My friend died on ALS 2 yrs ago. And worse, I prepared keto nutrition plan for him, but it was not followed :/ I listed several studies that this can be benefitial, but probably it was not enough. I hope that this approach will be more discussed/used in the future.
I put mother, now almost 84, on a ketogenic diet for several reasons which I will not discuss here during the COVID pandemics when I took her to us. (She had arthritis in her knees for decades) Then she returned to her place and decided against my advice that it is fine to eat sugar. A couple of weeks later she fell in her home and was unable to stand up. Sadly, I was in the mountains that time so it took 3 days to alarm the police who found her on the floor. She spend a month in the ER. After that, they realized that she had a paralysis in her leg - first they though she is unwilling to cooperate in doing the rehab but fortunately someone realized that it is actual paralysis in one of her feet. After two more moths I took her to us and immediately put her again on a ketogenic diet. After about a week (the transition was really hard and she almost could not come out of the bed) I realized there was no paralysis at all. About a year later, when she still was with us she again decided that eating apples and some sugary "foods" my wife left in the kitchen is "not that bad". That what she later confessed to me. A few days later she fell again and was not able to stand up. She broke her hand - which meant she could not walk due to her arhtritis. In the hospital they again reported that she is "unwilling" to do a rehab. I asked her about it and she told me she cannot move her leg. Again, after about a week of a ketogenic diet that was gone and she could have moved the leg again but she had to wait another moth for the hand to heal so that she could walk again. Now she again lives in her place, she gets nurses comming to her house every day. But every time some of her friends give her some sweet treat she starts falling again. It is very hard to convince her that she should be very strict with her diet. I am convinced this must be some neurodegenerative disorder like ALS but of course as long as there are no symptoms there is no way how she could be diagnosed. The doctors think it was spinal stenosis which spontaneusly resolved and dismiss the possibility that the ketogenic diet could have prevent further paralysis...
Wow! You did your darnedest to help out. It’s so hard to see family and friends keep getting sicker and sicker, but not be willing to even try a carnivore/keto diet. Such conflicting advice, though, and mostly the opposite advice from doctors.
I just put together a new approach for my mom, nearly the same age. ACV , lemon juice, cinnamon and a tiny bit of honey in lukewarm water first thing in the morning. Calms the adrenals and reduces stress hormones. Than veggie juice with bonebroth collagen, zinc and 200 mg coQ10 . The collagen to give the body the building blocks, the co q10 the give energy to the heart and organs. During the day Vitamin B complex with minerals , all essential. Before dinner nattokinase , cleanse away calcium deposits, and after dinner Vitamine D3 1 000 IU with K2 mk7 200 IU with another 200 mg co q10 for blood thinning and heart health. If this sounds crazy , look up paleo powder ( I believe a dutch company) speciallized on ketogenic food supplements ( organ meats in tablett form ). Wish you well
6 месяцев назад
Thanks for sharing your story. I already gave up to convince my mother (over 70) and some other friends to eat less carbs. I tried hard to explain what for fuel are carbs, proteins and fats...Hm, in reality the apple is the apple and has not much to do with carbs...because they see no sugar on it ! 😔 And it was not only my mother but also some other younger friends...What a pity!
There is a great Canadian documentary on google or RU-vid called . Hope for MS. Your mothers symptoms sound more like MS . MS you can go into remission and flare again. Either way they both benefit from keto and carnivore diets in the documentary ALS ;MS ;Parkinson’s ;Dementia / Alzheimer’s are all CAUSED! by diet. They are not genetic . They are not idiopathic . The sugar spikes from carbohydrates and starches create a spike in glucose in your blood just like sugar at a micro vascular level it does damage to the vascular system. dementia starts 10 years before symptoms so it’s happening at a micro level undetected for years. . If someone still insists on a starch like potato then eat it last. Glucose blood meter studies have shown that if you eat your veg first then your protein and last your starch in what is a sugar … in that order you can reduce the glucose Spike by up to 30%!
