A DAY IN THE LIFE OF EPILEPSY 

People who have turned to CBD oil to manage their seizures or their child’s seizures have done so because the medicine wasn’t working for them and their quality of life was being affected. I think you’re doing an awesome job! ❤️

When the question of dying came up I thought of Cameron Boyce... but god I really hope Aurora doesn't I'm glad she was blessed with you as her parents because I trust she's in safe hands and you can help her whenever it happens 💞

hi i this won't to say i have epilepsy as well it starts in my mid 20's and have it under control and i hope you guys have it under control as whell it's not cool to go in to that mode god bless your family

She ia a gorgeous baby girl 😍👑 Please do an update on her life this years , she is getting so big

I have type one diabetes and the butterfly purple bracelet she’s wearing is the same one o used to have

Aurora is so cute

Auroras smile is so cute like if u agree

I’m so happy to see Aurora smiling and all happy I love that she looks on the bright side of life instead of the dark things

Aurora is on the same medication as me for seizures. I’ve has seizures since 2013. She is such a fighter. I love you guys.

Lol, I would be co sleeping until she is 20! It's so important for you to get sleep and not worry. I have always slept with my kids when they are ill. Even well into their teens. Aurora is so unbelievably cute. How special you all are ❤

Crystal you and Aaron are Aurora's angels. And she is yours. GOD knew what he was doing bringing her into your lives. You are amazing epilepsy is hard, but it is manageable and as you learn it will get easier to handle.

Can u do a video of dress code of what yall let the kids wear (girls/age )

Hello! Thank you for this video. I was diagnosed at 13 with epilepsy aswell. I’ve had 5 major grand mal seizures and now am 20 years old. With focal seizures being a everyday struggle these videos open light about what I have to go through too. I appreciate this and your little girl she is going to shine a big bright light through this world ❤️ I can see it

You should take aurora to dance classes. She seems to love to dance and it would help with her health and fitness alot! 😊❤

Cameron boyce died from a seizure 😭 My brother also has epilepsy and as she gets older make sure she doesnt have a huge time period with out food because that may cause a seizure. It did for my brother he went on a 15 hour trip and he didnt eat and once they got to the restaurant he had a seizure but hes fine

Do you keep her medical ID bracelet on her all the time? Even when she’s sleeping?

Crystal you do what you think is best, as a parent, for your child(ren). I have special needs kids who are grown and on their own. Do I think I made all the right decisions? I look back and yes I did with what I had then. If the same happened now I would make a different decision because I have different knowledge or outlook on the situations. I guess as parents we always second guess ourselves but you know your child(ren) so do what you think is best and forget any naysayers. Love you guys and hope all gets better.

I absolutely LOVE Max 🥰 the way he asked her to sign "help" when she needed the door open. I took ASL for a year in hs. I hope she will continue to thrive.

hi. I'm a Korean. I am suffering from epilepsy. I understand pain in a child.

I have had epilepsy since I was 12 mine were caused by a car wreck and my mom co-slept with me till I was about 15 and we got them somewhat under control. You have such a strong family keep IP the amazing work.

One of my close friends died after a seizure. She was in her late 20s and had epilepsy since she was a child. It can be scary. I pray Aurora will be fine.

Thank you for making sure the teachers know what to do and there is a condition. Whenever I work/worked in Nursery or classes that is information I always needed or wanted to know so if something happened.

That is kind of what happened to Cameron boyce he died while having a seizure😢😢

She has the same type of epilepsy as my sister we just found it at her last appointment

I love how you set three alarms as a reminder. It’s so easy for us mom to forget sometimes.

I work with the Epilepsy Foundation of Mississippi and I’m so thankful for you’re family bringing awareness, educating your community and being a great advocate! Thank you!!!

Ik what it’s like to help family with epilepsy as my dad has Roladanic epilepsy Wich means he has his fits / Seizures in his sleep that can wake them up after but not knowing a lot about what’s just happened they get insomnia and or short term memory loss and won’t know what has happened for the past week

My grandma has epilepsy. She once had a seizure when I was at her house when I was little and it was super scary😬

co sleeping is actually pretty good for little kids! Of course, it depends on the parents and the kids and what everyone feels comfortable with :) I think you're both doing an awesome job !!!

My daughter (16 now) was diagnosed with epilepsy at 14, her first week of high school. She is on 2400 mg of the exact same meds every day. It’s heartbreaking. We were almost 6 months seizure free until 2 days ago. It was a very mild seizure and she had been in the sun for 4 days on vacation so she was sunburned and probably dehydrated. She had 2 febrile when she was 2 years old so I’ve been through it at different ages with her. Prayers for Aurora! PS watching your family is one of my favorite parts of every day!

