Not dementia but my father passed from liver cirrhosis from drinking. It took his body 2 1/2 years to shut down even when his brain was long gone. He had lost his mind, he would call me by the wrong name, miss important dates, go in circles every time you tried to have a conversation with him, talk incredibly slowly. He died those 2 1/2 years before he actually passed.
@@Synthanicmusic my aunt passed from the same thing. It's scary because at the time she passed, I was (unbeknown to me) nearing the end of my 2 year drinking binder. It's sad... Those that couldn't kick the alcohol are suffering, much like I was when I was dependent on it. I hope your father is resting in peace.
I'm happy my grandfather didn't go further than stage 3 of dementia, his last months of his life was extremely peaceful and he died in his sleep. I miss him so much.
I don't know if I will ever have the mental fortitude to endure these albums. Just listening to the first song and knowing what is about breaks my soul to pieces.
It's hard. I put it on in the background while I was moving around my apartment for a couple days, and I _forced_ myself to finish it. I then proceeded to have mild panic reactions to any sound that reminded me of it for a month or two. While it's a completely unique (for the fortunate) experience, it is not one you need to have, and I wouldn't recommend it to anyone. Simply knowing that it exists is enough.
@@TimeLemur6definetely. I tried to listen to it once but I just-- couldn't. Not even one song, it's genuinely terrifying how powerful it's effects are
@@TheSpadeStealer_98 that's definitely a dangerous conjecture... someone with a pre-existing mental disease/disorder like clinical depression and anxiety would definitely get a more intense and threatening reaction from it. Honestly, the first song haunts me enough and I'm building the strength to listen more (and honestly planning on making my friends listen to it with me).
This is a SCHOOL PROJECT??? Its insane the level of craftsmanship you put into this video, and I’m bewildered that it was originally intended for school.
I forgor 💀 On a serious note, the "losing ability to express there identity" is extremely saddening. Knowing that they are still a person, have a personality, have their own thoughts and memories and experiences with others, but now they cant remember most of that, unable to express it, they arent a dying husk. They are a full being without the ability to express themselves properly even in their own mind
The first time I heard Everywhere at the end of time, my grandma was on Stage 2, a bit of confusion, forgetting if she ate or not, not remembering what day it was, etc. Now she is on stage 3, and it's quite scary, she gets angry at us for trying ti take care of her, she's violent, and barely remembers things from 5 minutes ago. Your school project actually is helping me understand it more, thank you for the amazing work
@@AdmiralAutismo hey, thanks for asking! My grandma is still around stage 3 but she was still very agressive towards me and my mom, so we talked with my uncle and his family and they decided to take care of her since they're on a better position. And me and my mom moved out to our own apartment. We still talk to her at least once a week, and I'm glad her health hasn't deteriorated yet, since now my uncle's wife is taking care that she takes her meds and brings her more company than us since we were usually working outside of home 😊
@@spaceorsaturn hi! Didn't know someone would ask for an update 😅 Well, my mom and I stopped living with her around September, because my grandma became too violent against us, but my grandma is living with my uncle (her son) and his gf who is a certified nurse, and they are taking care of her! They tell us about her status and she seems fine for the moment. Thankfully she is still living as normal, even tho her memory hasn't gone better, but she's healthy for a 84 year old 😊
this album gave me existential dread for like a whole week fearing alzheimers and other things relating to dementia, i had a nightmare where i was old and my mother was there but her hair was gray and had no face was crying. some doctor told me bad news, i can't really remember but i just wanted it to stop and i woke up with tears.
Thinking about dementia hits so much different after a loved one is diagnosed. My grandma isn’t even into the later stages (she was diagnosed recently) but this video still made me cry a little when before it wouldn’t have affected me at all. Good job on this bro. That last line hit really hard.
Make sure you make the most of your time with her at this stage, even when she gets into those challenging stages.Its hard to want to face the fact your loved one is forgetting. And they are forgetting you. I find those little moments matter most. When I could see my Grandma much more often we would put on her favourite songs from back in the day and she would smile and dance. We lived in the moment. Sure we were in her purple carpeted small care home room but it didnt feel that way. I havent seen her in a while so Im not too sure how well she really is-only news from my family and the dementia care home. Good luck to you,your family and Grandma's journey and cherish whatever you can.
