Andy lost his first wife to multiple myeloma, then twelve years later, Andy himself was struck by the same disease. Discover how every donation makes a difference at www.lls.org
I’ve been preliminary diagnosed with MM pending a bone marrow biopsy next week. I’m a Hodgkin’s lymphoma survivor, had it in 2001. I’m pretty terrified right now. I started having back pain, and increased diffuse pain in my knees and elbows. My pain doc did an MRI during which they found masses on 2 levels. A bone scan showed uptake in those lesions, but no more. Labs were positive for the M spike protein. I kinda always knew it would get me again, but I’ll fight just just as hard at 51 as I did at 30.
Sir your video is very inspiring, Your not the type to give up and that’s the attitude you need. I was diagnosed with MM in Sept 2020, Had the stem cell transplant in March at The Vanderbilt/VA University in Nashville. I was there for 6 week’s, 2 weeks out patient with tests everyday , 2 week in patient with the Transplant and 2 weeks post transplant. Everyone asks if the Transplant hurt, No it was nothing , even the large dose of Chemo didn’t affect me at all. The first 4 weeks were nothing, but the 2 weeks after the Transplant were the worst days in my life, Not Sick or nauseous just absolutely spent and so weak and tired I could barley tie my shoes or get dressed, I told my wife if this is how I’ll be feeling then kiss my rear goodbye, it was awful. I’m a chef and couldn’t work or enjoy all the sports I loved to participate in, it was a year and a half getting stronger day by day. Luckily today I’m in complete remission , working , walking and golfing but without the same energy and skill’s I had, but it’s not bad. I’m still taking Darzalex IV monthly and Revlimid pills 21 days a month for now . I feel like I’m getting better even today. My attitude from the day I was told was. “The hell with it” it is what it is, I’ll play the hand I was dealt. But there’s hope for MM keeping the right attitude and never start feeling sorry for yourself is important. I was 74 when diagnosed , I’ve seen kids in their 30’s that have to deal with this their entire life. Sad…
A story that I can relate to, as a cyclist and somebody that was diagnosed with Myeloma on my 64th birthday, 11 days after my 35 year old daughter was diagnosed with breast cancer. We are both fighting it.
@@dangrimes5078 I am from INDIA My mother has been diagnosed with MM last week We are in panic situation Please provide me some information So that I can help my mom to fight it well Please Please..........😭😭😭😭
@@beinghuman12349 I would help you in any way I can. If you keep sending me messages I will keep responding. You have to find out if your mother has high risk traits. In my case I didn't. This can make a huge difference in her prognosis. I have light chain myeloma. That just has to do with what part of the cell the cancer is in. The first treatment I got was a drug called Velcade. It worked very well. The next thing I got was a stem cell transplant. That was a terrible experience for me. There are many new drugs approved by the FDA now from when I was diagnosed. The problem is that I don't know what is available in India.
I was diagnosed with MM at age 65 after having my right shoulder looked at for severe pain. Turned out it was a tumor that caused my clavicle to break. They removed a third of it 10/2019, did radiation, placed me on chemo for a year and got the stem cell transplant 11/2020. It's been in remission. Everything looks good with regular testing. I'm just having physical issues due to so many meds and maintenance chemo therapy. Hoping to get physically stronger and with less pain. Blessings to all my fellow warriors fighting this foe.
Hi Renee, we are so sorry to hear this. We encourage you to contact our Information Specialists, who can answer a wide range of questions around diagnosis and treatment. You can reach them here: bit.ly/IRCLLS
Yes it's scary but I'm past 12 years and my cancer had never really gone into remission it's just somewhat stable. I feel as good now as anytime during the last 12 years. I hope this helps you.
@@venomx4093 With mm you don't actually receive stem cells from a donor. What usually happens is they harvest your own cells. You get a massive dose of chemo and then your cells are thawed out and put back in your body.
Written by her son. (She fought so hard and lost her battle, passed on November 20th, 2020. She tried so hard but never gave up even in the end she thought she could win) to anyone that has survived i bless you in winning your incredibely tough battle, to those that have joined my mother wherever she may be, my condolences and blessings upon you all and their friends and family.
