Amberly Lago on Claiming Your Resilience When Faced with Chronic Pain - RSDSA 

I'm from 🇩🇿Algeria I find you're strong woman you give me too much courage

Thank you so much for sharing your story I too have the same illness and destroyed to go with it still struggling still fighting everyday it's very hard one day at a time one step at a time Victory comes one piece at a time please remember all of us he didn't have all the medical care that we need for the help that we need we still go on day by day we met by moment what time thank you for encouraging us thank you for encouraging me😇

You are talking about me today. It's been 40 years of RSD/CRPS and I'm in a huge flair that is taking me down. And like you said, I can't go back to that place. I live alone, I've always been on my own. I'm embarrassed to tell people who don't know me as a "chronic pain person" that I'm in pain. But I don't know what to do today. I'm so afraid. I live in gratitiude. On fb my line is "when I'm in gratitude, I find my grace." But today, I'm falling down. And I'm scared. Thank you Amber. I have a little more this minute than I did an hour ago because of you. I'll download your book. Something, right now, has to give. Im changing my diet and that's hard. I'm starting on the 40 plus pills a day to do something with a naturopath. But you know, i recently joined a new church (Unity), of really nice people, and after 40 years in this alone, it might be time to tell a few people I'm a hurting puppy sometimes. Why am I so embarrassed about it. You know, when you spend your whole life trying to be like everyone else...it's hard to say "ok, you know, actually I'm a little different." Without feeling like people are going to think you are having a pitty party. Cause I'm not. I'm just really in a lot of pain right now. And I'm tired. Soo tired. Thanks.

You are a hope to all who struggle with ANYTHING! So glad you gave the glory to God for your Resilience ! God Bless You !

This can relate to the effects of an alcoholics abuse too..I couldn't find anyone that understood what I was going through til I joined online groups..then I wasn't alone anymore

🙏 Thank you so much for sharing Amberly. I needed to watch this long ago

I am from Germany. I've had this since April 2015, in my right Arm and Shoulder. She is brave. I want this book. ♥️

Hay y’all thank you for posting the screen to! Up to now I was flustered cause the talker would be sharing & pointing & not being able to know what they’re talking about!🧡🦋🙏🌺🧡 Debb

You and your story are such an inspiration to all. Thank you so much for sharing and reminding us warriors to accept the things we can not change as well as to be grateful for what we do have. You are truly a blessing!!

Thanks For everyone’s Story I know You are such Brave People . I do know The Struggles you Have For Have This Going into 38 Yr. You Learn You Have It , you Have To be Strong and Deal With It. You don’t Know Why you Have this Cross to Bare But The only way to Deal With It Is To ask God each day To Help you through it and He will The other Thing is Things Can always Get Worse.Amen For All of Us

I live with 4 facial neuralgias and Anesthesia Dolorosa which are just below CRPS on the pain scale, and also known as suicide diseases. I will be buying your book today. Thank you for your candor.

Love your story, Amberly Lago 💎

this video gives us hope when we lose hope and have no more. Has RSDSA ever had a speaker talk about RSDSA and suicide/suicide prevention? I've always seen crps being referred to as the suicide disease but haven't actually seen any educational presentation on the psychology of suicide in connection with crps it might be an interesting topic to cover

Amberly I first want to thank you for the strength, courage and fight that you have in you to be that silent voice of chronic pain that is too often shhhh’d 🤫. I’ve always said I would give anything to be given a 🎤 and just shout out what life is truly like living when you live in chronic pain (the outsiders and a lot of our physicians don’t know all of the gory details) , because we still try to exemplify some pride . A lot of us are too shameful to admit the limitations that chronic pain often causes us. We just want HELP, we just want to LIVE, we just want some form of normalcy in our lives for once . To wake up and feel beat down before your feet even hit the floor is not an easy task. I’m a mom of 2 kids and not having a cure for things like neuropathy doesn’t make life any easier. You know how I said I’d give anything to I know without any doubt that god performed a miracle and we should praise him for showing the world that even having a 1%chance he can still perform miracles . And through your story I feel very confident that others will too find the hope and inspiration that I just found . Thank you for taking the 🎤 for all of us who suffer and live in chronic pain. We need to sprinkle each other with love and gentle hugs as often as we can.

I understand because I have it.

There is no sound when Amberly's resilience presentation starts at about 9min. Can this be fixed please?? First part is fine.

She didn't explain one practical thing about what she did to decrease pain :(

So Wonderfula Strong Womanavryine should Yty and Be so O Strong