@@AllmightyGigachad yes, in fact the life expectancy for Lewy body is about 5-6 years. As far as I know there’s no cure for Alzheimer’s or any form of dementia
I have a friend who was diagnosed with Early Onset Alzeheimer's this year at the age of 36 and he's been trying to get surgeries and medication to remedy/slow it down, he knows his lifespan is now much shorter than previously thought and he's very depressed over it. He's had really bad luck his entire life and it sucks that this bad luck will never go away, apparently. I mean, hell, recently, as of the past few years, his ex dumped him and spread false rumours about him doing unspeakable things to her and abusing her which turned all his friends and family against him. It's sad because he has never harmed a person and he's super gentle and sweet.
This reminds me so much of my grandmother, how she got dementia and it led to her slow dimise, how she went from going to acting as she normally would, forgetting some words to being unable to walk and only speaking a few words. I thank you very much for bring light to dementia and the process the person feels, it’s reminded me of what my grandmothers gone through ❤
If I’m ever diagnosed with dementia I promise you it going out on my own terms. I couldn’t live through something so lonely and horrifying. This is an auditory representation of dementia, but a visual version of dementia to me would be a maze the gets darker the further you go into it, and even if you walk backwards the maze changes when you don’t look at it. To the point where you are too tired to find an exit so you just curl up into a ball and cry till you die to starvation.
Everyone thinks this, so few succeed. The horror of dementia is that by the time you realize you are doomed to suffer such a fate it's already silently eroded much of your will and capacity to do anything about it. You have to act long before you feel like the symptoms have progressed enough to warrant taking action. This is how it traps you. Be warned, I have watched dementia take many loved ones and likely one day myself and the one thing they all had in common is they got trapped riding it out to the gruesome end. None ended it on thier own terms despite declaring such when they were young and well were the situation ever to arise.
Write a living will. Dementia will rob you of the decision. Write it while you have the capacity to make the decision, the same way that people write living wills with a clause for being taken off life support if they go into a coma.
I think one of the worst parts about this disease is that you always think you have time, that you're not old enough yet. Until, you have it, and there's no way to go back or to stop what's coming.
A school project??? That was incredible! Your writing and analysis was phenomenal and your editing of the stock footage accented it perfectly. If you choose to make more content I would watch in a heartbeat!
could genuinely listen to you talk for hours. the way you talk about these sensitive topics makes them so clear and easy to understand, and the visuals only drive the point home thank you for making this
If I ever found out I was developing dementia I get assisted suicide I'd rather die knowing who I am and who my friends and family are rather than solely forget and go crazy
Dimentia runs in my grandma's side. She currently has it and her 2 other sister died from it and so did her mother. There's not a week that goes by that I don't think about it and I'd rather die than to go through what she did. I've told my wife if I ever get it to take me to the woods like an unwanted dog.
At one point, me, my parents, their parents, and my great grandma all lived in the same home whilst my grandma took care of her. I helped out sometimes. I practically grew up with her, and I witnessed her decline and struggle with dementia. Thankfully, she was always very sweet. Though it’s heartbreaking in retrospect. I remember how she slowly declined, probably within 6 years. What breaks my heart is my grandma has signs of it too, and knew throughout taking care of her that.. she would most likely face the same thing. I remember how she stopped being able to go to the bathroom alone. Then get dressed. Then she needed to be fed. It was a slow domino effect, after one thing went it was only a matter of time until the next. She died around 2018-2019, though she lived to 106, and i still miss her, yet I hardly remember who I miss. I’m just thankful she’s not suffering any more.
