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Amazing Grace Dies, after being born with a congenital diaphragmatic hernia 

13WHAM ABC News
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Jennifer Johnson was 18 weeks and five days pregnant when an ultrasound showed something was wrong.
The doctor who ran the ultrasound group called her into his office and broke the news that her baby had a congenital diaphragmatic hernia, or a hole in the diaphragm.
"When I first heard hernia, I thought that it was no biggie," she recalled. "Then he started talking about some operations and that 50 percent of kids with this don't survive, but that was too much for me to comprehend. It wasn't until he said that if the baby survives we'd be in the hospital for months did I think, 'Oh my God.' He said, 'Why don't you call Vinnie?'"
Monroe County Legislator Vinnie Esposito, who had missed the ultrasound appointment to meet an electrician at home, rushed to be by his wife's side. The doctor told them their case was beyond his scope of care and that they would eventually need treatment at Golisano Children's Hospital at the University of Rochester Medical Center.

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16 окт 2024

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Комментарии : 9   
@stephanieuhl4014
@stephanieuhl4014 10 лет назад
what a strong little girl... my heart goes out to the family.
@terrielynhalbert8425
@terrielynhalbert8425 7 лет назад
My son was born with CDH he was born on march 25 ,2017 had surgery 2 days after he was born and he's home with us. RIP little angel xoxo.
@19sharif19
@19sharif19 5 месяцев назад
How much lungs did your son had?
@abfbrooke-feather4755
@abfbrooke-feather4755 7 лет назад
I picked up on this video because of the name.........I have a four year old granddaughter called Grace. Our Grace had complicat ions at birth and had to remain in the hospital for 12 weeks for procedures and neo-natal care. Thankfully she is now doing well. I cannot begin to feel one tenth of your grief and loss. I pray for God's blessing on you both and on the rest of your family. I leave you with tears in my eyes. Each time I am with my beautiful granddaughter I shall be reminded of you brave people. With love, Alan, U.K.
@shellym7655
@shellym7655 10 лет назад
Still makes me cry, even a year later... :'( The CHERUBS CDH community continues to keep their family in our thoughts & prayers....
@alanunderwoodsr8622
@alanunderwoodsr8622 3 года назад
God truly has Amazing Grace!
@thecocksaysmoo
@thecocksaysmoo 7 лет назад
What happened? This is my ultimate nightmare & fear that my son will reherniate. I worry about him 24/7. Uhg! CDH is so horrible. I'm sorry for the loss of Grace, that's my niece's name.
@ahyakrismangao9910
@ahyakrismangao9910 2 года назад
What is the cause of CDH? My daughter died of it last september and I keep blaming myself for her loss because maybe I have done something wrong.
@abfbrooke-feather4755
@abfbrooke-feather4755 7 лет назад
I picked up on this video because of the name.........I have a four year old granddaughter called Grace. Our Grace had complicat ions at birth and had to remain in the hospital for 12 weeks for procedures and neo-natal care. Thankfully she is now doing well. I cannot begin to feel one tenth of your grief and loss. I pray for God's blessing on you both and on the rest of your family. I leave you with tears in my eyes. Each time I am with my beautiful granddaughter I shall be reminded of you brave people. With love, Alan, U.K.
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