Since being diagnosed I've gotten many questions about Adult Onset Still's Disease, how do I manage my mental and physical well-being? How has my life changed? What changes did the pandemic bring for me? What is the difference between adult onset vs childhood onset? I figured I would take some time today to sit down and answer some of those questions.
Please understand this is not the full picture of AOSD and its effects on my life it's just a snippet I'll bring up more as time goes on. Also understand this is my experience with AOSD other people have different experiences other people's answers to these questions will likely be different.
The brain fog has been very strong this last while so I likely missed stuff when answering the questions if this isn't the picture for you please feel free to leave a comment so other people that stumble upon this video can better understand what they're going through or better understand what their loved one with Adult Onset Still's Disease is going through.
Sorry about the wind. Much like I'm not in control of my body, I am not in control of the weather.
If you have any other questions leave a comment below or head over to my instagram stills.maggie.mc
As promised some resources as well as some other RU-vidrs links. If you have other resources or want your information in the description so people have more AOSD creators/content to follow please let me know! The community helped me through the earliest part we can be there for others whatever stage they're in.
Mayo clinic AOSD information
www.mayoclinic.org/diseases-c....
Breikas Life I was only able to find her on RU-vid for now.
RU-vid / breikaslapbandandcooking
This channel doesn't have current content but does have AOSD content
• Video
20 мар 2021