One of your final conclusions made me think a lot. "Dementia doesnt take your identity away, rather, your expression." Perhaps that means that not all is lost. The concept im thinking of, is that people in late stages of dementia are still there. Its a bit like being locked in your mind. You can only think, and never interact with the outside world. You can think perfectly fine, but not do anything. Once you think about doing something it suddenly fails. Forever in a cage, where the only thing you have is your thought, all your memories, all your experiences, everything that happened in the past, its only when you try describe them to the outside world, that it suddenly fails. The only thing you have left beside thinking about the past, is to wait, for your inevitable death, the only key to this curious cage.
In some weird way, that idea is more comforting to me than the idea that the person actually loses their identity, because losing their expression of their identity means that the person is still there. It doesn’t frighten me as much as the idea of actually losing yourself. Not sure why.
@@alixstar11 I can see how that would be comforting, like by losing their identity, their soul is freed from the torture and what's left is an empty husk, still alive but soulless, so you don't need to worry about them anymore. It's not as comforting to think that their soul is still trapped and tortured inside their dying body. Smth like that idk I'm not all that religious
I like to listen to music or random horror stories on RU-vid as I make illustrations. One day I stumbled upon this six hour album and thought "okay, six hours, let's be productive" and started working. Came out crying really badly thinking about how I don't want any of my loved ones to be gone. My fear for death bubbled up a lot more. Started thinking lot of stuff I never thought about. About grief, about loss, about this condition that dementia is, the way it just breaks the way you see your life. About how lonely it would be to have dementia and can't even explain what's happenning with you. To all of you who have relatives with this or actually suffer from dementia on early ages, keep strong. Thank you for the analysis zaza!
everywhere at the end of time has made me afraid of becoming old, I know that it is a part of life but I don't want it to be. getting dementia is one of my biggest fears, I don't want to forget anything. I want to remember the happy and sad moments of life but it will all come to an end and I know that.
You deserve more subscribers then what you have. The production quality of the video is phenomenal! You explain each stage in your own opinion, with detail and personality. My grandfather had late stage dementia, he passed away recently. I can refer to a lot of your statements as true to how he felt while he was still alive and well. I wish the RU-vid recommendation algorithm blesses you with views.
its super crazy knowing you can reference what i said back to your own situation. really appreciate this comment and hope you're dealing with the loss okay :)
2023 edit! HEY PLEASE DON'T PAY ANY MORE ATTENTION TO THIS COMMENT. TURNS OUT IT'S DISSASOCIATIVE IDENTITY DISORDER. as someone young (15 years old mind you) suffering with memory loss, this analysis genuinely terrified me, and i haven't even listened to the album yet. the way you describe it is just so emotional, and i'm a huge underreactor, so realizing this genuinely impacted me enhanced the experience by a lot
i was 15 when you commented this too, and i too have memory loss, listening to this documentary genuinely made me re-think some things in life, i sometimes struggle to remember even the most minor details, what song was featured on this creepy tiktok video i watched? what did my friend wear yesterday? what did she eat? what did we do together? it scares me so badly, and i think this video has enhanced that, but it has also taught me to live in the moment and truly cherish something.
Same with me. I'm around 15 and suffer from memory loss. My family claims its ADHD/trauma I can't remember what I wore yesterday, I can't remember what I ate this morning, I can't remember to eat something, I can't remember where I am sometimes, I get lost constantly and I get confused on the simplest tasks aswell as struggling with remembering names. This video terrified me and when I looked deeper it scared me more. Doesn't help dementia runs in the family.
I listened to the "lucidity stages" (1-3) thinking it can't be so bad. I was so so wrong and I'm only at stage 4. The concept of the few and far between thoughts at stage 5 is the most terrifying to me. The fact that this person's only source of comfort is the thing they've been dreading and the thing that's killing them is so strangely scary and sad.
