My family's donation page: www.youcaring.c... My name is Anthony Carbajal, and I have ALS, also known as Lou Gehrig's Disease and MND. ALS awareness. Let's fight together!
It is not rare. Lifetime risk is 1 in 250 for men.( yes this is considered clinically rare) Yearly there are 2 people for every 100000 that are diagnosed. It seems rare when viewed from this perspective.
i agree with you and was naive about this initially… when i first diagnosed. a rare disease label leads and perpetuates a lack of urgency. thank you for being an informed advocate. through the years of my advocacy i’ve lost countless friendships to ALS online including … and recently my mom passed away from ALS and i’m devastated tbh. but mom lived 21 years with ALS and i am still here despite the typical 2-5 year prognosis based on statistical averages. i guess what i am saying is, numbers can be misleading… ALS is definitely not a rare disease destined for solely old white men. i wish your numbers were misleading but they’re not. it’s scary… a fact most people don’t believe or want to hear. but i hope families like mine know there are reasons to be hopeful. treatment candidates are in clinical trials in the pipeline along with genetic engineering around the corner that cured a mouse model with fALS. I believe AGI at deep-mind will lead to novel treatments… i’m rambling now but there are reasons to be hopeful my fellow pALS.,..much love to you for properly correcting me.
@@acarbajal945 Sending love from England Anthony. Back in summer 2014 one of our housemates did the ice bucket challenge and we all laughed so hard at his shrieks and gasps and here you are 9 years later keeping up the good work which started back then. You are an amazing man and a credit to your beautiful late mom.
I promise you, there are people out there that have cures; it’s just that those cures never become within the mainstream media because cures don’t create income
It's so unfair. You see all these bad people living for what seems like forever. And then there is people like you.. but you make me happy. Just being you. Keep going strong
Oh Anthony...I know that I am just a random stranger on the internet, but please know that I am praying for you even now as I write this. My heart breaks for you, for your family, and for anyone having to face this horrifying disease. Illness is scary, and unfortunately there's no way around that. I don't know if you are a religious person or what your beliefs are, but I believe in a God who performs miracles. I will be praying that you get your miracle, that the progression would be reversed and that you would live a healthy and happy life. Even if you don't believe the same, I hope this means something to you. You are never alone.
Or you could donate money instead of just sitting there talking to a god that was brutal enough to allow ALS to claim and overrule peoples lives. This is a tough video to watch when I imagine how a person slowly becomes a prisoner in his/her body. Like many diseases, no human should live with this.
I would like to think she donated money, but I doubt it. She stated she was praying, but did not state that she donated, so the conclusion is pretty easy to figure out. This guy and everyone with ALS is certainly in my thoughts, but not in prayers. No point in prayers when there is not a god to answer them. It only seems like a cop out to show support when it is really not support at all.
ForgingMyWins ....well your comment was a bummer! I both completed the Ice Bucket Challenge and donated to ALS. It's ok if you don't share my beliefs, but I dont think being rude to strangers is ever warranted.
My father passed away from ALS when I was 16, I know how it feels to lose someone very close from ALS, but not to have it myself so I can't imagine what you're going through. I know how devastating it is to watch someone deteriorate away and not being able to help, feeling so hopeless. Stay positive, now with the awareness and research they'll finally be able to find a cure to get rid of this disease.
My heart breaks for you and your situation. Until the viral ice bucket challenge, I never knew anything about ALS or how debilitating it could be. There is hope. Stay strong. Never stop fighting. Never give up hope. The thoughts and prayers of millions of people are with you.
Im a night nurse at a 24/7 totaly care vent unit. I work daily with many people with very progressive ALS. I take on their pair and weight daily. I cry almost every shift but try to stay strong. While I allways love and hink of the families, often us unseen care givers who become very attached to our paitents are the last ones holding hands and turning patient every min or hour as we watch them becoming unable to tell us the needs. I think you have courage and I will pray for you often. we have a wonderful computer at work where our paitents can use their eyes to spell out words or sentence. I love having jokes and talks as much as I can but my heart is sad because I often get too close. While any loss to ALS is so hard for a family, I go thru the loss of ALS often and in silence. I guess Im manking no sense except if you or family has a good care giver please remember they go thru a loss with you.