Have been on carnivore before my diagnosis Dec 2023 My neurologist was horrified I only ate meat and refused poisonous medications. At the same time he is amazed at my slow progression and stated he normally only sees patients twice, I will be on my 4th visit this month
dear, imagine how much you could improve by taking medication AND doing your diet.. medication is only "poisonous" if you take it in excessive amounts and if the side effects aren't compensated by the benefits.. everything is a chemical, including the air you need to breathe.. water can also be "poisonous" but you still drink it, right? researched medication could make your life better, im sorry people made you believe the contrary @@misscaulkhead
@@carol127v ive only been offered Riluzole which slows progression down by less than 10% so since diagnosis gives me an extra 5 weeks. Side effects are nausea and feeling lethargic so wheres the benefit? I believe 100% my diet is giving me more time without side effects. There are trial medicines with increased benefits INCLUDING REVERSALS "so ive read" of the disease but we CANT have them because they need to run another 2 yrs to be approved yet the covid vax was rolled out within 6 mths and look whats happened there. 🤔 Im in the UK and believe me they dont care about us here. They'd rather sit back and let us die and thats exactly what they are doing. No one has offered me help to live, only to die 😢.
My uncle died of ALS in 2015. He was far and away my hero. He was the strongest, toughest, smartest man ive ever personaly know. He was a marine corp combat vet of the veitnam war(bronze star, 2 purple hearts) and after that, a carrier police officer(highly know and respected in the california highway patrol) The NVA couldnt kill him. Slime on the streets at home couldnt kill him(although they tried). To see my hero, the man i always thought was made of iron, waste away the way he did, is insult on top of injury. After having seen what ALS does to a man, i wouldnt wish it on my worse enemy!!! The end of our mortal lives is coming for us all, but i pray that we can all work together to make it NOT like that. R.I.P. SSTG Kenneth Dale Woods 1950-2015
My neighbors both died within a year of each other of ALS. I remember thinking what are the chances of a married couple both dying of ALS in middle-age… 🤔
My grandfather was taken by ALS and my father a glioblastoma. If I had known about keto for either of them. I found Keto for my epilepsy just months after I lost my father.
Very sorry about your father. Not epileptic, but the evidence from early epilepsy treatment is what convinced me to go low-carb (typically under 50 grams a day) in addition to using it to reverse my spouse's pre-diabetes.
I have ALS and went carnivore a year ago. It's helped me a lot, but I cheat and have noticed decline in my motor skills. Also lost my voice over 3 years, very frustrating...
High fat carnivore, ideally grass fed, with 50g lamb or beef liver for high nutrient density was recommended to me by my functional nutritionist. It cured multiple issues for me.
@@L.OB-1 Thanks for your input. I feel fat and protein is what our bodies have needed right from childbirth. Sadly it's been realized, too late for many...
I have been using Ketogenic Diet and Ketone Supplements on many patients with different types of acute brain injury (esp strokes and ICH) with very satisfying results in the ICU.
It's amazing what happens to the human body when you fuel it with its proper, species-specific diet. Amazing and then quickly obvious once you've pondered about it for a minute.
I had been wondering if keto could help. My dear friend died of ALS in her mid 40s, leaving behind 3 young children. A tragedy that still hurts. My sister has stabilized MS (no better, no worse) on a keto to carnivore diet in addition to infusions of Ocrevus. No one would know based on how she presents. It was scary at first because she had to wear an eye patch since her eyes would not coordinate given double vision and she was losing motor function in her legs, but those earliest symptoms are resolved.
Glp-1 stimulates TRPV1 via its neurolymphocrine axis. Insulin stimulates more TRPV1 that stresses out cells and mitochondria by forcing glucose into the cell independently of the blocked insulin receptor and putting too much calcium into mitochondria all leading to glucose and lipid oxidation in excess of the cell’s antioxidants and then mitochondrial damage and cell apoptosis. Therefore it is logical that the ketogenic diet without the carb/glucose stress is incredibly beneficial.
There is increasing evidence that LDL going up is NOT bad - only if it is malformed LDL is it bad - only recently have tests started to differentiate. Malformed LDLs appear to most commonly originate from hydrogenated oils (such as seed oils) or highly processed foods.
As a naturopath for 25 or so years, I've come to believe that all ailments can be either cured or bettered by diet (no carbs) and intermittent fasting.
