An Introduction to EDS, HSD, and Gene Testing 

To the statement made about Don't find your mate at an EDS conference.... considering the most common forms of EDS are autosomal dominant, no matter how healthy the other person is, you're still likely to see it in the next generation. Sure, having both partners with a heritable connective tissue disorder will increase the odds, but even with one parent having EDS (in the most common forms, hEDS, vEDS and cEDS) all the children can be born with it anyway. The "don't find your mate at a conference and what were they thinking" comes across as very ableist to me. I don't throw that around lightly. The benefit in having a spouse with a connective tissue disorder is being understood. Horses often have the hardest time understanding a zebra. With a partner who has EDS, both members of the couple can work on creative strategies, be more supportive, and embrace the warrior within each other in a way that horses can't. I do understand why a doctor would have that reaction to some degree, but wouldn't it be just as advisable to discourage reproduction all together under that type of thought? Just my thoughts.

This is very informative. I’m looking forward to you posting the video from day two when Lara spoke about the frustrations with trying to get diagnosed

Thank you. Excellent sharing. Honest, open, professional with being personable. Speakers best ones I have heard. Have helped me understand and grasp more fully. Have come a long way with the new classification. Yet more to go as you all indicated. Thank you EDS 🦓 immensely. No longer feel isolated but heard and validation coming.

Thank you for this, it was very informative and helpful.

44:00 Minutes in is Genetic testing

AWESOME VIDEO!!!! THANKS

I was a patient of Dr. Tinkle in Ohio. Would love to catch up with him again.

Thank you for this very interesting podcast, I am very grateful for this great content. May I ask a question? I am suffering from: -chronic idiopathic pancreatitis, -chronic coronary artery spasms, -the Arteria-mesenterica-superior-Syndrome, -gastroparesis, - the Ehlers Danlos Syndrome My doctor is thinking about a correlation between all those illnesses I am suffering from. Does anyone know about a correlation between all those different illnesses? If yes, please get in contact with me, I would be very grateful for further information on that. Thank you very much and sorry for this complicated question. All the best, Alice

Y’all I just slipped a rib 😪