Thank you for taking the time to make such a thorough video. I'm 56 and was diagnosed 16 years ago with "undifferentiated connective tissue disease". However, new symptoms (and a creatine kinase of over 1,300) has led to a new diagnosis of "inflammatory myositis". I'm tapering off a 1 month course of steroids, in addition to taking azathioprine. Thankfully my labs at my 2 week check showed my CK levels had dropped to a normal 64! I'm so thankful to learn that I can (and must) continue with my daily exercise at the gym. I was unfamiliar with the term "Zone 2 exercise" but it appears that that is what I am currently doing. I don't feel pain from it, just extreme exhaustion and arms & legs that feel floppy. Now that I know that it is okay to feel this way and I'm not damaging myself further, I will continue like exercise is one of my daily prescriptions!!!!
I just found your website and you are the first person who have made exercise an giving. I have been so skeptical about exercising. How should one proceed when starting exercise after being diagnosed? Before my diagnosis I went to the gym, I walked on the track, I did water exercise, I walked at least 1mile 3 times a week through my neighborhood. I'm eager to follow your advice. Thank you.
Thank you, Doctor Bai. I was diagnosed with Myositis this year. I avoided steroids until March. They helped me immediately, but then, It made me gain 15 pounds. I need to go with the hard way. It’s so so tough.
