I know I'm late to your story but I felt compelled to post anyway. I worked as a pediatric nurse for several years in the past, I know how stressful and overwhelming caring for sick children can be. HOWEVER, you both have left me amazed! The sacrifice, selflessness and care you provided for your sweet little guy surpasses anything the medical community can offer. I'm sure it is so difficult to try to prepare for your baby to pass and I'm certain that you're still heartbroken... but, as time passes, you'll both be so thankful yours were the arms who held him, yours were the smiles he saw, your voices were the ones who sweetly sang to him and it was your touch he felt each moment of his precious life. You should be so proud, not many parents can successfully do all you did🥰🧑💙
Having a sick child will do that to you. I'm a Special Education teacher (severely disabled, often sick children) and my students parents are like rocks. It's almost like God knows who to give these angels to for their short time on Earth.
Your baby was very beautiful, those big brown precious eyes. My heart is so very sad for your loss. But, my faith knows that he is in Heaven with God. Peace be with you two.
Much love ❤️ to these brave educated well informed parents. Quality of life trumps quantity 💙 Quality time with their baby was a gift - but I wish they could have watched their boy grow up healthy and happy.. Heartbreaking 💔
I am 65 years old I. The last year my health has gotten increasingly worse I nearly died last year. When I look at these videos it makes me realize what a blessed life I've had god has ALWAYS seen me through each challenge I've had and I've had MANY. But I look at these precious precious babies and realize even more how blessed I am. I was lucky enough to marry have children and grandchildren and I'm still here!!! I look at these because they give me hope I know that sounds odd but they do. Though tragic and heart rending for these parents this beautiful little man came into their lives even if for a very short time sharing their grief is so admirable to me.
Kathleen Tyson; God bless u. I'm glad the Lord blessed u to continue in this life to enjoy ur loved ones. I personally am not a stranger to death. So many of my loved ones hv gone on to be with the Lord. I get peace knowing someday we will all reunite again someday. Thanks for ur story. Again God bless.
my dad was a docter of the mind and he didn't belive in god he said ,,we are remebere by others and we go back to dust,,,,heaven sounds so much better,,but!! we all really don't no where we will go.I belive in god higher power .because when im down and out it helps to talk to him...funny that god is a man..im 63 years old and pretty healthy ..controlled bp dibetic-2 controlled need to lose wt..ok thnks
@@yvonnespearing Please accept Jesus before it is too late. Yes, as a Christian, I know where I am going. And God is not a man. I will be praying for you. God loves you. .
@@irisheyesofbelfast I'm not a believer but envious of those that are. Never would I chide someone for beliefs that give them comfort & peace. Shame on you for that.
Agreed. My sister law had juvenile huntingtons in her family, and ended up pregnant. She was a bit irresponsible(age 22) and newly married. She was also very religious. She ended up getting an early abortion and her tubes tied as her brother and 3 cousins all ended up with JHD. Same with her sisters oldest kid. Life like that is not always the best option
Breanne Dixon Did she check if she had it (though not everyone wants to know) because if she didn't have it she could have had children with zero risk passing on to them. So awful to know that your children risk getting a horrific disorder and strong of her to decide to not have babies to try to break the circle of a horrific genetic disorder in your family.
Until recently, there wasn't much they could have done. Today, there is a treatment that can save kids with SMA but it costs 2 Million dollars for that one shot and it has to be given before the age of two.
He was so cute beyond words. I admire your strength. I don’t think I could deal with this loss. Babies, children are not suppose to pass, they are not suppose to be sick. He looked so perfect. Bless his heart.
I followed a family with a Trisomy 18 Baby named Jonah. He was born with insurmountable obstacles and boys have a shorter life span when born with that deficiency. He was very tiny due to his condition but adorable. It broke my heart to see him go, but he is in Heaven now with all the little Angel babies having a blast. So sorry for your loss. He was so beautiful. ..so was Jonah!
That wee boy is so beautiful and precious, His eyes say it all ! People equate Hospice=Death. It’s so untrue Hospices are full of life love and laughter. Jordan’s parents are so strong, I wish all the family good luck.
You, as Jordan's parents, gave him THE BEST life possible while he was here. I know that wasn't easy to do even though you knew it was the right thing to do. Most people don't understand Quality over Quantity or that dying is a part of living too. Bless you both & I hope you're doing well all these years later. ❤
I am astounded at the strength you guys are showing. It's amazing. What a devastating tragedy. That beautiful baby boy, or any children for that matter deserve to go through this. Nor do the parents. So sorry for your lost.
