I’m so glad you finally received your report - poor you having to wait 20 weeks! The strangest thing about a diagnosis I found is looking back over your life and seeing everything through a new lens and realising why certain things happened or I couldn’t cope with x, y, z.
My response to my results wa s to be very emotional after 52 years i now know im not mad and all my life fell into order if any one waiting long time speak to nhs see if they out source to private i went to the owl centre via nhs i waited no more 7 month
@@jaymzslijngaard8998I'm 50 and started the diagnosis journey last month. Had a private Psychiatrist appointment for my PIP assesment and was stunned as he knew the real me, all the years of thinking I was broken 😢
What could help recognizing emotions in a person’s face is watching Anime/Mangas. The facial expression is unrealistically too much, but you can find out, what it means because the person either acts after the expression or says something explaining the expression. So I know for example how the eyebrows of an angry or surprised person look like.
Yeah, maybe that is part of the reason I got into anime. I also started drawing so I need to study emotions to be able to make convincing facial expressions. People say that may drawings are melancholic, but I don't intend them to be that way it's how may expression would be if I am happy and satisfied 😂
I just got diagnosed Tuesday 31/05/22.. waited 2.5 yrs for my NHS appointment. I have to wait for my report 2-3 weeks then have a questions & support meeting this coming month. I’m glad I’m not crazy or mad like I was feeling before getting diagnosed. Intrigued to read the report. I did the Aspie Quiz, RAADS & AQ tests as part of my preparation for assessment. Finally I feel at peace and happy with who I am and I’ve found my tribe. Now the work to learn how to unmask everyday will begin, I’ve done it so long on auto-pilot for decades, it will be quite the journey and challenge. I’m waiting for my report and have a second meeting with my ASD team on 14/06/22.
I'm really shocked. I had a one hour interview/assessment and they said I was autistic at the end. Sent me a rough copy to see whether I agree with what they found and what was said. I had no tests at all. My total wait time from assessment to diagnosis was less than 3 months. This is Cheshire. I kind of wish I had yours. You've been given an in-depth analysis of what you're sensitive to, struggle with etc. I don't have that. I am discovering on my own as I age. :( Super happy for you though!!! :)
Were you assessed by Spectrum NW in Tarporley Road? They are fraudsters with limited knowledge of psychology and may not even be a genuine company. I was disgusted that they treated me as a child and assumed I knew nothing about psychology. They destroy the test video, which is a medical record ( illegal) so that no one can challenge their diagnosis. They didn't even get my history correct and then assumed I would correct the mistakes, so that I would be 'satisfied' with the final outcome. If you were tested at Spectrum NW, and you wish to go to the police, please let me know and I will come with you to back you up.
@@lessandra602 No. I saw someone claiming to be a psychologist at Spectrum NW. I asked for my money back and they refused. It's disgusting the way people with ASD get ripped off.
Thank you for making this video. It’s really comforting to know what to expect without Totally going crazy before OverAnalyzing every single aspect in the 20 weeks it takes to get the paperwork back. I found out through RU-vid how to change my life for the first time. I’m 30 and I always knew something was wrong. Again I appreciate you sharing this information bravely and openly to the rest of us
Thank you so much for courageously posting your assessment here. I just had mine done 2 days ago and I'm still reeling from it and overthinking EVERYTHING! It's very interesting and helpful hearing people talk about their own evaluations and seeing the suggestions they gave you. I already added those books to my cart and pausing and reading through the advice has given me a lot of good information to work on (even though it wasn't meant for me, I totally relate). I know this was posted a really long time ago but it's still valid and really helpful. Thanks again!
Thanks for sharing . I just got my assessment and I have Autism level 2. She had the results in two weeks and it was 19 pages long . Along with other things like anxiety etc. I’m 50 years old and have lived my whole life wondering what I am now I know. It’s a relief that I’m not alone. .
I'm pleased for you that it's finally arrived. Well done for being so patient. That wait would have definitely broken me. Really interesting video too. Like you said, there's hardly any info of this kind out there, so this is really valuable. Many thanks. Keep up the good work, Savannah!
thanks so much for making this. every step of my assessment has been so nerve racking for me not knowing what to expect every time i went in. the assessment took place over three very long appointments and yours sounded very similar. my appointment for results is next week. i really wish they'd just send them to me. the wait and just the thought of the appointment itself are making me so anxious.