Hey crazy pieces, Just wanted to provide an example of someone who has lived a full life with uncontrolled seizures. I am a RN and caregiver to my uncle, who has Lennox-Gastaut Syndrome (it took him almost 20 years to receive this diagnosis, which opened up more specific pathways for medication so ask your doctor about the criteria for diagnosis!) and every type of seizure, including clonic tonics. He is about to be 47 and even though his seizures are uncontrolled and he has been in status epilepticus more times than I can count, he is happy and lives a wonderful life! Wishing you all the best throughout this journey. ❤️

I love how max is always taking care of aurora it's the cutest thing ever ❤️❤️

Crystal is such an amazing mother. You can just tell how much she cares for and loves her children. It must be so difficult and overwhelming at times. She’s so strong!

there is family on RU-vid that is living with Epilepsy their name is Just A Different Life

I was just wondering how often does aurora get seizures ? 💕

Auroras sooo cute😍 I know she’s going to grow up to be such a great person❤️

For some reason this video makes me emotional specialy at the end. The love you have for your daughter is beautiful ❤️❤️❤️ God bless love you all xx

I had a friend that has epilepsy but at the time was undiagnosed but we knew she had seizures and we were in this like community course so out of the school at a local collage and none of the other class mates or lectures knew what to do when or if she had one that not only made her nervous but also everyone involved in the situation including her parents being worried because they weren't there understandable but anyway i took it upon myself to talk to my school and ask to be put through first aid course so if in any case she had one at least i knew and knew what to do etc i did already have previous knowledge school agreed and both lecturers her parents and the school were blown away with my actions I personally didn't think it was that big of a think to do on my part as this helped me feel more comfortable and confident as we also this girl and I traveled on a public bus between our town and neighboring town for another extra curriculum thing a hour each way so made sense to me but yea all we can really do is recovery position if possible and remove anything that could cause them harm and then speak to them and reassure them that you're there etc that is what we were told anyway and ofc it would be different on age, type that person has and environment. That is my little experience i have with the condition so watching these videos and seeing how if effects differently helps as i'm training to be an early childhood educator as well aha so thank you so much for sharing

So Cameron Boyce died of a seizure in his sleep could this have been epilepsy???? Love your channel

Hey crystal do tou have the epilepsy mat they are brilliant my son has had 3 seizures at night since we haave had it and its notified me every time and waiting on the embrace watch to come love your vlogs and your family are amazing xx

wait .... i take oxcarbazipine also but not for epilepsy so im confused

I to am in foster care so watching ya'll gives me hope for the future thank you

I would have her sleep in my bed too, I would be way to paranoid being in a different room. No hate at all!

When she said Aurora hit the the woah it was so cute

I know what its like to have epilepsy. I was born with it and i am now 16. She is so strong. You goth this little one. I take Depakote 2 times a day and i take 750 mil a day. and the doctors think i have grown out of my epilepsy.

I love how positive she is and how she took all those kids in has her own and they are all so beautiful

My 4 yr. old ( 5 in Sept.) granddaughter, Laila, is non- verbal, epileptic. Her diagnosis is LGS and she had her on-set at 2 1/2 yrs old. LGS is in part, defined as many types of seizures and very hard to control seizures. She is on clobazam and epidiolex. The epidiolex is pharmaceutical script of CBD. We had her on Charlottes Web CBD before the epidiolex was prescribed and okayed through insurance. Charlottes Web was wonderful for her as she was seizure free for about 10 mths after starting it. However, the brain is tricky ,and as often happens with epilepsy, she became resistant and it stopped working for her. So we started looking for the next med. Sadly, this has become a common occurrence for Laila’s situation concerning meds. I have had all the fears and frustrations that go along with this diagnosis. I also have the fear of her sleeping alone. She has a toddler bed next to my side of the bed, but often she just sleeps with my husband and I. I mention that to let you know, it may be common with these situations, and those of us living it out, completely understand. I will be praying for Aurora and your family, as I pray for Laila. Blessings!!

I was diagnosed with Epilepsy when I was 13, I think videos like this are important to educate people and show them we are normal functioning people too. Shes so cute and im sorry shes having to go through these things so young

Everyone is talking about Camerion Boyce death but they are probably scared and worried now because auora has also has a seizure

I love Aurora dancing in the intro credits. It is so cute and always makes me smile.

