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AFTD Webinar: What You Should Know about Primary Progressive Aphasia (PPA) 

TheAFTD
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Dr. Emily Rogalski from Northwestern University in Chicago explores aspects of primary progressive aphasia that all persons living with FTD, their families and their healthcare providers should know. Her presentation addresses PPA clinical syndromes and the latest in diagnosis and treatment of the disorder, including speech therapy and augmentative and alternative communication tools. She introduces PPA pathology and genetics and discusses their relevance to current and emerging areas of research.

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25 июл 2024

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Комментарии : 13   
@SNAPVegan
@SNAPVegan 4 года назад
Would appreciate a similar series for caregivers of PPA patients that also explains when a POA is necessary.
@MrEdkym
@MrEdkym 2 года назад
Thank you. Very helpful.
@manjulacaldera1097
@manjulacaldera1097 3 года назад
Wonderful talk! Thanks
@stephanieliangos9658
@stephanieliangos9658 4 года назад
is there a place where we can find the slides?
@thepowerpuffgirls7914
@thepowerpuffgirls7914 5 лет назад
I have PPA, undiagnosed officially. I'm scared to be diagnosed, becuase then it would be set, opposed to having some doubt. I have many signs of PPA, which are slowly getting pregressinglu worse.
@sacredrain7757
@sacredrain7757 4 года назад
The Powerpuff Girls I just got a preliminary diagnosis yesterday PPA. I felt very different after it was official, but it was always the truth. Don’t cut yourself off from resources while you can make use of them, my friend.
@jameswillson2000
@jameswillson2000 4 года назад
@@sacredrain7757 I'm 23 can I too have this condition? I strongly feel like I do :(
@sacredrain7757
@sacredrain7757 4 года назад
James Willson Do your research, log your symptoms and talk to your doctor, who may need to see a list of PPA symptoms from an official source and details about the symptoms that you feel fit your experience of yourself. There are other maladies that present similar symptoms, but it is for a team of doctors to sort it all out. I am waiting to get an appointment at the Johns Hopkins FTD clinic, but getting my affairs in order is just good manners anyway. I have a will and advance directive, power of attorney, health care advocate document giving her the legal right to make decisions for me and an anatomical gift form registered. There really isn’t much a doctor can do to alter the course of this illness, so I have re-examined my values and am making the best I can of every moment. Doing the emotional home work is a private journey to peace that only you can make happen, but a therapist can help.
@jameswillson2000
@jameswillson2000 4 года назад
@@sacredrain7757 wow, you really have gotten things squared aware. Does this illness just make you mute or will it eventually lead to a inevitable loss of overall cognitive ability?
@jameswillson2000
@jameswillson2000 4 года назад
@@sacredrain7757 thank you so much leslie. Truly, I thank you. :)
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