My Grandma is at stages between 4 and 5, we saw her yesterday te eat with my family, she appeared… confused, she wasn’t talking, not moving too much, needed someone to help her in every moves. She lives in a home specially for dementia patients, when she got there for the first ( in march ) she thought we were abandoning her, she called my dad and my aunt, screaming at them, saying that they were [ bad words that I don’t think I can say ]. When we visited her after one month, she had a crisis. We wanted to go on a walk with her, she said that if we didn’t brought her back to Paris ( that’s where she lived ) we could just go away. We insisted and she started screaming and crying, I went back downstairs because it scared me and I started crying. One of the lady that live here and that have stage 1 of dementia comforted me but it made me even worse because she’s aware, aware that she’ll end up like this or worse…
I'm not going to lie, This album changed my life in a big way. before this album I never gave too much thought on how bad dementia was, I never gave too much weight to my memories. but after this album, I understood a lot more, and I'm very scared of it, after many days of thinking I always get to the same solution: "If I get dementia, I'll kill myself before I forget what I am, and long before I forget I'm forgetting" at least like this, I'll die myself, instead of dying and leaving my body to suffer. dementia is like your soul leaving your body to suffer for a long time, just to come back at the last moment to make it feel at peace and to tell it you didn't leave it behind, it is coming with you to the afterlife. Honestly, I could write an infinite comment on how I feel, and yet I feel I'll never truly write what its like, and yet I feel in such a specific and strong way for something I never experienced (thank god, I hope I never will) one thing that I wonder about is... if someone you know has dementia, and they are on stage 2 what would be the right thing to do? make them die before they lose memories. let them live to the end? let them die on the next stage? on the 4th? kill them while they forget forgetting so they won't even know they died? I honestly want to write for so much longer but I'll stop here since I'll get repetitive and I'd just horror my self to not sleeping tonight
same story with me i learned about dementia with the memes you know but it's FAR more serious than i thought i watched video's about it including this video and album and cleared it everything for me about that topic my grandparents dont have it and im sure about that my grandma died but not from that my 90+ year old grandpa that's still alive remembers quite well good sign because it's not a disease that run's in the entire family and trust me if i was diagnosed with it I'd do the same as you
A 20 minute long back-to-back goosebump-inducing commentary that ends on the very last sentence with an idea that made, literally, *every* hair in my body straighten out like razors. Every act that you covered you did with such care, attention to detail, respect and creativity that even I who's listened to EATEOT and a bunch of other of Kirby's works learned so much. Dude that last sentence alone is gonna stick with me until I die. Great video.
I can't stop watching this. The fact that the video feed is getting distorted at the same rate that the stages he's talking about, is amazing and only adds to the analysis. Great job and amazing research.
My great grandmother, 97 years old, is clearly experiencing some memory loss. She lives with my grandparents now and they’ve noticed her staying in her room almost all the time, doing almost nothing but watch Hallmark movies. She barely goes to church with them anymore. She was always one of the best cooks in our family, but recently my grandma had stopped her from cooking in case she forgets her recipes, and stopped her from cleaning (I’m not sure why). I know we can all tell the end is coming soon, but I don’t know how soon. Maybe my grandparents know, I’m not sure. I just wonder if she’ll make it through the next three years, and get to 100. Part of me wants her to, but part of me knows she might not last that long. I’ve never been that connected to her, but her dog, Maddie, has always been fun to play with, and is getting old too. Maddie dying would be more devastating to me, but I feel like if she dies before my great grandma does, it would also be devastating to her. I think Maddie will last longer than that, but it’s still sad she’s lost her playfulness from when she was younger. If I remember this comment in a couple years, I’ll come back and update about them. Thanks for reading
What you say at the end brought tears to my eyes. The first time I've ever heard someone define the meaning of the title "Everywhere at the end of time" so beautifully and coherently. 💗 A superb presentation! I hope you got an A for this. Cool how you also created this background video to back up your presentation instead of just showing the paintings used in the project. Nice to see that "Glimpses of hope in trying times" was your favourite in Stage 2, too. It's my second favourite song in the entire project after "The way ahead feels lonely". Many people just call it scary so I like that's it's getting love from others, too.
I hope you got full marks on this assignment. This analysis was so mature and insightful, touching upon ideas that others on RU-vid have not. The visuals are haunting, and the script is so well-written.
