ALS patients share about their life 5 years after 'Ice Bucket Challenge': Part 1 I Nightline 

The officer is so AMAZING! And all those who donated to her their sick days

I have lived with cerebral palsy for my entire 58 years. I am not a QUARTER as brave as the people living with ALS in this video! I applaud their bravery and wish them the best!

I was diagnosed with ALS on April 1st, 2008 at 17 years old. Still alive and doing pretty okay considering I've had it 15 years and am only now receiving my 1st feeding tube and possible breathing assistance machine before the end of the year. Other than that and needing to be in a wheelchair, I've been a lot better than I'd have hoped! I hope this is encouraging to those who share in my disease that it's possible to hang on and even hope for treatment, and hopefully one day, cure! Having faith in my God, great support, and finding the humor in everything really helps me. I hope you find those things, too! :D

I was raised by my grandmother who passed away because of ALS. Tomorrow would have been her 89th birthday. What a great gift this is. I hope a complete cure is on the horizon.

My stepfather was diagnosed with ALS in 2009, died in 2010. The disease progressed so fast. One day he was shuffling to walk, then in a wheelchair, then couldn't talk, by the time we had him measured for a wheelchair, he couldn't even use it. It was devastating to everyone to watch someone die. The diagnosis naturally sparked a depression and then anger then acceptance. If there is a treatment, that's so incredibly wonderful. Best of luck to all involved.

Watching my Aunt die from ALS was one of the hardest experiences of my life. The disease progressed in her body too far for her to participate in this study. She missed it by that much 🤏🏻. May God rest her soul. I miss her every single day. My prayers go out to all those suffering with this vicious disease and to their families 🙏🏼

What a wonderful husband Sarah has. God bless them.

Wow what an amazing guy to take care of her like that. That is true love!

Much respect for the police officer that feel in love with the lady Detective that is pure love

You have to start living your life and not taking it for granted, tell the people you love that you love them and hug them regularly.

Pray for these people. Seeing them fighting everyday is inspiring.

I lost my dad to ALS in August of 2021. I was a senior in high school when the ice bucket challenge was going around. It’s crazy to think about how this was just an internet trend, after having experienced losing a loved one to it.

You have the best man right there!!!

That Sarah, bless that amazing gal. I have never seen someone so strong.

This is so heartbreaking… I met the most wonderful man.. After divorcing 1998.. raising my son alone and dedicating my time to putting my son first, after my son graduated college and moved out on his own, I met the most fantastic man early 2022.. We got engaged 4 months later only for him to be diagnosed with ALS.. This is the most unforgivable illness… I amazed at his strength and vulnerability, and how brave he is being for everyone… I love him and I can’t do anything other than support him, help him and make him smile and reassure him, that I will be there ALWAYS.. I pray through the Christ Jesus Jehovah helps us find a cure SOON!!!❤️

She is very very lucky to have him in her life. She is very lucky to have been able to live those days of adventure. And she is lucky to have the time she does. It's hard to forget that we take everything for granted, the small things.

Wow that’s amazing, good people and a great husband.

I was a CNA In a nursing home 1994-1996 and remember one patient named Sheri that was in her 40s and had ALS 😢

I hope they find a cure. I hope they get better and recover. I hope these families get better 🙏

praying for all 3 of these beautiful people

What a blessing! ❤

Sarah and Lonnie,. I'm in tears.

Omg this made me cry

Damn the cop having the tears roll down his cheeks killed me . As a man he has to be strong but behind closed doors hes definely hurting for her . I'm just glad they have each other and to the guy who left her . I got nothing to say about you

I lost my nana to als. It’s a feeling like no other. Knowing that your loved one is still there but in fact they aren’t, saying goodbye to her on New Years morning. I love you nana, Rest In Peace 💞🥺🥰😞

My heart goes out to anyone suffering or list someone to this horrible disease. My beautiful mother in law is now suffering from it. This happened so fast. I wish there was something more I could do. 😢

I am so proud of this lady, her husband and the coworkers who are trying to help. But her husband probably needs more help...it has to be hard working nights and then come home to take care of her.

Lonnie is my hero as well, God bless you guys.

Wow that police officer’s ex-husband was a real pos. Thank God she’s found someone who really loves her.