Have been on carnivore before my diagnosis Dec 2023 My neurologist was horrified I only ate meat and refused poisonous medications. At the same time he is amazed at my slow progression and stated he normally only sees patients twice, I will be on my 4th visit this month
Thank you for everything you are doing to advance *real science* and to teach us what you have learned about the impact of diet on disease states. Your work is very appreciated.
"The modified ketogenic diet was roughly 60% fat, 30% protein, 5% fiber, and 5% net carbohydrate by weight and comprised primarily of whole foods (green vegetables, meats, eggs, nuts, seeds, creams, and natural oils). Our patient was encouraged to eat to satiation at every meal and not to restrict his calorie intake.". Hmmm...natural oils? I wonder if they were seed oils and he would have done even better without them?
The cook book and resource materials Dr Phillips team offers his patients does include olive oil and coconut oil (along with animal fats, butter, cream etc) and in the eating out section it cautions against seed oils. So presumably this subject will have received that same advice. As a NZ dairy farmer he probably had a good taste for real food. ;)
Dr.Ben Bikman says insulin resistance contributes to _every_ non-communicable chronic disease. So I guess we shouldn't be surprised that a keto diet would make excellent progress against so many of them. But I'm surprised anyway.
The myelin surrounding our neurons is made out of cholesterol. Eating keto provides a lot of cholesterol. And when insuiln goes down from lack of carbs, then growth hormone goes up, which builds new cells. Result: HEALING.
My husbands mother died of Als and a year later my aunt died of ALS. I’m hoping and praying, that it is not familial. I’m hoping and waiting to see if there are any studies, on the helpful and hopeful benefits of a ketogenic diet😮
I proposed a research project recently to see if we could find sufficient evidence to prompt an experiment that would test the prophylactic efficacy of a ketogenic diet in populations that are high(er) risk for neurodegenerative diseases. I would love some insight/guidance if you're willing to offer it, Nick.
Don't think you're going to get patients to adhere to a prophylactic KD in an interventional trial... esp not an RCT... just not feasible. Basically need episode for this + basic/mechanistic studies
I put my mother on a ketogenic diet. Then she was in hospital. She was diagnosed with (i think it was the right) foot paralysis. The doctors though it was spinal stenosis. I took her home. Afer a week on ketogenic diet the paralysis disappeared. A year later my mother secretly ate sugary "food". She fell and in the hospital all the suden the symptoms were back. After another week on a ketogenic diet the paralysis, again, disappeared...
I recomended a carnivore diet to someone I know who was diagnosed with the Bulbar ALS and she slightly regained some function but the best part is she has not declined going on 4 years now. I only wish she would have started sooner.
Agreed. FYI Dr Phillips uses fasting - intermittent and/or extended up to 7 days - with many of his patients. Eating is limited to 2 hrs per day. There are YT talks where he and his patients detail their protocols.
Studies like this underline the importance of *the maintenance of mitochondrial health* by *avoiding sugar[s] entirely and all carbohydrates possible.* Fast food and highly processed foods, with their added sugar/fructose, plus their micro-plastics and corporate-farming herbicides and pesticides, are killers.
Nicholas could you please make a video, drstaling the cause and effects between Glaucoma and fructose? Because I googled if Fructose made glaucoma/ vision lost worse. Could you please make video about or at least redirect to information that has a simplified answer for my question. Thanks again for your videos, an invaluable source of information for the world.
@@michelesimpson2237 i had something similar to me. Omnivore in 2019, started to wear reading glasses. in 2021, went vegetarian i needed to start wearong them everday. my eyeseight without my glasses became pixelated and blurry. 2022, went keto and started to eat liver and salmon for the first time, and water fasting. my eyes became brand new again, haven't worn glasses since then, no eyes strain no headache after carbs, keto saved me from blindness. i'm an omnivore with monthly liver and salmon in my diet. works perfect for me. i'm a much stronger bodyweight, and i got more blood in my body becuase of it. keto is my metabloic miracle.
My glaucoma has been a little better since starting to take Vitamin A ( retinol form ) in December. I am cautiously optimistic. I already eat keto with I.F.