I've always interpreted EatEoT as the gradual erosion of one's identity because of dementia. Essentially the death of the soul. People are shaped and made by experiences, we're all the same, but made different because of how we grew up. As those experiences are corrupted or erased by the disease, we slowly lose what made us what we are. Our brain will desperately try to maintain our sense of self by cobbling together what usable memories are left, with each stage resulting in a less and less perfect copy. As the brain slowly runs out of memories to use, the collective that made up our identity is slowly washed away, until the concept or idea that is "you" is gone. You no longer exist.
i'm a year late but this is some amazing work, man! i'd say this is more than just a school project at this point - hope you'll make more videos like this, it's both really well put together (visuals and script both) and interesting to listen to! My grandma just recently passed away and for the past 5 years she was taken over by dementia. It may sound weird but in a way it was interesting to see how she changed due to the disease - how she just kept forgetting things she did a minute ago at first, then after my grandpa died her deterioration got a little faster. Soon she'd start to forget our faces and mix us up with other family members who she hadn't met in years, she'd forget how many kids she had, other things like this. Then, later, she got more aggressive towards me - I'm a short person and to her I was probably just some random unknown troublemaking child who "didn't live there" (our house is conjoined, me and my fam live in the other house right next to hers). I remember two times when she took that aggression a bit too far in a way: she came at me with a broom one time, and started throwing walnuts fallen from the big walnut tree in her yard at me. That was the point when I think I knew she was just... not "herself" anymore, yknow? Because she never ever acted even just a little angry towards me before. Later, she had moments when she couldn't find or make up words because she didn't remember the correct words, but interestingly she was completely coherent until the end! For the last year she had to live in a nursing home for obvious reasons, but she was still smiling and cheerful, save for some moments of depression where she just... she just kept saying she wanted to die and that she doesn't want to live anymore (these moments happened even before she went to the nursing home and after my grandpa died so it was sort of a "ah, that mood again?" thing at this point). In the end, she was coherent but didn't remember anything about anything correctly. She'd make up things she did when my parents visited her and asked how she's doing, but never acted aggressive towards them. She later died in her sleep at the start of this month, at the age of 94. Seeing her deteriorate was... both interesting (even if saying this may sound bad), sad, and frightening at the same time. I remember how I wished for her "old self" to come back multiple times. I wanted to hear more of the stories she hadn't told me of her past, but I knew it was impossible at that point. I just regret not recording them when she was telling them... I'm just glad she's not suffering anymore...
Ewateot gave me a whole new perspective on dementia because my nans sister has it when when I use to visit her I didn’t know a whole lot about dementia but now when I visit her I can’t help but cry and when she passed on I felt so good for her because her suffering was over and she was finally put out of misery.
I work at an assisted living facility that specializes in dementia. I’ve seen just about everything at this point and I have to say all your information was fairly accurate and thorough. I listened to the album recently and could see residents who were at every stage in the disease. To me, they aren’t scary. They are just people. Something covered in stage 5 really stood out to me though about there still being a person inside even when they need assistance and can’t do much more than sit and look out at the world. We have a man who is at stage 5 and currently on hospice. Most of the time if you say something to him, he will respond and sound like he is talking, but what he says will not make sense-rhythm is something retained in the brain for a very long time, but the words can become jumbled. I always say hello to him in the mornings even though he never responds and one time on Father’s Day, he got a piece of mail from his daughter. A card. I say “hello! I have a card from your daughter for you!” And he looks at me and says hello back which was startling. I open up the card and read it to him, and he points at his daughters name and says thank you very much. I tried to keep talking to him, but his responses became gibberish again after that. Before he declined, he was a very sweet man. Always talking about his wife. I think everyone knows he’s still in there somewhere.
The brain is terrifyingly segmented like that. The memories are there, they can be accessed, but their brain just loses the connections to get there. Those connections get lost, I suppose, because of the prioritization of more important functions in the midst of the slow dissolution of brain function Which might explain why dementia is such a terrifying, grueling battle for clarity.
I'm surprised Kirby lasted through writing this album. Not because of how long the album is, but how depressing the music. I felt like I could relate to this album, but I didn't know why. It felt like I had heard this album before, but I didn't know where. It's crazy how this album toys with your mind.
towards the end of the 5th stage i realized that i had just been listening to static noise and random instruments, but i had also been genuinely enjoying it. weird how that works
I don't why anyone ever has gone through dementia. Oh keep someone in a constant state of torture for years and the last one of their lives? How ethical and compassionate...