Very informative. I am still on the waiting list and it's been 5 months. I was told it could take as long as 2 years. But o was referred instantly from my mental health team, so I am grateful for being lucky with the support.
I was diagnosed back in 90’s after two year waiting list with NHS while at uni. The clinician did tests, IQ test etc and instructions were given for recommendation I would need for university study ie extra time, quiet room. But it was so primitive back then. My report was part typed part handwritten. I still had a good clinician but the support groups were rubbish after and mixed with people with all different neurologies. I didn’t stay long in such groups. Also not many women were being diagnosed then either! I didn’t know a lot about myself after except relief but also denial too over this new future ahead for me. Your report is very detailed outlining your strengths and weaknesses which is good. My eldest son was diagnosed 2006 when early into school system and his was a hand written report and partly typed also which included a bit about me in it. We’ve had to learn over time what you have in your report. I hope you have a good journey ahead of you!
Aaaah thank you so much for making this video. Just had my ADOS today and honestly I feel like I did really "badly" (I managed to really mask a lot of my behaviours including managing to make long eye contact and hiding my constant stimming under the table). I'm really nervous about it!! Can't wait to get my report. Learning about yours and seeing how it looked has been really calming. Thank you for uploading!
I have my assessment coming up and I'm also really worried about masking too hard and not letting the interviewer see my true self.... How did your results go?
Thank you SO much for sharing this very personal report - I have my assessment tomorrow and I'm feeling quite anxious because I only have a very broad overview of what to expect. This helped ease my anxiety a little. 🤗
Your report is very detailed and helpful in educating you how to manage your life and well-being better. My report summarised my two interviews and assessments, but it didn't include the scores or how to manage sensory sensitivity etc, which would have been really useful for me. Every report should be like this.
Holy shit, my diagnosis report was nowhere near as intricate as this. I've been looking into getting diagnosed again because my report is literally around 9 pages long, yours is 45!! I was diagnosed in 2014 and I'm also a woman on the spectrum from the UK so its interesting to see how much the testing procedure has changed.
Yeah, I waited over 6 months for this report to come through and they said it would take 2 weeks so when it came I'm so glad it was this detailed and not just a piece of paper. The place I had my assessment is closed now sadly 😔
@@BecomingAutism yeah i remember mine was much shorter time to wait. I had the assessment in April/May of 2014 and got my diagnosis in 2014. I just wish mine was as detailed as yours. Do you think they have perhaps improved the diagnostic criteria towards women too? I feel when I was diagnosed it was still very much seen through the lens of male presentations of neurodivergence.
@@spyrogall I would hope so, but I'd say my assessment was based mostly on the male presentation just thankfully they were open to seeing how it presents in females.
Wow it's arrived so plsed for you. Well done on finally getting your diagnosis. It's very detailed. Wish my assessment was like yours. Your report confirms my suspicions that my assessment was not as through as I'd like. Happy reading sweetheart ☺
I am 30 years old , and just found out that I have asbergers , I can’t believe it , my chaotic/ life of no sense all finally made sense , for well over 10-15 years I’ve been thinking I was losing my mind because I was so different than others , and now I know it’s not my fault and I’m actually slightly autistic, it’s like a relief on my mind to actually know what’s wrong with me and have a diagnosis
In some videos it says its rare that young adults get diagnosed. What about much older adults like say near forty. At that age suppose to be functioning very well. But I function not much more than a average 15 year old. Very very difficult. I've never ever understood sarcasm or adult humour at all. I'm still getting it looked at and waiting for a proper diagnosis. Most include my family don't understand why I am the way I am. I have very very few real friends. Eye contact is almost none existent with me talking or any communication. I'm really upset and deeply depressed all the time why I'm always the same. Suffering severe mental health for a good many years has not helped plus childhood severe trauma. No one wants to know . that's how it feels like. I often feel very scared of strangers mostly adult men . I think due to my childhood experience. Social reaction has got a lot worse over the years. I have been very destructive in the past due to severe anger and frustrating but only to objects or my own flat. Never people . I'm pretty sure hurting someone is impossible for me. I automatically react and curl up if confronted. I will often shout out and occasionally at strangers but often not directly at them but with the intent of them hearing me. Its feels like I'm severely complex and difficult for even a very good doctor to understand. Many things can seem so simple to me but often it seems like to most others its extremely complex. I'm highly aware of my surroundings and extremely observant of everything and peoples actions. Mainly physical. Deciding if I feel threatened or not. I react extremely different in different locations or environments.