Andy you are blessed. My mom was diagnosed with MM at 75 last year in September, she tried very hard, worked hard to win this tough battle, and never gave up until her last unconscious episode, 911 came 13min late, I gave her CPR, my children and husband gave her CPR, but we could not revive her and lost her. Please carry on the fight to find a cure, God bless you!
God bless you. I lost my dad last year from a heart attack fighting cancer, my wife's uncle from leukemia and my sister in law 10 days ago from cancer.
When someone dies from cancer, they did not lose the battle! They aren't with us anymore, but they have no more cancer, no pain, they are at peace and that's a winning battle!
Yesterday i lost my father from this disease. He found it late and he lived with this diagnosis 2 weeks. We are all broken. We all fight with him and we lost.
I am really sorry for your loss currently my dad diagnosed with MM and looking for some people opinion who experience it and to find out how we can help him to go through it 😢😢😢.
Dear Andy, Many thanks for sharing your experiences with MM you extremely gave me more and more power to keep fighting against that disease where unfortunately I got it at the age of 60 and back again right after recovery for the second time in less than one year with the same horrible symptoms, the immunology doctor treated me with “Vanked” in addition to some other drugs. The MM directly affected the performance of my kidneys as well so I’m going for renal dialysis three times a week for a certain period of time until they get back to work. I wish I go back to my normal life again soon, swimming, gym activities that I used to practice all over my life. Many thanks for the great support of my wife, friends and family and I wish if you tell us how things are by now with you right after the 6 years of recovery🌹👍
I was diagnosed from one blood test. This test should be part of the ACA 100% covered preventive screenings! People w MM suffer broken bones including spinal fractures, kidney failure etc. before they get diagnosed.
Well glad he's doing so great. I have MM in remission but my life is over thanks to peripheral neuropathy. My day is spent popping Percocets and feeling like crap. Also, stem cell transplants are not the super treatment they want you to think. I pressed the expert in Atlanta and he finally admitted that the survival rate between meds ( Revlamid) only and transplants is comparable. No transplant and giant bill for me.
A buddy of mine had a lot of chemo for leukemia. $1.6 million debt. No insurance. He died. I do have insurance with a fairly low maximum out of pocket expense, but I would most likely refuse chemo. I'm down with stem cells though or Fenbendazole.
@@venomx4093 I'm expecting my first delivery of fenbendazole and tudca etc. I'm going to refuse chemotherapy at my first oncology appointment next week. Good luck, friend 👍
@@Jack-hy1zq Best of luck and put your faith in the Lord. Stop ALL sugars in all forms. Look into Glutamine blockers as well. Start fasting to starve cancer. Cancer needs glucose and glutamine to survive. Our normal cells also live on Glutamine, but can adapt to ketones for fuel. Cancer can't live on ketones. Chemo is a Glutamine blocker, but you can find natural ayurvedic glutamine blockers as well.
@@Jack-hy1zq After reading comments on Fenben alone, it doesn't work without vitamin E. There is a study on Fenben with and without vitamins that you can find.
My mother was diagnosed 8 years ago with multiple myeloma. she went into remission for a year and it came back. Since then, she's been fighting it with the help of whatever they can find will help it. I'm so scared.
Keep up positive energy..cure will come. I was diagnosed in 07 . Had transplant in early 09... still in remission... Thalidomide was the pits but it worked for me....along with steroids....lots of side effects though..better stuff is available now. Keep up your spirits..
If you can, contact Dr. Kumar at the Mayo Clinic Rochester MN. He knows all the tricks, great doctor!! Keep a positive attitude! Don't sit around the house.
I was diagnosed with SMM 2 years ago.i got into a clinical trial at NIH. Reached a MRD level of 0. I urge you to look at clinical trial for SMM, before your MM goes active
@@charliehandy6 I lost my PPO and I'm using the my VA benefits. VA is extremely passive and don't like doing anything they don't have to. Market Place insurance was $800 a month for a decent plan and I couldn't afford it. I did do a clinical trial 2.5 years ago and it did help. My M-spike is only at 0.68. It was 1.4 going into the trial. I will still keep looking for another trial though. MD Anderson won't take market place insurance so I'll have to look else where.
