazing mom and awesome son
@lindamarie6574
@lindamarie6574 10 месяцев назад
God bless this adorable little boy❤
@BVIAS
@BVIAS 4 месяца назад
Aww such a sweet lad and mum
@nattylavon02
@nattylavon02 11 месяцев назад
Despite his condition, he for sure favors his daddy. Once they showed his father, I was like,"Oh yeah, thats his boy!" Very cute and sweet, little man. ❤
@Stopthisrightnow560
@Stopthisrightnow560 9 месяцев назад
It wasn't until the dad smiled during the appointment that I was like, "Oh, damn. He's the spitting image of his dad."
@tommysmith5479
@tommysmith5479 2 месяца назад
Poor little kid. I hope he grows up without being bullied.
@julieraichart7961
@julieraichart7961 11 месяцев назад
Sweet little boy❤
@joanalmarghani661
@joanalmarghani661 11 месяцев назад
Hes so brave bless him
@viviane_casella
@viviane_casella 3 месяца назад
He seems such a sweet child! I wish him nothing but the best, may life bless him with much deserved happiness. His parents are also so dedicated searching for the best options.💜
@brenmanock
@brenmanock 8 месяцев назад
Daire is so precious. Blessings little man
@rebeccapaul6455
@rebeccapaul6455 11 месяцев назад
The pain this little boy must endure when he has to recover from another surgery.
@ABee-jb9vz
@ABee-jb9vz 11 месяцев назад
What a little sweetie he is
@arleneriveraroman6965
@arleneriveraroman6965 11 месяцев назад
Wao mom! You are freaking awesome! God extend your life and give you strength to continue this journey with your baby. God bless ur family!
@ismewhat1234
@ismewhat1234 11 месяцев назад
Looks like his dad ❤
@lovethosebudgies
@lovethosebudgies 8 месяцев назад
Poor little fellow. Great mom. Best wishes.
@Blazeyate
@Blazeyate Месяц назад
Aw he’s beautiful, I hope he lives a long life ❤
@MrsSherrymcm
@MrsSherrymcm 11 месяцев назад
Bless him ❤
@AbigayleFall-sp3wt
@AbigayleFall-sp3wt Месяц назад
My heart melted when I saw him pushing the baby doll in the toy stroller 🥺❤️
@KimTarvin
@KimTarvin 10 месяцев назад
He seems to be a happy child and no doubt a blessing to his family.
@womanishthing1994
@womanishthing1994 29 дней назад
The Doctor asking the boy if he could "have a look at him" was very polite and nice to see.
@Debbiesdilemmas
@Debbiesdilemmas 7 месяцев назад
What an amazing and strong little boy. Parenting is tiring enough and I just can’t imagine the toll it takes on this family. He is blessed with a very caring and loving mother and father.🥰🙏
@joanrankin2827
@joanrankin2827 11 месяцев назад
Wouldn't this have been seen in ultrasounds and then specialists arrangements been made for birth? These surgeries must be a nightmare for this child.
@Pama013
@Pama013 11 месяцев назад
Wish good health and luck to the little angel.
@OrcaGroupSeries
@OrcaGroupSeries 29 дней назад
Hello from down south, i hope the little fella is doing great! Fair play to the medical team on an amazing job!
@ginaandseason2774
@ginaandseason2774 11 месяцев назад
He's absolutely adorable!!
@barb8335
@barb8335 11 месяцев назад
Bless his wee ♥ heart
@joanalmarghani661
@joanalmarghani661 28 дней назад
Hes such a cute and happy little lad bless him
@margaretgarana911
@margaretgarana911 11 месяцев назад
Strong family
@WendyP1965
@WendyP1965 11 месяцев назад
The poor peanut! Life can be so unfair.
@marcosgandarilla6114
@marcosgandarilla6114 11 месяцев назад
She a strong beautiful woman bless her and her boy he's a angel
@catherinetimmerman9107
@catherinetimmerman9107 11 месяцев назад
He’s a darling boy.
@jojobee42
@jojobee42 11 месяцев назад
Aw what a happy little boy!