Glad for you. I did the triage in September, after 18 months of wainting list, and I was told that I will have to wait at least another year to have the proper assessment 😞
Thankyou for sharing. Would you have time to do another video of the final suggestion pages ensuring the video and page is still please. Totally awesome that they include that in the report This is a great short cut so that people can learn what might help them and be able to build a sustainable way of living whilst waiting for help and a diagnosis. I'm 31 and struggling. Communicating my need has proven distructive to sense of self and has resulted in very little meaningful support from our so called nanny state haha I just need to find a way forward and you've just 'waved' the pages before me 😂 I'm so pleased you have made it through the process and have shared it with the RU-vid community. I hope you can create successful coping mechanisms and truly thrive Thankyou again for sharing 😊
Hey! the video on the recommendations that were in this report is just uploading. You can watch it here when its live: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-6Fqc1gEqF8g.html
I am 16 and was diagnosed about 2 weeks ago and the team that diagnosed me said that the report would be sent to me some time from friday to Monday. Hopefully the report is as in depth as yours since it would be extremely helpful as i find i lack the ability to be self aware of my strengths and weaknesses.
Oh my gosh I just found your channel today and I am so glad I did! I JUST RECENTLY got an assessment. But it was broad, not just for autism, since mine isn't severe. I was so tired of waiting, but then I finally got it and I started a new med and took one off because of it, but will obviously do more with meds later. And I got the lowest type of diagnosis possible for autism, so that means I could test out within the next few years. :) And I got two new diagnoses, which explained a lot of my feelings and actions. It seems like you have it more severe than me, especially because your sensory is crazy, but I used to be way worse, I was pretty much the most severe when I was about 3-4. But I am just turning 16, so it is an impressive recovery to have very few symptoms, I was just barely in the qualifications so... Just know you can recover. :) So glad you can get help from these tests.
Good luck! You’re video are so great explains I get my psygo and it promises give my word front to doctor hope I get some results out . Hope you have a good day! ✨✨
I really hope your diagnosis got your REAL practical help but I fear it might not have because although there's more help now for kids who are diagnosed (I have read) and in 2005 there was quite a lot of understanding/help for 16-18 year-olds where I worked in 6th form college in the UK I know it's very patchy and people (themselves or their parents or charities) have to argue and fight to get any that is available and often there isn't enough money in the pot (we're told) for these services - but lots of help (tax breaks+) for private companies and subsidies for various groups and lots of other waste that most of us don't agree with. I've got a brain injury and the services aren't there - nor for other often 'invisible' disabilities and illnesses. I've been to constant 'assessments' (SO sick of them) and the 'reports' I've been given don't give info about all the things I struggle with - both physical and psychological, I wish I could have ALL my info and choices on help & treatment and especially housing that is adapted to my needs because without these adaptations I'm becoming more injured and MORE disabled - which costs more in the long-term - oh but the help/support isn't there so oh: it won't = only to society, my friends, family and to me = doesn't count? I'm too tired to write much, neglect kills (but often slowly and invisibly) I just hope your report opens doors that it SHOULD (must) and that you get the best of help and support so you can be the best you can be! Best wishes.