Crystal i have epilepsy too since i was born but it i wasn't diagnosis until i was 11years old at the end i found out i have 14 forms of epilepsy we have been told by a professor to wear a eye patch when traveling because of the sun

My dad has seizures and was thought to have epilepsy but it turns out it's not, it's been 3 years and they still dont know because the doctors were we live aren't the best in my opinion. My dad hasn't had a seizure in a while which I'm very happy about. I have also recently had an episode like a seizure that we are still unsure about, I've been going to the doctor and a nephrologist. I'm still undergoing alot of test but we suspect either kidney disease or hypertension, my anxiety also doesnt help but I'm doing fine and haven't had an episode for a while aswell. I wish the best for your family and Auroras journey through over coming epilepsy ❤

I to have epalepze so i can relate i have had it sins i was 2 and now i am28 so i no it suck but i hope your life gets better your firend stephanie hewitt🦄🐩🐕🐶🐈🐱ps i still like my little ponie and i swim with a mermaid tail❣❤💖💗💙🖤💜💛💚

Cameron Boyce was suffering epilepsy that’s how he died

Just starting watching y’all and the crazy middles I just subscribed it would make me so happy if you responded

i actually started having seizures about 7 years ago and i still don’t know everything about it.

When i was a young child i had epilepsy too. I had a brain tumor which probably had something to do with the seizures. Eventually it went away and I stopped taking medication around the time I was like 10. i feel so lucky to have grown out of epilepsy, it was difficult, especially having to take medicine twice a day every day. I can still remember what the liquid medicine tastes like lol (ngl it tasted pretty good like candy)

I know how your daughter is feeling. I have epilesy. I don't have Grand Mals. No meds have helped me. I have 3 types of them and the sideffects are worse. I sometimes take Hemp Gummies to help me sleep and not get epilesy at night but it's more active at night. Because of my epilesy I can't slow pills and sweat so much. I'm always tired. My family and friends have been there for me and helped me out. I have had a EEG done. My doctor are afraid to do a MRI. I'm 15 years old and have them sence I was 5 but got dienosed sense 10. My doctor told my mom that the fainting spells are what kids do. I almost died because of my doctor said it's normal I was looking of the edge of a building when I lost condense and collapsed my mom saved me from falling 2 stories and I was 7. I would have died my mom did research for 3ish years and then we switched doctors and I figured out that I have epilesy. I have figured out it's not a burden on me but a blessing. I know how your daughter is going through right now but it gets better and easier to spot them and help her out. My teachers at school are all certifed to help me and other kids with epilesy.

Sometimes life is complicated... my daughter has epilepsy too, but hey, God has a reason and a plan for each one of us.

hi crazzy pieces i ben watching you guys sis i was 10 years old and and i know what a seizure before because i use to have epilepsy but not anymore and whin i do have one it scarys the crap out of me

My 22 year old son is on that medication and that's not for seizures for another medical for another issue but it does make you sleepy very very sleepy

I wanna be a mom like this someday. Much love to you guys and I hope Aurora gets better.💖💕

I’m 12 and one of my friends had a seizure and I helped them

Aurora running to her class is soooo cute😍😍😍😍😍😍

Awesome video I really like it lot it was cool and do more prank wars on your family

Hi! You should teach Aurora baby sign language, it seems easy, i think she would be great at it

you may want get her a fitbit watch her hart rate while she has a seizure.

Prayers for you as you care for Aurora. Thanks for sharing this part of your family life. ❤️❤️❤️

OmG 😪😪 that is such a swwwweeeet child. She is so sweet in every video. God bless her and help her with the epilepsy 🙏

Your family is amazing I pray that Aurora grows up healthy and happy I love you guys ❤

I just wanted to let you know so your doctors can keep a look out for it. My brother has epilepsy and has been on the same medication since he was diagnosed. We just recently found out that that medication can cause low sodium levels in your body which can cause more seizures. We found this out from a nurse who has a sibling with epilepsy and it was causing her to have a lot more seizures then her normal. Our doctors had never said anything about this to use but now that we know that we are having them check. I just thought I would let you know in case your doctor had never said anything. I love you videos. ❤️

Maybe it should be pointed out very clearly that deaths due to epilepsy ARE VERY RARE

this like to say after i find the video i this feeel to let you guys know

What kind of bracelet does Aurora have? Because I have seizures has well but Its not epilepsy. I have a stress induced seizure condition and my mom has been searching for a bracelet that will send her a notification every time I have one.

I love watching your family videos

News just came out that the reason Cameron Boyce (Disney channel star) passed away was from a seizure because he had epilepsy. So glad there’s awareness being brought by your videos for other people to learn about it.

when aurora hit the woah 💀

I know some seizures can be triggered by flashing lights. Is that the case for Aurora? What normally triggers her seizures or are they just random?

