Advice if you've been diagnosed with POTS || Dysautonomia Awareness Month

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This video for dysautonomia awareness month is for anyone who has been newly diagnosed with POTS. My team of dysautonomia warriors from across the world are here to share their best pieces of advice and words of wisdom with you from what they've learned through their own POTS journeys. These are the things we wish we'd have known when we were first diagnosed with POTS so I really hope you find it useful!
POTS survival Kit: www.amazon.co....
chronicallyjen...
Postural Orthostatic Tachycardia Syndrome or POTS is a condition I've been living with for 5 years now. POTS is a form of Dysautonomia (or Autonomic dysfunction) which causes high heart rates and a plethora of other debilitating symptoms. This video lets you know what it's like to live with POTS including symptoms you might expect and how it can make you feel to live with an invisible, complex, chronic illness directly from the people who live with it on a daily basis. Please subscribe as there are still more awareness month videos to come.
People in this video :
Chronically Jenni - chronicallyjenni
Lizzie Draper - ooh.dizzy.lizzie
Rich - mypotsofview
Chersti - okaychersti
Jenny Cole - jennycole1988
Mikki - potsiewotsie
Fern - fern.andforest
If you liked this video please subscribe to my channel :)
You can also find me on other social media:
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Twitter: / jennipettican
Amazon Store: www.amazon.co....
Facebook support group: / 785786465114178
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Email: chronicallyjenni@gmail.com
Patreon: / chronicallyjenni
Kit: www.kit.co/chr...
Blog: www.chronicall...
Music Credit: www.bensound.c....

Опубликовано:

17 сен 2024

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Комментарии : 15

@Dulcimerist 3 года назад

Compression calf sleeves like marathon runners wear really help me with my EDS-related dysautonomia and POTS. I also try to stay hydrated, and sports drinks help with that. For medication, Catapres has been a miracle for me, since it increases blood volume and flattens the BP spikes while preventing the BP crashes by taming the overactive sympathetic nervous system that often accompanies Ehlers Danlos syndrome.

@ChronicallyJenni 3 года назад

Yes i know a lot of people find compressions socks useful hadn't thought about the calf sleeves. With my EDS my leg joints arent a fan of the compressions so thats a great tip thank you. Hydration is definitely key! not heard of that medication definitelt have to look into it thank you x

@Dulcimerist 3 года назад

@@ChronicallyJenni Catapres is a brand name for Clonidine. (I tend to use the brand name, since its generic name sounds too similar to a different medication.) Catapres is the alpha-2 agonist blood pressure medication that calms the overactive sympathetic nervous system (fight or flight response) that seems to be common in people with EDS. It works on the same system as beta blockers, but instead of beta blocking, it tells the body not to release so much of the chemicals that hit the beta receptors.

@penelopepolinsneemeyer4757 3 года назад

Coconut water is great for replacing electrolytes if you sweat excessively like I do xxxxxxxxxxxx

@ChronicallyJenni 3 года назад

I've been trying to have more coconut water recently too! x

@sarabartel4285 3 года назад

Shower stools are a game changer for sure! I love mine. Showering takes a lot out of me, so I switched to taking them before bedtime, so I can go and lay down after and not feel like I'm losing a chunk of my day just to recover.

@ChronicallyJenni 3 года назад

I do exactly the same, take one in the morning and I'm wiped out for the day x

@michellerogers5269 3 года назад

Thank you for this. I have my tilt table test next Thursday. It's been quite the journey to get a diagnosis but it's almost here.

@ChronicallyJenni 3 года назад

No problem Michelle hope you found it useful! I'm sorry it's been a journey but glad you're finally getting the tests you deserve and hopefully they bring some answers and the right treatment. I'm only a message or email away if you need anything, You're not alone! Spoons & Love x

@gracefulh3545 3 года назад

this was really helpful for me! especially Jenny's advice about like, recognizing that diagnosis isn't the end-all be-all but rather the first step.. thank you for putting this together!

@ChronicallyJenni 3 года назад

So glad this was helpful x