@@carolcole570 when i used to water fast 2-3 days once a month, i noticed my eyes would be blurry, then suddenly become sharpen and clear. i googled that question and i got answer from it. turns out the cells in the eyes can become effected by autophagy, reconstructing old cells into new ones. if you ever have time and energy for a 48 hour water fast, you might enhance autophagy, alongside with physical exercise. your eyes healing. make sure to take supplements if you ever intend on doing that. you're amazing as it is, good luck with that Carol.
@@sincereexistentialist4100 I would do that in a heartbeat, Nick, but for my diabetes……..and having to closely watch that I don’t go into melt down mode. I stick to my OMAD rigidly, but two days ago, suddenly went into a meltdown and my blood sugar dropped dangerously. I had to quickly remedy that. I had had an extremely filling meal, and several hours later had that happen. It scared me, because with diabetes I know how easily it is to go into a coma. At my age and needing to be around to help my family, maybe it’s best if I forego that one. Heck, just taking the Vitamin A uncorked all my doctors and started a massive argument. We finally compromised that I will have Labs every four months. March is when I will have the first ones. Have a blessed weekend, Nick, and thank you so very much for your wonderful suggestion.❤️
I diagnosed with Bulbar onset ALS 5 years ago. I didn't do any diet, I just naturally slow progress. However I started a more strict version of carnivore diet called "lion diet" last week. It's the ultimate elimination diet, only consume grass fed ruminant meat, salt and water. I really hope this can stop the progress, if not reverse.
I make the argument often when trying to convince people to try a proper diet, that even if you have a disease that a keto or carnivore diet can't fix, then you still should eat this way simply because of all the health benefits the diet provides. Doesn't it make sense to heal all your other issues so you only have to deal with one? How much better off will you be fighting that illness when the rest of your body is no longer sick from a bad diet? There is proof that people on a keto or carnivore diet do so much better when going through chemo than someone who continues to eat that horrible standard American diet. It makes no sense to me to not give the diet a try when you are sick. However, I know people who have reversible sicknesses such as T2D (a problem I fixed with diet) but they refuse to give up eating ultra-processed crap and high carbs. I have come to the conclusion that if you are too lazy to do your own diet research then you will rarely, if ever, try or stick to a better diet.
Dr. Berry and Dr. Phillips on this video think keto could help people with Parkinsons: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-_FsuO_dOR4M.html
I had a Sciatic nerve pain that totally disappeared after I went carnivore. If I want to experience the joy of that pain all I have to do is eat Asparagus or Brussell Sprouts. Diet matters.
Why wouldn’t the medical community embrace the KETO, carnivore, fasting and OMAD to possibly increase longevity, quantity of life of patients with ailment!?!?
Why? Firstly, because it would put them out of a job. Secondly, because the pharmaceutical industry would fail, and considering they are the most profitable industry in the world, and prepared to spend billions on training the doctors and selling propaganda to the patients, they won't allow this information at ANY cost.
Tomorrow I am planning to eat two orders of chicken Parmesan. I do I.F., so want to see if this keeps my blood sugar down ( it ought to ). If it does, I am considering ordering things like this quite a bit……two orders. No veggies except for the tomato sauce on top.
6 месяцев назад
That's great! What annoys me is Hal Finney didn't get to try it. 🙁
Would be interesting to find out if some types of ketogenic diets are better, like carnivore or a diet with more vegetablea or fats, or if it doesn't matter and most important thing is that it's ketogenic.
in the film version he starts fooling around w/his nurse / care giver I think it was / a better relationship is protective … so. glad to see there are alt solutions to debilitating conditions. (or once thought). heard of a few carnivore reversal of 20+ years of MS the other day. balanced diets might be ruining us all more than we wanna think.
I find this incredibly interesting. I have wondered if ketogenic diets could help this, like the diet has helped some other neurodegenerative disorders. I also wonder if he might benefit from a keto/carnivore diet. The mother on one of my patients has achieved complete remission from her MS with a carnivore diet. She is off of all meds.
It does seem that a ketogenic diet (fat burning) is far better for overal health than a "normal" diet (carb burning. Could it be that we are meant to use fat for energy most of the time but are also able to use carbohydrates during times when a fatty diet is unavailable, therefore avoiding starvtion and death?