Brent: My research included Spark Cures, a site that lists all the various MM Clinic trials. Their site allowed me to plug in certain variables which brought up trials that fit my situation. They then help steered me to NIH. I had no out of pocket fees as it was a trial. Hope this helps and stay strong
How is it possible that would be a coincidence? Is it possible that the two of you were jointly exposed at the same time to a toxic substance? I’m very sorry to ask such a personal question.
Ive got different symptoms, Top of my head very sensitive when i wash my hair, never there for years now starting to bother me. My upper right side of my gums is sore to the touch when I brush my teeth, Dentist did not know what it is. It is my bone in my gums..My left hand index finger knuckle burning like a lit match inside. Im awakened in the middle of the night with a burning sensation, again, like a lit match running accross inside my leg..There is a red bump at the spot where the burning sensation stopped. Ive got red dots all over my legs which recently was told by the Doctor its caused from Low Platelets...I start a Bone Marrow Biopsy June 4th 2024. I believe this all start 1 year ago when I accidently Breathed in Carbon Monoxide...
hi! i need to know where did you consult reagrding stage 3 multiple myelome right now may relatives have stage 3 multiple myeloma this is her second opinion were here at PIH Hospital in whittier almost 1 1/2 years fighting foe that cancer and now the doctpr said is not curable because stage 3 already they took chemo for her Bellgate, Kyprolis and Revlimid now she is bed ridden can you recommend me where is that place and who is your doctor.. Im begging you pls save her..her heart is good condition, she can breath at her own without tube.. can you give me the address and the place where is that???
Hi, my name is James and I was diagnosed with multiple myeloma in August of 2013 at the age of 41. I have had 2 stem cell transplants and so far I have been in more or less remission. It's strange that when I get my blood checked it's like those old jack in the boxes where you turn the handle waiting on it to jump out. Every 6 weeks I get my numbers checked and it feels like I am turning the handle. Does any one feel the same way?
I am 42 years old and I was a greenskeeper 20 years ago using agricultural strength glyphosate which is generic roundup. 4 months ago I had testicular cancer and had one removed. After going back to have a ct scan they said they saw 6 inches of my pelvic bone eroded away. They did the biopsy and found myeloma. What's next?
Speaking from experience (I have MM, biopsy revealed 4 months ago), some tests for prognosis and to determine the treatment. You'll be given the choices for chemotherapy, depending on your current and existing health condition. Good luck and do not stress yourself out.
@@veronicachristopher-fellow5866 Thank you for your thoughts and prayers. My cancer markers have been going down as a result of chemotherapy and lifestyle change, especially the removal of sugar and simple carbs from my diet, eating only whole, non - processed foods and walking a lot under the sun. Still quite a ways to go, but at least progress is seen in the right direction. Hoping for the same or better results for my fellow MM patient above.
Dear Andy, Many thanks for sharing your experiences with MM you extremely gave me more and more power to keep fighting against that disease where unfortunately I got it at the age of 60 and back again right after recovery for the second time in less than one year with the same horrible symptoms, the immunology doctor treated me with “Vanked” in addition to some other drugs. The MM directly affected the performance of my kidneys as well so I’m going for renal dialysis three times a week for a certain period of time until they get back to work. I wish I go back to my normal life again soon, swimming, gym activities that I used to practice all over my life. Many thanks for the great support of my wife, friends and family and I wish if you tell us how things are by now with you right after the 6 years of recovery🌹👍
Dear Andy, Many thanks for sharing your experiences with MM you extremely gave me more and more power to keep fighting against that disease where unfortunately I got it at the age of 60 and back again right after recovery for the second time in less than one year with the same horrible symptoms, the immunology doctor treated me with “Vanked” in addition to some other drugs. The MM directly affected the performance of my kidneys as well so I’m going for renal dialysis three times a week for a certain period of time until they get back to work. I wish I go back to my normal life again soon, swimming, gym activities that I used to practice all over my life. Many thanks for the great support of my wife, friends and family and I wish if you tell us how things are by now with you right after the 6 years of recovery🌹👍
I was diagnosed with multiple myeloma in march with kidney failure. Had to have 2 blood transfusions within 3 week of eachother im very anemic. I'm fightingbtho😢 I jst turned 42 yrs old three week ago