I'm glad I found this. I was diagnosed with ADHD a year ago. I'm a social work student but I keep getting reprimanded by my university for apparent inappropriate behaviour. Things acting in the wrong manner in the context of not understanding social cues or the room for example. People say I'm weird. Hard to make friends with and I just disappear 🤣 I prefer to be alone in the quiet if my car and people ask 'why do you always go alone for you dinner'. When I was younger I would struggle with social interactions but as I've got older I'm quite good at communicating with other people, I just sometimes read them wrong or struggle to undertsand their intentions. My worst traits are sensory issues. I hate bright office lights, I hate people talking in the office. I always say to them 'stop shouting' and everyone laughs at me like I'm some sort of weirdo. I've bought my own moulded ear plugs now. Another sensory issue I hate is when people are moving around me. It feels like they are just fidgeting unnecessarily and it all of these sensory things piss me off to the pint I get angry with myself and sometimes others. My routine had to be the same every morning, if one things goes wrong ir changes without me knowing i have a mental breakdown 🤣 it ruins my whole day. I don't like certain bedsheets, I have to have soft fluffy ones. I have to wear bigger T-shirts and I cut the tags out of everything. Some tops feel scratchy on my skin and it's so uncomfortable. I like peace and quiet but sometimes I feel underestimated and I will act out depending on other people's behaviours around me then later find out that I read the room wrong and now I'm trouble or people think I'm a fucking weirdo. I hate some smells for example candles or oil burners. They are really overpowering and literally me make me gag. I hate when people touch me, for example of someone wants my attention and they tap my shoulder, it makes me soooo angry 😠 however, if you're a family member or close friend (I only have 1) 🤣 then I will give you a cuddle or a handshake but when I do I don't have any emotions for it. Does that make sense? I struggle to be articulate when I explain how I'm feeling and I always end my sentences with, does that make sense because it doesn't even make sense to me sometimes hahahaha. Can anyone relate to this or am I over thinking it? Is it jusg my ADHD? It's strange because my adhd symptoms are only really noticeable when in a social situation. At home I'm not too bad, as long as I'm being my artistic self and doing my pokemon cards 👀 (I know, an adult who collects pokemon cards) 🤣 I'm okay. I would describe myself as quite intelligent but then again, who am I to judge myself. I have poor self confidence issue in respect of work performance and constantly feel like I'm being watched, judged or walking on egg shells. I'm internally shy infornt of authorative figures however I believe I mask it well being overtly chatty. Nothing in my behaviour feels natural. I notice everything. My speech, my eye contact (too much or too little). I want everyone to like me and I do this by being a people pleaser and wanting to help everyone. Honestly though, like I said, I'm in Level 6 social work and my life is painful. I'm sure there is a lot more I struggle with but I can not remember them all at the minute. What's people's thoughts? Any advice would be greatly appreciated.
I'm about to get assessed after finally going to a doctor and she could immediately tell I'm probably autistic, I hope it goes well my life will be so much better
My Autism Assessment report was completely different. It was not very professional presented as yours. It had errors of what I said about my background as they never wrote down what I was telling them. My assessment was in done in 2014 and it took a year before I got a report which was only two pages long. I got my diagnosis at the age of 51 and because of my age my mother was unable to help me because of her age in the 90's with dementia and my father had died in 2006. I did not tell my older sister and I felt I would not believe me when I said that I think I have autism. Even if she did agree to help me, she may have not been able to come because of her work commitments. I was not even given advice on how to explain my diagnosis to others or my GP was not asked for evidence. When I was diagnosed with autism, my GP was not informed and did not receive a copy of my assessment report in brief and in full as I had to do myself. I feel that the reason that they were not very helpful was of my age and that if I was younger that they would have been more helpful. I was refused post diagnostic support because of my age as they only supported adults up to the age of 30 as their service is small.
Hey Katrine. Yes, we really belong to an unlucky generation. I've only learned that I had Autism this year, although an ex girlfriend who had been caring for Autistic children told me she was certain I had Autism. I'm in the process of getting diagnosed now, just so that I have an explanation for many of the failures in my lifeline, of which I am certain they are related to Autism. Now I've gained a sense already, that for society, as a person over 50, you might just as well not exist. After a life of painful experiences, we are left to ourselves and must painfully witness how children are being cared for where we were just left to be judged for our inefficiency and over-sensibility, stuttering as we were forced to look in people's eyes. I have almost the same situation as you: mother has dementia, father died in 2002, brother lacking any sense of empathy for my problems. At least, we can be glad that we have that chance nowadays, that we are no more the weird ones who won't commit themselves to social norms. I am used to living in pain, as an outsider, misunderstood, etc. I have developed abilities to raise myself beyond those problems, even though the pain never really goes away. Anyway: all the best to you.