@@carolcole570 thank you. I have found that digestive enzymes vontaining lipase help, & eating some salad veg at the start of a meal to slow the fat digestion.
@@helenahandkart1857 Helen, my online Dr. Berg PLUS my medical doctor at Emory BOTH recommend taking Ox Bile when your gall bladder has been removed. Plus, I do keto and I.F. every day. Looks like you and I are not on the same page. So sorry. But, have a blessed weekend.
James Yeager the RU-vid gun guy died of ALS not too long ago. He tried KETO and fasting. It did not work. He had the slurring of words first then sheet a couple years his diaphragm stopped. Rip.
Pfff, not really. A change in diet (from carb-eating to Keto) involves many changes, and NOT purely & solely that the patients is now burning Ketones (like, the effects on the Microbiome). We don't even know the mechanisms of ALS disease, which means that you cannot link Keto burning in and of itself to improved symptoms. Now, burning Ketones (as opposed to carbs) reduces the generation of free radicals, but does damage to mitochondria necessarily lead to ALS? NOPE, so no mechanistic link between the two. You haven't isolated anything, so you can't conclude any links between the two.
Nice content. Do you maybe have an opinion on diet and skin aging? In many studies there is an association of IGF-1 and reduced skin wrinkling. But I havent found any long term data. Do you think it could be detrimental to a youthful appearence to eat in a growth promoting way long-term? (Which i guess is a diet high in animal protein with lots of fast carbs).
@@Goldenhawk583 yea ive read that but its mostly about acne and only some short-term changes. Im more interested in long term prevention of wrinkles and changes in skin texture.
@@wtssmaller And that is what Im talking about.. not just acne, en the change is long lasting, not just for a week or a month. The thick is to stick with the diet.. if you dont, the problems will come back.
@@Goldenhawk583 You didn't understand what I'm talking about. High protein diets or high IGF-1 makes the skin look better in the moment. But long term in increased cell growth could be detrimental. And that info isn't gonna be included in someone's report. That's why im asking the scientist for their opinion
@@wtssmaller ah, , so peoples actual experiences with the carnivore diet doesnt count, gotcha:) We are carnivores btw, a species appropriate diet kinda makes sense for optimal health, just saying.
Hi Sir Plesse help me my name is Mosharraf I'm From Bangladesh pleases help me Sir I'm suffering MND ALS disease two years I'm 36 year old please help me Sir Plesse
Is there a reason why in principle those on a high fiber and high carbohydrate diet couldn't produce enough ketones via the colon's fermentation producing SCFAs to get a similar effect?
A couple of guesses: 1.) The amount / type of ketones generated that way aren't of a sufficient amount or the correct type. 2.) The effect results not just from the presence of ketones, but also the absence of carbs
The metabolic ketosis caused by a ketogenic diet is the result of liver processing fatty acids during times of low blood glucose. The particular ketone produced is Beta-Hydroxybutyrate. Liver cells cannot convert the ketones for energy and release them into the bloodstream. It is the preferred energy source for most of the body's cells. I would expect any produced in the gut would be consumed by the intestinal epithelial cells as their preferred fuel and not pass through to the blood stream. I haven't heard anything about exogenous ketones having any effect on neurological conditions in people eating a standard high-carbohydrate diet. Brain cells do not use Fatty Acids for energy, but function well on Ketones. There is something about the metabolism of ketones that has more effect on brain cells than just energy. A ketogenic diet has been used to treat a kind of epilepsy in children. There are anecdotal reports of ketogenic diet treating Multiple Sclerosis. It may also have use treating other neurological conditions. This deserves further research.
Eating fiber does NOT increase SCFAs in the gut, for starters. You have more SCFAs in the gut on a low carb diet. Fiber can produce them but they don't make it into the body they get flushed.
I am under the impression that the human colon isn’t very good at taking up anything via the cells lining it, apart from water. So those cells might be able to use some ketones produced via fermentation but not send on an appreciable quantity to the rest of the body. I mean, we’re not proper hindgut fermenters like gorillas.
No, because when you eat carbohydrate in high amounts insulin shuts down ketone production and drives fat into storage (assuming you are not a type 1 diabetic).
