Maddie, Carol, Cassie, and December share their Alport journeys. Hear about diagnosis difficulties, ripple effects for other family members, and why all four remain positive and hopeful. Learn more about the accompanying ASF "Diagnosis Stories" Survey Project and read the March 2021 Full Report which documents the experiences of 240 Alport patients: www.alportsynd...
Thank you to the generous sponsors of the “Diagnosis Stories” project: Chinook Therapeutics and Travere Therapeutics
23 мар 2021