Katrine Basso I was diagnosed last year at age 49. Getting to the stage of my assessment was a long hard slog. My GP was awful and said "I don't know what you want to know for, they can't do anything for you". But she gave me the referral and I know a lot of GP's just refuse but I was prepared with a case to present. I had the diagnosis on the day of the interview and a year later I am now seeing an Aspergers specialist through SLAM (Maudsley). My life has been wrecked by struggling so much and struggling alone. My family still do not accept the diagnosis and still think I am just a pain in the backside because thats just who I am. Anyway my NHS specialist is teaching me how to read my body and recognise the anxiety when it first starts. By learning to identify it at its starting point I can at least have some control over what happens next, by getting away from the situation that is causing the increased anxiety, or at least knowing that its coming and that I need to deep breathe and prepare myself/change what I am doing. The GP was wrong, the higher functioning you are, the more it is possible to learn something/anything that can help you deal with this disorder. I have hope that things can get easier for me, whereas before I had none. Do you do mindfullness? This is the starting point for learning how to identify what your body is telling you. For me its with the eyes but for many people it starts with the stomach. Just knowing this changes things.
I'm not quite 30 and my doctor doesn't think that's what I have and also told me even if it is there is no help or support for me afterwards; upwards of two year wait time for an assessment. 😞
I was only 15 when I was diagnosed and I went through the same experience. I didn't get a report like this, just a single letter saying I have ADD, OCD, social anxiety and 'mild' aspergers. The psychiatrist even wrote 'mild' on the report? Got no support for aspergers or my learning difficulty, not allowed take medication for the ADD because of my history with anorexia.
I have part two of my assessment next month -- this is the ADOS part, and I'm worried that, as an older adult, my masking skills have surpassed their ability to pick up on my issues. Thanks for this video; it's very useful.
@@whichwitch96 I've just got to trust that, even if its wrong, the process of elimination is still a good thing. I've had a lifetime of being let down by the system, but the vibe I got at the centre was nothing like that.
Thank you. I am currently going through the assessment process and wondered what happens next. I’ve completed the questionnaires the psychologist has spoken to my mum, the psychologist told me they’re going to discuss my case in their nextMDT meeting.
In your video about the assessment I forgot to mention, that he recognized that I don’t use (much) mimics and gestures.My sensual issues he didn’t mention and he didn’t ask much of that. I just could tell him that I’m very sensitive in hearing. He didn’t analyze me that much as your psychiatrist did. So. It. Is no miracle that he related symptoms to my PTSD. 😀 I have to learn and find out what I can do, what I should avoid and how to handle sensory overload etc.
I hope when my report arrives, it's even half as detailed as yours. It can be strange to have a diagnosis as an adult. I've been handling my day-to-day pretty much okay for 40 years now. So I'm at a crossroads as to what I do next. Luckily there's plenty of support in my area so I should find my way.
This report is incredibly in depth compared to what I got. Twenty weeks wait is such a long time, though! I had to wait six weeks and that was torturous enough.
it finally Came? Looks like you had Capita do your Assessment, thank Heavens! its ASOS where all the Nightmare Stories come from, Capita seems to have a bit more Nouse to them, so I am very glad that it seems they did it! Mine was done by NHS "Child and Family" Services absolutely *Aeons" Ago. I am glad you got the Results and answers you were looking For :) it must be a huge weight off your Mind!
All Good things come to those of us who Wait :) I am not sure who Runs/Ran the ADRC I am afraid, still, at least you didn't have the Nightmare of ASOS. Twenty Weeks! good Greif, and I thought it was bad enough waiting around 12 weeks or so for My PIP Report.
Oh Right, thanks :) I had not actually heard of it Before I am Afraid. I am oop North you see, but I was in the Hampshire area last week as part of a 2 Week Holiday in Milford. Sorry to hear that the Charity is Closing Down. :( oh well, Time for Supper now, Speak to you soon! take Care :)
I never had anything like this when I was diagnosed at 15? I'd like to understand my aspergers better so I can better learn to cope and adapt. It was like I was just told I had it and abandoned.