I'm having an extended healthscare right now (little invisible twitches). I keep googling it (being an aspie sucks). But I really want to do something for ALS. I was thinking of a pop up restaurant that serves fish or sushi. "Eat Sushi, Fight ALS"
I cried. You are so brave and I pray God wraps his arms around you and your family. What you're doing is giving hope to others in your situation and that's truly a blessing.
Dear, you're doing great. Feel touched at heart. My husband is living with ALS for more than nine years. We keep fighting each day. Be brave, and keep fighting. Look forward to more videos.
God bless you Anthony. You're a good man, a brave man. (Who are the 68 heartless fools who gave this brave man a thumbs down? You are bad people. One word for you. Karma...)
Hey, supporting you and your mom. I have faith that the impact that you make by having the courage to make these videos, to talk about your illness, will inspire a young future doctor or researcher to find the cure to this disease. Keep fighting buddy.
This is an honest and brave video. Opening up on RU-vid or any internet platform is a huge deal. Health is such a scary topic because it's so personal and this video is powerful. This video is the best thing I've watched all year.
Anthony, we your colleagues are thinking of you, even from afar. I have ordered the print of the month and plan to spread the word on my social media. Your work is of the highest quality and deserves to be seen and appreciated. Authentic documentary photography. I can see a compelling book from your photos (and stories maybe) that we will all come to treasure. I can't imagine how impossibly hard it is, but please know you are not alone.
You are a sweetheart and have been put on this earth for good reason, which you are fulfilling in helping your mother and raising awareness for this disease. You should not have to suffer like this. My heart goes out to you.
I lost my baby sister a month ago from ALS, she was 14 years old. Everything happend from 0 simptoms to death in a year. She was the youngest case documented And its really scary to hear that. And im glad to hear what you felt, because she didnt want to complain... I wish you the easyiest way out as possibble, no matter how brutal it sounds.
my beautiful aunt is dying of ALS. and its sad to see her go through this.. it is a horrible disease . she it trapped in her body. and she does not have long.. in 2 years , she went from active to inactive. she is the arts and crafts person of the family.. talented , and loving.. and now to see her like this.. ALS is horrific. and i just want her to stop suffering.
RAPH FELIX ALS is a symptom of acidic and unbalanced body. Taking balanced nutriiton and strong anti-inflammatory peptide can help. Just ask Mike McDuff from this video. @2
RAPH FELIX i just found out today that my aunt was diagnosed with als as well! it took the doctors months to figure out what her problem is, she has problem with her speech!
you are so amazing and you just make me want to cry for what you and your family have experience and will continue to go through. Your honesty is inspiring! Hold on and keep finding the joy in the moments you have.
Do what you love. Do everything you've ever wished to do, the best that you can. Continue to fight this, and make the very best of your life. You are amazing and strong. It's a terrifying thought, and I feel so badly for you, and all these people who go through this. I believe in you. X
I'm so sorry you have ALS! I hope they find a cure from all of the ALS ice bucket challenge donations. If they don't please make sure you live your life to the fullest, you are a very strong person!! Much love
Bless your heart Anthony. May God give you strength to continue on this hard journey. I'm pray somebody finds a cure for you, your family and all the people with ALS.
My mum is 83 and had great difficulty speaking and swallowing much of anything. Food was getting trapped in her throat and blocking her air way was happening more often. she battled for each breath. The riluzole did very little to help her. The medical team did even less. Her decline was rapid and devastating. The psychological support from the medical centre was non-existent and if it were not for the sensitive care and attention of our primary physician, there she would have died. There has been little if any progress in finding a cure or reliable treatment. Acupuncture eased her anxiety a bit. we taught she gonna lose the battle, we all did lose faith, but today she is very healthy after using treatment from Health Herbs Clinic, this tincture was sent to us by a friend of mine who also has A dying diagnosed (PLS) she explained how this Treatment works and reversed her PLS. I was so desperate to try, Today am so happy my mom is back to her feet and It has been a complete turnaround with her speech, she no longer needs the feeding tube to feed, the treatment is a miracle. She recovered significantly
This is great that you have shared this! Let people know. Just remember to stay strong. Your video will go a long way. It will touch soo many people . Your voice is speaking to millions. Understand that you are here for a reason and the way you stand strong will be the example for others to stand strong in their walk too. Don't ever hold back what's on your mind. Your voice will show everyone who you are . And how great a person you are !! That you are thinking of other people when you are going through a rough time. Do what you keep on doing by looking past the roaring seas. I will watch all your videos
Anthony, what you're doing is really good. You're strong and I can only imagine how hard it must be for you to take care of your mom and also be aware of your own future conditions. I am sure a lot of people doing the bucket challenge don't even know what ALS is, but with videos like yours, people can understand better to what they are donating and how important it is to donate. Keep fighting Anthony! I'm sure your actions will change not only your life, but the life of many others in the future. A warm hug to you!