Such a sweet family!!! I could tell they are good people!!!! And he had the biggest eyes and sweetest smile!!! I am so sorry for your loss!! May God give you the peace that passes all understanding !!! May God Bless this family and hospice!! My grandmother was on hospice and they made the nursing home give my 83 year old grandmother that had a broken back in 2 places was crying in pain give her the pain med under her tongue as often as needed. we love them!!
What a beautiful baby to such beautiful parents. I'm so sorry your time here was short but at least know that you'll see him again in a little while...
What a wonderful family...what a beautiful child....just to have had him for a little while...your son will live inside you forever...thank you for sharing...💕
I’m crying writing this. Your courage, and doing what you did was the right thing, and your child is now an angel in heaven. God Bless your family for sharing this story.
It's beautiful that you parented your little man the way that you felt was best. Parenting done right. I promise. Sometimes, you have to let go. You were so generous to realize that was what your son needed. Bless you!
What you have been through as first time parents is heartbreaking. Bless you for sharing your experience and perspectives for others. I hope you will be parents again to another child someday. Your love, patience and understanding exceeds what is needed to be good parents. God bless you both.
worked at a hospice and we had children there. the immense love and the debilitating heart break. I know what a darling family like saw on a smaller anxiety reason ....my words are not compatible with showing how precious and damn that head of hair! I admire you and your strength ...
He's beautiful. My nephew was only 6 days old when he became an angel. I loved getting to meet him, although I knew he was going to heaven. He would be getting ready to turn 7 this year. I know your beautiful angel has met my nephew in heaven and I know they are friends. God Bless you
I so agree with these parents. Nothing can be accomplished by prolonging a life if the baby spends its last days being attached to machines without mommy and daddy’s hugs. Hospice is a comfort for baby and parents.
God bless u. I'm sorry for ur loss even though I don't consider it a loss. U will be reunited again someday with ur son. Meanwhile u will continue to do God's purpose in helping to support others who are going through similar situations. Ur inspiration speaks volumes to a lot of parents suffering out there. Thank u for sharing ur story. Ur son is gorgeous.💝
Oh man. That’s rough. I’m so so sorry. He was a precious little thing. Sometimes life’s really unfair. Thank god for nurses and doctors who dedicate their lives to this. I’m a nurse and I could not do this. Heck no. It would be way way to rough. Rip little one.
So beautiful a baby and now he’s Gods special Angel. Hospice was there for my Mother. She had cancer that metastasized and she wanted to pass on in her home. She stopped all treatment except radiation to help with pain and pain management and she lived much longer than predicted and had quality what she told me her oldest child not quantity. She walked until a few days. Hospice did a magnificent job. God bless you two and your Perfect Angel.
I once knew a perfect beautiful baby like this. Noah was his name. His parents did much the same for him. Sad to lose such a beautiful soul from the world, but he brought such joy for his short duration. We all know where he went, when he left. Blessings to all.
wow he's was such a beautiful perfect little baby rih sweet angel the parents had to be extremely strong to go thru something like this but he's going to be with them when the time is right until then they can carry his memories god bless you guys
OMG, what a precious, beautiful son of yours. I agree with your selfless decision to give him a normal life at home. I am a pediatric home health care nurse on 11p-7am for medically fragile children. I know how hard it was to watch him deteriorate. It had to be heart breaking. But then u knew his struggle would end soon and he would be in the arms of Jesus. You guys were so strong and made his life as good as possible. I'm sorry for ur loss but u gave ur son everything u possibly could. Thank u for sharing.
this absolutely is so heartbreaking i swear. it breaks my heart so so much hearing/seeing people be in/go thru pain i swear .. nobody deserves it and i just wish sicknesses never ever even existed because nobody deserves any sicknesses either 💔. i hope everyone who is going thru something like this knows god/jesus are so beyond amazing and they have everyone thru everything always and forever✝️ and i hope this little man always knows how beautiful and strong and amazing he always will be❤ my love and prayers are with everyone in need💪🏻🤞🏻🙏🏻✝️🩷🩵❤️
You're in incredible parents omg. I couldn't do it my strongest parents ever. May god BLESS you both I can't watch my god. 😱😱😱😱🧚♀️🧚♀️🤦♂️🤦♂️🤦♂️🤦♂️😭😭😭😭😭😭😭😭💔💔💔😭😭😭😭
A special baby with special parents but a special shout out to those medics who choose to work in terminal paediatrics all over the world. They must go home and weep on a regular basis as surely they can’t help how the feel about their patients as people.
I have been a bereaved parent since 1979 and as such, will keep it 100 with you. I promise you that you will see, hug, kiss and hold your Jordan again, at the correct time in the future.