My heart is overflowing ♥️

my mom contracted it probably when giving birth to me becaues i dont have any memory of her walking perfectly straight...my oldest memory she already had a lazy foot....when i was 12 she could no longer get up by herself so my dad had to take her in his arms to get to the bathroom...problem waas that my father worked as a mechanics teacher and wasnt there during the day...she peed in her chair....not long after when i was probably 13 he tricked her into believing she was going to reab to learn how to walk again....but in truth he was placing her in a nursiing home/small hospital...i can still remember my mom crying each time we left the hospital the first few months...it was enough to break my dad......he began heavily drinking....he would come to fetch me at my friends place totally drunk but would hide it as best he could...one time he drove on the opposite side on the whole way back home....one time he never came to fetch me so i went back on foot (3 miles) and when i arrived he was passed out sleeping on the floor right behind the front door and i had to somehow get him up and upstairs in the bed...i once heard him repeating ''bullshit'' in a whisper over and over and over all night while crying in his room...when i woke up he was gone and when i went in the room there was 3 empty bottles of Geneva Gin and a fully loaded 12 gauge shotgun on the bed and i knew exactly what that meant....then one day my gandma brought him home becuse he tried taking his life by driving intoa ditch BUT as he was very drunk yet again all he managed to do was total his car as he was going way too slow....after another time when he came to fetch me completely runk at my friend'S place, i called my aunt (mom's adopted sister) instead when he got there....she convinced him to go to her place drink a coffee and talk....thats when he exploded crying like a newborn and finally admitted he needed help.....what happened after that is quite fuzzy in my head but somehow, he met a woman who would help him go though it AND became his girlfriend...yes he was still with my mom (technically) but it was just impossible for him to be with her since it almost killed him seeing her decline so he slowly left the house to be with her while my mom was slowly getting out of the nursing home back at our own home with caregivers for morning, meals, bedtime...my dad would come rushing everytime she needed something anytime since....plenty of time i saw that in their heads they were still together but both understood that my dad couldnt handle it... life was stressful because each time my mom got sick, i knew she lost mobility as a result....her mind stayed the same the whole time....by the end she could only barely move the neck and couldnt sleep at home BUT would have the hospital bus take her home each morning and take her back each night while i was the caregiver while she was home...she say ''just show me your games and get food at noon''....so i displayed my video games to her for years becoming an elite player in the process....one day she got sick again when i was 23 and that time she didnt come back from it...she had lost the function to breathe by herself or even open her eyes and she passed away some days later....i later learned that the director of that hospital was suing her for what she owed the hospital...we would have lost the house 2 weeks later....that guy became instantly my worst ennemy and i pray each day that i never see him again because i really dont know how id react... theres more details to it obviously but that sums it up pretty good...im a crying mess now as you can imagine after typing all that...im 40 yo now and never truly healed from it...i cant keep a job because each time there injustice towards me i leave in a rage, i cant obey autorithy anymore unless what they ask of me is perfectly aligned with what i think, i easily fall in love with girls and i wanna save them whenever im able to...because i couldnt save my mom...also i had 2 girfriends and none of them have been able to endure ''being with me'' since they feel as if i cannot be helped from that so they both cheated on me then left....today i rent a room at a 77 yo lady's place who owns an antiques shop...im helping her with that whenever she needs because in the back of my head ''im finally helping mom'' and she knows about it....lets see where this leads me....now i need to go get some weed (legal here) otherwise i get to hyper to sleep so thanks for reading that (those who did) and cya

What an awesome love story. Her first husband did her a favor.

Why does she have to give up her breathing machine in order to be apart of the clinical trials? The stems cells seem to be working for the other guy. Prayers go out to everyone diagnosed with ALS.. If you’re reading this god bless you❤️

My dad has ALS, We are based in a country that wont assist us or cant help us. Its only been a year and he has been recently diagnosed. He is slowly deteriorating... We don't have the ice bucket challenge here, we don't want to lose him... He does not deserve this and we want him around long enough to see his grand daughter get married one day.

What a beautiful love story between Sara and Lonnie. Her husband was a scumbag for leaving her.

What a blessing God is awesome

Such beautiful people wow ! Such an inspiration Sara is ! 💝💝💝💝💝💝💝💝💝💝💝💝💝💝💝💝💝💝💝💝💝💝

Amazing people, indeed!!!!

Lonnie your the best!

I'm 18 & recently have been diagnized with ALS.

Lany was amazing that’s a real man 🙏🙏🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️❤️👏👏👏👏👏

My cousin suffer from ALS and it makes him weaker and worsten everyday hope somebody can help him too look for a medicine they said it's not available in the Philippines and it's so pricey😢😢

Why not let everyone do the clinical trial? It’s infuriating.

ALS is a very cruel and devastating disease. You have to be willing to fight it everyday. It is a death sentence no one should ever get. So much anger, frustration and many pity parties. If you do not have someone there for you through the whole traumatic ordeal then I just couldn't imagine. You just never know what life will hand you. I have been told that only the healthiest people get it. Now even the very young are getting it. Vets and the #1 people that get ALS.

Αγαπημένη μου σου εύχομαι περαστικά .Το ίδιο πρόβλημα έχουν η Αγαπημένη μου Αδελφή ετών 72 & η Εξαδελφη μου 55 ετών .Η Αδελφή μου εδώ & χρόνια έχει Πάρκινσον προσεύχομαι να έρθουν όλα καλά 🙏❤️With love From New York ❤️

Someone better keep an eye on that supervisor. It seems like he enjoys getting friendly with his subordinates

NurOwn needs to be FDA approved now! Its been in clinical trials 10 years now and it has also shown good results!