There is hope in YOU; never before has it been possible for the world to have access to the heart, emotions, struggle, and reality that is ALS. They say that anything put on the Internet lasts forever. Your experience, kindly documented, will exist FOREVER. One day there will be some kid, somewhere, who will be doing research on ALS and s/he will find this. And they will understand something no one in our time has yet to understand. Then one day, a young man will be diagnosed with ALS and he will get a shot - like a person at risk for rabies in our time- and he will continue on living. People diagnosed in the future will be as someone who's stepped on a rusty nail now. And the reason that will happen will be because of people like you. Every voice adds up. Every story has worth. You are brave and you are helping; and you might just live for many decades yet. Doctors can only give one averages. Not all of us are "average".
omg you and your shirry feminism or liberal shit. im just saying, and you should stop judging if you dont know. mind your business. of course bad things makes me sad, but i dont see man around me crying so much
I wasn't responding to you... I was responding to sujulover whatever, i don't know how to work this google plus BS, but since i guess you responded to me, what i wrote had nothing to do with feminism hahaha
I wish I had words, I could say, that would matter. Your diagnoses, pain, fear, your family, it shouldn't be happening. You are a true inspiration, to share your story like this. I know that you will bring smiles and sadness (more smiles) to those who subscribe to you channel, and it will bring change. I will think of you often, sending hope your way and to those you share life with.
You rock! You're facing this rotten disease with such composure, at least, more then I would. In your other video you apologize for your tears, don't you dare! You have every right to be emotional, and really helps us see just how devastating it really is. While I don't have ALS, having survived colon cancer, ulcerative colitis, severe arthritis, but to name only a few, I know exactly how you feel when you're forced to witness your own decay. It's so difficult at times, and I know it's so easy to give up, but you give me the courage to keep on going, I admire your courage so much, thanks for posting, and please, keep on doing so, and if you need a shoulder, I'm always here to help! All my hopes, take care!
My goodness, it's like I am looking into a mirror. I feel for you. I was originally diagnosed with MND after college years (22-23) although 19-21 I was misdiagnosed with Cerebral Palsy, Idiopathic Polyneuropathy, Drop Foot; Along with over 4-5 different mental illnesses. I appreciate your bravery. Thank you brother
Thanks for the video. I remember watching your video when the ice bucket challenge was big. I felt for you. my dad and grandmother passed away from ALS. I tried to imagine what you were going through mentally. A few months later... Bam! I start getting symptoms. weakness trouble eating, talking difficulty. I was diagnosed with ALS November 19th 2015. I now know what u are going mentally. I hope you are staying strong. Thank you for bringing awareness. It could very well be beneficial for my own children. thanks again!
Check out Deanna Protocol now. If you can't afford buy the main essentials ala carte. Google ALS and coconut oil. Go to winningthefight.com Do not give up hope. My husband newly diagnosed a month ago. He's 52. He was superman and then started limping. Now he walks with GREAT difficulty. He starts protocol tom. Fight it with an attitude. Some people live 10 years with ALS. God bless you !
+sunfishdana thank you. I'm military so I'm not worried about any cost. talking to other people about it is way more important than the actual treatment to me. I know what this disease does and you can only fight so long
I also was diagnosed earlier this past February. I'm 19 years old, I've had to transfer from Princeton to Stanford University, to be close to family. It is a struggle, but I believe that we're all struggling for a reason. I wish you luck and happiness 😄
I'm so sad but what a beautiful soul you have. My son helps me I have MS its not easy but like you I fight to. I will be looking for your videos you are an inspiration to all. You can fight and win keep strong positive and most of all have faith. I know your mamas proud. Much respect God Bless
All these diseases just suck. I have MS too dx at 19 and man this shit is ruining my life. Keep your head up Anthony, life is what you make it. Lets hope all the money being raised helps researchers come up with something more than just one form of treatment.