Hey there! I'm working on a video about Dementia and was wondering how you were able to distort the footage used here? I'd appreciate any leads. Thanks!
I’ve watched a lot of documentaries and reactions about this project, but this was probably my favorite out of them all! I never thought of dementia in the way you discussed it in the video, and it totally makes sense looking back on it though that point of view. I also love the visuals you had in the background, slowly deteriorating from cohesion to a jumbled mess to nothingness. Keep up the good work!
This video is really well done. This made me see dementia in a new, disturbing light. I never considered that it made you lose the ability to express yourself. Again, this video of yours is very well done. Great first video!
Yo I just binged this without realising this is a school project…. I experienced the amount of effort and dedication you put into this video, your passion I can also feel through my glass screen, well done Mister.
Excellent use of visuals for this breakdown. I listened to this album in it's entirety yesterday and I'm still reeling from it. Watching and listening to others talking about their experiences and interpretations is helping me digest it. I genuinely was not wholly prepared for the emotional impact of Everywhere at the End of Time.
reading through the essays of everyone telling their stories of a loved one with dementia and this video alone really made me realize how horrific it is, at a young age in school kids would mention things like "omg drowning would be the scariest way to die" amongst other things but being completely stripped of all form of expression, being locked away yet tormented with memories of loved ones you just cant quite piece together, its all so horrifying, the scariest thing ever and hearing how long some of these dementia patients have had to live with such a disease, truly the most unsettling disturbing and sad ways to close the chapter of your story, I hope nobody is to be put through such misery from anywhere in the world, and I know people will continue to be affected by it. thank you for clearly describing the project, some of the most meaningful pieces of art I will ever know.
This is definitely one of the best reviews of this masterpiece of an album that I’ve ever seen. I love this old footage that you use throughout the video too. After I listened to the project I learned that my great grandfather who passed away had dementia which definitely made me appreciate the album more. It has such a unique concept and I’m thinking about listening to it again.
In my experience listening to the albums, the context was just as important as the music itself. Reading the concept, song names, and explanation are major parts of conveying the meaning and feeling of the music.
My grandad had dimentia, I was still young but I understood that he didn't know who we where anymore. We weren't allowed to see him towards the end but I remember seeing my dad talk to him though I don't remember anything that was said. Now my dad has Parkinson's disease, he forgets things, doesn't respond sometimes and he has difficulty acting quickly. It's seeming like I might end up facing something like that when I'm older too. It's strange too because my mind is very sharp and my hands are very dexterous it's hard to imagine losing them. Honestly I don't know if I'm brave enough to stick it out and live through those kinds of things if/when they do arrive.
My Ouma had dementia before she died at the end of 2021. She went through a really roller coaster of a ride with her symptoms like thinking the reflection in the mirror of the tv behind her was her brother(who was dead) and things like that. It was really hard for us because one of the only things that brought her happiness in her final days was her family. Unfortunately, COVID ended up killing off her family until me and my dad were the only ones left. We were never able to tell her because the grief would be too much, even if she would forget it soon after. We didn’t want to put her through that. By the end of things she had forgotten her sons face(my dad). She kept thinking he was her late husband that passed away in the early 2000’s from cancer. She would claim she had just seen her sisters& other family(which were all dead) and would wake up each morning telling us she had to get ready for church, she seemed so excited at the thought of it but by that time she could barely eat without assistance. The only miracle of the entire process is that she never forgot who I was. Never ever. Whenever I would go to see her, her face would light up and her eyes practically sparkled. She was always purely herself around me, i would sing her her favorite songs and she would sometimes join in as well. Her absolute favorite was “Its Been a Long Long Time” sung by bing crosby. She used to sing it with her husband. At the very end of things the only things she seemed to remember clearly were me, “It’s been a long long time” and “we’ll meet again” by the ink spots. I sang both at her funeral. I miss you Ouma, but we’ll meet again
I am sobbing. I can't take this album sometimes, it just grips at everything inside me and doesn't let go. Your analysis is so incredibly right. You said everything in my head and it's terrifying. Absolutely terrifying.
