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A message from Leanne Cooke who lives with Pompe disease 

UF Health
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26 сен 2012

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Комментарии : 8   
@rcortez3899
@rcortez3899 8 месяцев назад
My newborn son was just diagnosed with this, praying for his health
@user-kj9ir5eg4l
@user-kj9ir5eg4l 3 месяца назад
There is a treatment! I hope you have a great team working with you!
@valeriel2212
@valeriel2212 Год назад
🙏🏼🌼 hope you’re continuing to make progress to keep yourself strong. I did a test and have one of the variants.
@naominzaomi1202
@naominzaomi1202 2 года назад
I hope you're still movingly on with your exercises, I suffer from muscles weekness, I keep falling aii the times, visited several doctors and no diagnosis, I think I will follow your advice, eating healthy and exercises, thanks for sharing
@Diamondsmuggler
@Diamondsmuggler 2 года назад
I know this is 4 months ago but I have been through the same ordeal and have been to many doctors, X-rays, MRI test, blood work and not a single person told me what’s wrong. How long have you had you’re symptoms? And are you doing anything as of today?
@phillyjilly
@phillyjilly 11 месяцев назад
Same here no specialist helping
@maheshgunjikar6435
@maheshgunjikar6435 Год назад
My son pompe deses and deth
@bonniemoerdyk9809
@bonniemoerdyk9809 Год назад
😥
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