I am so sorry for your recent diagnosis. Fight. Be strong. I know I'm just a RU-vid viewer, and that you posted this 3 years ago, but if you or your family needs anything, reach out here as well. I will pray. God bless you. ♥️
I've watched all of these ice bucket videos not fully knowing about ALS, this video should be posted alongside every ice bucket video so that the world knows fully about ALS and it encourages people to donate. You are such an inspiration to everyone!
My second grade teacher died from als on Monday. He was my favorite teacher and always had a smile on his face. He was such an amazing person and I miss him so much.
I'll be praying for you Anthony. Praying for you and the scientists who are looking for a cure. I have donated money for this helped raise awareness. I didn't know what it was but after the whole ice bucket challenge stuff I asked my dad who's a doctor about it. When he told me I began donating and raising money for it. Do not give up hope, miracles do happen. You're in my prayers.
You know what's worse.....you see all these youtubers giving away free thousand dollar phones on the street for clicks, twitch streamers giving away thousands of dollars to random other streamers......but here you have a guy who needs thousands of dollars to just live and they're nowhere to be found. Shows just how petty and self centered society has become. Even the people in NY whose grandparents died of the virus because Cuomo put infected people in with them...they don't care...because they're too busy being happy with the life insurance policies they're spending. And this reveals the truth of so called influencers, and just how petty and small they are, and how giving them any attention just results in the degradation of society. And when all these people get old and ill....they too will be wondering why there is no one on their bedside....never realizing they're living in the world they created.
Have donated, will continue to. My best friend is practically guaranteed he will be inflicted with ALS and it is common in his family. You are a great man and we are all here for you sir. Just know that you have us all behind you. You are a model of courage. Stay strong man!
Two years ago I went to see a neurologist, and although ALS was not a high likliness, my doctor told me he wanted to 'rule it out'. It was ruled out, thankfully, but that's when I first heard about the disease, so I went home and researched it. It truly is horrifying, even for there to be some vague possible chance you might have it. I don't believe in God, but I'm praying to every diety on the off chance that one of them might be real, for you and everyone with this terrifying disease.
***** If you pray to all of them, youyr chances of NOT pissing the real one off significantly increases than if you were to just gamble on a single diety. But, it's official, you're following me! I don't mind. :)
***** Thanks. I can't see it right now but I promise I'll give it a look. Much respect. If you don't mind me asking, what do you think about the ALS challenge. I know opinions are diverse on the subject and I respect yours.
***** Well that's just human nature. Maybe you're not that way, but I am... When I found out that I do not in fact have ALS, I basically put it off my mind until this 'fad', and I am sickened to my stomach that it took a face to put behind the disease to really realize how much I care. It's human nature and unfortunately I am no different than the many in this regards. I'll respond to your link when I see it. In the meantime, please keep responding to my posts. You're my favorite person I've met on youtube.
Sending lots of love, hope and prayers all the way from India. Stay strong, Anthony. You are going to fight against it and live your life at the fullest.
Hey Anthony, I am watching your video from Switzerland. I just wanted to say that I am impressed about your openness about this situation. I've just learned more in 8 minutes 57 than in 32 years of my life. I will share this knowledge as far as possible! That's the part I can play... And I will throw a bucket of cold water on my head! You made me a supporter!
I'm so sorry for you. in my country there's an illegal drug called 'Boropin' and it helped a bit to the person I know suffering from ALS. other than that, constant intake of vitamins and minerals as well as trying to have as much gratitude towards life as possible should be beneficial. I'm a broke ass med student but one day I'll donate loads to help bring awareness to this disease and I'll dedicate myself to it completely. stay strong mate!!
OOOOOHHHHHH my Heart! I felt so much from this video! Bless his heart! My prayers are with you Anthony and I will wrack my brain for ways to come up with some money to donate to the cause! I promise! I am going to your donation page next and see what is possible for me to do. Bless you!
thankyou for talking ..... my father-in-law died from MND aged 70 years. His symptoms started with muscle weakness in the hands as you described ...... you will help many people by sharing your journey.