This reminds of my great grandfather. He would say he had no idea how to play guitar, but in the middle of talking, you could pass him a guitar and he’d sing while playing like he’d been doing it his whole life.
Yo I’m just curious what grade you got on the project? I’m sure it’s an A+ because this is really well put together, I would even consider it as professional work. I also agree with other people, your voice is very soothing lol. You could definitely do ASMR 😎
I feel that the front of the canvas symbolizes the ability to express oneself an the fact it can’t be seen in stage 6 means the patient can’t express himself.
Beautiful take on this set of albums. I haven't listened to the project outside of short clips from the sheer terror I experienced when I had it explained to me a while back. It sent me into a state of fear I never knew I could experience. I have obviously overcome that fear over time and by watching this video it not only eased ny fears, but confirmed them at the same time. My grandmother has late stage 5 Alzheimer's Disease and the past 4 or so years of caring for her have been haunting for me. I cant imagine what she has been through, first basically raising me as a child only to revert into herself and be unable to function without someone there 24/7. She doesn't know i exist anymore. Im not hurt, i grieved a long time ago. To know that she is still in there somewhere is probably the most heartbreaking thing I've heard about the disease. I didn't know that. One day I will listen to EATEOT, but not today.
Once, I met a lady with dementia at a hospital. She was clearly reaching the later end of stage 3, if not already in stage 4. She kept confusing me for her son, kept believing someone in her family had died when they haven't. Had I known about this album, I would've probably given the lady a hug and spent a lot more time with them. As a young lad, I simply felt uncomfortable. I can only imagine the horror of being locked inside of your own mind. I'd go as far as to say that dementia/Alzheimer's is scarier than a lot of cancers out there, but that's a hot take and probably something I shouldn't compare.
Imagine schizophrenia, hits above-average intelligence people in their early 20s. 1% of the population has it. Definitely scarier than cancer. Pain can ironically make one feel alive an "real". Mental illness with moments of clarity: does the opposite.
Phenomenal discussion! Love your analysis of the album! You don’t act dumb, silly, or ramble. You analyze what the core messages of this amazingly beautiful album. I’ve seen other reviews of this, and some have been better than others. I greatly appreciate your efforts here. Well done.
The last 5 minutes of dementia, your dead, but can remember everything, all the fun times and all the bad times, start to finish, that's what the horrifying and emotionless singing is. The realization that you're already dead for 5 agonizing minutes. Put a timer on a see how long it goes and think about your life and reply how you feel after it channeling all that I just told you.
Honestly, even the music in stage one creeped me out so I'm glad someone else could sum it up and explain it so nicely so I didn't have to listen to the whole thing :)
I once decided to listen to this album in it's entirety, and ended up falling asleep at some point, when I woke up, it was sometime during stage 4, and let me tell you, I have never felt so scared and disoriented in my life as I did at that very moment. I had to turn it off, and have since never gotten a chance to revisit it. Thank you for posting your fantastic video essay!
I like your interpretation of the stage six painting a lot. I always thought of it as the back of a canvas, like the painting is right there but the viewer cant access it. Just like how the person going through dementia has their identity right there but because of their illness cannot turn the painting around. I love art because there is not a right interpretation and these both relate to the main point.
"At the end of this person's time, their impact is given a new meaning. And their impact is everywhere. They are everywhere at the end of time." is genuinely such a crazy bar it made me gasp out loud fr
Great job. This album has a piece of my heart. I've lost loved ones to dementia. The Caretaker approaches the subject with compassion and honesty. It's beautiful, comforting, horrifying and forlorn.