Was this a private or NHS assessment? I'm going for NHS assessment end of month and I'm terrified. I've been battling for 10 years with misdiagnosis and I feel like I'm going to be let down again :(
NHS. I went to autism oxford after my disability adviser at university raised flags. They then referred me to the ADRC charity that did my assessment. I didn't have any contact with my GP but also didn't pay anything. Good luck - write everything down, take notes - make sure they're aware of your struggles and don't miss anything
This is so good! Is that an autism diagnosis via the NHS? It's so lovely to see you're a Christian too. Thank you for all your explanations. Many thanks; Catherine xxx
This young lady in the video seems to talk quite well. Whilst reading the report. I'm sure maybe face to face or in social it may be much harder. In text I'm perfectly capable its for me verbally and face to face which is very difficult. I say that as maybe my type is less functional as I thought. Reading out loud I will struggle very a lot. Maybe because I'm not very the young as pushing forty. I feel its developed or got a lot worse where signs should be obvious straight away. Mainly friends of the which I have very few of. Recognise my behaviour . ATM I'm said with traits of ASD but o know how my brain works. I'm aware of how I function in public or social . I'm pretty sure someone would recognise it straight the away of how I try to communicate but often physical hand movements makes it easier for me to try and talk to someone but often people find me so difficult. I'm extremely difficult with girlfriends and as usual back to single where I feel extremely lonely. And feel noneone there to help me or support me. Because of how I'm so aware of my surroundings in public . I'm highly attentive to detail or peoples behaviour or actions. Often I don't understand others but it always seems like everyone is so inattentive to anything. Like they are sleep walking and don't care about proximity. Where my behaviour in public is noticeable straight away but because most people seem to be so not noticing they don't realise just how uncomfortable they are making me feel.
How can I tell my mom to get a diagnosis? I legit can’t even do that, I’m pretty sure I have ASD But my mom does not think show. She say I’m *SHY* AND HAS A LITTLE *SOCIAL ANXIETY* It bothers me. She does not even know how many friends I have. I don’t even know what to consider a friend! I’m quiet! She’s seen me cover my ears. She’s seen me doing repetitive things. (Walking around table a lot) or flapping my hand. Someone tell me how to please.
If you are younger, (a minor), tell someone at school and they can connect you with a diagnostic doctor. If you are an adult, simply research your butt off for a local doctor or even one a little farther away. For both, like someone else said, TELL YOUR DOCTOR. The doctor can't diagnose you, but he can refer you to someone who can :) I know I am late, but maybe you still need it.
This is the best post ever on explaining the process. Thank you so very much. Was it NHS or Private. If private can you please give details of the clinic. Thank you
Where do I need to go to get this same assessment and get mailed a hardcopy report like yours? I live in the United States of America, is there an online version where I can take the assessment and receive the same official report from where I am?
Thank you for this video. Glad u got what u wanted and can get some support. Do u know if you have to have a parent with u if you are an adult? I'm 24 and am looking to get assessed. Thanks
Melanie P no you don't need a parent with you but they prefer it so they can see about your childhood. If you have pics and videos of your childhood I'd take those with you if you don't take a parent. Good luck
where where you told you can get a mentor, that fallicly, seeing as the organisation you have to go once you diagnosed is a charity, unliike other conditions, where they have service within the NHS :(
Do you know anything about ADOS appointments because mine is on 24th October and I’m terrified that when I get there I will cry and have a meltdown because I do that a lot :( I’ve been waiting for about 2 years for this and I don’t want to screw it up.
@@irnbru6442 Hey, I've only just seen this 🙈 In terms of advice, accepting the diagnosis is a good first step and allowing yourself to recognise why you do the things you do etc. Diagnosis enables you and others to understand yourself 🙂 Also, try and make sure that the help you need and are entitled too will be put into place following diagnosis
@@BecomingAutism Thanks for the response. I meant a US autism assessment. I was just diagnosed with adult autism but it was just something the psychiatrist diagnosed me with after 2 years of seeing me. And it's something I suspected, but I didn't know there were assessments like the one you describe. Thanks.
@@alexq3498 I've researched and there's no standard diagnostic criteria for adults with suspected ASD in America. As you said, family doctor will refer someone to a psychiatrist for an assessment
I have all the symptoms of autism. I have humor and I understand cues In a hyper sensitive way. I bet empthes maybe a form or new condition. Are you married? geezz very beautiful.