Thank you for sharing this information that I know is really tough for you to talk about. I saw something on social media today that broke my heart and will make your fight harder. However, if people are informed, this can help the battle with ALS and promote research for a treatment or a cure. Stem cell research is the primary research being done to combat ALS, and unfortunately there is a war on stem cell research being waged by the uninformed public. What most people don't know is that embryonic stem cells are collected from a blastocyst five days after the embryo is conceived in a petri dish, scientists aren't killing babies that have a heart or a brain or cute little feet, hands and faces. Stem cells can also be collected from adults and are found in bone marrow, fat tissue and blood. Other excellent places to find stem cells is in amniotic fluid or cord blood. If people were informed that saving cord blood or donating it to science could not only save the life of a family member in the future, but also help save people that suffer with terrible illnesses, like ALS, they may be more inclined to stop the war on stem cell research. With over 10,000 babies being born, just in the US, every single day there should be enough stem cells being produced to support research in a humane way. Informing the public on stem cell research and how they can donate and support it, humanely, I believe, will make huge progress in helping you and many like you find a treatment. God bless you.
Anthony, I hope you read this. I'm some random guy from Canada, but this is devastating to see you and your family in this state. My heart goes out to you, stay strong, live. And I truly hope they find a cure for this.
Wow Anthony, I’m sooo sorry for your dreadful diagnosis. I’m definitely am going to be lighting a candle for you every time I go to mass. God bless you Anthony
Wow. Thank you so much for making this video. My grandmother passed away from ALS, and my dad is going through it now. I often feel so alone because it’s hard to talk about and people don’t want to discuss it because it’s so heavy. I’m terrified that it’s most likely my future, because the hereditary strand runs in my family. Awareness needs to be raised. Your so brave, thank you. It’s a horrible disease. Devastating.
I had no idea how serious this was until I watched this video. I've seen people doing the ALS challenge and I think most of them are dumping a bucket of water on their head for the fun of it, not because they really care about people with ALS. I don't think most of them even know what ALS is. I can see how devastating it must be to figure out you have ALS and I can't even image what you're going threw. Stay strong and know that God loves you, and he is the ultimate healer! I know this comment may get some hate because I'm a Christian and I'm talking about my religion in public, but that's okay. I think some people turn their back on God because he lets people die that they care about, but sometimes God chooses to close doors and open other ones. I truly believe God can heal you if he chooses. Call out to him! He is the ultimate healer and anything is possible with God! He loves you and it's not his will for anyone to suffer. Stay strong and continue to fight! You can conquer this disease! xxx
Yeah at first I thought I was liking what you were saying, until you rambled off about this God bullshit.. Shut the fuck up you stupid bible thumper...
Notice how you say that if you believe in God, then you will be healed... Stephen Hawking as an individual has disproved the existence of god in so many ways, and has denied God's existence for decades. He has the least reason to believe in God, and his beliefs are completely based around science. Notice how he has lived 50 years with ALS...
MistaCrave it's still not a cure for hawking though. id rather live 5 years than 50 years if i had als...stephen has a lot of his identity in his intelligence, but his life still must suck being 100 percent paralized. ust think of what he could have accomplished with a normal body =(
My father died of A.L.S. when I was 18. It is a horrific way to die and God bless my mother who took great care of my father at home until his last 3 days when the at home respirator failed. Once they did a tracheostomy at the hospital, it was pretty much over for him. I will never forget the fear in his eyes during his last hours knowing that this was his ending. I have heard over the years that it does indeed run in families and here in Whiteside county there is a family like yours where fathers, sons and their grown children all have it or has passed from it. It scares me to think that my children or grandchildren could some day have this. I pray for a cure because NO ONE knows whats this disease is truly like and of it's cruelties until they have lived it. My prayers are with your mother as well as you and I will follow your story. God bless you and keep you and will pray for you tonight
Hi Anthony, a friend of mine posted your RU-vid video on her face book. My best friend from high school had ALS as did her mother, I know what it does to the body. I cried when I watched your video, I have a son and daughter your age. The pharmaceutical company doesn't have the answer, they treat symptoms, not the cause. For 25 years I have search for answers for my daughter's mysterious disorder, I have read many books over these years which has lead me to an answer. I have research papers that say ALS is oxidative stress which is triggered by a person's genetic predisposed sensitivity to toxins. The good news is that oxidative stress is treatable, but you won't hear that from the medical world. There is a natural healing that will eliminate the oxidative stress and allow the body to heal. I realize that many caring individuals are doing the ice bucket challenge to raise money to find the answer to ALS, but the medical research will continue to search for many years without finding an answer. Oxidative stress can be treated in a very simple yet powerful way. Oxidative stress causes many of the disorders we see today, and it is treatable, please google it to see for yourself. See my RU-vid video about my daughter at "acrodynia" which is oxidative stress as a result of a high sensitivity to toxins. Please contact me if you would like more information ... leave no stone unturned.