The feelings I got just watching this video are hard hitting, I can't imagine what I'll do when I finally get around to listening to the full soundtrack. I've been wanting to, so thanks for the final push I needed to get around to it :D
I remember first learning about this entire album. I decided to dedicate to listening to the full album straight through, it made life living hell. I was constantly forgetting the things I was doing whilst I was just listening through the albums. During stage 4 I had to stop playing Minecraft because I kept forgetting what was my goal of of leaving the base this time? Wait why did I come to the second floor? Then during stage five I can feel my head pounding the violent thrashing sounds where nothing was melodic and it was all chaos. Finally stage 6 came and it was reminding me of the first stage, but I could tell it wasn’t the same, that I wasn’t the same anymore. Then the cluster of sounds finally begin to play a somber sad melody, barely recognizable through the white noise, and then in the most important part of the album that last 60 seconds. No scratches, no music, not white noise, you’re forced to sit there and take it all in, what that last bit represents before the end. There is no last hoorah, no upbeat melody to send you off, it’s just… perfect.
My God. You deserve so many more subscribers than you have right now, this analysis is the most detailed, and interesting I've ever seen for an album I've heard so many explanations for, your editing is also impeccable, it really made me feel like I was learning about Everywhere at the End of Time for the first time again. Keep doing what you're doing! I'll be supporting the whole time P.S. That quote "They are everywhere at the end of time" at the end of the video gave me *chills.*
One really should not watch this video or listen to Everywhere at the End of Time when you are not in the right mental state I don't know why but it reminds me of my darkest time and it terrified me so much I lost sleep. Although I no longer have any thought of ending myself the feeling lingers and it is painful
This is such a fantastic video, and it feels crafted from a genuine place of respect and understanding for the art and dementia as a whole. When you mentioned the drones on Stage 6 at 18:10 and how it feels like it gets louder and louder, I could feel the chills running down my spine. It exactly feels like that. Like the drones get inserted into your head and bounce around within your skull, resonating with each reflection and feeling louder and more oppressive. Thank you for making such a wonderful video, and I hope more come in the future.
dementia is honestly.. terrifying.. in my opinion its a fate worse than death. the thought of forgetting everything, absolutely terrifies me. i really hope no one ever experiences it.
Dementia is such a scary disease, and I wish I never have to experience it. This video was so well made, it gave me chills from thinking about it all, and the outro really added to the effect.
It's 12 AM on a monday before school, and I accidentally gave myself an existential crisis watching this Incredible video, but man do I regret doing this
This album opened my eyes to greater reality, when I first heard of this album, I heard the first few songs in like some ww1 role play game I then searched for these songs, lead myself to it, played it, and then was either smiling or I was crying. It was like I was bipolar. I was so intrigued to find out the meaning of the album, but it was meaningless. It brought so much closing to some of my problems. I felt happy and sad, worried and careless, selfish and selfless. It felt like when I felt a certain emotion, there was that same opposite level of emotion being portrayed, at the same time. Imagine the hero killing the villain but also dying in the final act of the movie. That is the album. The sounds are simple and complicated. It’s extremely dangerous to listen to but also safe. The feeling of being along for the ride like a boat wake on an infinite ocean. There might never be another selection of music with this kind of depth for the next century.
I’ve met a lot of people with varying states of dementia. It still both terrifies and baffles me. A buddy’s grandpa would always tell me stories about going abroad for work with so much passion, then a short moment of silence would fall between us, and he would tell the exact same stories in the exact same order with the exact same words and passion all over again. Nothing will ever make me feel so wholesome and scared at the same time again.
My Grandpa had dementia when i was at the age of 11. And i used to think it was just forgetting things today i understand that it is much more than just forgetting.
This is fantastic! Especially considering its a school project, you had me engaged throughout from beginning to end! I look forward to any more videos you make in the future!
Im watching my mother slowly slip into early stages of dementia and it breaks my heart to know how it will end. I also watched her father deteriorate over the course of about 10 years. At the end, the big bold man i knew was left in a fetal position not knowing who he was, where he was, or anyone around him. I fread seeing my mother end up the same way.
3 года назад
I pay for the Internet because of videos like this. A really thought-provoking and qualified one. Thanks a lot, man.
thank you for this video, i finally mustered up the courage to listen to the whole thing (even if not in one sitting, but still) and it truly is a masterpiece. had some good cries :,)