God is good! Glad to see her doing well, smiling and being able to kid things 😇🙏🏼💕

Do not feel pressured to use CBD oil with your child. You do what is best for your child. I live in Canada. Marijuana is legal here. I have had a reaction to marijuana because of the chemicals used to grow it so I completely understand where you are coming from. It would be scary to think of your child having a reaction and not be able to tell you.

R.I.P camryn Boyce

The people who disliked either had their phone upside down or they hate to see people in pain, in thick and thin I will support u guys!❤️

Hi Crazy Pieces, I love watching your videos and think your all amazing. I had epilepsy as a child I remember all the seizures, the medication and the weight gain. I had the seizures from about the age 2-11 and then I stopped having them for maybe a year and the I started having the absent seizures and they changed my medication a lot. It wasn't until I was about 19/20 when I eventually grew out of it they said, I'm 34 next month and haven't had any type of seizure since. I hope that Aurora grows out of it too, I love watching her having her dance parties and her little giggle is adorable. Love to you & the family from the UK xx

Aurora dancing and 'hitting the woah' is cute!!!!

I am really happy she got a great 2Moms and a dad❤️🥺 I really love Aurora ❤️ I always pray for u guys especially her🌚❤️

Just curious as to why she’s not speaking yet? My daughter is also an epileptic.

I am on that epilepsy meds

I have a cousin that has epilepsy it is sad😢

They probably try not to raise it on a farm with pesticides . Believe me; our family doesn’t like pesticides either!!!!!! We try to go for the natural stuff. But the CBD oil has worked great for me and I have epilepsy. I take medication as well. ( as I said in my other comment)

I have epilepsy and I take a seizure medication but I also take CBD oil and it doesn’t interact with anything. In fact I think it helps more than anything. And I take gummy’s too .which I think would be great for her. I am sure that they are very careful with the pesticides and do their research before they put in stores at least for the people who have epilepsy. But I know for me I have taken it with my medication and it is fine!

It’s kinda funny that araura has almost the same medications as me but I have a service dog as well

I also have seizures 💕that’s how I discovered your channel. I’m very fortunate to sense a seizure and alert my family when I’m having one. Awhile ago I had one in biology class and it was hard but I got tested when I had my first one when I was really young. They haven’t been able to figure out what’s wrong but going in for more tests soon💕

Love little Aurora keep getting better

Does the whole thing with Cameron Boyce passing from a seizure so young scare you even more with Aurora? Has his passing effected your other kids more considering Auroras epilepsy?

My best friend has epilepsy and her first seizure was at school and it was alone with me and we got so scared

Shout out to my leviteracetam brothers up in here, ya'll doing yo meds tight?

“Aurora hit the whoa” 😂😂 that dance party was so cute

I have had epilepsy for 12 years diagnosed for 8 I had my first 80 minute episode when I was 5 I struggled for years to get diagnosed and get in the right meds extreme weight loss due to medication and to even understand the fact that I have epilepsy and now that I've had it for over 12 years I am doing very well and am an advocate for kids around my state and region in hopes of spreading awareness to break the stereotypes and help others understand so happy others are doing the same to show that we are just like any other person with a few special quirks

Thank you for sharing her story everyone should know what do too if someone is having a seizure. Every day I struggle because I never know when I will have one

I had my first granmal seizure at age 21... and was put on medication about a year later, when I had 4 seizures in 8 hours... 2pm, 4pm, 6pm, & 8pm in Emergency. I was kept in for observation for 3 days after that, as I began meds for the first time in my life. I was fortunate enough that the medication worked. But my medication levels are at their highest; I need two different meds together in order to make them work successfully. I have had numerous EEGs, MRIs, blood tests, & neurologist visits ever since. Although it was an emotional upheaval & change to my whole world in the beginning, I now have been employed for years in a job, I even got a special drivers license, & I have a partner; we’ve been together for 4 years thus far. 30 years later, I am still here. Still on meds, still employed. The technology has improved dramatically over those decades... the brain scans finally revealed two scars on my left temporal lobe. These scars may have been caused by my traumatic birth all those years ago. My mother had a difficult birth, lost a LOT of blood, and almost died in hospital when a nurse accidentally tried to give her a blood transfusion with the incorrect blood 🩸 type. I was eventually delivered naturally; but my mother was two small to actually do this safely. My next brother was born via caesarean, & the next two were 5 weeks & 4 weeks premature; so small enough to be delivered safely. Epilepsy is still a very mysterious condition, and there is a whole spectrum of different types & causes. An invisible condition... and the worst part of it is when people react in fear around you.