I have als too bro. Mine is sporadic, not genetic: and bulbar onset. I'm sorry you're so young also. I had my dental amalgams removed and that helped in my ability to chew and swallow food - and also to not chew the life out of my tongue and cheeks while eating. I also have completely changed my diet.That helps too..
sam jose @ 1:04 ii Have a Question when He say Have Appetit? Appetite? Feelings in His ✋ Hand what??? Does That word mean??? i Have Noo??? clue??? Does? it mean? a Lost of weak muscles very Scary ii Have a Question ii Have to ReSearch more it's Been about 4🌎 Days Now My Left ✋ Hand Feel very Numb Numb and can't pick up a cup of water Not to Good But i Have Noo pain ii Got to make a Doctor appointment very scary and ii think the BrightSide Free cannabis in the mail and a Big tin can ii Remember My Favorite TvShow of StarGate Universe and The Nurse Got that aLs Disease inn the TvShow and she was washing clothes and Rub Her ✋ Hand it Look Like? she was pain ??? ii Dont??? know??? iiiiiiiii am scared of Doctors i didn't seen ones when i was the age of 18 and Going to Be 30 in 8-18-88
I landed here after searching for causes of night spasms and chronic neck stiffness. I was captivated by your courage and had to watch. Man, you are one strong person. Thank you for taking time to contribute the remaining years that you have on earth, that really shows your true color.
I was diagnosed with MS two years ago. Sometimes I think "Why isn't there cure for MS??", but there is medication for MS nowadays, even though it's not a cure... I really hope there will be a cure for ALS soon enough for you. I'm also a believer in Jesus and I pray for a miracle for us both. Have faith in Jesus, whatever happens.
Fight the good fight my friend. I have MS which I know is not as devastating as ALS but the progression and disability is similar. I fully understand some aspects of what you are going through and I am very sorry. You and your family are in my prayers right now. God bless you.
...PRAYING FOR YOU ANTHONY!! PLEASE DO NOT REJECT GOD, HE CREATED YOU, HE LOVES YOU AND HE HAS THE ANSWER JUST BELIEVE, HAVE FAITH, THERE IS POWER IN THE NAME OF JESUS!! GOD BLESS YOU!! DON'T GIVE UP, I BELIEVE IN MIRACLES...
How about you donate to the cause instead of praying, because then you would ACTUALLY be doing something helpful, instead of whispering into your hands like a lunatic. Prayer has never done one fucking thing to help anybody.
God is fake, he/it is not real and he did not create anyone. If there was a God he wouldn't let people suffer, ever. Keep your faith and donate from your wallet so that the real healers, scientists, can find a cure for this disease.
BayArea510 You obviously know absolutely nothing about religion if you think God "Let" people suffer.... if he let people suffer it wouldn't be a religion we talked about.
My heart goes out to you and I am sorry about the diagnosis. I hope you are encouraged that 88 million dollars has been raised this year for ALS research. A cure for this can be found in your lifetime. Stay strong but it's ok to cry. I was diagnosed in June 2014 and I cry every day then feel better. I have a great support system and I hope you do too. Take care and stay positive.
+Xtremely “firedragon” Fast My legs get tired easily, I have twitching, I also feel like I have trouble breathing but I think this is anxiety. Sometimes I am also tripping
TRC - Destiny & FIFA Videos I'm 17, body wide twitching, a little high CK levels, brisk reflexes, back pain. Had an EMG after 6 months of the symptoms, and it was normal. Conclusion: BFS. Hope it stays like this. PS. all this, apart from the back pain (started 1 month ago), started 8 months ago. Hope everything will be good for you as well.
***** Can you say something nice? or u can give some treatment or something. Im not a guy love marijuana, i dont smoke it but i have watched a video about this. hope u can understand that.
You deserve the best. I hope there is a cure out there that will help you and others around. You are an inspiration. Your mum/grandmother must be so proud of you!! All the best xxx
My heart goes out to you and your family. My daughter recently had Guillian Barre Syndrome at 9 and she experienced a sudden onset of symptoms much like those that you were describing of later ALS. It was horrible, but we knew all along that she'd get better and that it was temporary. To hear this story in reverse is absolutely devastating. Thank you for speaking out about this. I hope that your message and all of the publicity raised by the ice bucket challenge can help get funding to help find better treatments for you and others.
