All about Ehlers Danlos Syndrome

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In this video all about EDS I'll be covering
What are the symptoms of EDS?
What are the types
What are the lesser known symptoms
What conditions are associated with EDS
The process of diagnosis
Different treatments
Research into EDS
P.S. The zebra is the symbol for EDS because when you hear hooves (a lot of the symptoms of EDS) you expect to hear a horse (many other conditions that EDS can be misdiagnosed as) not a zebra. The zebra represents EDS for this reason, as it it often takes a long time to put all the symptoms together!
Feel free to ask any question! References are on the end slide.
Disclaimer: I am not a medical professional. The Chronic Notebook should not be used as a substitute for medical advice. Always seek the care and opinion of your doctors.

Опубликовано:

15 окт 2024

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Комментарии : 14

@annab13 Год назад

The chronic fatigue is caused by having to tense your whole body up in order to keep yourself from dislocating or clicking painfully. It's from the extreme constant pain. It's from depression and how it affects your circulatory system. Your heart, blood, etc..

@the_chronic_notebook Год назад

Yeah I definitely think it's really multifaceted! Thanks for sharing.

@Truerealism747 9 месяцев назад

What symptoms do you get in your blood

@anabellik 9 месяцев назад

Pretty much all your organs are made of connective tissues, so everything from heart to liver, kidneys etc. is somewhat weaker and takes longer to regenerate. When I was a child, I never played with other kids, my parents almost thought I had autism or something like that (which funnily enough I don't). I was just constantly tired and running around, jumping and fooling around just felt uncomfortable because of my joints. I wasn't diagnosed until much later, but I wish it happened sooner, maybe my social life wouldn't have suffered as much.

@Truerealism747 9 месяцев назад

@@anabellik I now no I have asperger's ADHD heds lost my mum to severe ms heds now son's diagnosed asperger's ADHD heds do you have pains everyday

@megansnyd74 5 месяцев назад

Hi, Nia. Can I download the PowerPoint presentation used in this video? I am doing a research paper for University on EDS, and I need some example PowerPoint presentations to follow so that I can create one for my project. Thanks so very much for this information.

@cynthiabemis2959 Год назад

My son who had type 9 passed away at the age of 33 even though he had no heart problems his heart was the first to go

@Truerealism747 9 месяцев назад

Couldn't they see it on echo so sorry about this just lost my mum to severe ms heds

@donna8916 11 месяцев назад

Thank you ❤ very helpful 😊

@cynthiabemis2959 Год назад

My son had type 9 e d s it started off with his bladder for surgery he had dental problems, he was knocked knee , his elbow looked like he was dislocated, he had problems with his hearing and problems with his eyes and he had a big head .

@Truerealism747 9 месяцев назад

I have heds nightmate