@janiceervin8979
@janiceervin8979 11 месяцев назад
God Bless you all❤
@alicisahall4758
@alicisahall4758 11 месяцев назад
He is a miracle baby
@lesleyroyle600
@lesleyroyle600 10 месяцев назад
What an amazing Family & such a brave boy💙💙💙💙💙
@christinaromano3649
@christinaromano3649 8 месяцев назад
What a beautiful child he is ❤❤❤❤❤
@reneecarter6702
@reneecarter6702 7 месяцев назад
What a sweet and intelligent babe, he is a gift from God ❤
@catherine_404
@catherine_404 8 месяцев назад
This sounds extremely harsh in the context, but if I knew I was pregnant with a fetus with a condition potentially as severe as this one, I'd abort asap. Caring for generally healthy children is difficult, giving them a good life. Making life decent for children who are so much affected... These parents are real life toughest sort of saints to be able to do that. And please understand me right, I commend all the effort which turned this cheerful little dude's life as good as possible. Making people's life better is where state should spend its money, not on making rich people richer, reducing their taxes, or spending money on war. Anyone and everyone who is already here in this world should get the best medical treatment possible. Not every condition is predictable, detectable in utero. But when it is, I'd rather stop this pregnancy and try again, it's not worth it, to drag every miserable painful life into the world when it's know that's what it will be. As I understand, this family didn't know their child had this condition. And I'm truly happy they aren't left without support, that would be horrible.
@helenTW
@helenTW Месяц назад
I wholeheartedly agree with all of this!
@gileadlane
@gileadlane Месяц назад
What a doll baby !!! So brave !!!
@lauralove6439
@lauralove6439 11 месяцев назад
What a sweet boy he is.
@Astra-Moon
@Astra-Moon 10 месяцев назад
My nephew is almost 4 (Valentines Day) and has Apert Syndrome. I'm so thankful that it seems to be mild. His fingers and toes are completely fused and he had surgery to correct his fused skull at a few months old. Beyond that and being non-verbal, he's healthy!
@Moistandmeaty-t4l
@Moistandmeaty-t4l 10 месяцев назад
Innocent angel God bless his living
@CordsZ
@CordsZ 11 месяцев назад
And I thought my palate expander to treat my cross bite was hardcore. OUCH.
@AuroraMeansDawn27
@AuroraMeansDawn27 11 месяцев назад
Bless his cotton socks. ❤
@sunnyscott4876
@sunnyscott4876 11 месяцев назад
You're absolutely the only person who I have heard use that lovely expression. God bless you as well ❤.
@jeanettewaverly2590
@jeanettewaverly2590 11 месяцев назад
He is adorable!
@agnes14ish
@agnes14ish 8 месяцев назад
Brave little man.
@supermcfly100
@supermcfly100 Месяц назад
And he’s still adorable.
@juliechristophe9847
@juliechristophe9847 11 месяцев назад
he's a gorgeous little boy
@whanauarikinui
@whanauarikinui Месяц назад
Danke!
@glauvie
@glauvie 8 месяцев назад
What a fascinating name for a lovely boy.
@fatimadati7111
@fatimadati7111 11 месяцев назад
Doctors did not see anything during the ultrasounds ???
@LLCoolGay
@LLCoolGay Месяц назад
ikr I’m like “there ain’t no way…”
@RADMILLO
@RADMILLO Месяц назад
I think when he was born he was normal looking but the problem is with the skull now not the body
@raceface_m2579
@raceface_m2579 Месяц назад
Perhaps.. there are just parents who choose to not terminate and try to give their child the chance and opportunity of life no matter the circumstances.
@可爱了草莓
@可爱了草莓 Месяц назад
​@@raceface_m2579 so you mean they're selfish and stupid
Далее
Встреча в Лифте 😂
00:43
Просмотров 148 тыс.
Finlee's Story
4:44
Просмотров 608 тыс.
I Tried Delivering A Baby
20:33
Просмотров 5 млн
A Day In The Life: With A Surgical Technologist
1:57
Встреча в Лифте 😂
00:43
Просмотров 148 тыс.