I’m in nursing school learning about ALS..trying to learn as much as I can !

220 MILLION raise...just to help ONE GUY RIDES HIS MOTOBIKE....GOOD JOB👍👍🏽👍🏿

NU-9, lets hope that is a start. You guys are an impossibly strong set of people that I look up to. There needs to be a covid level hurry on this kind of stuff.

Let's get it to everyone now 👍

Its called MND in UK and a quite few Rugby players have got it and they are looking into bangs to head can cause it and sporty people.

I am not sure how Thurman is doing but he was interviewed in 2022 and was still talking and walking! It would be great to see another update from him as this disease progresses extremely rapidly and the average life expectancy is usually 3-5 years. Couldn't find any info on Sarah Olsen and Pete Frates died at the end of 2019. (4 months after the segment was broadcast)

can't believe bucket challenge was 10 years ago

My dad is currently deal with this ....please tell me which hospital should I bring my dad to ? And what medicine to give him. I will do anything and spend as much money as I need (from Cambodia )

Pray that we find a cure! May God help us

And why are stem cells illegal again?

Im sooo glad i only haVe MS

What an amazing couple, truly inspirational.....sobbing....bless them both xxx

Lonnie, your an Angel!

Like, even though your motor neurons are hosed, you're totally awesome. Way to go, babes!

I'm someone who just found out I have a positive genetic test. I hope they find a cure before it comes for me.

Yea I didn't pour a bucket of water on my head it was a waste of time did it actually help them

How is he doing now? Nobody survives ALS, they working on it, they need to try harder, this disease should exist no more.

This is so scary. I hope there are will be a cure for it...

How is she doing?

Where did you receive your treatment? And was it a trial?

Broad times that step we are afraid to take might just be the right one.I Appreciate you Dr Okubi for your Generosity and for not allowing me Tremble throughout the whole revolution. Your medication for ALS is super tremendous i am delighted i came across your channel on youtube.

How can I get this medicine ????

This was 3 years ago. I have heard nothing about this treatment for my father.

i hear alot of people criticize the ALS challenge and its kind of understandable bc as time went it on it started not being about ALS but a social media fad similar to planking or the milk cart challenge but at the end of the day there's no denying it accomplished what it was meant to accomplish bring it to the front educate ppl make them aware and it raised alot of money so i definitely think the good out weighed the bad but this is just my opinion someone who doesn't suffer from it nore have i ever personally met someone dealing with it so my opinion doesn't matter the only people opinion that should matter and put ahead everyone else's opinion by a marathon are the warriors who are living with it and there family and friends that have stuck with them by there side through thick and thin they to are true warriors and angels

God help us ! We need this mechanical ventilation machine my mother has MDN (ALS) and she's in hospital for long time for that matter we need buy this machine

It’s a shame that not everybody has access to this treatment.

Why is everyone who has ALS not having the stem cell treatment ?

my husband has ASL. he is just to a point he has started useing a cane. He is really takeing it better then I am

I was diagnosed two months ago

It takes a long time to get Drs to even look and test when you don't have lots of money . Waiting 4 mo for the neurology tests just to start to figure out anything.. I'm afraid my muscle weakness is this and waiting 4 mo to see anyone if it is feels like lost time when your limited.. it feels like if you don't have money your not as important. 😢

You can bet if the corporations can make money from supressing information they will try.

💛💛💛

Where is the rest of the story abc? Provide a link. Jeez.

Thanks so much Dr Alaho Olu on RU-vid first of all for who you are as a person thank you for the wonderful work that you do for people in general no matter where you are I will always listen to your podcast and refer people to you because you care about people and the human body I listen to other people but you talk about the true disturbances disorders that means things that are out of order in the human system thanks 🙏 for curing my Amyotrophic lateral Sclerosis disease (ALS)..

All right fight

❤️❤️❤️❤️

Please help me I'm suffering ALS disease one year 😭

I pray that a cure be found as soon as possible. Please my Lord help all those who are struggling with any type of illness . Make their lives longer and comfortable.

🙏🏿🙏🏿🙏🏿

Her ex didn't deserve her. New man is excellent.

Where can I get treatment?

I can’t believe her husband left her. What kind of pathetic human does that? Sickeninng

They need to make stem cell available asap for everyone and for every dasiese it can cure.

Consult an Integrative GP re: bowel cleanse, liver detox, metal detox, parasite detox, diet and pray.

No way they loved eachother if he could walk away and she being so casual about it. Its impossible

Remember the ice bucket challege and all the people that didnt donate to ALS which was the whole point of the challenge, good times.

I just hope the money will actually go to this cause, I wonder????

Where is part 2???

What does ALS stand for?

Oh no

Bende als hastasıyım lütfen bize yardımcı olun vb lütfen çetesini bulun

They should try that with everyone who has ALS

Dr OSABA on RU-vid help me get rid of my ALS disease