Advances in the care of people with Ehlers Danlos Syndrome, hypermobile type

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This webinar will discuss the types of EDS, the genetics as well as current care and management strategies. In addition, an international research study as well as support for those impacted by EDS with be explored. The presenters for this webinar are Dr. Shweta Dhar, medical director of the Baylor Medicine Adult Genetics Clinic and associate professor of molecular and human genetics at Baylor College of Medicine and Lara Bloom, President and CEO of The Ehlers Danlos Society.
Evenings with Genetics is a community outreach program sponsored by the Department of Molecular and Human Genetics at Baylor College of Medicine and Texas Children’s Hospital.
Learn more about Evenings with Genetics: www.bcm.edu/departments/molec...

Опубликовано:

14 мар 2022

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Комментарии : 7

@l.mcmanus3983 6 месяцев назад

Excellent presentation, I am glad I found it. The crazy thing for me is that I have known of hEDS and suspected that I have it for more than 20 but did not realize until recently that it might be the root cause of many the medical issues I am experiencing. I feel like I might finally get me life back by understanding what is going on and developing effective management strategies.

@Gobbldeegoo1 3 месяца назад

Thank you for making this presentation available for us normies. I’m just learning about this disease, someone I care about needs my help managing this disease, and just… thank you.