A Cup of Tea | Dystonia Life

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In this episode of #dystonialife we meet a woman living with blepharospasm. For those of you suffering from this type of dystonia, can you relate? Please share in the comments...
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You can join in raising awareness, simply by liking, commenting and sharing the Dystonia Europes posts. As a rare disease, we need all the help we can get. Let's do this!!! 💪🧡
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1 окт 2024

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Комментарии : 5

@kerry1233 Год назад

Dystonia is a very cruel neurological condition. It has no good points. So I’m not sure what this video is meant to convey. It is very painful with muscles constantly spasming and twitching. It is an isolating and lonely condition. The medical profession are largely indifferent and sometimes ignorant, even the Consultants. Again there is NOTHING pleasant about dystonia.

@snshnaub1 10 месяцев назад

100% agree

@stormy439 28 дней назад

I have generalized dystonia, including gastrointestinal dystonia. It took 20 YEARS to get to a Neurosurgeon who explicitly works with movement disorders. Please don't take this wrong, but your video made me feel better that my dystonia does not affect my eyes. (Yet.) I pray you are getting exceptional care.😊